Jan Hempstead's Avatar

Jan Hempstead

@jancmrn.bsky.social

RN learning to live well with RA, EDS, HaT, dysautonomia, CKD, Sjogren’s, and vasculitis.

88 Followers  |  107 Following  |  15 Posts  |  Joined: 04.12.2024  |  1.9086

Latest posts by jancmrn.bsky.social on Bluesky

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When Friends Leave Because You Are Sick When I was initially diagnosed with my first chronic, genetic disease, I was still quite functional.

If you are chronically ill, did your friends leave or stand by your side? janrn.substack.com/p/when-frien...

19.08.2025 16:28 — 👍 2    🔁 0    💬 0    📌 0
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What If You Could No Longer Eat When I was a younger nurse, working in the hospital, I had occasionally taken care of patients who had traumatic injuries.

For the last 6 weeks, I haven’t been able to eat… janrn.substack.com/p/what-if-yo...

23.07.2025 18:57 — 👍 1    🔁 0    💬 0    📌 0
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Rewriting the Narrative: Chronic Illness and the Power of Outlook When I was a young nurse working in the hospital, we would often have patients who would return to our unit many times.

janrn.substack.com/p/rewriting-...

30.06.2025 00:46 — 👍 1    🔁 0    💬 0    📌 0
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The Power of Self-Advocacy in a 15-Minute Healthcare World Let me start by clarifying that I truly respect my physician colleagues.

open.substack.com/pub/janrn/p/...

18.06.2025 16:17 — 👍 0    🔁 0    💬 0    📌 0
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It Started With This One Little Boy Thirty seven years ago, our family made the 3 hour car ride down to Manhattan to what was then called the Joint Disease Hospital.

open.substack.com/pub/janrn/p/...

10.06.2025 18:34 — 👍 1    🔁 0    💬 0    📌 0
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The Complex Patient: Surviving a System That Wasn’t Built for Us A friend convinced to switch my major in college from social work to nursing.

janrn.substack.com/p/the-comple...

05.06.2025 17:53 — 👍 0    🔁 0    💬 0    📌 0

I did. I knew I had Ehlers Danlos syndrome (EDS) then, but not autoimmune diseases. I was younger and thought I could manage anything. I had pain since I was young so I was used to that.

30.05.2025 16:51 — 👍 3    🔁 0    💬 1    📌 0
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I’ve Been Training For This When I started college the second time, I wanted to be a social worker, but life’s circumstances led me to another path.

open.substack.com/pub/janrn/p/...

24.05.2025 23:12 — 👍 2    🔁 0    💬 1    📌 0
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My Faithful Friend Do you have a special friend who will listen to anything you have to say?

open.substack.com/pub/janrn/p/...

19.05.2025 19:25 — 👍 0    🔁 0    💬 0    📌 0
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Finding My Voice After a Lifetime of Listening I’ve been reading and listening for a while now.

open.substack.com/pub/janrn/p/...

18.05.2025 20:45 — 👍 1    🔁 0    💬 0    📌 0

If a single physician legislator votes to confirm Dr Casey Means as surgeon general I am reporting them. I am going to file a complaint with their state medical board. If they confirm her they are supporting dangerous misinformation

I am 100% serious, and I invite anyone else to do the same.

11.05.2025 07:16 — 👍 5    🔁 2    💬 0    📌 0

🪪 𝐖𝐡𝐚𝐭 𝐢𝐬 teamcubancard.com?
Team Cuban Card is a free program that brings the same transparent pricing you know from Cost Plus Drugs to local pharmacies across the country. Just download your card, check available medications, and find a participating pharmacy near you.

01.05.2025 20:44 — 👍 40    🔁 11    💬 1    📌 0
S8, Ep 13- What Sjögren’s Really Looks Like: Cristina Montoya on Living, Advocating, and Educating
YouTube video by CreakyJoints S8, Ep 13- What Sjögren’s Really Looks Like: Cristina Montoya on Living, Advocating, and Educating

Excellent #Sjogrens interview by fellow #Sjogrens patient advocate by Cristina Montoya @arthritisdietitian.bsky.social @creakyjoints.bsky.social youtu.be/DpJg62rRkI4?...

02.05.2025 16:59 — 👍 3    🔁 2    💬 0    📌 0
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Assemblymember Chantel Jackson once had questions about Death with Dignity. But after hearing stories of New Yorkers suffering at the end of life, she co-sponsored the bill. “That’s what made me decide I need to be a co-sponsor.” Hear her story: tinyurl.com/4h8ym3dn

04.05.2025 22:43 — 👍 6    🔁 3    💬 0    📌 0
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Geoff Sugerman, Death with Dignity's Campaign Strategist who helped pass the first Death with Dignity law, explains NY’s historic bill and what it means for families: tinyurl.com/4kasnfz5

04.05.2025 22:43 — 👍 5    🔁 4    💬 0    📌 0

Wow, they really wanted ALL their money. That sucks.

