Eleanor Fielding

I'm sorry it's SO vexing.
Dealing with DWP under Atos plus relocating back to Devon from the SW 'NHS CFS centre of NICE excellence' in Bristol while I was working full time is how #MaeveInquest went from severe to very severe. In mould infested Devon she never recovered the baseline she'd had prior.

How is this department allowed to continue to send out such shite communication, to a vulnerable group of people - vulnerable in the sense of the MASSIVE power imbalance. Why isn't it held (audited, penalised) to a higher standard? Why is the DWP allowed to be so inhumane? It's shocking.

I hate the DWP so much. Any letter from it raises more questions than it answers. It's an abuse of power and causes unfair stress. It is never a competent, let alone helpful and kind, letter. Today I received two, near identical. Oh and a paltry £10 'Christmas bonus', I mean, ffs.

#DWP #Inept

No sudden rupture is now required for the far right to take power in this country. For what we're seeing is a steady normalisation of extremists by the Conservative and Labour Parties, BBC, Telegraph, Mail and others. A shift once considered unthinkable beings to look acceptable, even inevitable.🧵

I’m appalled to now live in a country where our racist politicians are so emboldened that they can parade their racism with no consequences. I’m worried about where we’re headed.

Westhill mum of long Covid girl invites SNP health chief to see suffering for himself Helen Goss says her daughter Anna, 12, is one of the “forgotten children” who deserve better.

A 'mum whose daughter has struggled for years with the effects of Covid is inviting SNP health secretary Neil Gray to hear her story in person at their home'
“Her room is like a hospital. She’s very sick and that’s what I want him to see.” @helen-goss.bsky.social

bit.ly/3IJ3PZY #LongCovidKids

Simon Wessely — the controversial psychiatrist once dubbed “Britain’s most hated doctor” has been appointed vice chair of Labour’s review into overdiagnosis of mental health and neurodivergence.

www.benefitsandwork.co.uk/news/controv...

Because she has bravely refused to sign for deportation, putting her in particular danger.

That's exactly why we have pushed back against GET and CBT for Long C-19.

Fine for mere mortals....

.... Poison for Long C-19 ☠️

‘Benefits’ are not a privilege, they a safety net for individuals AND for society. They protect people from starving to death AND they protect businesses from collapsing because people can keep shopping for essentials. Benefits are thus ‘ESSENTIAL’ to a functioning society.

Tories say people denied benefits in UK can return to home countries Mel Stride outlines plans to slash £47bn a year from public spending, including £23bn welfare cut

“Another part of the plan would limit benefits to people with UK citizenship, removing it even from those who have been in the country for years or even decades and have indefinite leave to remain”

If this is not xenophobia then I don’t know what is.
Sickening.
www.theguardian.com/politics/202...

Just out-mad the mad-asses! Go Gavin!

Book cover with the words Bestselling author of The Examined Life Love’s Labour by STEPHEN GROSZ They had loved and hated, but they were still a couple, still doing love’s labour

I just got this - it’s pretty hot!

Arrived today 👏🏻👏🏻‼️

Looking forward to reading it!

In the darkest hours... There are still amazing humans 💖

Oh dear!

Open Letter to the BACP magazine Therapy Today is the flagship members' publication of the British Association of Counselling and Psychotherapy. Getting a long, in depth article in there is a big deal and reaches a lot of therapists. The September issue included a long article about chronic illness, and much of it was good. The section on ME/CFS was, however, really disappointing. It platformed outdated and unscientific 'mind body' solutions, 'trauma' as an underlying cause, etc. A group of therapists and others came together with Chronic Living Therapy and wrote an Open Letter to the Editor. We've not yet had an acknowledgement, but it's published on our website. You can read it and drop me a line to be added if you wish to sign: Open Letter to the Editor, Therapy Today

From the September 2025 Chronic Living @chronicliving123.bsky.social Therapy newsletter

Open Letter to the British Association of Counselling & Psychotherapy (BACP) magazine by @lammasleaves.bsky.social et al

chroniclivingtherapy.com/open-letter-...

