Gerry Nesbitt @ CLIRINX Clinical Research IT's Avatar

Gerry Nesbitt @ CLIRINX Clinical Research IT

@clirinx.bsky.social

Clinical Research IT for Epilepsy & Rare Diseases Natural Hx Studies, Patient Registries, Electronic Data Collection Creator of The CRID and The RDDR Web: https://clirinx.com

209 Followers  |  513 Following  |  14 Posts  |  Joined: 12.11.2024  |  1.6238

Latest posts by clirinx.bsky.social on Bluesky

Motor insurance, no no claims discount

03.07.2025 18:30 — 👍 2    🔁 0    💬 0    📌 0

The University of Melbourne has recently launched what may become the largest genetic epilepsy natural history study ever conducted, powered by the CLIRINX system! #RareDiseases #NaturalHistoryStudy #Genetics #Epilepsy

04.06.2025 19:06 — 👍 0    🔁 0    💬 0    📌 0

After 12 years focusing on the US rare disease market, CLIRINX is expanding in Ireland & the EU. We've deployed AWS infrastructure in Dublin to support local patient registries, natural history studies & clinical trial readiness. #RareDiseases #Ireland #GDPR

04.06.2025 07:43 — 👍 0    🔁 0    💬 0    📌 0
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25.04.2025 14:03 — 👍 0    🔁 0    💬 0    📌 0
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CLIRINX is committed to keeping CRID operational because it plays a critical role in advancing rare disease research. The platform remains highly active and continues to provide invaluable support to researchers, patients, and non-profit organizations in the rare disease community.

09.02.2025 13:51 — 👍 0    🔁 0    💬 0    📌 0
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Since 2014, CLIRINX has been delivering comprehensive IT solutions to support Natural History Studies on rare diseases. Let CLIRINX handle IT. #rarediseases #epilepsy #genetics #edc #crid #rddr

12.12.2024 12:50 — 👍 0    🔁 0    💬 0    📌 0
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CRID - Clinical Research ID. A unique patient identifier for rare disease folks. #raredisease #uniquepatientid

19.11.2024 17:47 — 👍 3    🔁 1    💬 0    📌 1
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CRID can now supply a bulk list of anonymous CRID IDs for rare disease research. These CRIDs are not associated with an email address or a person's name/sex/DoB.
These could be used by tag a useful dataset or specimen that's unknown/anonymous.
Contact: crid@clirinx.com thecrid.org clirinx.com

19.11.2024 17:58 — 👍 1    🔁 1    💬 0    📌 0

Nugget of info: The CLIRINX platform uses Zulip RESTful API for app messaging. We also use Zulip for team messaging. A not so well known alternative to Slack. 💡

16.11.2024 17:11 — 👍 0    🔁 0    💬 0    📌 0

👋 epilepsy and rare disease research IT

16.11.2024 16:53 — 👍 1    🔁 0    💬 1    📌 0
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Is your rare disease group thinking of starting a new Natural History Study or Clinical Trial Readiness Study? If so, talk to CLIRINX! clirinx.com #raredisease #epilepsy #clirinx #crid #innovation

12.11.2024 22:20 — 👍 1    🔁 0    💬 0    📌 0
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Is your rare disease group thinking of starting a new Natural History Study or Clinical Trial Readiness Study? If so, talk to CLIRINX! clirinx.com #raredisease #epilepsy #clirinx #crid #innovation

12.11.2024 22:19 — 👍 1    🔁 0    💬 0    📌 0
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Is your rare disease group thinking of starting a new Natural History Study or Clinical Trial Readiness Study? If so, talk to CLIRINX! clirinx.com #raredisease #epilepsy #clirinx #crid #innovation

12.11.2024 22:19 — 👍 1    🔁 0    💬 0    📌 0
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Is your rare disease group thinking of starting a new Natural History Study or Clinical Trial Readiness Study? If so, talk to CLIRINX! clirinx.com #raredisease #epilepsy #clirinx #crid #innovation

12.11.2024 22:19 — 👍 0    🔁 0    💬 0    📌 0
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