Miriam Johnson

More People. More Need. More Action.
As ageing and chronic disease rise, palliative care is no longer optional. It’s a health system imperative.
This #WorldPalliativeCareDay, EAPC calls for stronger integration into national and EU health strategies.
#EAPC #WHPCD #PalliativeCare

#Ambition2021 and the 2025 commission on PC and #EOLC urge for more funding of #researchinpc only 0.26% of the total health research funding is allocated to #PalliativeCare #HealthResearch . urgent investment needed

Acetaminophen Use During Pregnancy and Children’s Risk of Autism, ADHD, and Intellectual Disability This nationwide cohort study with sibling control analysis examines the association of acetaminophen use during pregnancy with children’s risk of autism, ADHD, and intellectual disability.

Is #tylenol safe in pregnancy? Data 👇

A large Swedish study of 2.48M children found:

👶 No link btwn prenatal tylenol & autism, ADHD, or intellectual disability once sibling comparisons controlled for family/genetic factors.

👉 Tylenol is safe in pregnancy if needed.
jamanetwork.com/journals/jam...

Trump attacks Tylenol as officials unveil highly contentious conclusions on autism President says acetaminophen – also known as paracetamol - increases risk when taken by pregnant women, assertion contradicted by research

Please know that this is Trump scaremongering.

There is no good scientific evidence linking paracetamol (Tylenol) to autism.

A 2024 Swedish study of 2.4 million births found no relationship whatsoever between exposure to paracetamol in utero & subsequent autism.
www.theguardian.com/us-news/2025...

Models, components and outcomes of palliative and end-of-life care provided to adults living at home: A systematic umbrella review of reviews - Sophie Pask, Chukwuebuka Okwuosa, Ahmed Mohamed, Rebecca... Background: There is growing demand for home-based palliative care because of patient preference, and increased number of deaths. Optimal models for community-b...

Our large umbrella review of models, components and outcomes of palliative and end-of-life care provided to adults living at home is now out! This includes evidence from 66 systematic reviews! All you want to know about models of care! journals.sagepub.com/doi/full/10....

📝The results of the National Student Survey for 2025 are in and it's time to celebrate!🎉We've improved significantly since 2024, across all 9 areas and above the sector benchmark. Read more about these fantastic results here: www.hyms.ac.uk/about/news/2...

Anywhere in Nyhavn - my most favourite place to eat in the world

GP and patient

Introducing performance related pay for UK general practices initially improved quality of care, but did not seem to provide lasting improvements beyond that expected by previous trends, finds new study
www.bmj.com/content/389/...

Well done Catriona!!!

Open access (free) digital version of new book with @profbambra.bsky.social & @jlynch13.bsky.social exploring successful examples of reducing health inequalities now available: bristoluniversitypressdigital.com/monobook-oa/...

PGRs interested in ‘social transformation’ - come and join us and share your work at a free, friendly day conference in Newcastle on the 17th July! CfP open until this Friday.

PGR presentations and then a showing/discussion of a wonderful film, ‘100 People’ with the filmmaker.

Please share!

Appreciate seeing a full room for my talk on #Inequities in #PalliativeCare in #Lung disease
at #EAPC2025 #Finland 🇫🇮

Those of lower socioeconomic group are disadvantaged

Very poor data on #Intersectionality - we can do better!

#Respiratory #PhD #Research
@wolfsonpallcare.bsky.social

YouTube video by Sharon Hudson Why would you talk about Hospice or Palliative Care in Pulmonary Rehab?

Why would you talk about Hospice or Palliative Care in Pulmonary Rehab?

Please take the time to listen and share with your local networks

Thanks to Sharon Hudson
#Palliative
#pulmonaryrehab #pulmonaryrehabilitation
#31DaysofPRIdeas 💡💡💡
youtube.com/watch?v=Ra0L...

Prof of Implementation science Mark Pearson leads EAPCC workshop highlighting need for theoretically-underpinned translation of evidence into practice."Even the best evidence won't implement itself". See www.hyms.ac.uk/postgraduate...

