๐งโ๐คโ๐ง Our fellow humans in prison โ๏ธ - are not getting the epilepsy care or even the prescriptions they need - because they're in prison. This isn't only impacting quality of life but increasing risk of #SUDEP!
Check out our trailer for this week's podcast here ๐!
๐ฌ YouTube shorturl.at/qNwkX
#epilepsy
24.10.2025 15:44 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Why is epilepsy so common in prisons - podcast
Who knew that #epilepsy was soooo much more common in prisonsโ๏ธ? Up to 4 times as many people in prison have an epilepsy compared to the regular public ๐ซจ!
Learn about why this is and what can be done to sort things out! ๐
๐๏ธ shorturl.at/sywif
๐ฌ shorturl.at/qNwkX
#prisonhealth #neurology
23.10.2025 14:04 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
โ๏ธAre they just disregarded? Not valued? #Epilepsy is up to FOUR TIMES more common in prisons โ๏ธ.
People are way more likely to have had Traumatic Brain Injury, have substance misuse, mental health illnesses and more.
Check out this weekโs episode all about it! ๐๐ป youtu.be/2yKOxliR1pY
23.10.2025 10:50 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Interactive, self-paced & global - the ILAE Academy is transforming clinician education in the epilepsies! ๐ Hear from Prof. Gagandeep Singh ๐คฉ ๐ฎ๐ณ.
๐๏ธ Podcast shorturl.at/QdjMR
๐ฌ YouTube shorturl.at/4gvmM
#EpilepsyEducation #ILAEAcademy #Neurology @ilae-epilepsy.bsky.social
16.10.2025 16:12 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
How is the ILAE Academy reshaping epileptology training worldwide? ๐ Hear from Prof. Gagandeep Singh ๐คฉ ๐ฎ๐ณ on Torieโs show!
๐๏ธ Podcast shorturl.at/QdjMR
๐ฌ YouTube shorturl.at/4gvmM
๐ Show notes shorturl.at/c8SyD
๐ค Gagandeep profile shorturl.at/48lSb
@ilae-epilepsy.bsky.social @uclh.bsky.social
16.10.2025 11:56 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
What can it *really* be like to care for someone with an epilepsy? ๐ค
Dr. Florien Boele ๐คฉ๐ณ๐ฑ๐ฌ๐ง shares why carersโ wellbeing must not be overlooked - and how to take part in her research all about it! ๐
๐ฌ shorturl.at/7iv2e
#EpilepsySparks #EpilepsyAwareness #Carers #HealthResearch #EpilepsyResearch
09.10.2025 15:42 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Low-down of episode and QR code for the study
Unpaid carers save the UK ยฃ184B a year - but at what cost to their health? ๐คฏ
Dr. Florien Boele ๐ณ๐ฑ๐ฌ๐ง talks with Torie Robinson about quality of life, stress, & why carers matter. Check out the episode here ๐.
๐ฌ shorturl.at/7iv2e
#EpilepsyAwareness #Carers #HealthResearch #EpilepsyResearch
09.10.2025 14:36 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
@carers-uk.bsky.social @carersscotland.bsky.social @carers-week.bsky.social
09.10.2025 11:47 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Who are carers really - and why do they matter so much in the epilepsies? ๐๐ค
Dr. Florien Boele ๐คฉ ๐ณ๐ฑ๐ฌ๐ง joins Torie Robinson to talk about unpaid carers & their ยฃ184B ๐ฎ contributionโฆ!
