From my old riding instructor. Aspirin plus hot bath and epsom salts. Stretch every couple of hours. It works every time! No clue if ibuprofen would do the same.
11.01.2026 12:36 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0@klstenhouse.bsky.social
๐๐จ๐ฆ๐ #MS, MS rehab, neuroplasticity #EBV, #postviral, #PASC, personalized medicine@ genetics, Covid cautious, play detective, ex-research chemist and #biochemicalpathway ๐ค. #TheMSGym. Opinions are mine. Also native gardening, knitting, more. she/her
From my old riding instructor. Aspirin plus hot bath and epsom salts. Stretch every couple of hours. It works every time! No clue if ibuprofen would do the same.
11.01.2026 12:36 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0WHY YOUR EXERCISE PROGRAM MAY NOT BE GETTING YOU RESULTS ๐ง ๐ง Did you know your brain controls everything you do in fitness and rehab? Your nervous system has 3 essential parts: 1๏ธ๐ง Sensory Input โ what you see, feel, and sense (eyes, vestibular system, proprioception) 2๏ธ๐ง Neural Integration โ how your brain processes and organizes that information 3๏ธ๐ง Motor Output โ the actual movement you create (squats, pushups, lunges, corrective exercises) ๐ง THE PROBLEM? Most fitness and therapy programs only train the motor output piece. Thatโs why so many programs feel incomplete โ they skip the brainโs input and integration systems that drive movement quality. โ A truly effective, brain-based exercise program must include: ๐ง Sensory drills (eye + vestibular training) ๐ง Neural integration (kinetic chain + coordination) ๐ง Motor output (traditional strength + corrective training) This is exactly what I build for you inside The MS Gym โ programs that train your entire nervous system, not just your muscles. Because when you train your brain, your body follows. ๐ง #TheMSGym #BrainBasedTraining #NeurologicalFitness #MSWarrior #Neuroplasticity ##movementismedicine #multiplesclerosis #mssucks #neurologicaldisorder
WHY YOUR EXERCISE PROGRAM MAY NOT BE GETTING YOU RESULTS
๐ง ๐ง Did you know your brain controls everything you do in fitness and rehab? Your nervous system has โฆ
(See alt. txt.)
www.facebook.com/share/v/1Ccd...
#FeedForMSFolk #neurorehab #neurorehabilitation #MultipleSclerosis #TheMSGym.
I agree that this is a strategic move. I also suspect itโs not permanently shelved - it can remain a strategic tool.
30.06.2025 14:36 โ ๐ 6 ๐ 0 ๐ฌ 1 ๐ 0My theory is that he was leaving it as a bargaining chip. He wasnโt a fan either - it was from previous admin. Plus being shelved doesnโt suggest permanency.
30.06.2025 14:35 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0โโฆsuggest COVID-19 is associated with selective structural and functional alterations in basal gangliaโlimbicโcortical circuits, with stronger effects in severe cases โฆ in line with symptoms โฆ fatigue, memory impairment, attentional deficits, and insomnia.โ
June 20, 2025 preprint
#Covid19
Phot of a Blandings turtle after a rainstorm, making her carapace shiny and almost black - the yellow throat and jaw a stark contrast. Sheโs sitting on the shoulder with lots of fresh green foliage behind her, trying to cross the road.
Here she is just peeking her head out to look around and find the stream.
Moved this beauty across the road to the stream she was heading for today. She was on the shoulder, right side right after a hill and easily could have been shmucked. Blandings turtles are threatened in Ontario and endangered in the Great Lakes/St. Lawrence area. #Blandings #threatened #endangered
17.05.2025 19:53 โ ๐ 8 ๐ 0 ๐ฌ 1 ๐ 0We had more white crowned sparrows pass through than weโve ever seen before. Itโs was crazy!
12.05.2025 18:40 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0Thatโs very cool! I wonder how they were introduced โฆ
12.05.2025 18:37 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0Three FREE workshops coming up! HIGH PAYOFF DRILLS.
#TheMSGym
Please check the link to determine the best workshop for your mobility level!
Session 1: Sitting Strong, May 19th, 1 pm EST
Session 2: Standing Strong, May 21st, 1 pm EST
Session 3: Moving Strong, May 23rd, 1 pm EST, 11 am MTN
Plus EBV is implicated in at least 6-7 other autoimmune diseases now, not to mention various head and neck cancers. Yes to a vaccine. Which I think could even help someone in my situation.
10.05.2025 18:05 โ ๐ 3 ๐ 0 ๐ฌ 0 ๐ 0Doing better than I have since 2018. Iโve thrown everything at it (if scientifically factual!). Having been a research chemist, I have the background to deep dive. symptoms of MS are often caused by other things and too often, symptoms get swept under the MS rug when they are treatable/manageable.
