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Crystal

@gemzme.bsky.social

156 Followers  |  422 Following  |  62 Posts  |  Joined: 02.10.2023  |  1.8377

Latest posts by gemzme.bsky.social on Bluesky

The latter are generally the people who created or were influenced by the Waddell-Aylward-Wessely-et al BPS models and see LC as PVFS/PIFS/CFS 2.0, just as they did the other Pisoniviricetes that induce ME, cardiovascular diseases, diabetes and many other conditions.

06.08.2025 10:32 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0

Prior to the SARS-CoV-2 pandemic, the acronym COVID stood for coronavirus-induced disease (a category that included any and all coronavirus-induced diseases). Using this definition, Long Covid would include all the long-term coronavirus-induced diseases and their component signs, symptoms, etc.

06.08.2025 10:23 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

You'd hope so. Some seem to consider it optional.

12.07.2025 12:32 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

And then there's the problem of virologists et al using outdated taxonomies, missing the new(ish)ly found genetic similarities between pathogens and being mystified by SARS2 not acting like flu, but mysteriously developing multiple IACC/ME-like signs, symptoms, syndromes and diseases… picorna-like.

12.07.2025 05:09 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

It has its good days but most of what I've seen still has echoes from the wrong end of the 1980s.

14.06.2025 10:43 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

It reads like old, mild CFS material of the Fukuda era. Nary a pwME was described in this piece, and certainly none severe.

14.06.2025 09:24 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

The spike is the key to the room, not the room occupant, their pet or the contents of their luggage. There's too much focus on the key and not enough on the other factors.

11.03.2025 06:07 β€” πŸ‘ 12    πŸ” 0    πŸ’¬ 2    πŸ“Œ 0

I suspect that if the event were held somewhere other than the home of psychobehavioural attitudes, it would be. This is "sheep in wolf skin" going into the den of the leader of the pack to challenge the carnivorous.

10.03.2025 22:50 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

True, the UNSW members of COFFI may be too "busy" to attend, but it's important that they are not the only voice on campus. A UNSW professor is advertising the event in X/Twitter.

10.03.2025 22:43 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I've not seen much of that data. Have seen some of the prevalence reporting showing multiple Pisoniviricetes in play over the last 5 years. How many 3C(L) proteases, etc does one have to collect to be truly "healthy"?

10.03.2025 10:53 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Not simple, but very Hickie et al 2006, not EV-ME.

10.03.2025 10:45 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

You could say the same about CVBs: multiple diseases, pathways to disability, risk of death, few treatments, no cures. And a target of gaslighting from the same gaslighters.

10.03.2025 10:38 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Just another Pisoniviricetes virus out on a jaunt. (Yep, some of the others do it, too.)

10.03.2025 10:35 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Much more. Coronaviruses are related to enteroviruses (polio, cardiovascular diseases, neurological diseases, diabetes, sudden death, miscarriage, birth defects, developmental abnormalities, neonatal sepsis, ALS,…) and inducing much the same range of conditions, sometimes alongside other classmates.

10.03.2025 10:33 β€” πŸ‘ 4    πŸ” 0    πŸ’¬ 0    πŸ“Œ 1

Also, PIFS/PVFS after Ross River is generally self-limiting. Ignoring recovery may also prolong recovery.

10.03.2025 10:26 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

It's difficult to tolerate.

10.03.2025 09:46 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I'm sure you are quite subtle…in a colloquial Australian way…and, of course, disarming.
πŸ€”πŸ˜

10.03.2025 09:23 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

lol I have heard you both and you are no slouch, in that department.

10.03.2025 09:10 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

I look forward to it.

10.03.2025 08:58 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

I've been in this space since 2017, n-=1 of 44y this month.

10.03.2025 08:55 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

*in case

10.03.2025 08:54 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

"This" being the functional model long touted by members of COFFI and Oslo Chronic Fatigue Network, on case I wasn't clear enough. You're one of the good guys, David.

10.03.2025 08:53 β€” πŸ‘ 4    πŸ” 1    πŸ’¬ 1    πŸ“Œ 1
The Collaborative on Fatigue Following Infection (COFFI) - Governance

It's a touchy subject that will raise hackles if they don't know the players or the turf. Brilliant move, taking it to UNSW. 😁
www.coffi-collaborative.com/executive-co...

10.03.2025 08:49 β€” πŸ‘ 5    πŸ” 0    πŸ’¬ 1    πŸ“Œ 1

"This" is the gaslighty heck that's posed as the dominant medical model for infection-associated illnesses, especially those that mostly affect women. This particular version has been evolving for four decades.

10.03.2025 08:45 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

On the contrary, this is taking the bio into the psychosocial heartland.

10.03.2025 08:39 β€” πŸ‘ 5    πŸ” 0    πŸ’¬ 2    πŸ“Œ 0

Living with disabilities is a masterclass in how to handle gaslighting

You get it from everyone. Doctors, family, friends, bosses, colleagues

A neverending litany of people telling you β€œit can’t be THAT bad” or β€œyou should just do this”

We are the experts in our bodies. Respect us. Listen to us.

06.02.2025 04:45 β€” πŸ‘ 1456    πŸ” 313    πŸ’¬ 46    πŸ“Œ 19

Not disagreeing with your point. :) It's a pointy tip of the iceberg, from my perspective.

24.01.2025 00:52 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Interaction between coxsackievirus B3 infection and Ξ±-synuclein in models of Parkinson’s disease Parkinson’s disease (PD) is one of the most common neurodegenerative diseases. PD is pathologically characterized by the death of midbrain dopaminergic neurons and the accumulation of intracellular pr...

Usually, yes, though it can persist to cause problems later. There are many CVB-associated conditions that are rarely mentioned beyond their narrow research fields, including ME, ALS, Type 1 diabetes, myopathies, ARDS & others now recorded after SARS2 infection.
pmc.ncbi.nlm.nih.gov/articles/PMC...

23.01.2025 23:37 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Coxsackie B (now serotypes of Enterovirus betacoxsackie).

23.01.2025 23:20 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

I suspected the Parkinson's, but not read much more widely than its intersection/association with CVB infection.

23.01.2025 23:16 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

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