๐ฌ shorturl.at/7iv2e
๐ shorturl.at/ttH16
#EpilepsySparks #EpilepsyAwareness #Carers #HealthResearch #EpilepsyResearch
09.10.2025 11:46 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0
New podcast episode! ๐ Dr Ewan Nurse ๐คฉ๐ฆ๐บ joins Torie to discuss his research re:
ใฐ๏ธ Missed seizuresโฆ
ใฐ๏ธ Flawed diaries ๐คฆโโ๏ธ
ใฐ๏ธ Improving reporting for better care ๐
Watch/listen/read the Epilepsy Sparks Insights episode ๐
๐๏ธ shorturl.at/BsOVW
๐ฌ shorturl.at/SJLxN
๐ shorturl.at/RK1vL
#epilepsy #seizurediary
25.09.2025 13:03 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐ฅ New Ep! ๐ฅ
Harvardโs Dr Phillip Pearl ๐คฉ๐บ๐ธ (Chief of Epilepsy at Boston Childrenโs Hospital & Prof at Harvard) on:
โก Why advocacy matters
๐งฌ Rare epilepsy & gene therapy
๐ SUDEP & mental health
Catch it here ๐
๐๏ธ shorturl.at/LbjyF
๐ฌ shorturl.at/z7VzU
๐ shorturl.at/PDSag
#Epilepsy #Neurology #SUDEP
18.09.2025 13:56 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0
๐ฌ Podcast trailer drop!
Dr Phillip Pearl ๐คฉ๐บ๐ธ shares the incredible story of Vitamin B6-dependent epilepsy ๐ฑ - a rare condition where seizures can be treated with a vitamin ๐ - & how it opened the door to modern gene therapy! ๐
๐๏ธ Podcast mcdn.podbean.com/mf/web/fskua...
๐ฌ YouTube youtu.be/yJ31k_6xNNg
11.09.2025 18:27 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
UCLA researchers find how epilepsy genes disrupt different brain regions using stem cell models
The new research points to the distinct effects that a single disease-causing gene variation can have across different regions of the brain.
UCLA researchers used stem cellโderived assembloids to show how SCN8A variants trigger cortical hyperactivity (seizures) and impair hippocampal rhythms (memory). This new model may explain cognitive challenges beyond seizures and open avenues for better treatments.
Read more: https://bit.ly/41O86BE
11.09.2025 16:53 โ ๐ 3 ๐ 2 ๐ฌ 0 ๐ 0
๐งฌ New Epilepsy Sparks Insights podcast! ๐ง๐ฌ
Dr Phillip Pearl ๐คฉ๐บ๐ธ from Boston Childrenโs Hospital & Harvard explains inherited metabolic epilepsies, Vitamin B6 dependency, & the future of gene therapy!
Watch/listen/read, here ๐!
๐๏ธ Podcast mcdn.podbean.com/mf/web/fskua...
๐ฌ YouTube youtu.be/yJ31k_6xNNg
11.09.2025 14:00 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
๐ NEW PODCAST ๐
Dr Phillip Pearl ๐คฉ๐บ๐ธ explains inherited metabolic epilepsies(!), how they cause more than seizures, & how vitamin B6 ๐ & diets ๐ฅฉ paved the way for gene therapy! Watch/listen/read here ๐!
๐๏ธ Podcast shorturl.at/5entK
๐ฌ YouTube shorturl.at/ghltc
๐ Show notes shorturl.at/nIFpn
#epilepsy
11.09.2025 13:23 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Torie Robinson presenting on epilepsy management
The mighty @epilepsysparks.bsky.social Torie is up now!
Talking patient education and seizure management, how to improve quality of life
31.08.2025 11:27 โ ๐ 2 ๐ 1 ๐ฌ 1 ๐ 0
Thank you so much!!
11.09.2025 13:21 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Neurologist. Patient. Writer. Dr Jim Morrow ๐ฌ๐ง shares his extraordinary story in our latest Epilepsy Sparks Insights podcast๐!
๐๏ธ Podcast youtu.be/T7P1-flyzpY
๐ฌ YouTube mcdn.podbean.com/mf/web/zihpz...