07.05.2025 23:41 — 👍 0    🔁 0    💬 0    📌 0

Why didn’t it work? I saw how much furniture you had and there was supposed to be 3 guys.

07.05.2025 01:05 — 👍 1    🔁 0    💬 1    📌 0
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The sad truth.

22.04.2025 19:03 — 👍 775    🔁 200    💬 30    📌 8
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On #NationalHealthcareDecisionsDay, put yourself at the center. Our free Life File toolkit makes end-of-life planning simple—so your wishes are clear and your loved ones aren’t left guessing. It’s a gift to your future self and your loved ones. tinyurl.com/y2f2w9ns

16.04.2025 16:04 — 👍 1    🔁 1    💬 0    📌 0
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Harvard faculty member here.

Every one of my colleagues is deeply committed to making our country better, stronger, healthier.

The students, researchers & clinicians I know all work tirelessly - often through the night, weekends, cutting into time with family - because they want to serve. 1/

16.04.2025 16:06 — 👍 70    🔁 3    💬 1    📌 1

I cannot convey enough how grateful I am to the millions of you all supporting us with your time, resources, and energy.

Your support has allowed us to rally people together at record scale to organize their communities.

All with an average donation of $21.

THANK YOU & Pa’lante 🙏🏽♥️

15.04.2025 17:47 — 👍 73872    🔁 9047    💬 1268    📌 256
Autism is not a disease. #autism #doctor #shorts
YouTube video by Dr. Zachary Rubin Autism is not a disease. #autism #doctor #shorts

Listen to Dr. Rubin, not RFKjr's propaganda and manipulation.
www.youtube.com/shorts/ySVcN...

16.04.2025 10:32 — 👍 368    🔁 151    💬 17    📌 8
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Judge: 'Probable cause' to hold U.S. in contempt over Alien Enemies Act deportations The government sent several planeloads of alleged gang members to El Salvador, including 137 people under the act, the White House said at the time.

JUST IN: Judge finds 'probable cause' to hold U.S. in contempt over Alien Enemies Act deportations

16.04.2025 16:43 — 👍 38001    🔁 8196    💬 1242    📌 565
Just landed in El Salvador to discuss release of Kilmar Abrego Garcia
YouTube video by Senator Chris Van Hollen Just landed in El Salvador to discuss release of Kilmar Abrego Garcia

I just landed in San Salvador a little while ago, and I look forward to meeting with the team at the U.S. embassy to discuss the release of Mr. Abrego Garcia.

I also hope to meet with Salvadoran officials and with Kilmar himself. He was illegally abducted and needs to come home.

16.04.2025 15:32 — 👍 47355    🔁 10329    💬 2843    📌 1000

This is the answer. Stand together.

15.04.2025 11:23 — 👍 7256    🔁 1475    💬 128    📌 52
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BREAKING: El Salvador Won't Return Kilmar Abrego Garcia, and Trump Won't Bring Him Back We have breaking news, and it should shake every American to their core.

BREAKING: El Salvador Won't Return Kilmar Abrego Garcia, and Trump Won't Bring Him Back.

A stunning back and forth in the Oval Office. I have the latest: open.substack.com/pub/aaronpar...

14.04.2025 16:17 — 👍 462    🔁 149    💬 52    📌 14
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Egg Prices Soar to Record Highs as Apple Works to Import 600 Tons of IPhones Egg prices soar to record highs, Apple is rushing to import 600 tons of IPhones from India because of tariffs, inflation has fallen, the House will vote on a budget bill and the SAVE Act, and more

NEWS: Egg prices soar to record highs, Apple is rushing to import 600 tons of IPhones from India because of tariffs, inflation has fallen, the House will vote on a budget bill and the SAVE Act, and more. open.substack.com/pub/aaronpar...

10.04.2025 14:00 — 👍 339    🔁 49    💬 13    📌 2
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Just a kid living out his dream

06.04.2025 01:29 — 👍 3945    🔁 122    💬 52    📌 5

🧵Masked ICE thugs attempted to abduct the school nurse at Cooke Elementary School, located in the densely populated Adams Morgan section of DC. Workers at the school intervened, demanding a warrant and holding up their phones and ICE scurried off without making their arrest.

29.03.2025 23:26 — 👍 14570    🔁 4317    💬 416    📌 480

Law firms who do not have the courage to advocate for themselves, cannot be trusted to advocate for others.

30.03.2025 13:09 — 👍 2079    🔁 618    💬 37    📌 36

@jancmrn is following 20 prominent accounts