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National Kidney Foundation

@kidney.org.bsky.social

We’re fighting to eliminate preventable kidney disease, accelerate innovation, and dismantle structural inequities in kidney care. Learn more: empli.fi/nkf

936 Followers  |  87 Following  |  322 Posts  |  Joined: 18.11.2024  |  1.9718

Latest posts by kidney.org on Bluesky

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Clinical Trials for Pig-to-Human Kidney Transplantation Are Here Clinical trials for pig-to-human kidney transplants are starting. See how patients and advocates helped shape this breakthrough moment.

Currently, there aren’t enough donated kidneys to meet the growing demand. But xenotransplantation could help change that. www.kidney.org/news-stories...

05.08.2025 15:25 — 👍 2    🔁 0    💬 0    📌 0
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Imagine you’ve been on the kidney transplant waitlist for years only to find out that your estimated wait time was longer than normal because your kidney function was calculated using a race coefficient. That was the reality Black kidney patients faced. Now, that’s changing. bit.ly/4fcRKYE

04.08.2025 17:02 — 👍 2    🔁 0    💬 0    📌 0
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Living with IgA nephropathy means fighting a battle others can't see. Uncover potential treatment options by participating in clinical research. Get started: bit.ly/3H8BYRW

04.08.2025 15:03 — 👍 0    🔁 0    💬 0    📌 0
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Living donors, like Monica, are kidney heroes. But so are transplant recipients, care partners, doctors, and loved ones. This month, we're celebrating all kidney heroes for Kidney Heroes Giving Day on August 19. Honor your hero today: bit.ly/4lWukt2

04.08.2025 15:01 — 👍 1    🔁 1    💬 0    📌 0
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Monica is a hero and we need more living donor heroes like her. We wish Monica and her brother all the best in their recoveries!

04.08.2025 15:01 — 👍 3    🔁 0    💬 1    📌 0

The increase represents meaningful progress in our efforts to modernize the 40-year-old transplant system. The Senate also rejected harmful cuts that would have hurt research and chronic disease programs.

04.08.2025 14:45 — 👍 2    🔁 1    💬 0    📌 0
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Join the celebration by making a special Kidney Heroes Giving Day gift to honor the hero in your life. Honor your hero:https://bit.ly/3Gc1jtO

04.08.2025 13:38 — 👍 1    🔁 0    💬 0    📌 0
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Join the celebration by making a special Kidney Heroes Giving Day gift to honor the hero in your life. Honor your hero: bit.ly/3Gc1jtO

01.08.2025 19:27 — 👍 1    🔁 0    💬 0    📌 0
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BIG NEWS: The Living Donor Protection Act has been introduced into Congress! Contact your Members of Congress TODAY and tell them to pass this bipartisan, non-controversial bill. Take action: bit.ly/4f91RxA

01.08.2025 16:39 — 👍 5    🔁 3    💬 0    📌 0
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You Spoke Up. The Senate Listened. Big Kidney Health Win in FY26 Bill Senate approves $5M increase for kidney transplant reform and early detection in FY26 bill. Next step: the House. Learn more.

For patients waiting for transplants, improved OPTN systems mean faster matching and better outcomes. For the millions with undiagnosed kidney disease, continued CDC programs provide essential early detection tools when treatment is most effective. www.kidney.org/news-stories...

01.08.2025 14:06 — 👍 2    🔁 1    💬 0    📌 2
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How NKF Got Here: Kidney Care in the 2000s Free kidney screenings, improved Medicare coverage, and policy wins defined kidney care in the 2000s. Read what changed and why it matters.

The 2000's brought big changes to kidney health. From free screenings to transplant breakthroughs, here's how the National Kidney Foundation and the broader kidney community helped shape a healthier future. www.kidney.org/news-stories...

31.07.2025 18:26 — 👍 4    🔁 2    💬 0    📌 0
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Without the New Era Act, patients face delayed diagnoses, limited treatment options, and families watching loved ones progress to end-stage kidney disease. Tell your Representatives to take action today: bit.ly/3TdcYvh

31.07.2025 12:21 — 👍 2    🔁 1    💬 0    📌 0
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5 Kidney Disease-Friendly Desserts Stay cool and kidney-safe with these 5 refreshing desserts. Perfect for summer or anytime you’re craving a sweet treat.

Who says dessert is off the table when you’re managing kidney disease?https://www.kidney.org/news-stories/5-kidney-disease-friendly-desserts

30.07.2025 12:01 — 👍 1    🔁 0    💬 0    📌 0
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NKF Supports Accountability, Transparency Across Transplant Ecosystem

NKF is deeply concerned by reports of harm to donor patients and their families. The donation process must be safe, reliable, and compassionate for every individual involved. Patients who become donors must be treated with the dignified care that honors the magnitude of their generosity.

29.07.2025 14:25 — 👍 2    🔁 1    💬 0    📌 0
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KidneyCARE Study The KidneyCARE Study is a patient registry for people at all stages and with all types of kidney disease. As part of the KidneyCARE Study, you help research by answering survey questions about your…

Join the KidneyCARE Study, a unique kidney disease research study that will advance patient education and kidney disease treatment.

