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APS Foundation of America

@apsfaorg.bsky.social

APS Foundation of America (#APSFA) is the only US org spreading #Antiphospholipid Syndrome #APS & #Lupus #Awareness! #DVT #PE #Stroke #APS #miscarriage

25 Followers  |  13 Following  |  198 Posts  |  Joined: 02.12.2024  |  1.7359

Latest posts by apsfaorg.bsky.social on Bluesky

Post image 08.08.2025 00:36 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Credit to @apsfa APS Magnet

Yes, FB cropped the picture.

100% of the proceeds go to the APSFA. Only 100 in stock. They will ship by USPS without tracking.

They fit in my palm.

To order: www.paypal.com/ncp/payment/...

26.07.2025 22:25 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Risks and benefits of immunosuppressant withdrawal in systemic lupus erythematosus - Nature Reviews Rheumatology Withdrawing immunosuppressive treatment in systemic lupus erythematosus offers reduced toxicity and improved quality of life for patients in remission but carries a risk of disease reactivation. Emerg...

✨ August Issue✨| Comment article on the risks and benefits of immunosuppressant withdrawal in systemic lupus erythematosus

bit.ly/45kkdIK

#Rheumsky #Medsky

25.07.2025 08:53 β€” πŸ‘ 4    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Truth.

25.07.2025 15:39 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image 24.07.2025 19:58 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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APS Magnet

Yes, FB cropped the picture.

100% of the proceeds go to the APSFA. Only 100 in stock. They will ship by USPS without tracking.

They fit in my palm.

To order: www.paypal.com/ncp/payment/...

17.07.2025 19:30 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS

01.07.2025 11:11 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

make a difference and bring more attention and awareness to #APS!!

Also, a HUGE shout out to the #APSFA volunteers!!
You all are awesome! Please share...one more time...today's!

Thank You for sharing on all social media platforms with our hashtags.

01.07.2025 11:11 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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The end of the month is here!

Today's the day when we take a moment to say THANK YOU to everyone who has liked, commented on, and especially to those who shared our graphics all month long! Awareness begins with YOU. Get your story out there! Share your experiences! We can

01.07.2025 11:11 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Whose got a similar collection? Raise your hand.

βœ‹οΈ

30.06.2025 15:47 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS #coping #CopingMechanisms #copingmethods

29.06.2025 19:29 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Today, we bring you some tips on coping with #APS.

How do you #cope with APS?

Do you see a #therapist?

Do you #journal?

Share with others how you cope with APS. In the end, remember you are not alone, and you can join our private support group here on Facebook if you need to vent.

29.06.2025 19:29 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
APS Foundation of America, Inc. | Antiphospholipid Syndrome - APS

Learn More
Visit apsfa.org for trusted information, patient resources, and ways to connect with others who understand.

#WTD25 #raredisease #charity #donate #newdiagnosis #newlydiagnosed #AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch

29.06.2025 13:45 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
APS Foundation of America, Inc. | Antiphospholipid Syndrome - APS

Be Patient With Yourself
#Fatigue, #flares, and lifestyle changes can be difficult at first. Give yourself grace.

Connect With Community
Support groups (online or in-person) can offer emotional support and practical advice.

29.06.2025 13:45 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
APS Foundation of America, Inc. | Antiphospholipid Syndrome - APS

Understand Your Treatment Plan
You may need blood thinners (anticoagulants) like #warfarin, #Lovenox, or #aspirin to reduce clot risks.

Track Your Symptoms
Keep a #journal of symptoms, triggers, and medications to help your doctor fine-tune your care.

29.06.2025 13:45 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Getting a diagnosis of Antiphospholipid Syndrome (#APS) can feel overwhelming, but take a deep breath. You are not alone, and there are resources, support, and treatments to help you live well.

Find a Knowledgeable Doctor
Ideally, a rheumatologist or hematologist with APS experience.

29.06.2025 13:45 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Clinicians, are you looking for a trusted place to stay sharp on anticoagulation care? AC University is your go-to hub for expert-driven, evidence-based education, and we just added brand-new Premium Content! Join thousands of clinicians who trust AC University: www.acforum.org

Clinicians, are you looking for a trusted place to stay sharp on anticoagulation care? AC University is your go-to hub for expert-driven, evidence-based education, and we just added brand-new Premium Content! Join thousands of clinicians who trust AC University: www.acforum.org

Clinicians β€” are you looking for a trusted place to stay sharp on anticoagulation care? Expert anticoagulation education awaits at AC University!

New:National Conference Bundles (7.25 CE), Boot Camp (14.5 CE), & CARE AF/VTE.

Plus, free modules, resources, recaps & tools.
Join us: www.acforum.org

27.06.2025 15:01 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS #exercise

29.06.2025 01:16 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

5. You’re in Control
Simple exercises (like stretching, walking, chair yoga, or gentle resistance) can be done at your own pace, tailored to how you feel day to day.

29.06.2025 01:16 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

4. Reduces Stress
Exercise helps regulate stress hormones and calm the nervous system, which may ease autoimmune flares and improve sleep.

29.06.2025 01:16 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

3. Boosts Energy and Mood
Even 10 minutes of light movement a day can increase endorphins, fight fatigue, and improve mental clarity β€” all common challenges for people with APS.

29.06.2025 01:16 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

2. Supports Joint and Muscle Health
Low-impact activity helps keep your joints flexible and muscles strong, which is important when dealing with inflammation, stiffness, or autoimmune flares.

29.06.2025 01:16 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

1. Improves Circulation
Regular movement helps prevent blood from pooling, especially in the legs β€” reducing the risk of deep vein thrombosis (DVT) and other clot-related complications.

29.06.2025 01:16 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Living with Antiphospholipid Syndrome (APS) can bring fatigue, joint pain, swelling, and a higher risk of blood clots. While intense workouts may feel out of reach, gentle, simple exercises can play a powerful role in maintaining your health and well-being.

29.06.2025 01:16 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

or the emergency room.

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS #DVT #bloodclot

28.06.2025 18:44 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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#Swelling and #pain can be common and serious symptoms in people with Antiphospholipid Syndrome (APS). These symptoms often result from blood clots, #inflammation, or related complications.

If you are not doing better in a timely fashion or it is an emergency, please consult your doctor

28.06.2025 18:44 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

#APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS #pain #fever #migraines #headache #fatigue #dizziness #sweeling #brainfog

28.06.2025 12:35 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Did you know there was such a thing? Do you get them?

Today, we bring you the symptoms of an #APS Flare!

For those who have #Lupus, you'll notice that these are very similar to a Lupus #flare.

#AntiphospholipidSyndrome

28.06.2025 12:35 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Myth: Only older or sick people get blood clots

Fact: Anyone can get a blood clot, even if they are young - that includes children and healthy people.

When did you first start clotting?

#AntiphospholipidSyndrome #APSAwareness #apsawarenessmonth #apsresearch #WTD25 #raredisease #APS

27.06.2025 19:54 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

@apsfaorg is following 13 prominent accounts