๐ Show notes www.torierobinson.com/epilepsy-spa...
#Epilepsy #NeurologyPodcast #EpilepsyResearch
28.08.2025 20:06 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Challenge in #epilepsy care: supernatural beings like โdemonsโ ๐น and โwitchesโ ๐ง+ 70 different languages!! See the trailer with paediatric neurologist Dr Yanin Rivera ๐ฒ๐ฝ in todayโs Epilepsy Sparks Insights trailer!! ๐๐ป
๐๏ธ Podcast mcdn.podbean.com/mf/web/i7s8x...
๐ฌ YouTube youtu.be/l7CWytytUoc
21.08.2025 19:35 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
โจ New Epilepsy Sparks Insights ๐ง!
๐ youtu.be/l7CWytytUoc
Paediatric neurologist Dr Yanin Rivera ๐ฒ๐ฝ shares how cultural beliefs, 93 Epilepsy Centres ๐ฎ & telemedicine are transforming epilepsy care! ๐
๐ฌ YouTube youtu.be/l7CWytytUoc
๐๏ธ Podcast mcdn.podbean.com/mf/web/i7s8x...
#epilepsy #mexico
21.08.2025 12:00 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Yesssss!!! Ditto!
20.08.2025 14:14 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
๐ฌ Trailer! ๐ฌ Sexual health & epilepsy & our talk in Lisbon! With Drs Brad Kamitaki ๐บ๐ธ & Lucas Orellana ๐ฆ๐ท. For patients AND clinicians!
Watch/listen/read, here!! ๐
๐ฌ YouTube youtu.be/sPS7r0yc2mI
๐๏ธ Podcast mcdn.podbean.com/mf/web/rdmpx...
#Epilepsy #SexualHealth #ClinicianEducation
14.08.2025 17:18 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐จ New Ep! ๐จ Sexual health & epilepsy โ why it matters & how clinicians can talk about it. ๐
With Drs & Epileptologists Brad Kamitaki ๐คฉ ๐บ๐ธ & Lucas Orellana ๐คฉ๐ฆ๐ท.
Watch/listen ๐!
๐ฌ YouTube youtu.be/sPS7r0yc2mI
๐๏ธ Podcast mcdn.podbean.com/mf/web/rdmpx...
#EpilepsyAwareness #SexualHealth #Neurology
14.08.2025 13:25 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐๏ธ New Episode: โEpilepsy & Suicide: Breaking the Silenceโ w/ clinical psychologist Milena Gandy ๐คฉ๐ฆ๐บ & epileptologist Heidi Munger Clary ๐คฉ๐บ๐ธ
Letโs talk patient-centred care & clinicians confident to talk about #mentalhealth & #suicide. ๐
๐ฌ youtu.be/zJuQvPkOt8U
#epilepsy #IEC
07.08.2025 14:04 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0
Apply for funding
Researchers and research institutions - we have launched our 9th Research Funding Call! Find out more about how to apply and the process involved.
๐ข @epilepsyireland.bsky.social has launched their 9th Research Funding Call, focusing on priority areas identified to drive innovation and improve the lives of people with epilepsy.
๐ Learn more and submit your Expression of Interest by September 26: www.epilepsy.ie/content/appl...
30.07.2025 08:19 โ ๐ 2 ๐ 3 ๐ฌ 0 ๐ 0
๐๏ธNew episode!
โThey Arenโt FAKE! Non-Epileptic Eventsโ w/ Dr Parthvi Ravat ๐
Real symptoms, real science, real hope. Watch/listen/read, right here! ๐
๐๏ธ Podcast shorturl.at/iiRc1
๐ฌ YouTube shorturl.at/dzczm
๐ Show notes shorturl.at/Xicyt
#epilepsy #FND #PNES
31.07.2025 10:52 โ ๐ 4 ๐ 2 ๐ฌ 0 ๐ 1
๐คฏ Migraine or seizure โ or both?
