#IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency #chronicillness #Igtherapy
10.02.2026 17:56 — 👍 1 🔁 1 💬 0 📌 0
Graphic promoting the IgNS Patient Experience Survey, featuring the Immunoglobulin National Society logo, a person holding a pen while using a laptop, checklist icons overlaid on the screen, and text reading “IgNS Patient Experience Survey” and “Share Your Experience. Make an Impact.”
IgNS invites patients using Ig therapy to participate in a confidential, anonymous survey that helps inform patient education and support resources. The survey takes about 10 minutes to complete. bit.ly/4cgwl1i Thank you for taking the time to share your perspective!
10.02.2026 17:56 — 👍 2 🔁 2 💬 1 📌 0
#MultifocalMotorNeuropathy #MMN #MMNAwarenessMonth #PatientSupport
02.02.2026 19:27 — 👍 0 🔁 0 💬 0 📌 0
Immunoglobulin National Society recognizes February as Multifocal Motor Neuropathy Awareness Month with a blue ribbon.
This and every Multifocal Motor Neuropathy Awareness Month, IgNS stands with the MMN community! We are committed to supporting patients, families, and caregivers through trusted education, awareness, and resources that promote understanding, connection, and support across the care journey.
02.02.2026 19:26 — 👍 0 🔁 0 💬 1 📌 0
Promotional graphic for the Patient 360 Virtual Conference, March 7 to 8, 2026. Session Spotlight titled “Neurology and Immunology: Unraveling Complex Neurological Disorders,” featuring expert speaker Ariel Marks, MD, Assistant Professor of Neurology at Boston University Chobanian and Avedisian School of Medicine. The session highlights how immune system problems can affect the brain, spine, and nerves, common neurological conditions in autoimmune disease, and symptoms patients can discuss with their care team.
What do neurology and the immune system have in common? In this free #Patient360 session, Dr. Ariel Marks explores how conditions like CVID and lupus impact the brain and nerves. Join us March 7–8 to learn what to look for and how to navigate care: bit.ly/4pW40kz #Patient360
29.01.2026 20:48 — 👍 1 🔁 0 💬 0 📌 0
We're excited to have you join us! 😀
28.01.2026 17:52 — 👍 0 🔁 0 💬 0 📌 0
#patienteducation #patient360 #IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency #chronicillness #Igtherapy #biologics
27.01.2026 19:11 — 👍 0 🔁 0 💬 0 📌 0
Promotional image for the Patient 360 Virtual Conference, taking place March 7–8, 2026. At the top, the Patient 360 and IgNS logos are displayed with the event dates and “Virtual Conference” label. Bold text reads “Register Today” followed by three colored sections:
1. Green - CONNECT: Icon of two people talking. Text: “Connect with other patients, clinicians, support teams, and more.”
2. Pink - LEARN: Icon of a notepad and pencil. Text: “Meet the experts and explore your diagnosis, treatment options, wellbeing, stress management, and more.”
3. Blue - SUPPORT: Icon of a group of people. Text: “Bring your support system and discover the resources available to you.”
At the bottom left, the message reads: “Registration is FREE for patients, families, caregivers, and friends. Register Today!” On the right, an image shows a smiling Black father sitting with two young daughters, all looking at a laptop together.
Community makes a difference in care. Join Patient 360, a free virtual event for patients, families, and caregivers. Connect with others who understand, ask questions, and hear real stories about living with Ig and biologic therapies. Register today and learn more: bit.ly/4pW40kz
27.01.2026 19:11 — 👍 1 🔁 0 💬 1 📌 0
#patienteducation #patient360 #IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency #chronicillness #Igtherapy #biologics
22.01.2026 19:37 — 👍 0 🔁 0 💬 0 📌 0
Patient 360 Virtual Conference promotional graphic for the session titled “Relationships and Intimacy With Chronic Illness,” happening March 7–8, 2026. The graphic highlights the session spotlight with expert speaker Lee Phillips, Ed.D., LCSW, CST, CSCT, CPST — a psychotherapist and sex therapist at Lee Phillips, LLC.
