MAD LIBS TIME!
βoh, look! Iβm sitting in my own ___________β
@harriseve.bsky.social
retired UCSF patient navigator 20 years NED & counting feminist AF #medicine #patientadvocacy #healthpolicy #cancer #womenshealth + random lib stuff
MAD LIBS TIME!
βoh, look! Iβm sitting in my own ___________β
β¦and LISTENING to my truthful response!
04.11.2025 04:40 β π 1 π 0 π¬ 0 π 0The misogyny is on brand
04.11.2025 03:28 β π 0 π 0 π¬ 0 π 0Oh! I thought that was going to end βwas appointed to a top position at HHSβ
04.11.2025 02:56 β π 1 π 0 π¬ 1 π 0π
Washington Heights officer making my love come down
Look, he (finally) grew π!
03.11.2025 19:44 β π 0 π 0 π¬ 0 π 0Umm, beyond our trips to Orlando, donβt we also use planes to urgently ship medicine? and food and cargo and stuff?
03.11.2025 19:01 β π 8 π 0 π¬ 0 π 0π
03.11.2025 18:58 β π 0 π 0 π¬ 1 π 0Yikes! Iβve been out of the game a long time. Iβll keep looking.
APHA used to be helpfulβ¦
To the extent that the information corresponds with what I can glean from NCCN, it is accurate. But the very fact that it was machine written casts doubt, does it not?
03.11.2025 18:04 β π 1 π 0 π¬ 1 π 0WTF
03.11.2025 18:02 β π 3 π 0 π¬ 0 π 0Link? Cite?
03.11.2025 18:00 β π 0 π 0 π¬ 0 π 0I am helping a friend navigate a very serious diagnosis. Today he sent me a long article full of medical terminology.
Iβm almost certain that it was written β at least in part β by AI.
It contains no links; no actual news (although it is undated as received)
The βvoiceβ is creepy AF!
#oncosky
ββ¦projectsβ¦designed more for optics than for families. 
What patients truly need is not symbolic gestures but better access to care, tools to manage their conditions, and investment in research.β
#patientadvocacy
#Medsky
WORD
03.11.2025 00:48 β π 0 π 0 π¬ 0 π 0(former UCSF PIO here) π
02.11.2025 18:56 β π 1 π 0 π¬ 2 π 0YES
with one note: please be all your research β including  any βresourcesβ you share with the doctor β are from scrupulously reliable sources.
Blue on white infographic reads: "BUILDING YOUR MEDICAL TEAM: A PATIENT CHECKLIST." There are seven tips, each with a green checkmark: Describe your daily life clearly: Tell doctors about your pain, fatigue, GI issues, and daily limitations. Use relatable examples: Compare your challenges to things doctors know (like having the flu). Ask trusted doctors for referrals: βWho would you send your own child to?β is a powerful question. Stay focused in appointments: Bring a short, organized list of issues related only to that doctorβs specialty. Share helpful resources: Provide links to articles or presentations. If theyβre not interested, consider moving on. Donβt overlook younger doctors: Theyβre often eager to learn and open-minded. Use your support network: Ask local groups and friends. There are small illustrations including a thermometer, clipboard, doctor, group of people. "www.chronicpainpartners.com" and in the top right corner is a logo for EDS Awareness (Ehlers-Danlos Syndromes).
Building a Supportive and Caring Medical Team No Matter Where You Live - guest post by Jon Rodis
buff.ly/yZJQeDw
#EDS #EhlersDanlosSyndrome #Hypermobility #HSD #hEDS #Spoonies #Zebras #Patients #ChronicIllness #NEISvoid #MedSky
Except for that one woman in the New York Times today. Whatβs up with that?!
#IVF
I request a βcrazedβ supercut: our peeps receiving academic accolades, helping the poor and demonstrating valor vs tRumpβs word salad
02.11.2025 15:42 β π 0 π 0 π¬ 0 π 0Fucking Brilliant
02.11.2025 03:47 β π 0 π 0 π¬ 0 π 0Given how much my stepsister slept around, Iβm sure I could be linked to criminals in three
02.11.2025 00:26 β π 0 π 0 π¬ 0 π 0This sounds like a cry for help
02.11.2025 00:06 β π 1 π 0 π¬ 0 π 0After some early 20th C immigrant forebearers, I still have β‘οΈ family in your region. Sad to hear your assessment.
01.11.2025 19:38 β π 0 π 0 π¬ 1 π 0ββ¦because risking oneβs life by crossing the desert to flee from a murderous gang is a far more serious crime than trafficking teenage girls for sex, or manipulating the stock market, or taking huge bribes.β
01.11.2025 16:54 β π 0 π 0 π¬ 0 π 0omg just seeing thisβ¦
Verrrrry grateful to the California taxpayers whose generosity provides me with affordable healthcare (as a UC retiree)
But these MAGA mofos make me wanna scream! No, puke. Scream, THEN puke. And cry.
Your sense of humor survived the trauma! We are grateful ππΌ
01.11.2025 04:35 β π 3 π 0 π¬ 0 π 0Iβm so glad that treatment was effective! π
31.10.2025 23:13 β π 13 π 0 π¬ 0 π 0