Dr. Lucas Orellana ๐คฉ๐ฆ๐ท joins us on Epilepsy Sparks Insights ๐๏ธ๐ฌ to explore:
โก Why many have both #epilepsy & #migraine
๐งฌ Meds that help both, & key triggers
๐ง Why personalised care matters more than ever ๐๐
๐๏ธ Podcast: shorturl.at/kv4N2
๐ฌ YouTube: shorturl.at/710iW
24.07.2025 15:39 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐จ New episode! ๐๏ธ๐ฌ
Could keyrings help in epilepsy emergencies?! ๐ง ๐
Dr. Daniel Goldenholzโs ๐คฉ 3D-printable keyrings provide seizure first aid info & raise awareness globally! Watch/listen here ๐!
๐๏ธ Podcast shorturl.at/GPt6b
๐ฌ YouTube shorturl.at/oFxCj
#epilepsy #seizures #3Dprinting #safesteps
17.07.2025 10:20 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
MRC Career Development Fellow. Senior Lecturer, Neuroscience & Psychology of Mental Health, IoPPN, KCL. Experimental psychologist & cognitive/affective neuroscientist. Leads the Neurological Affective & Dissociative Symptoms (NEUROADS) Lab.
Scientific content aggregator with custom content feeds. Science news, jobs, events and more. Sign up at https://www.scientific.today.
Galway native, Lover of Lyons Tea,Happy Out
Science Events helps you organise a scientific conference or workshop. Use our platform to organise your next event! Visit our platform at https://www.sci.events
Based at Cardiff University, we develop innovative therapies for neuro-diseases. Funded by the Welsh Government through Research Wales.
#Neuroscience
We translate new epilepsy research into plain language for parents, caregivers, and people with epilepsy. #Epilepsy ๐
CURE Epilepsy is the leading nongovernmental funder of epilepsy research, with over 300 grants funded in 19 countries to date.
An Embodied Approach to the Treatment of Pediatric and Adult Functional Neurological Disorder (FND)
Radically advancing epilepsy research.
FutureNeuro is the Research Ireland Centre for Translational Brain Science, based in RCSI University of Medicine and Health Sciences. Our vision is to change the patient journey for people affected by brain conditions.
FND Ireland is the first Irish registered charity dedicated to advocating for and supporting those living with Functional Neurological Disorder (FND) in Ireland. ๐๐งก www.fnd.ie
A person with Functional Neurological Disorder. News and musings on FND, disability, and brain science. Contributing to projects at AAN, FNDS, UCL, NHNN. When we work together we can change it for the better. He/him.
A platform for life sciences. Publications, research protocols, news, events, jobs and more. Sign up at https://www.lifescience.net.
Medicinal Chemistry Researcher๐จ๐พโ๐ฌ๐ฌ๐ฟ๐ผ๐บ๐ธ | Pharmaceutical Scientist ๐ | PK/PD Modeling๐ป | Biotech๐งฌ | Oncology๐ | O-Chem Tutor๐งช | @UBuffalo @UBmenstennis๐พ๐ฆฌ๐ค๐ฟAlumnus๐ | Zimbabwean Pro Tennis Player๐พ๐ฟ๐ผ | Athlete ๐ด๐ฟโโ๏ธ๐๐ฟโโ๏ธโ๏ธ๐๐บ๐ธ | #BillsMafia ๐๐ฆฌ
https://linktr.ee/vusumuzihove
PI of the Functional Genomics lab (https://fungenlab-ugent.be/) at Ghent University.
Elucidating the genetics of neurodevelopmental disorders.
Special interest in the role of the non-coding genome during neurodevelopment.
Physician-scientist @stanford medicine, AHFTC, genomics of rare disease, cardiovascular genetics, exercise multiomics, cardiomyopathy, novel therapeutics and data. #motrpac #UDN #Gregor #CFDE . Husband, kids and cats, mountains and snow. Resist hate.
I am a committed sustainability professional and a strong communicator. I am long dedicated to activities supporting nature & equality, seeking to impact our future through culture, philosophy, horticulture, media and education and awareness.
