Thank you @kearneylab.bsky.social for your dedication to #SCN2A!
10.01.2025 13:34 — 👍 2 🔁 0 💬 0 📌 0
The much-anticipated recap of our experience at the #AES2024 is here! Check out how we kept #SCN2A front and center throughout this 4-day event!
👉 Read the full summary here: www.scn2a.org/AES-2024-Rec...
👉 Donate here: secure.qgiv.com/event/givesc...
💜💙💚
#CureSCN2A #GiftOfHope
17.12.2024 20:33 — 👍 1 🔁 1 💬 0 📌 0
So proud to be apart of this team dedicated to #CureSCN2A!
#AES2024 #SCN2A
12.12.2024 23:19 — 👍 0 🔁 0 💬 0 📌 0
On this #GivingTuesday consider the FamilieSCN2A Foundation @scn2a.bsky.social as a recipient of your generosity. (www.scn2a.org)
#SCN2A is one of the leading single-gene causes of neurodevelopmental disorders like epilepsy and autism.
Help us #CureSCN2A💜💙💚
04.12.2024 01:16 — 👍 0 🔁 0 💬 0 📌 0
✨ Big News! ✨
Seize the Moment. Move Mountains for SCN2A!
We’re thrilled to announce that our 7th Family & Professional Conference is coming to Denver, Colorado on July 31-Aug 2, 2025! More details coming soon! 💙💚💜
#SCN2A #cureSCN2A #genetics #geneticeilepsy #autism #epilepsy
22.11.2024 14:09 — 👍 6 🔁 2 💬 0 📌 0
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
Hot off the press. New article, "Charting the Course to a Cure for #SCN2A related disorders" was just published today in Therapeutic Advances in Rare Disease. journals.sagepub.com/doi/10.1177/.... #rareepilepsy #autism #patientadvocacy
12.11.2024 18:35 — 👍 9 🔁 3 💬 0 📌 0
Unofficial bot sharing alerts from NWS Kansas City/Pleasant Hill MO.
This account is not monitored. Contact @wandrme.paxex.aero if needed.
Telling Kansas City's stories since 1880. Find your local news at kansascity.com.
Send me a DM for an invite to a private Missouri chat for people working to organize.
Host of 'On Democracy with FPWellman' Friday's on MeidasTouch and 'Too Late to Cancel' every Sunday. Army Iraq veteran. Pro-Democracy Advocate.
The fastest growing independent news network in the world. We cover breaking news, politics, law and more. We are unapologetically pro-democracy.
Patient advocacy group serving those affected by CHD2, a rare developmental & epileptic encephalopathy (DEE) associated w/Jeavons/EEM, photosensitive seizures, autism + intellectual disability. Accelerating research & supporting community www.curechd2.org
Pediatric Neurology is a monthly journal that provides essential information to child neurologists and others who care for children with neurological disease.
Working to improve outcomes for neonatal & pediatric-acquired hypoxic brain injury. Powered by hope and coffee.
Current advocacy spice level:
🌶️🌶️🌶️🌶️/🌶️🌶️🌶️🌶️🌶️
#HopeforHIE #NeoSky #NeuroSky #PatientAdvocacy
We are a nonpartisan, nonprofit group working to prevent authoritarianism. This account is owned and operated by Protect Democracy United.
Follow us on other platforms ➡️ https://protdem.org/m/stay-connected
Award-winning print, digital and TV investigative journalist
Pls sign up on my site: www.heidireports.com
"If you can make people believe lies are the facts, then you can control them."
(Maria Ressa, Nobel Peace Prize Winning Journalist)
Tips: 571 375 894
Historian. Author. Professor. Budding Curmudgeon. I study the contrast between image and reality in America, especially in politics.
"You cannot escape the responsibility of tomorrow by evading it today.” – Abraham Lincoln 🏴☠️ | Home of #TheBreakdown and LP Podcast
Team game
https://www.simonandschuster.com/books/Its-Hard-for-Me-to-Live-with-Me/Rex-Chapman/9781982197773
Founder @democracydocket.com. Chair of Elias Law Group.
“The Insiders” on NFL Network, NFL+, and wherever you get your podcasts.
https://TheCRID.org
More data sharing, less data silos. CRID is a service that enables parents/patients create their own unique universal ID for clinical research.
Pediatric neurologist, movement disorders specialist, educator, researcher
Writer and podcast host for KC Sports Network. Do cool things with your friends! The vibe is immaculate.
🏈 Chiefs Radio Network Pregame & Postgame Host
🔮 Only Weird Games on KC Sports Network
🎙️ Chiefs Contributor: 96.5 The Fan
🐧 Opossum enthusiast
