Advocates for Collaborative Education

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Join us tomorrow for a #SaveRareCancerResearch toolkit presentation by ACE member Dana Deighton. If you're an cancer advocate but not already a member of ACE, we'd love to have you - learn more at advocatecollaborative.org

Fabulous conversation today around advocacy expertise and compensation in our monthly meeting! Excited to gather additional perspectives and share those insights to strengthen the role of patient advocacy across community, research, industry, and policy work.
#CanSky #OncoSky #PatientAdvocacy

Patient advocates are generally underutilized in research and definitely under compensated - this will be a topic of discussion and exploration in our next general meeting on September 11th 10amPT/1pmET - invites should be in your inboxes!

Our next general meeting is August 14th 10amPT/1pmET - invites should be in your inboxes!
If you're a patient, research, policy, community advocate - or thinking about exploring cancer advocacy - please consider joining us. All cancers, all stages, all experiences welcome.

forms.gle/DrRyEKJG2JJ6...

Join us for a mid-summer update on our projects, our publications & presentations, our sponsors, and ways you can become more involved in @advocatecollab.bsky.social
All members should have an invite for July 17th at 10amPT / 1pmET. If you're not yet a member, join us here forms.gle/VWT7MZHEc5qh...

"Common and uncommon toxicities: Perspectives and solutions from patient partners"
Excited to hear from @scottcapozza.bsky.social @evaschumacherwulf.bsky.social @doublewhammied.bsky.social & others

And then to share our @advocatecollab.bsky.social research #MASCC25

Thank you Karen for sharing more about the value of (and need for) DPD deficiency testing prior to treatment with Fluorouracil (5-FU) and/or Xeloda (Capecitabine) with our members. Anyone can learn more at test4dpd.org
#crcsm #bcsm #pancsm #CanSky #OncSky

Image of a magnifying glass over what looks to be a heat map with a white bubbly version of a double helix showing through

REMINDER to @advocatecollab.bsky.social members:
Please join us tomorrow 3/6 at 10amPT/1pmET for a presentation by Karen Merritt on the DPYD gene and the value of, and the need for, DPD deficiency testing before fluoropyrimidine chemotherapy #CanSky #OncSky #PatientAdvocacy

Image of a slide with the text "Town Hall: One Month into a New US Administration. February 20, 2025)" and the logo for Advocates for Collaborative Education which is a fancy "A" with a green top and a blue bottom.

Reminder we are hosting a Town Hall today for @advocatecollab.bsky.social members at 10amPT / 1pmET to discuss impacts of the new administration on our advocacy. What we know, what we still need to find out, and how best to move forward. #CanSky #OncSky #PatientAdvocacy #CancerResearch

So grateful to see our board secretary on The Hill amplifying the messages of the cancer community on this #WorldCancerDay

#UnitedByUnique and #UnitedInUrgency #CanSky

#WorldCancerDay
#UnitedByUnique #UnitedInUrgency #CanSky #OncoSky

Gentle reminder to advocates everywhere:
We EXIST as patient, community, research, and policy advocates because the system(s) didn't meet everyone's needs, because science was moving too slowly, because the process didn't include adequate representation.
In other words, we do hard shit all day long

Hi there Ginny, link was in the invite - we missed you. Will follow up via email.

DYK when you google Medical Aid in Dying or Death with Dignity, the first search item that pops up is the National Suicide Hotline?
Please join us today for an ACE conversation with advocate @amjohnston.bsky.social about what Medical Aid in Dying really involves & why it exists #CanSky #PallOnc

REMINDER: ACE Meeting on cancer vaccines today 1pmPT / 4pmET. Join us to hear from advocate & ACE member Judy Fitzgerald as she shares her experience as an advocate on current vaccine trials. As always presentation will be short so bulk of the time can be spent on Q&A / discussion #OncoSky #Advocacy

Wonderful to kick off the new year by reconnecting with some of our advocates to discuss the evolution of the organization, upcoming presentations, and continued needs across patient, research, and policy advocacy.
#CanSky #OncoSky

True shared decision-making requires education and includes informed discussion on risks/benefits as well as IMPACT on quality-of-life. #CanSky #OncoSky #QoL

Spent 90 mins on the #SABCS24 stage, interjecting the advocacy perspective in "From the Trenches" yesterday. It was these voices, and so many others not pictured, that I channeled. Grateful to have them by my side literally & figuratively 💗

ICYMI
"We must rethink how we define progress in oncology"
#Oncosky #Cansky #Pallonc

Thank you @coffeemommy.bsky.social !
#WordsMatter #oncsky #ListenToAdvocates @advocatecollab.bsky.social
#oncologynursing

Love, love, LOVE how #advocate extraordinaire @coffeemommy.bsky.social of @advocatecollab.bsky.social
reminds the moderator, the panel, and the audience that #WordsMatter - “deescalation” sounds like “you don’t matter, we’ll do less” so preferred terminology is “right-sizing”. #SABCS24

We finally made it to Instagram!
We meet virtually, but every now and again, the stars align, and some of us can connect at events in person! In honor of our first IG post, here is a throwback to our first face-to-face at ASCO in 2023 🎉 #CanSky #PatientAdvocacy
www.instagram.com/advocatecoll...

Are you a #cancer Patient, Research, Policy or Community advocate? Are you a person diagnosed w/ (or history of) cancer interested in advocacy but not sure where to start? We need your voice & would love to have you join us! #Cansky #oncosky #patientadvocacy
advocatecollaborative.org/join-us/

It's our first #GivingTuesday as a non-profit 🎉

At Advocates for Collaborative Education, we are on a mission to unite and empower advocates through pan-cancer collaborations, advocacy education, and the sharing of best practices.
If you're so inclined, we would love your support! #PatientAdvocacy

Check out @advocatecollab.bsky.social. They have a list of cancer advocates who are now on bluesky. #oncsky

Oooh! Here we have @advocatecollab.bsky.social advocates "collabing" in the wild!

Thanks Janet - Here it is: go.bsky.app/2CrWvVs

#OncSky #Oncosky #ASCO #PallOnc #SuppOnc looking for a patient advocate partner for a meeting speaker, grant, event, or research? Highly recommend following @advocatecollab.bsky.social – advocates across all cancer types striving to unite and empower cancer advocates

Thanks Eric! We're still trying to navigate this new space (our #hashtags seem a little less effective here) but excited to see all the new/old faces over here. Hoping ASCO AACR SABCS ISALC, etc. make presences here too!

Yay! Glad you're here