@epilepsysparks.bsky.social
Educating re the #epilepsies 🧠⚡🔬🧬! Check out our podcast & website! We bridge the comms gaps between clinicians, academics, & people with an epilepsy!
🎙️New episode!
“They Aren’t FAKE! Non-Epileptic Events” w/ Dr Parthvi Ravat 💜
Real symptoms, real science, real hope. Watch/listen/read, right here! 👇
🎙️ Podcast shorturl.at/iiRc1
🎬 YouTube shorturl.at/dzczm
📄 Show notes shorturl.at/Xicyt
#epilepsy #FND #PNES
🗣️ Have YOUR say about consciousness during seizures!! Takes 5 mins! Type in this link! www.surveymonkey.com/r/epilepsytalk
27.07.2025 10:24 — 👍 0 🔁 1 💬 0 📌 0
🤯 Migraine or seizure – or both?
Dr. Lucas Orellana 🤩🇦🇷 joins us on Epilepsy Sparks Insights 🎙️🎬 to explore:
⚡ Why many have both #epilepsy & #migraine
🧬 Meds that help both, & key triggers
🧠 Why personalised care matters more than ever 👇👇
🎙️ Podcast: shorturl.at/kv4N2
🎬 YouTube: shorturl.at/710iW
🚨 New episode! 🎙️🎬
Could keyrings help in epilepsy emergencies?! 🧠🔑
Dr. Daniel Goldenholz’s 🤩 3D-printable keyrings provide seizure first aid info & raise awareness globally! Watch/listen here 👇!
🎙️ Podcast shorturl.at/GPt6b
🎬 YouTube shorturl.at/oFxCj
#epilepsy #seizures #3Dprinting #safesteps
New pod! 🎧 “Flaccid? Dry? Disinterested? There’s Help!” w/ Epilepsy Specialist Nurse Jenny Edwards on sexual health & #epilepsy. Break the taboo!
🎙️ Podcast shorturl.at/egtLB
🎬 YouTube shorturl.at/HwE08
📄 Show notes shorturl.at/Ba8lA
#EpilepsyNurse #ESN #Sexlife #Epilepsy
Mood, seizures, SUDEP, sex & more 💬 Epilepsy nurses Patty & Ludivine talk it all & why YOU should join the IEC 2025 Nursing Section in Lisbon! 🎉🧠
Listen via the “Epilepsy Sparks Insights” podcast!!
#IEC2025 #EpilepsySparks #EpilepsyNurses #epilepsy @ilae-epilepsy.bsky.social
🎙️ New Epilepsy Sparks Insights podcast out!
ESNs Ludivine Rohrer & Patty Shefer share how #epilepsy nurses support patients, families & clinicians. 💜
🎬 YouTube youtu.be/UllIuSQE_EI
🎙️ Podcast mcdn.podbean.com/mf/web/exua2...
📄 Show notes www.torierobinson.com/epilepsy-spa...
#neurology
Meet the 2025 BRIDGE Summer Interns! These outstanding students are spending the summer immersed in epilepsy research and clinical work. Learn more about the 2025 interns: 🔗 buff.ly/TIPUHOD
#EpilepsyResearch #BRIDGEInterns #FutureLeaders #AES2025 #EpilepsyAwareness
Do you say “awareness” or “consciousness” re seizures? Have your say in this short survey! 👇 Hear why it matters for patient care 💜 on the #Epilepsy Sparks Insights podcast 🎙️.
Links here! 👇
🗒️Survey shorturl.at/71cKI
🎙️ Podcast shorturl.at/1GSee
📹 YouTube shorturl.at/LC7WL
#neurology
🎬 New Epilepsy Sparks Insights trailer!
“What is consciousness in seizures?” 🧠💥
YOUR input can improve #epilepsy care! 💜
Full episode and study 👇
🎙️ Podcast shorturl.at/1GSee
📹 YouTube shorturl.at/LC7WL
✍️ Show notes shorturl.at/P95KD
🗒️Survey shorturl.at/71cKI
#EpilepsySparks
🎙️ New Epilepsy Sparks Insights podcast 👇!
We chat with Scientist Helen Scharfman re #mossycells (of the temporal lobe), their role in #epilepsy & #anxiety, & a potential prevention!! 🧠⚡She also highlights PPI + global collaborations! 🌐
▶️ YouTube youtu.be/KHBqEYT1ThY
🎙️ Podcast shorturl.at/e7XWY
It’s #NationalEpilepsyWeek! We are part of a group of other amazing #epilepsy organisations (listed below!) and together we work together to improve the lives of people affected by the epilepsy via education 📚, support 🤗, and research 🔬!
Learn more about the epilepsies at www.epilepsysparks.com 💜
Thank you so much for sharing!
09.05.2025 10:59 — 👍 1 🔁 0 💬 0 📌 0
What do data, quality of life, & real patient voices have in common?
Psych Andrea Cipriani joins us to talk:
🔹 GALENOS & #mentalhealth
🔹 Personalised psychiatry
🔹 Community care
From evidence to empathy, it’s all here! 🎧 Tune in here 👇!
