@apsfaorg.bsky.social
APS Foundation of America (#APSFA) is the only US org spreading #Antiphospholipid Syndrome #APS & #Lupus #Awareness! #DVT #PE #Stroke #APS #miscarriage
Credit to @apsfa APS Magnet
Yes, FB cropped the picture.
100% of the proceeds go to the APSFA. Only 100 in stock. They will ship by USPS without tracking.
They fit in my palm.
To order: www.paypal.com/ncp/payment/...
β¨ August Issueβ¨| Comment article on the risks and benefits of immunosuppressant withdrawal in systemic lupus erythematosus
bit.ly/45kkdIK
#Rheumsky #Medsky
Truth.
25.07.2025 15:39 β π 2 π 0 π¬ 0 π 0APS Magnet
Yes, FB cropped the picture.
100% of the proceeds go to the APSFA. Only 100 in stock. They will ship by USPS without tracking.
They fit in my palm.
To order: www.paypal.com/ncp/payment/...
#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS
01.07.2025 11:11 β π 1 π 0 π¬ 0 π 0make a difference and bring more attention and awareness to #APS!!
Also, a HUGE shout out to the #APSFA volunteers!!
You all are awesome! Please share...one more time...today's!
Thank You for sharing on all social media platforms with our hashtags.
The end of the month is here!
Today's the day when we take a moment to say THANK YOU to everyone who has liked, commented on, and especially to those who shared our graphics all month long! Awareness begins with YOU. Get your story out there! Share your experiences! We can
Whose got a similar collection? Raise your hand.
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#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS #coping #CopingMechanisms #copingmethods
29.06.2025 19:29 β π 0 π 0 π¬ 0 π 0Today, we bring you some tips on coping with #APS.
How do you #cope with APS?
Do you see a #therapist?
Do you #journal?
Share with others how you cope with APS. In the end, remember you are not alone, and you can join our private support group here on Facebook if you need to vent.
Learn More
Visit apsfa.org for trusted information, patient resources, and ways to connect with others who understand.
#WTD25 #raredisease #charity #donate #newdiagnosis #newlydiagnosed #AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch
Be Patient With Yourself
#Fatigue, #flares, and lifestyle changes can be difficult at first. Give yourself grace.
Connect With Community
Support groups (online or in-person) can offer emotional support and practical advice.
Understand Your Treatment Plan
You may need blood thinners (anticoagulants) like #warfarin, #Lovenox, or #aspirin to reduce clot risks.
Track Your Symptoms
Keep a #journal of symptoms, triggers, and medications to help your doctor fine-tune your care.
Getting a diagnosis of Antiphospholipid Syndrome (#APS) can feel overwhelming, but take a deep breath. You are not alone, and there are resources, support, and treatments to help you live well.
Find a Knowledgeable Doctor
Ideally, a rheumatologist or hematologist with APS experience.
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#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS #exercise
29.06.2025 01:16 β π 1 π 0 π¬ 0 π 05. Youβre in Control
Simple exercises (like stretching, walking, chair yoga, or gentle resistance) can be done at your own pace, tailored to how you feel day to day.
4. Reduces Stress
Exercise helps regulate stress hormones and calm the nervous system, which may ease autoimmune flares and improve sleep.
3. Boosts Energy and Mood
Even 10 minutes of light movement a day can increase endorphins, fight fatigue, and improve mental clarity β all common challenges for people with APS.
2. Supports Joint and Muscle Health
Low-impact activity helps keep your joints flexible and muscles strong, which is important when dealing with inflammation, stiffness, or autoimmune flares.
1. Improves Circulation
Regular movement helps prevent blood from pooling, especially in the legs β reducing the risk of deep vein thrombosis (DVT) and other clot-related complications.
Living with Antiphospholipid Syndrome (APS) can bring fatigue, joint pain, swelling, and a higher risk of blood clots. While intense workouts may feel out of reach, gentle, simple exercises can play a powerful role in maintaining your health and well-being.
29.06.2025 01:16 β π 1 π 0 π¬ 1 π 0or the emergency room.
#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS #DVT #bloodclot
#Swelling and #pain can be common and serious symptoms in people with Antiphospholipid Syndrome (APS). These symptoms often result from blood clots, #inflammation, or related complications.
If you are not doing better in a timely fashion or it is an emergency, please consult your doctor
#APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS #pain #fever #migraines #headache #fatigue #dizziness #sweeling #brainfog
28.06.2025 12:35 β π 0 π 0 π¬ 0 π 0Did you know there was such a thing? Do you get them?
Today, we bring you the symptoms of an #APS Flare!
For those who have #Lupus, you'll notice that these are very similar to a Lupus #flare.
#AntiphospholipidSyndrome
Myth: Only older or sick people get blood clots
Fact: Anyone can get a blood clot, even if they are young - that includes children and healthy people.
When did you first start clotting?
#AntiphospholipidSyndrome #APSAwareness #apsawarenessmonth #apsresearch #WTD25 #raredisease #APS