The session is designed to help patients strengthen their relationships while managing chronic illness. It features three key learning objectives, each shown in a bold colored bar with a checkmark icon:
1. Learn how to talk openly about your needs, boundaries, and feelings with the people you care about.
2. Explore ways to stay emotionally and physically connected, even when health challenges get in the way.
3. Build tools that support strong, healthy relationships while managing life with chronic illness.
At the bottom, the graphic reminds viewers: “Registration is FREE for patients, families, caregivers, and friends. Register Today!”
Includes Patient 360 and IgNS branding, and uses a friendly, professional tone and vibrant colors to emphasize empowerment and connection.
Living with chronic illness can affect how you connect with the people you love. In this Patient 360 session, Dr. Lee Phillips shares ways to express your needs, support healthy intimacy, and strengthen emotional bonds. Free and virtual! bit.ly/4pW40kz
22.01.2026 19:37 — 👍 0 🔁 0 💬 1 📌 0
#patienteducation #patient360 #IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency #chronicillness #Igtherapy #biologics
15.01.2026 18:25 — 👍 0 🔁 0 💬 0 📌 0
Promotional graphic for the Patient 360 Virtual Conference, March 7–8, 2026. Session spotlight titled “Navigating Health Information Online: How to Help Patients Avoid Inaccurate Information,” featuring expert speaker Brian Southwell, PhD, Distinguished Fellow at RTI International. The graphic highlights learning goals including understanding why health information can be confusing, learning how to tell if online health content is trustworthy, and feeling more confident talking with friends or family about questionable health information. Registration is free for patients, families, caregivers, and friends.
From social media posts to headlines and advice from friends, health info is everywhere, but not all of it is reliable. This Patient 360 session explores how to spot trustworthy sources, ask the right questions, and feel more confident navigating your care. Register for free today! bit.ly/4pW40kz
15.01.2026 18:24 — 👍 3 🔁 0 💬 2 📌 0
#IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency
26.12.2025 17:22 — 👍 0 🔁 0 💬 0 📌 0
A happy family of all ages hugs and laughs together in front of a Christmas tree. Festive icons (gift, candy cane, ornament) appear above them, along with “Patient 360 Virtual Conference, March 7–8, 2026.”
We know how important it is to feel confident in your care. 💙 Join us March 7–8 for #Patient360, a free, virtual event with expert-led sessions, real tools, and supportive community to guide your treatment journey. 🔗 bit.ly/P360-2026
#IgNS #immunoglobulin #biologics #RareDisease #AutoimmuneDisease
26.12.2025 17:21 — 👍 0 🔁 0 💬 1 📌 0
#immunoglobulin #IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency
24.12.2025 17:55 — 👍 0 🔁 0 💬 0 📌 0
A stylized holiday greeting featuring a geometric Christmas tree made of colorful square icons arranged in a triangular shape. Each square contains festive imagery such as a snowflake, holly, ornament, Santa face, reindeer, stocking, ice skate, wreath, wrapped gifts, gingerbread person, and winter motifs in teal, blue, green, pink, and purple tones. A gold, molecule-shaped star tops the tree, with gold snowflakes scattered across a white background. Below the tree, elegant gold text reads “Happy Holidays.” Underneath, smaller text says “From All of Us At,” followed by the IgNS Immunoglobulin National Society logo and name. The overall design is modern, cheerful, and festive.
Happy Holidays from all of us at IgNS! 🎄
Thank you for being part of the IgNS community. Wishing you peace, rest, and meaningful time with those who matter most.
#HappyHolidays #IgNS #Gratitude
24.12.2025 17:12 — 👍 1 🔁 0 💬 0 📌 0
Graphic from the Immunoglobulin National Society highlighting support for patients on Ig therapy or biologics and their clinicians, featuring the IgNS logo, a checklist of education, resources, standards, and certification, and an image of a clinician smiling with an older adult patient.
Hello, Bluesky! We’re IgNS. 👋
We support patients receiving immunoglobulin (Ig) therapy and biologics, and the clinicians who care for them, through education, resources, standards, and certification.
Looking forward to connecting and sharing helpful resources!