10.05.2025 17:24 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0Printed version for both photos: Infectious mononucleosis in childhood (hazard ratio [HR], 1.98; 95% CI, 1.21-3.23) and adolescence (HR, 3.00; 95% CI, 2.48-3.63) was associated with an increased risk of an MS diagnosis that remained significant after controlling for shared familial factors in stratified Cox proportional hazards regression (HRs, 2.87 [95% CI, 1.44-5.74] and 3.19 [95% CI, 2.29-4.46], respectively). Infectious mononucleosis in early adulthood was also associated with risk of a subsequent MS diagnosis (HR, 1.89; 95% CI, 1.18-3.05), but this risk was attenuated and was not significant after controlling for shared familial factors (HR, 1.51; 95% CI, 0.82-2.76). Conclusions and Relevance These findings suggest that IM in childhood and particularly adolescence is a risk factor associated with a diagnosis of MS, independent of shared familial factors.
See alt.txt below photo 1 cor image in print form
Looks like the adolescent risk is higher than childhood infection, but the risk is significantly increased for both. Mono (from EBV) as a young adult shows an insignificant increase.
So childhood exposure still not the best plan. I ended up with MS despite that. ๐คทโโ๏ธ
I had early exposure. But I also had a career that caused solvent bioaccumulation so perhaps the triggers add up. Every Covid infection triggered an EBV reactivation except for my last - given remdesivir. I just got better from Covid for the first time.
Without prophylactic VCV, MS progresses. ๐
Supposedly itโs having an EBV-caused infection in childhood or adolescence vs older. I never *had* mono but had older siblings so likely had it under age 6 when it was simply a random childhood fever illness. 2018 testing showed both historical and current ab.
pmc.ncbi.nlm.nih.gov/articles/PMC...
My goodness it was so good! Iโve searched old recipe book archives, googled until my eyes bled. Because she called it Busy Day Dessert, couldnโt ever find it. Thatโs a jello thing lol.
Now, I would probably find it way to sweet now - but Iโm gong to try to adapt it. Glad someone else remembers!
๐น Caramel Syrup Base (Stovetop) 150 g brown sugar (light or dark) 45 g unsalted butter 200 mL boiling water Optional: 1/4 tsp salt or 1/2 tsp vanilla extract (added after boiling) Instructions: In a saucepan over medium heat, melt the butter. Stir in brown sugar and cook for 1โ2 minutes until fully dissolved and bubbling. Carefully add boiling water (it may sputter). Stir well and simmer another 30 seconds. Remove from heat. Add vanilla or salt if using. Pour this hot syrup into a greased 20โ23 cm baking dish or deep pie dish. Set aside while you prepare the batter. ๐น Cake Batter (Gluten-Free Sponge Layer) 125 g gluten-free all-purpose flour blend (with xanthan gum) 100 g granulated sugar 2 tsp baking powder 1/4 tsp salt 120 mL milk (dairy or unsweetened plant-based) 30 g melted butter (or neutral oil) 1 tsp vanilla extract Instructions: Preheat oven to 180ยฐC (160ยฐC fan). In a bowl, whisk flour, sugar, baking powder, and salt. Add milk, melted butter, and vanilla. Stir until smooth. Gently spoon or pour the batter over the caramel layer in the dish โ donโt stir or mix! Bake for 30โ40 minutes, or until golden and puffed on top. A toothpick inserted near the center (but not too deep) should come out with a few moist crumbs. ๐น To Serve Let cool for 10โ15 minutes so the caramel thickens. Spoon into bowls while warm โ the bottom should be rich and saucy, with a soft cake layer on top. *** no guarantees! I havenโt tried it yet!
Iโve been trying to avoid AI due to energy usage. But Iโve been searching out a recipe my mom used to make in the 70s to no avail. Sheโs almost 97 and doesnโt remember making it. Today chat.gpt and I may have figured it out - and made it gluten free. ๐ญโค๏ธ๐๐ผ
AI generated recipe in alt.txt!
#Medsky๐งช #neurosky #publichealth This study shows how researchers are beginning to understand that sleep does more than just give our brains and bodies a respite from the rigours of the day @nature.com
www.nature.com/articles/d41...