🎙️ Podcast shorturl.at/wmND5
📹 YouTube youtu.be/jO1UzzAc4U8
🌟 New episode! 🎙️ 📢 - #MentalHealth! Psychiatrist Prof Andrea Cipriani speaks of personalised psychiatry & how his project is using living data to revolutionise treatments for #depression, #anxiety, and #psychosis!! 👇
📹 YouTube youtu.be/jO1UzzAc4U8
🎙️ Podcast shorturl.at/wmND5
#epilepsy
🔊🗣️ We need more research 🔬 into psych disorders in people with an #epilepsy & a holistic approach to care.
Prof Andrea Cipriani 🤩 of @ox.ac.uk calls for research, a biopsychosocial approach, & neuro & psych collab.👇
🎙️ shorturl.at/Wh3RF
📹 youtu.be/J8P-irnBiQc
#MentalHealthAwarenessMonth
#suicide
New Ep: It’s Time We Talked.
Psych conditions are far more common in #epilepsy yet often overlooked. For #MentalHealthAwarenessMonth, psych & researcher Prof. Andrea Cipriani talks about #suicide risk, lived experience & holistic care. 👇
🎙️ Podcast shorturl.at/Wh3RF
📹 YouTube youtu.be/J8P-irnBiQc
📹 YouTube youtu.be/NacQ378O5gU
🎙️ Podcast shorturl.at/j0SOT
✍️ Show notes shorturl.at/OLPVI
#epilepsy #geneticepilepsy #ring20 #dravet #SCN2A #SCN8A #precisionmedicine
From one of planet earth’s genetic epilepsy experts, may we introduce Prof. Sam Berkovic 🇦🇺!
Topics:
🤓 Understanding Genetic Epilepsies
🚀 Advancements in Genetic Epilepsy Research
🥺 Impacts on Families & Societal Stigma
🔮 Future Directions in Genetic Epilepsy Research - Precision Medicine!
Links 👇!
📹 YouTube youtu.be/KpFmXT8MZow
🎙️ Podcast shorturl.at/VWF94
✍️ Show notes shorturl.at/XECuO
#depression #anxiety #mooddisorder #sleephygiene #seizurecontrol #EpilepsySparksInsights
🎬 Trailer! Learn more about SUDEP (Sudden Unexpected Death in Epilepsy), how to minimise risk (💊🥩😴😀) and how to improve quality of life in the process! This isn’t a scary episode - it’s about empowering individuals, families, and neurologists! Links in the text below.
#epilepsy #sudep #neurology
✨ What’s inside this vital episode of Epilepsy Sparks Insights? 🎙️😀💜
✅ #SUDEP risk factors
✅ Mood, sleep & med adherence
✅ Risk reduction throughmed adherence, & mood & sleep management
Dr. Sanja Gluscevic 🤩 shares must-know insights!
🎙️ Podcast shorturl.at/VWF94
📹 YouTube youtu.be/KpFmXT8MZow
Register for Genetic Epilepsy Team Australia 2025 - online or in-person! You can have an #epilepsy, be a carer, a clinician, or a researcher!
It’s on 2-3 May 2025.
Check it out here www.epilepsysparks.com/conferences/... & reg here: www.eventbrite.com.au/e/geta-2025-...
#genetics
‼️ “The Hidden Struggles of #Epilepsy: Mental Health” - our latest podcast 🎧 - now out!
Neuropsychologist Prof Gus A Baker 🤩 talks about how mental health disorders are commonly part of epilepsy 🥺 - eg #anxiety, #depression, #bipolar, & #psychosis.
🎙️ Pdcst shorturl.at/M3bBw
📹 YT youtu.be/y0BtkKTsX_s
What’s inside the new Epilepsy Sparks Insights podcast episode?!
🎯 1 MRI = diagnosis + mental health insight
⏱️ No more 22-year waits for surgery
💥 The Aussie-led future of epilepsy care
Check it out! 👇
🎙️Podcast shorturl.at/daYnh
📹 YouTube shorturl.at/0rUcK
#EpilepsyResearch #Neuroimaging
New episode! Incredible: only one MRI needed?! 👇
03.04.2025 11:46 — 👍 1 🔁 0 💬 0 📌 0This neuroscience (which includes #epilepsy research of course!) conference is open to people with an epilepsy as well as scientists! Check it out below! 👇
02.04.2025 18:38 — 👍 1 🔁 0 💬 0 📌 0Could 1 #MRI scan change #epilepsy diagnosis + treatment forever? 🧠💭⏳
Hear from Prof. Graeme Jackson 🇦🇺 in this weeks’ Epilepsy Sparks Insights 🎙️ podcast!
👀 Full episode drops on THURSDAY!
Type “Epilepsy Sparks Insights” into your podcast provider/YouTube!
#BrainHealth #Podcast #EpilepsyAwareness
💜!🚨 New Episode Alert! 🚨!💜
Neurologist Bindu Menon joins us🎙️to chat about #epilepsy in India 🇮🇳, the challenges of stigma and treatment, and how tech 📲 - is transforming care!
Check it out 👇!
📹 YouTube youtu.be/77R_M3HXsuc
🎙️Podcast shorturl.at/e1oaE
📖 Transcript & more on Bindu shorturl.at/aBXZn
💜 New podcast 🎙️ episode! We spoke with Dr. Simona Giorgi from Dravet Syndrome Foundation Spain about groundbreaking #Dravet Syndrome research & tools like DANCE, which helps detect neuropsychiatric challenges. 🧠👇
🎙️ Podcast shorturl.at/xqUlC
📹 YouTube shorturl.at/r5dVN
✍️ Show notes shorturl.at/X6bT9