Congratulations to Susanne de Wolf-Linder from @wolfsonpallcare.bsky.social one of the best 5 posters at @eapcvzw.bsky.social #EAPC2025 #IPOS-Dem is a valid and reliable outcome measure for assessing and monitoring palliative symptoms and concern for those with dementia @flissmurtagh.bsky.social

Smiles all around at the team @wolfsonpallcare.bsky.social @hyms.ac.uk stand at #EAPC2025 in #Helsinki 🇫🇮

We’re all friendly, come by & say hello ☺️
#PalliativeCare #Hpc #hapc #Research
@jonathankoffman.bsky.social @flissmurtagh.bsky.social @sophiepask.bsky.social @miriamjohnsonhyms.bsky.social

Happy to see so many people interested in #lung disease and #Inequalities - thanks for all the feedback and discussion #EAPC2025 🫁

Come and visit the team @wolfsonpallcare.bsky.social at @eapcvzw.bsky.social #EAPC2025 and learn more about our work and courses offered MSc , PGcert and PGdiploma in #PalliativeCare #implementationscience @implementsci.bsky.social

Helene Elliott-Button from @wolfsonpallcare.bsky.social Authentic involvement of lived experience experts, diverse methods, inclusive multidisciplinary and multi-ethnic teams, constant vigilance on discrimination and ethics are key principles for equitable research. @eapcvzw.bsky.social #EAPC2025

An artist’s impression of how it feels to have a COPD exacerbation developed from descriptions given by participants

COPD | This interview study with patients and carers highlights the importance of plain language (‘flare up’ rather than 'exacerbation') and the lasting effect on patient behaviour of a clinician's response to help-seeking for flare-ups

➡️ doi.org/10.3399/BJGP...

@flissmurtagh.bsky.social delivered the endowed #SamuelGeelecture 2025 @rcphysicians.bsky.social Less medicine and more care #palliativecare in NHS improving #qualityoflife in older age sometimes means less medicine, not more. player.rcp.ac.uk/ee/live/samu... @hyms.ac.uk @uniofhull.bsky.social

Great team, great trial. Delirium management implementation strategy in a cRCT of hospices

Great to have the opportunity to talk about one of my favourite topics….

Access to opioids for palliative care in humanitarian settings: two case studies of Médecins Sans Frontières (MSF) experience in India and Bangladesh - BMC Palliative Care Background Alleviating suffering and preserving dignity are essential components of healthcare. Patients in need of palliative care often require opioid medication to relieve breathlessness and pain. ...

Access to opioids for palliative care in humanitarian settings: two case studies of Médecins Sans Frontières (MSF) experience in India and Bangladesh #hapc @pallchase.bsky.social bmcpalliatcare.biomedcentral.com/articles/10....

New paper led by @joannamdavies.bsky.social explores the social determinants of where people die using linked UK Census and mortality data. By investigating moderators and mediators, we identify novel potential mechanisms to reduce inequalities. 👇👇👇

Reducing hospital deaths is a key #HealthPolicy goal - but it's not happening. Our study shows why: non-cancer patients & their carers lack support to die at home. #Dementia is a key barrier. Including cancer-free adults in #PalliativeCare referral pathways would change this doi.org/10.1080/0895...

Integrated Care Centre boosts wellbeing of patients with frailty Research has shown that the Jean Bishop Integrated Care Centre improves the wellbeing of older people living with frailty.

Our #PACEstudy shows visiting #JeanBishopIntegratedCareCentre can improve the wellbeing of older people living with frailty. @uniofhull.bsky.social trial comparing the wellbeing and QOL of individuals who received care at Centre with group in the community without it. www.hyms.ac.uk/research/sto...

Really practice changing paper
Stop restriction fluids

New guidance to help clinicians improve care for people with multiple long-term conditions New guidance for primary care clinicians on how to conduct personalised annual reviews for patients with multiple long-term conditions has been developed by researchers from the Centre for Academic Pr...

New guide to conducting personalised annual reviews for people with multiple long-term conditions published.

The approach, developed by CAPC & @arc-west.bsky.social researchers, involves conducting a ‘whole-person’ review instead of individual disease-specific reviews.

bit.ly/3FDiKTo

#PrimaryCare

@joyinthecorners.bsky.social