29.07.2025 14:17 — 👍 1    🔁 0    💬 0    📌 0
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Congress has the power to extend these life-saving subsidies, but they need to hear from constituents like you. Your representative needs to understand that kidney patients in their district are counting on their vote. Take action: bit.ly/3GK3IMJ

29.07.2025 12:02 — 👍 1    🔁 0    💬 0    📌 0
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The CONNECT for Health Act is bipartisan legislation designed to make permanent many telehealth flexibilities that were temporarily authorized during the COVID-19 pandemic. Tell your lawmakers to sponsor this crucial, bipartisan bill: bit.ly/416DD18

28.07.2025 12:01 — 👍 1    🔁 0    💬 0    📌 0
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Four Kidney Transplants, One Mission: Improve Kidney Care for All With four kidney transplants behind her, Jennifer now empowers others with kidney disease through her work with NKF.

Jennifer Cramer-Miller has been through four kidney transplants, years on dialysis, and a disease that kept coming back. But instead of letting these circumstances keep her down, she became a beacon of hope for others. www.kidney.org/news-stories...

24.07.2025 16:20 — 👍 3    🔁 0    💬 0    📌 0
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NKF Applauds New House Approach on Living Donor Protection Act Tune in for the latest research and perspectives on kidney health from NKF.

Bipartisan momentum for Living Donor Protection Act! House Reps. Bacon & Nadler split the bill into H.R. 4582/4583, while Senate leaders Cotton & Gillibrand champion S. 1552. NKF applauds the strategy to protect donors from insurance discrimination. www.kidney.org/press-room/n...

24.07.2025 15:50 — 👍 2    🔁 1    💬 0    📌 0

Thanks to our local office and Government Relations efforts and specifically DC residents and living donors Caryn Alagno and Lauren Drew for testifying about their living donor experiences to the DC City Council. #MyKidneyVoice

23.07.2025 21:17 — 👍 1    🔁 0    💬 0    📌 0
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BREAKING NEWS: The District of Columbia has passed the Living Donor Protection Act! This bill ensures that people who generously donate organs or tissues can't be penalized by insurance companies simply for being donors, removing a potential barrier to life-saving donations.

23.07.2025 21:17 — 👍 4    🔁 0    💬 1    📌 0
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Expanding Dental Coverage for People with Kidney Disease on Medicare Dental care is essential for people with kidney disease. See how Medicare coverage is evolving and why advocates are calling for more change.

People with chronic kidney disease, especially those with diabetes or on dialysis, are at greater risk for oral health issues. NKF will continue engaging with CMS and members of Congress to push for expanded dental coverage for people with kidney disease. www.kidney.org/news-stories...

23.07.2025 17:14 — 👍 1    🔁 0    💬 0    📌 0
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Medicines & Kidney Health Hub Learn how medications affect your kidneys.

Medicines and vaccines are often recommended for people with kidney disease. Learn more about their role and ways to manage and pay for them. www.kidney.org/treatment-su...

23.07.2025 14:34 — 👍 1    🔁 0    💬 0    📌 0
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It takes a special kind of person to give part of yourself so someone else can live 🧡 Congratulations to Mohamed on getting your new kidney — and thank you Julian for being a living donor hero.

23.07.2025 14:04 — 👍 2    🔁 1    💬 0    📌 0
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Facing Childhood ARPKD: A Rare and Challenging Kidney Disease A rare ARPKD diagnosis changed everything for this family. Now, they’re spreading awareness to help others facing similar challenges.

Colton’s parents were prepared for life with a newborn, late-night feedings, and teething, not intensive care and urgent consultations with doctors. www.kidney.org/news-stories...

22.07.2025 18:58 — 👍 2    🔁 0    💬 0    📌 0
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Medicaid Cuts Explained: 6 Myths That Could Put Kidney Patients in Danger Coverage loss is real. Medicaid changes may hit vulnerable kidney patients hardest. Learn the top myths and what actions to take today.

Myths around Medicaid cuts are dangerous, especially for people with kidney disease. Here’s what you need to know and do right now. www.kidney.org/news-stories...

22.07.2025 13:17 — 👍 0    🔁 0    💬 0    📌 0
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Do You Have Intense Joint Pain? You May Have Gout Gout causes painful joint flares and may signal kidney disease. Learn symptoms, treatments, and prevention strategies to control gout.

Gout and kidney disease often go hand in hand. High uric acid levels can damage the kidneys over time. At the same time, if your kidneys aren’t working well, they may struggle to remove uric acid from your body, creating a dangerous cycle. www.kidney.org/news-stories...

22.07.2025 13:14 — 👍 0    🔁 0    💬 0    📌 0
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Donate to National Kidney Foundation Kidney patients deserve better: https://support.kidney.org/campaign/612763/donate

Why are we still using 50-year-old dialysis technology? Help us amplify research breakthroughs and champion the fight against kidney disease. bit.ly/44VRUPs

22.07.2025 02:40 — 👍 1    🔁 0    💬 1    📌 0
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NKF CEO Announces Succession Plan

The inspiring leadership and tireless advocacy of @ceoatnkf.bsky.social has transformed the lives of patients, caregivers, health professionals and the entire kidney community.

18.07.2025 14:31 — 👍 3    🔁 1    💬 0    📌 0
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Did you know that people who have received a kidney transplant are at a much higher risk for skin cancer? We sat down with experts to discuss how you can lower your risk. bit.ly/459UfV1

17.07.2025 15:52 — 👍 2    🔁 0    💬 0    📌 0

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