#IgNS #IgTherapy #Biologics
23.12.2025 17:50 — 👍 0 🔁 0 💬 1 📌 0
Neuroscientist/Clinical Psychologist Graduate, University of Glasgow & Universidad Anáhuac México. Specialising in brain function 🧠 and immune system🦠 Neuroimaging studies focused on psychiatric disorders🔎 at Taipei Medical University (GIMBC)
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(🇲🇽🇨🇦🏴)
Web Developer #Joomla | Beekeeper | Widow
Disabled USMC Vet | Living with #DDD & #MS
📓 MS Sucks: a snarky journal for tracking your MS bullshit → mssucks.co/links
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Neuroscientist interested in neuron-glia interaction and sensory processing! Group leader, woman, mom of two, and a foreigner :-)
Mom of 7 (2-2 legged girls; 5-4 legged all but 1 female; 3 dogs & 2 cats) and 2 Grands (1 of each). Loves crafting, reading, movies. Stuck at home with chronic disabiliry, spoiled by hubby of 36yrs, always looking for a fun cane and a reason to smile 😃
Internistin.
Herzmedizin 🫀
viel Zeug
Customer Experience expert and advisor. Analyst by nature and profession. Tracking ongoing COVID data and risks because your health matters. Love music, film, photography & progressive causes. Opinions my own. He/Him
Don't like either party. Won't vote red or blue no matter what. Protect the planet, leave the kids a liveable world. My body my decision. If you oppose genocide, you are my people. Gay men make the best friends for women.
Scientist | Cornell Alum | Bedridden | Gamer | #NutcrackerSyndrome #MayThurnerSyndrome #Endometriosis #B12 #FluidMechanics #HeatTransfer #CovidIsAirborne
Living Kidney Donor
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It/Its. Astrophysicist, astronomer, optical engineer, author, genealogist, animator, game designer and developer, not necessarily in that order. Tibetan dragon otherkin and furry trash. Ran for US Congress that one time. PFP by @armaina.com
Same doofus as on twitter. Ndn anarcho-judaism. Non-dirtbag leftist. Unemployed cell/molecular biologist with a powerful rage for health misinfo. Wants to see pictures of your pets. Wondering how long I can make a descri
Purveyor of microorganisms
Immunologist
Vaccines save lives
Facts are facts, whether you believe them or not
Buckle up, climate change is upon us, and things are about to get real hot
Novice photographer, Expert microscopist
Retired CFO, CPA
Amor vincit omnia-morior invictus
Sci-Fi nerd, Science nerd, Harley rider
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Tiny blue dot in East TN
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Blue dot in Texas. Animal Lover, Tree Hugger, Juried Gallery Photographer, Writer. Defense Contractor, O&G Metallurgy…been around a little. Learned a few lessons. 🇺🇦Never give up, never surrender! Ask for money=Blocked!
Rue (sometimes Kit) • she/they agender • data nerd • jewish mixed-race health equity girl • hemiplegic migraine, ME/CFS and other stories
Handler of @jasper.dog, manager of Dogs of Bluesky Feed, also @rue.fyi
#UglyDogs #ActuallyAutistic #pwME #NEISvoid
˗ˏˋ 𝘢𝘯𝘥 𝘪𝘵 𝘧𝘦𝘭𝘵 𝘨𝘳𝘦𝘢𝘵 𝘵𝘰 𝘣𝘦 𝘢 𝘭𝘪𝘢𝘳 .ᐟ ´ˎ˗
ˏˋ°•*⁀➷ lumi . 21 . disabled + autistic . ♡
https://rentry.co/foxs-wedding
https://hannyasisters.straw.page/
artist 📸 + activist / have lupus, studying the spectacularization of hydroxychloroquine / just trying to have a nice time On The Internet™️ / she/they #DoMaskBlocShit 😷🦋🍐🏳️🌈
tiktok/twitter: @babs_zone
elsewhere: https://bio.site/amphoto
Mom, Wife, ❤️cats & ❤️dogs - Adopt Don't Shop - boring, basic, awkward, bougie, #PEsurvivor #FactorVLeiden