WALKING BETTER DOWN STAIRS If you struggle with climbing and descending stairs, you are not alone. Many many people affected with a neurological condition find stairs super challenging. In this video, we are going to work on going down stairs. Descending stairs requires four big things: 1. Ankle / Knee mobility 2. Leg strength 3. Core stability 4. Healthy vestibular function However, trying to slowly lower your body 7.5 inches (18 cm) when you lack any one of the four key elements above can make going down stairs extremely frustrating. Instead of โforce feedingโ that movement into your brain, which likely doesnโt have that range of motion available, we can progressively improve your joint mobility, muscular strength, core stability, and vestibular (balance) function in smaller stepsโฆ literally. You can master the โdown stairsโ movement using 1 inch (2.5 cm) platforms to build up to a standard step height. This progressive approach will encourage your body to move and train in a way that will not stress out your brain and cause more symptoms. They KEYS to mastering this movement: 1. Use the appropriate level of balance support (wall, walker, countertop, railing). 2. Drop SLOWLY into the movement paying attention to RELAXING your body. 3. Pause at the bottom of the movement and find your balance. 4. Push your body back onto the top of the platform using your quads, glutes, and core. Once you can perform 10-15 reps on BOTH LEGS with less dependence on your assistive device or surface, INCREASE THE HEIGHT of your platform by 1 inch (2.54 cm). If you can aim to improve an inch every two weeks, it is possible that you will be able to walk up and down stair with more ease and confidence within 12-16 weeks. That would be HUGE! #multiplesclerosis #movementismedicine #neurologicconditions #chronicillness #neurologicaldisorder #disabledtiktok #fyp #foryoupage #mssucks
WALKING BETTER DOWNSTAIRS
#MultipleSclerosis #NeuroRehab #neuroplasticity #rehab #FeedForMSFolk
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I had to start with a single magazine! ๐๐คฃ
See Alt-Txt for full description.
Worth the work and the time! #MS
mscanada.ca/ms-research/...
pmc.ncbi.nlm.nih.gov/articles/PMC...
Look at the research for seasonal relapse.
The thought is that it involves circadian rhythms.
Back before DMTs I pretty consistently relapsed spring and August.
Any of my colleagues want to come to Canada? uwo.ca/research/cer... [One priority area is Neuroscience and Brain Health. We have awesome facilities and people]. @westernuwin.bsky.social
06.05.2025 02:37 โ ๐ 7 ๐ 3 ๐ฌ 0 ๐ 0My presentation with @davidjoffe64.bsky.social on COVID's impacts on the brain is already the most watched video on the @thewhn.bsky.social platform ๐คฏ! Thank you to everyone who supports our research! We are now writing a physician's guide for #NeuroCovid #LongCovid ๐ค
www.youtube.com/watch?v=soJX...
I would love to hear the strategies. Anything coming from doctors or government would not affect the folks I know. ๐คทโโ๏ธ are there websites?
05.05.2025 10:05 โ ๐ 3 ๐ 0 ๐ฌ 1 ๐ 0There is no effective way to fight the a anti-vax narrative. I know many folks. Public health training would do nothing. They should all watch the Pitt. Which wouldnโt really help all of them if the parents respond like the pair in Texas.
05.05.2025 10:00 โ ๐ 3 ๐ 0 ๐ฌ 1 ๐ 0Hair loss? Could happen with Mavenclad as well. I didnโt lose hair with either but have lost due to B vitamin deficiency and thyroid issues. So keep an eye on thyroid and a good methylated B complex is your friend. Make sure you join the Mavenclad group!
02.05.2025 20:53 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0What @italoromeno.bsky.social said lol.
I canโt say outright it treats MS. It treats the thing I donโt know I had when progressing without lesions in 2018. I showed an immune system actively responding to EBV - zero EBV symptoms, all MS progression (supposedly). Valayclovir turned me around.
Many people I know canโt get vaxxed now (no live vaccines on MS medications for instance).
My gp refused titres last fall but thankfully MS neuro reinforced my need for titres. Neither my mom or I remembered any measles aside from German measles when I was young.
Photo of legs and feet of a motivated person with MS using trekking poles on a pathway. Additionally you can see the title of the workshop which is The MS Gym: Walking Strong.
This Workshop is FOR YOU if: - You can walk for 2 minutes or more at a time. - You use a walker, crutches, or poles to perform daily activities at home. - You experience foot drop, leg weakness or balance problems. - You are wanting to improve walking strength, balance, and endurance. This Workshop is NOT for you if: - You use a chair, scooter, or are seated on a rollator to perform your daily activities. - You find it difficult to sit without slumping or falling to one side. - You cannot stand fully upright using an assistive device for 2 minutes. - You cannot walk more than 2 minutes. ** If you fall into this category or feel you are โon the fence,โ please know I have several upcoming workshops designed for specifically for you. ( If you can't attend live, a replay will be sent following the event for those who register. )
Upcoming MS Gym Workshop: Walking Strong
#MS #neuroplasticity #walking #rehab #neurologicalendurance #balance
Please check photo 2 for criteria for workshop
suitability.
Please register here:
themsgym.mykajabi.com/walking-stro...
Jagmeetus interruptus. ๐คฆโโ๏ธ
18.04.2025 00:40 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0"I haven't followed Canadian politics closely, but when a politician talks of limiting free press, activities at universities & defying the courts, it's the canary in a coal mine for autocracy"
- Harvard University Professor when asked his opinion on Pierre Poilievre.
#Canada
#cdnpoli
#elxn45