APS Foundation of America

NEW EPISODE! 🎙️ Antiphospholipid syndrome (APS) is complex, frustrating, & easy to misunderstand. Yu (Ray) Zuo, MD, MS, joins the podcast to explain APS clearly, share the case that changed his thinking, & explore where the science is heading. LISTEN → acr.tw/4qoRpGk

Did you know?

Currently, there are more than 10,000 rare diseases identified.

#ShowYourStripes #RareDiseaseAwarenessMonth

Did you know?

Any disease affecting fewer than 200,000 people in the US is considered rare.

#ShowYourStripes #RareDiseaseAwarenessMonth

Did you know 1 in 2000 Americans have Antiphospholipid Syndrome (APS) a #rare, #autoimmune clotting disorder.

This month we celebrate ##RareDiseaseAwarenessMonth and want you to #ShowYourStripes

More than 30 Million Americans live with a rare disease. That's 1 in 10 of us.

#ShowYourStipes #rarediseaseawarenessmonth

Please scan the flyer's QR code for more information and to complete a one-time online survey. You do not have to use tobacco or nicotine yourself to participate! At the end of the survey, there is a link to the CDC’s information page on the health effects of smoking/vaping and nicotine use.

for Special Surgery (HSS) in New York, is focusing on this topic. Dr. Lisa Mandl is the Principal Investigator for the study. If you (or your child) are 15-22 years old and have been seen by a pediatric rheumatology provider in the past 5 years, you (or your child) are eligible to participate!

There has been little research on smoking/vaping and nicotine use in patients seen in pediatric rheumatology practices. However, a new research study by Dr. Patricia Hoffman, a pediatric rheumatology fellow at Hospital

Your support fuels our success. Thank you for an incredible year; wishing you and your loved ones a wonderful holiday season and a happy healthy New Year!

Credit to @apsfa APS Magnet

Yes, FB cropped the picture.

100% of the proceeds go to the APSFA. Only 100 in stock. They will ship by USPS without tracking.

They fit in my palm.

To order: www.paypal.com/ncp/payment/...

✨ August Issue✨| Comment article on the risks and benefits of immunosuppressant withdrawal in systemic lupus erythematosus

bit.ly/45kkdIK

#Rheumsky #Medsky

Truth.

APS Magnet

Yes, FB cropped the picture.

100% of the proceeds go to the APSFA. Only 100 in stock. They will ship by USPS without tracking.

They fit in my palm.

To order: www.paypal.com/ncp/payment/...

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS

make a difference and bring more attention and awareness to #APS!!

Also, a HUGE shout out to the #APSFA volunteers!!
You all are awesome! Please share...one more time...today's!

Thank You for sharing on all social media platforms with our hashtags.

The end of the month is here!

Today's the day when we take a moment to say THANK YOU to everyone who has liked, commented on, and especially to those who shared our graphics all month long! Awareness begins with YOU. Get your story out there! Share your experiences! We can

Whose got a similar collection? Raise your hand.

✋️

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS #coping #CopingMechanisms #copingmethods

Today, we bring you some tips on coping with #APS.

How do you #cope with APS?

Do you see a #therapist?

Do you #journal?

Share with others how you cope with APS. In the end, remember you are not alone, and you can join our private support group here on Facebook if you need to vent.

Learn More
Visit apsfa.org for trusted information, patient resources, and ways to connect with others who understand.

#WTD25 #raredisease #charity #donate #newdiagnosis #newlydiagnosed #AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch

Be Patient With Yourself
#Fatigue, #flares, and lifestyle changes can be difficult at first. Give yourself grace.

Connect With Community
Support groups (online or in-person) can offer emotional support and practical advice.

Understand Your Treatment Plan
You may need blood thinners (anticoagulants) like #warfarin, #Lovenox, or #aspirin to reduce clot risks.

Track Your Symptoms
Keep a #journal of symptoms, triggers, and medications to help your doctor fine-tune your care.

Getting a diagnosis of Antiphospholipid Syndrome (#APS) can feel overwhelming, but take a deep breath. You are not alone, and there are resources, support, and treatments to help you live well.

Find a Knowledgeable Doctor
Ideally, a rheumatologist or hematologist with APS experience.

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