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HarrisEve

@harriseve.bsky.social

retired UCSF patient navigator 20 years NED & counting feminist AF #medicine #patientadvocacy #healthpolicy #cancer #womenshealth + random lib stuff

811 Followers  |  1,127 Following  |  1,983 Posts  |  Joined: 16.11.2024  |  2.5942

Latest posts by harriseve.bsky.social on Bluesky

MAD LIBS TIME!
β€œoh, look! I’m sitting in my own ___________”

04.11.2025 05:33 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

…and LISTENING to my truthful response!

04.11.2025 04:40 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

The misogyny is on brand

04.11.2025 03:28 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Oh! I thought that was going to end β€œwas appointed to a top position at HHS”

04.11.2025 02:56 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

😍
Washington Heights officer making my love come down

03.11.2025 19:55 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Look, he (finally) grew πŸ’!

03.11.2025 19:44 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Umm, beyond our trips to Orlando, don’t we also use planes to urgently ship medicine? and food and cargo and stuff?

03.11.2025 19:01 β€” πŸ‘ 8    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

πŸ’€

03.11.2025 18:58 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
framing 101 - Berkeley Media Studies Group framing From addressing sexual violence prevention to targeted junk food marketing to health equity, much of our work at BMSG centers around a concept known as framing. When we conduct research or pro...

The OGs!

03.11.2025 18:56 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Yikes! I’ve been out of the game a long time. I’ll keep looking.
APHA used to be helpful…

03.11.2025 18:51 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

To the extent that the information corresponds with what I can glean from NCCN, it is accurate. But the very fact that it was machine written casts doubt, does it not?

03.11.2025 18:04 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

WTF

03.11.2025 18:02 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Link? Cite?

03.11.2025 18:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I am helping a friend navigate a very serious diagnosis. Today he sent me a long article full of medical terminology.
I’m almost certain that it was written – at least in part – by AI.
It contains no links; no actual news (although it is undated as received)

The β€œvoice” is creepy AF!
#oncosky

03.11.2025 17:59 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Preview
The big flaw in Big Pharma's 'patient advocacy' When Big Pharma ties its corporate social responsibility initiatives to patients' needs, too often it veers into theater.

β€œβ€¦projects…designed more for optics than for families.

What patients truly need is not symbolic gestures but better access to care, tools to manage their conditions, and investment in research.”

#patientadvocacy
#Medsky

03.11.2025 16:06 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

WORD

03.11.2025 00:48 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

(former UCSF PIO here) πŸ™‚

02.11.2025 18:56 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 2    πŸ“Œ 0

YES
with one note: please be all your research β€” including any β€œresourcesβ€œ you share with the doctor β€” are from scrupulously reliable sources.

02.11.2025 18:28 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Blue on white infographic reads: "BUILDING YOUR MEDICAL TEAM: A PATIENT CHECKLIST." There are seven tips, each with a green checkmark:
Describe your daily life clearly: Tell doctors about your pain, fatigue, GI issues, and daily limitations.
Use relatable examples: Compare your challenges to things doctors know (like having the flu).
Ask trusted doctors for referrals: β€œWho would you send your own child to?” is a powerful question.
Stay focused in appointments: Bring a short, organized list of issues related only to that doctor’s specialty.
Share helpful resources: Provide links to articles or presentations. If they’re not interested, consider moving on.
Don’t overlook younger doctors: They’re often eager to learn and open-minded.
Use your support network: Ask local groups and friends.
There are small illustrations including a thermometer, clipboard, doctor, group of people. "www.chronicpainpartners.com" and in the top right corner is a logo for EDS Awareness (Ehlers-Danlos Syndromes).

Blue on white infographic reads: "BUILDING YOUR MEDICAL TEAM: A PATIENT CHECKLIST." There are seven tips, each with a green checkmark: Describe your daily life clearly: Tell doctors about your pain, fatigue, GI issues, and daily limitations. Use relatable examples: Compare your challenges to things doctors know (like having the flu). Ask trusted doctors for referrals: β€œWho would you send your own child to?” is a powerful question. Stay focused in appointments: Bring a short, organized list of issues related only to that doctor’s specialty. Share helpful resources: Provide links to articles or presentations. If they’re not interested, consider moving on. Don’t overlook younger doctors: They’re often eager to learn and open-minded. Use your support network: Ask local groups and friends. There are small illustrations including a thermometer, clipboard, doctor, group of people. "www.chronicpainpartners.com" and in the top right corner is a logo for EDS Awareness (Ehlers-Danlos Syndromes).

Building a Supportive and Caring Medical Team No Matter Where You Live - guest post by Jon Rodis

buff.ly/yZJQeDw

#EDS #EhlersDanlosSyndrome #Hypermobility #HSD #hEDS #Spoonies #Zebras #Patients #ChronicIllness #NEISvoid #MedSky

29.10.2025 14:07 β€” πŸ‘ 9    πŸ” 5    πŸ’¬ 0    πŸ“Œ 3
Video thumbnail
02.11.2025 18:19 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Except for that one woman in the New York Times today. What’s up with that?!
#IVF

02.11.2025 16:28 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I request a β€œcrazed” supercut: our peeps receiving academic accolades, helping the poor and demonstrating valor vs tRump’s word salad

02.11.2025 15:42 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Fucking Brilliant

02.11.2025 03:47 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Given how much my stepsister slept around, I’m sure I could be linked to criminals in three

02.11.2025 00:26 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

This sounds like a cry for help

02.11.2025 00:06 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

After some early 20th C immigrant forebearers, I still have ✑️ family in your region. Sad to hear your assessment.

01.11.2025 19:38 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

β€œβ€¦because risking one’s life by crossing the desert to flee from a murderous gang is a far more serious crime than trafficking teenage girls for sex, or manipulating the stock market, or taking huge bribes.β€œ

01.11.2025 16:54 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

omg just seeing this…
Verrrrry grateful to the California taxpayers whose generosity provides me with affordable healthcare (as a UC retiree)
But these MAGA mofos make me wanna scream! No, puke. Scream, THEN puke. And cry.

01.11.2025 04:57 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Your sense of humor survived the trauma! We are grateful πŸ™πŸΌ

01.11.2025 04:35 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I’m so glad that treatment was effective! πŸŽ‰

31.10.2025 23:13 β€” πŸ‘ 13    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

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