Appendix Cancer PMP Research Foundation

From Symptoms to Survival: What to Know About Appendix Cancer Appendix cancer remains rare but incidence is growing, as is knowledge about the likely causes. A Yale Medicine expert offers insights on symptoms that should not be ignored, diagnosis, and therapi...

In this insightful Q&A, Dr. Kiran Turaga discusses the increasing incidence of #appendixcancer cases & the progress being made in research & treatment.

Dr. Turaga will also be joining us as a moderator for our Appendix Cancer Symposium on Oct 17!

Read more: www.yalemedicine.org/news/from-sy...

What’s next for PIPAC in the U.S.? 🌎

Dr. Mustafa Raoof of City of Hope, Duarte Cancer Center, will share the latest updates and future directions at the 2025 #AppendixCancer Multi-Regional Symposium.

Save Your Spot: events.zoom.us/ev/AlbNeGm7q...

#PIPAC #CityofHope

The AROD Strong Kickball Tournament, Walk, and BBQ raised more than $7,300 to honor Anthony "AROD"’s memory and support appendix cancer research, education, and awareness. Thank you to everyone who joined, played, and supported this amazing day. 💛 #AppendixCancer #ARODStrong

💛 #AppendixCancer Awareness Month 2025 = Global Impact.

✨ 143 landmarks lit in 4 countries
✨ 58 new recurring donors
✨ 332 news outlets + 101 radio stations
✨ 8M reached in our first global ad campaign

Thank you for standing with us. Watch the full recap!

#AmberforAppendixCancer

This clinical trial of a vaccine as a potential new treatment for PMP is supported in part by an ACPMP Catalyst Research Grant awarded to Dr. Flatmark. We are grateful to our donors for making this support possible, and to Dr. Flatmark and her team for their years of dedication!

#pseudovax

🎗️ History Made in Wisconsin 🎗️

@govevers.wisconsin.gov has issued an official proclamation declaring August as #AppendixCancer Awareness Month in Wisconsin - Our first-ever statewide proclamation!

This was made possible by Deborah Stalsberg, ACPMP volunteer, patient, and proud Wisconsin resident 💛

Please join us in celebrating ACPMP Medical Advisory Board member Dr. John Paul Shen, a physician-scientist at
@mdanderson.bsky.social, for being recognized by @conquercancer.bsky.social, for his work to improve outcomes for patients w/ #appendixcancer!

Read more: www.conquer.org/cancer-resea...

ACPMP is proud to fund two $50K Catalyst Research Grants through the @nordrare.bsky.social #RareDisease Research Program.

These grants will support scientific and/or clinical research related to #AppendixCancer/PMP

Apps due: October 12, 2025
Apply now: rarediseases.org/advancing......

Qualtrics Survey | Qualtrics Experience Management The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.

#Appendixcancer patients & caregivers: we want to hear from YOU 💛

Dr. Kimberly Kopecky's new CRS/HIPEC study aims to improve care & support, and your feedback can help shape it. 10 mins to complete: uab.co1.qualtrics.com/jfe/form/SV_...

*Funded by ACPMP: $25K @socsurgonc.bsky.social YI Award*

Registration is now open for the 2025 Appendix Cancer Symposium – our biggest educational event of the year!

📅 Friday, Oct 17 | 10 AM–4:30 PM ET | Online & Free

events.zoom.us/ev/AlbNeGm7q...

Moderated by Atrium Health Levine Cancer, @huntsmancancer.bsky.social & @yaleschoolofmed.bsky.social

ACPMP is yet again funding the $100K Lisa Kurtz Luciano Clinical Investigator Award + $25K
@socsurgonc.bsky.social Young Investigator Award—both focused solely on #appendixcancer & PMP. Applications now open: surgonc.org/resources/re... #RareCancer #RareDiseaseResearch

Join us TONIGHT at 7 PM EST! Get your questions about CRS/HIPEC answered. events.zoom.us/ev/AkYvSm_lq...

All-in-one virtual event platform | Zoom Events

Facing appendiceal cancer brings tough decisions & emotions for patients and caregivers. Join us for an open convo with Drs. Greenbaum & Kopecky on what to expect before surgery & the important role caregivers play.

This free webinar includes a live Q&A - Register: events.zoom.us/ev/AkYvSm_lq...

New study shows appendix cancer on the rise in young adults If you're a Generation X-er or a Millennial, local experts like Dr. Andreana Holowatyj say you may have a higher chance of getting appendiceal cancer.

Our Scientific Advisory Board Chair, @drholowatyj.bsky.social,
recently spoke with @nc5official.bsky.social about the new research showing that Gen X-ers & older Millennials are 3-4 times more likely to be diagnosed with #appendixcancer compared to previous generations. Watch:

Birth Cohort Effects in Appendiceal Adenocarcinoma Incidence Across the United States | Annals of Internal Medicine Background: Incidence rates of appendiceal adenocarcinoma (AA) are increasing across all age groups in the United States. Birth cohort patterns of AA can provide new, etiologic clues into increasing r...

A study led by our Scientific Advisory Board Chair, @drholowatyj.bsky.social, found that #appendixcancer rates have quadrupled among Millennials.

ACPMP is proud to have contributed funding to this research alongside NIH. www.acpjournals.org/doi/10.7326/...

@nytimes.com @oncodaily.bsky.social

Andreana Holowatyj named ‘40 Under 40 In Cancer’ winner The award identifies and recognizes contributions across the field of cancer by rising stars and emerging leaders under the age of 40.

