Chronically Nikki

Humor: That’s a Fibro Flare You know its a flare when: You go hiking and the very word ‘hiking’ will inform you that will be a Flare. You did your Christmas shopping, not online, all in one day. That’s a Fla…

#Humor: That’s a #Fibromyalgia #Flare chronicallynikki.com/2026/02/09/h...

How to Catch Yourself Before You Burn Out: Pacing With Chronic Illness Made Simple Learn simple ways to pace with chronic illness using a weekly self-check-in to manage energy, prevent burnout, and plan with awareness.

"Most of us only check in once we’re already depleted. A weekly #ritual flips that pattern. It gives you a built-in feedback loop that grows sharper over time. Eventually, your body cues become clearer.": buff.ly/t4cOYOz

by @thethrivingspoonie.com
#ChronicPain #MentalHealth #burnout #ChronicIllness

Fibromyalgia Warrior Journey | MySeveralWorlds.com Inspiring Fibromyalgia Warrior Carrie. She shares her journey living in Taiwan with Ankylosing Spondylitis, Fibromyalgia, and ME/CFS.

Many thanks to Melissa at @teamfibro (Fibromyalgia National Health Organization) for featuring my journey with #fibromyalgia.

Learn top tips for #LifeWithFibromyalgia at
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supportfibromyalgia.org/fibromyalgia...

#FibromyaligiaAdvocate #FibroNerds #MySeveralWorlds
#SupportFibro

#chronicillness on moods

Proven Ways to Reduce the Damaging Effects of Chronic Stress - The Best Brain Possible When stress is chronic, it can have lasting negative effects on your brain and body. Here's how you can lessen the damage.

“n your #brain, when #stress is not severe & neurons have time to #recover ..it’s a positive thing, causing connections to become stronger paving neural pathways. Stress is just part of living — even #HealthyLiving.”: buff.ly/bgchUpv

by dlhampton
#StressManagement #spoonie

How to spot bad science in medical news Learn to spot bad science in the news. This guide reveals "red flags" in medical reporting, from studies with too few participants to confusing correlation with causation.

"A study lacking [a #ControlGroup ] may demonstrate that a particular drug works, but it cannot determine whether it is more or less effective than a different #medication or no #treatment.": buff.ly/YTB0GSl

via kevinmd
#research #medicine #science #MedicalNews

You Don't Have to be Strong, Just a Little Stronger Than Before Sometimes telling ourselves to be brave invokes fear. Here's why you don't have to be strong, just a little stronger than before.

"We often tell ourselves or others to be strong. Instead of instilling inspiration... it becomes another standard we have to meet. You don’t have to be strong all the time. One small step forward is still a powerful act." Via @achronicvoice.com
🔗
www.achronicvoice.com/2018/05/13/y...

#ChronicPain

“People who don’t have #Fibromyalgia or another #chronicillness often don’t get that #chronicpain is an ongoing struggle… During a #flare-up, it can take three days or three weeks for things to simmer down… I’m on my pain’s schedule and not my own.” https://buff.ly/3RR9fUP

When pain is surprisingly low and you wonder why? #Chronicpain

Just trying to survive here #Chronicillness

What's your favorite technique for creating calm? Mine are deep breathing (nervous system reset), writing, and art. I practice all of these things though. I'd love to hear from you! 12 WAYS TO CREATE SAFETY WITHIN YOUR NERVOUS SYSTEM 1. Practice slow, deep breathing 2. Aromatherapy, scents that promote relaxation 3. Singing, humming, or chanting 4. Dancing, somatic movement 5. A warm bath or shower 6. Nature walk or visit to the park 7. Soothing music or binaural beats 8. Guided meditation 9. Yoga or stretching your body 10. Journaling or a gratitude list 11. Grounding exercise or mindful body scan 12. Co-regulation with someone you trust Credit: NEUROFIT #CalmOverChaos #ProtectYourPeace #NervousSysremReset #MySeveralWorlds

What's your favorite technique for creating calm?

Mine are deep breathing (nervous system reset), writing, and art. I practice all of these things though. I'd love to hear from you!