#MyalgicEncephalomyelitis #MEcfs #CFS #PwME

I love Humanity but I hate humans. Albert Einstein

Good one. As Einstein said…
#KindnessMatters

#micropenis #microbrain

Haven’t got time to watch it now but I hope it covers issues like symbolic cultural violence and stochastic medical cruelty. Go Habermas and representational culture!

It is indeed - and always appropriate to apologise with smiles and kindness.
PG is about to make his first (derisory!) appearance in my cartoon series - so I think we‘lo all benefit from his publicity seeking anecdote anyway.

😊

😊🤦‍♀️

Notch3 destabilizes regulatory T cells to drive autoimmune neuroinflammation in multiple sclerosis Benamar et al. demonstrate that Notch3+ Treg cells are increased in multiple sclerosis and in EAE. They are induced in the gut by microbiota and translocate to the CNS to degenerate into pathogenic Th...

Boston Children’s Hospital and collaborators studied patients with multiple sclerosis and mice.

They found that a gut-driven subset of Treg cells carrying Notch3 travel to the brain, lose their calming role, and turn into inflammatory Th17 cells.

www.cell.com/immunity/ful...

Sorry Whitney (nice to meet you btw) - as Michiel said, threads got crossed and I responded to a post on a wrong thread

I hear you’re needing rest so hope this settles the problem that I inadvertently caused. Best wishes for a speedy recovery 🙏💙.

“I have been involved in >200 cases where children have been subject to Child Protection procedures and threatened with removal from their families in such circumstances. These cases could be seen as 'child abuse by professionals'. (2)”

So good to see this in print after so very long!

This is brilliant. Thanks Tom

References (1) Brain scans indicate a reduced blood flow (hypoperfusion) that has not been demonstrated in any other medical condition: Costa D et al. (1995) Brainstem perfusion is impaired in chronic fatigue syn-drome. QJM. 88, 11, 767-773. https://doi.org/10.1093/oxfordjournals.qjmed.a069004 Ichise M et al. (1992) Assessment of regional cerebral perfusion by 99Tcm- HMPAO SPECT in chronic fatigue syndrome. Nuclear Medicine Communications. 13, 10, 767-772. https://doi.org/10.1097/00006231-199213100-00011 Tirelli U et al. (1998) Brain positron emission tomography (PET) in chronic fa-tigue syndrome: preliminary data. American Journal of Medicine. 105, 3A, 54S-58S. https://doi.org/10.1016/S0002-9343(98)00179-X (2) Child abuse by professionals? “Parents are accused of life-threatening neglect by letting their children rest in isolation. This attitude, however, ignores the interna-tional consensus definition of ME/CFS as a serous somatic disorder in which over-exertion may have long-lasting or even permanent detrimental effects. To my knowledge, removing such patients from their parents has never been proven to be effective therapeutically. To the contrary, such non-evidence based practice has been shown to contribute much harm and should not be accepted.” Saugstad, OD. (2020) Editorial: Myalgic Encephalomyelitis (ME) in the Young. Time to Repent. Acta Paediatrica, vol. 109, no. 4, pp. 645–46. https://doi.org/10.1111/apa.15084 (3) Positive reports of naltrexone: “A positive treatment response to LDN was report-ed by 73.9% of the patients. Most patients experienced improved vigilance/alertness and improved physical and cognitive performance. Some patients report-ed less pain and fever…” Polo, Olli, et al. (2019) Low-Dose Naltrexone in the Treatment of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS). Fatigue: Biomedi-cine, Health & Behavior, vol. 7, no. 4, pp. 207–17. https://doi.org/10.1080/21641846.2019.1692770 (4) Severe gastro-intestinal problems and the p…

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"Myalgic Encephalomyelitis in Childhood: How the Paediatrician Can Help" by Nigel Speight

This useful 8-page document was handed out at ME Action stall at March 2025 Royal College of Paediatrics & Child Health Conference

#MyalgicEncephalomyelitis #PwME

I got the email. Sorry having a severe immune reaction to a med. Not doing well. Love and thanks for the heads up from the community 💙🙏

I go from zero to block in 2 seconds. I don’t ever wander through the Elysian Fields of ‘mute’ and thus I find social media is a nice place to be (possibly because of this?)

Oh gosh - sorry! I did think you meant PG. I think Whitney is robust enough to survive the joke though.