Join us in congratulating the Chair of ACPMP's Scientific Advisory Board, @drholowatyj.bsky.social, on her well-deserved '40 Under 40 in Cancer' award! Dr. Holowatyj's research is focused on early-onset cancers, including #appendixcancer

#raredisease @natrevcancer.nature.com @oncoalert.bsky.social

In Your Own Words: The Emotional Impact of Cancer and Loss – Survey Results - ACPMP Patient Power recently invited cancer patients to share their individual thoughts, feelings, and experiences from diagnosis and beyond. The responses were then reported in the article below. They are ...

So many cancer patients share the same emotional struggles, yet often feel alone in them. 💛

#PatientPower shares real insights in this survey from those impacted by cancer and loss.

#NoOneFightsAlone #cancersurvivor

💛May is National Cancer Research Month!

At ACPMP, we don’t just celebrate research—we invest in it. Applications are now open for our $150K Changemaker Grant to fund bold, high-impact #appendixcancer & PMP research.

📅 Apply by Sept 1, 2025
👉 acpmp.org/research/150...

#cancerresearch #rarecancer

ACPMP exhibited at the 2025 @theaacr.bsky.social Annual Meeting in Chicago, April 25-30! We connected with nearly 150 new healthcare professionals, gave out educational materials & shared about our new $150K Grant.

ACPMP’s presence continues to amplify the conversation around this #raredisease.

Applications now open for new $150K 2-Year Global Changemaker Grant for #appendixcancer /PMP research! Focus areas align with ACPMP Think Tank priorities ( @drholowatyj.bsky.social et al. @natrevcancer.nature.com, 2025). Apply by 9/1/25!
Learn more: acpmp.org/research/150...

@oncoalert.bsky.social

Staged Colectomy May Be Preferable to Upfront Colectomy in Appendix Cancer The staged approach to colectomy offers survival benefits, and it may help avoid unnecessary procedures that only require appendectomy.

Dr. Muhammad Talha Waheed of @cityofhope.bsky.social spoke with #CancerNetwork about new research presented at #SSO2025. His findings suggest staged colectomy may offer survival benefits over upfront colectomy in #appendixcancer.

Full article & transcript: www.cancernetwork.com/view/staged-...

Defining a ‘cells to society’ research framework for appendiceal tumours - Nature Reviews Cancer In this Expert Recommendation, Holowatyj et al. cover the current state of the field in appendiceal cancer, including the distinct challenges involved in studying this rare tumour type, and propose a conceptual research framework to facilitate discoveries that will advance knowledge of appendiceal..

🚨 Expert Recommendation 🚨

@drholowatyj.bsky.social @acpmpresearch.bsky.social et al. explore the unique challenges of studying #appendicealcancer & propose a framework to advance research on this #raredisease.

Now FREE to access! 👇

We're "hunting a rare cancer" 🍃🗺️‼️
How? Get the FREE article here: nature.com/articles/s41...

Inspired by the first research map for #appendicealcancer to chart us to groundbreaking discoveries for our pts, 🔎 at creative cover art on @natrevcancer.bsky.social April issue!
@acpmpresearch.bsky.social

🎗 Our Clinical Trials Database Just Got Bigger!

We’ve updated the status of trials listed previously and added close to 150 new trials to our #ClinicalTrials Database, offering patients more opportunities to explore clinical trials for #appendixcancer.

Explore: acpmp.org/research/cli...

#REVIEW🚨

In this Expert Recommendation, @drholowatyj.bsky.social &Co cover the current state of the field in #AppendicealCancer and propose a conceptual research framework to advance knowledge of this rare cancer to deliver better outcomes for patients.
#RareDiseaseDay @acpmpresearch.bsky.social
📖 ⬇️

Calling all researchers!

The Oxford-Harrington Rare Disease Scholar Award is accepting applications - this could be a great opportunity for researchers studying #rarediseases like #appendixcancer.

Learn more & apply: www.oxfordharrington.org/funding/over...

#RareCancerResearch #ResearchFunding

Rare Disease Day 2025 - Appendix Cancer PMP Friday, February 28, 2025 will once again mark Rare Disease Day, a global campaign celebrated on the last day of February each year (the rarest day on the calendar) to raise awareness about the more t...

Today is #RareDiseaseDay 🌍🎗️

We stand in solidarity with the global community to raise awareness for those affected by rare diseases, including #appendixcancer and PMP.

Learn more: acpmp.org/event/rare-d...

#ShowYourStripes

YouTube video by Appendix Cancer PMP Research Foundation Appendix Cancer Patient Story: Melissa Fedigan

“I’ve learned that life isn’t about avoiding challenges, but about how we face them.”

Watch Melissa's inspiring story in honor of Rare Disease Day this Friday, February 28th here: youtu.be/gWRPuCOVgqw

#RareDiseaseDay #PatientStory #ShowYourStripes #AppendixCancer

BREAKING: Announcing a @natrevcancer.bsky.social
article from Scientific Think Tank sponsored by ACPMP & led by @drholowatyj.bsky.social .This landmark research roadmap defines key priorities to advance #AppendixCancer research, diagnosis & treatment!

learn more: acpmp.org/the-appendix...

Honored to sponsor the 2025 @socsurgonc.bsky.social
ACT Conference ! ACPMP funded the inaugural $100K Lisa Kurtz Luciano CIA award, awarded to Dr. Oliver Eng & $25K YIA awarded to Dr. Kimberly Kopecky!

Congrats also to 8 ACPMP-funded travel award recipients at #ACT2025! #AppendixCancer