Image Credit: NEUROFIT

#CalmOverChaos #ProtectYourPeace #NervousSystemReset #MySeveralWorlds

I see you did a thing today, you must be cured #chronicillness

When I find it difficult to manifest my authentic self with chronic illness “Know yourself + Own yourself + Be yourself = the Authentic Life” Positive Psychology We all want to be authentic to ourselves. Many of value authenticity in ourselves and others. I think sometimes…

When I find it difficult to manifest my #authenticself with #chronicillness chronicallynikki.com/2026/02/05/w...

Just smile more? #Chronicillness

#chronicpain

#insomnia problems

[my body having symptoms] ME: takes meds [My body having different symptoms] ME: ...for fuck's sake mybodyistryingtokillme.com

Why I Keep Writing Even When No One’s Reading (Yet) And Why I Will Continue to Do So

"I’ve got #journal entries that will never see the light of day but helped me process #heartbreak, #burnout &.. #inspiration. There are half-finished short #stories in my drafts folder that taught me how to write better dialogue.": buff.ly/Yx3kvQ7

via Vocal_Creators
#WritingCommunity #MentalHealth

What It Really Means to Live Authentically With Chronic Illness—And Why It’s So Hard to Do Discover what it really means to live authentically with chronic illness—and why it’s so challenging to let go of expectations.

"You’re expected to be inspiring or invisible. #Sick people are often reduced to two roles: heroic overcomer or quiet sufferer. Both of those erase the complexity of your real life.": buff.ly/yyD8djt

by @thethrivingspoonie.com
#ChronicIllness #NEisVoid #disability #InvisibleIllness #ableism

Time to stretch! #chronicpain #MS

#brainfog hacks: do not skip meals, have snacks

Sometimes Physical Pain Isn't The Worst Part About Chronic Illness

"One cannot deal with chronic physical pain when they're already defeated mentally. At that point, you're too tired to even care anymore.": buff.ly/QGwUFjd

#ChronicPain #MondayBlogs #ChronicIllness #MentalHealth #InvisibleIllness

I could feel the #Brainfog

#Brainfog tips

10 Very Normal Things I am Grateful I Can Do Here are 10 very normal and healthy things that I'm grateful I can do, despite struggling with chronic illness and disability.

"the #blessing & scourge of the 21st century is #convenience – fast food & deliveries, speedy transportation, immediate online purchases, etc. It has never been easier to obtain our material end #goals simply by sitting on our bums.": buff.ly/HnNNiMd

#society #grateful #ChronicIllness #disability

When you feel the Ultimate betrayal of Self I was thinking back to when I felt completely disabled to now with my recent Multiple Sclerosis diagnosis and it the same feeling I remember. There is that sense of profound relief that I have a kn…

When you feel the Ultimate betrayal of Self #Chronicillness chronicallynikki.com/2026/01/30/w...

The Damage Before the Diagnosis — MS’s Silent War Inside the Brain New research from UCSF reveals multiple sclerosis starts damaging the brain years before any symptoms appear. Early warning proteins, hidden inflammation, and a silent war all before you even know…

"So when that first #symptom finally hits when your #balance goes, or your legs go dead, or your words turn to fog it’s not the start. It’s the reveal. The curtain finally lifting on years of hidden damage.": buff.ly/EcKO1sy

by goblinbloggeruk
#MS #ProgressiveDisease #InvisibleIllness #disability

Grappling With the Shame of Having a Rare, Invisible Illness "Many chronically ill people, particularly those with a rare conditions or invisible illnesses, can carry a lot of shame from their difficult journey to be heard, supported and helped."

"Fighting your case when you are healthy is hard enough. But fighting when you are sick can be an utterly demoralising, shame-filled journey that can leave you with a potentially deeply dark despair." shorturl.at/jXkxx

#ChronicIllness #ChronicPain #ChronicallyIll #InvisibleIllness #NEISVoid

#Brainfog hacks- routine is our friend

#Brainfog hacks- #exercise- do not shoot the messenger on this one. Just a walk about or change of motion can stimulate the brain.