Advocate for NeuroSjogrens & assorted other chronic illnesses. Posts articles & re-posts items this acct is interested in. Advocacy rather than advice.
she/her
Programmer, biennial author, FFXIV player, reads lots of books
I like cats. I have 4 cats. I also like dogs, horses, mice, rats, bats, etc. Get the pic? I like animals. Lots of animal reposts because spread the happy.
Lived in NYC for 35 years, Maine for 7 years, now on my homestead in Salisbury, VT. Old but not grumpy. Brit Pop fan, Oasis, Blur, Muse. Sjogren's warrior, patient advocate, animal lover. X trolls will be deleted.
Arthritis Dietitian | Living with Sjogren's/RA | Speaker | Blogger | Views my own 🇨🇴🇨🇦
Thinker. Writer. Human 🍉
https://linktr.ee/WrittenResilience
I'm new to Bluesky...be patient with me. I'm a patient advocate, co-group leader of a support group. Mom and grandma, pet mom. #Adoptdontshop #spayneuter #sjogrens #invisibleillnesses
RN learning to live well with RA, EDS, HaT, dysautonomia, CKD, Sjogren’s, and vasculitis.
Account no longer in use, but not sure about deleting so parked for now.
Too old and too tired to put up with bullshit. Reader, Sjogren's/Fibromyalgia Warrior, Dog/Cat Foster Mom, #FreeMomHugs🌈
Writer (London, UK)
Currently researching and writing non-fiction, fiction and poems about knowledge and autoimmune diseases.
Personal website: http://www.pantarei.it
Contact email: icm2re @ gmail.com
Española learning and sharing about Sjögren'sD. Con NeuroSjögren desde 2023
Follower of Jesus, Cranky Old Broad, Mennonite mom&wife, lover of books, world, peo, poetry & art. Disabled Spoonie🥄(MCTD, RA, Sjogrens, PH) Fierce Mama Bear 🏳️🌈 of lesbian daughter (32) and pan & autistic son(28) 🖤🤎❤️🧡💛💚💙💜
Retired, progressive, dog lover, gym rat, humanist, grandmother. Also way too outspoken -- I've been told.
Institute Fellow & Co-Director Disability Equity Policy Initiative @UrbanInstitute. Views my own.
We are the leading non-profit advocating for over 70M people around the world living with autonomic nervous system disorders. Research, Clinician Education, Patient Empowerment, Public Awareness & Advocacy is what we do. DysautonomiaInternational.org
Climate action | Nature | Water-Energy-Food | Sustainability | Wildlife | Innovation | Writing about the beauty of our planet on: https://theplanet.substack.com
Medical educator, MD-patient.
I debunk Sjögrens myths.
www.sjogrensadvocate.com - I show people with Sjogren's how to use credible resources to advocate for timely diagnosis and comprehensive care for this complex, multisystem disease.
