๐ The 4th Annual @rareireland.bsky.social Conference takes place on Nov 14 in Athlone.
Weโre delighted that our Investigator Prof Norman Delanty will speak about the vital role of patient registries in #RareDisease research.
๐ Find out more and register at: www.tickettailor.com/events/rarei...
30.10.2025 08:59 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
FutureNeuro researchers Dr Hugh Kearney & Dr Susan Byrne met with Alison & Aoife from Multiple Sclerosis Ireland to discuss advocacy & #TransitionServices for children & young people with neuroinflammatory conditions, in particular MS. Collaborations like this support ongoing improvements in care.
24.10.2025 10:09 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Breaking new ground to advance seizure monitoring and epilepsy diagnosis
A new clinical trial co-led by researchers at FutureNeuro and RCSI University of Medicine and Health Sciences is investigating how advanced brain monitoring could improve the diagnosis and management ...
Traditional diagnostic methods for #epilepsy face significant limitations. A new clinical trial co-led by ๐ฎ๐ช @futureneuro.bsky.social and ๐ฎ๐ช @rcsi.bsky.social explores the potential of advanced #brain monitoring to improve #diagnosis and management of the condition.
23.10.2025 06:33 โ ๐ 2 ๐ 1 ๐ฌ 0 ๐ 0
Our founder Eamon McPartlin will speak at @futureneuro.bsky.social #MyMovingBrain in Galway which is a community connect event that explores barriers that may prevent people living with brain conditions from participating in sports.
#FNDIreland will also host an information stand on the day. ๐๐งก
22.10.2025 15:45 โ ๐ 2 ๐ 1 ๐ฌ 0 ๐ 0
๐ง FutureNeuro researchers at Trinity College Dublin have developed a HD-ESG system to record spinal cord activity in real time. It could help researchers better understand spinal cord function and study conditions like MS, and cerebral palsy.
๐Read more: futureneurocentre.ie/new-electrod...
21.10.2025 07:59 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
๐ For many people living with epilepsy, driving again marks a major step toward independence. New FutureNeuro research in Epilepsia Open found that 15 of 87 people treated with vagus nerve stimulation (VNS) became medically eligible to drive. Read more: futureneurocentre.ie/publications...
20.10.2025 07:55 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
New clinical trial to advance seizure monitoring and improve epilepsy diagnosis
A new clinical trial co-led by researchers at FutureNeuro and RCSI is investigating how advanced brain monitoring could improve the diagnosis and management of epilepsy. More ...
A clinical trial by researchers at RCSI and @futureneuro.bsky.social is investigating how advanced brain monitoring could improve epilepsy diagnosis and management.
The study uses a device that enables remote monitoring of brain activity.
Learn more โก๏ธ www.rcsi.com/dublin/news-...
#RCSIdiscover
16.10.2025 12:04 โ ๐ 2 ๐ 2 ๐ฌ 0 ๐ 0
๐ข Building on research recently published in Epilepsia, a new trial co-led in Ireland by FutureNeuro Investigators is testing long-term subcutaneous EEG monitoring to improve epilepsy diagnosis, reduce hospital stays, & support personalised care.
๐ Read more: futureneurocentre.ie/new-clinical...
16.10.2025 08:25 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
๐
Paralympic champion & @epilepsyireland.bsky.social Ambassador, Dr Michael McKillop, is hosting & delivering the keynote at #MyMovingBrain Galway (Nov 1).
Living with #Epilepsy, heโs breaking stigma & proving brain conditions donโt define potential.
Register: www.eventbrite.ie/e/1754128227...
09.10.2025 08:16 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐ง People experiencing homelessness are up to 8 times more likely to have #Epilepsy. A new study involving our Investigator, Prof Colin Doherty, found that stigma & mental health challengesโmore than seizure controlโhave the greatest impact on quality of life: futureneurocentre.ie/publications...
07.10.2025 08:24 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
What to expect at #MyMovingBrain Galway: inclusive sports, hands-on science activities, inspiring talks & practical tips and resources for staying active with brain conditions. Donโt miss out โ reserve your spot! ๐ www.eventbrite.ie/e/1754128227...
@researchireland.ie @epilepsyireland.bsky.social
06.10.2025 07:52 โ ๐ 1 ๐ 1 ๐ฌ 0 ๐ 0
๐ #MyMovingBrain is coming to Galway โ the final stop in our national series.
Join us on November 1st at the @uniofgalway.bsky.social for a day of inclusive sport, science activities, & inspiring talks on brain health and inclusivity in sport.
Register at: www.eventbrite.ie/e/1754128227...
01.10.2025 09:21 โ ๐ 1 ๐ 1 ๐ฌ 0 ๐ 0
Coming up soon from TSC Ireland: two events on Tuberous Sclerosis Complex โ Oct 31 (for clinicians & researchers) + Nov 1 (for patients & families).
Our PI Prof Colin Doherty will speak at both.
Details & registration: tscireland.org/events
30.09.2025 07:41 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐ A brilliant night at the @chambersireland.bsky.social Sustainable Business Impact Awards. No win this time, but a great chance to celebrate our #MyMovingBrain community connect seriesโand to recognise everyone whoโs helped shape it so far.
@epilepsyireland.bsky.social @researchireland.ie
25.09.2025 10:07 โ ๐ 2 ๐ 1 ๐ฌ 0 ๐ 0
๐งฌNew study in Molecular Psychiatry, with FutureNeuro Investigator Prof Catherine Mooney, suggests autism-related biological changes may begin before birth. If confirmed in larger studies, these biomarkers could support earlier identification and timely care: futureneurocentre.ie/publications...
24.09.2025 08:42 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0
๐ Getting excited for #PPIFestival2025! Join us at @rcsi.bsky.social on Oct 1โ2 for the launch. Weโre delighted to be contributing to the session on PPI in Collaborative Networks & Research Centres. Find out more and register here: 100896engagecms.campusnexus.cloud/ppi-national...
23.09.2025 08:35 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Thank you to the FutureNeuro researchers who hosted our stand at the National @epilepsyireland.bsky.social Conference on Saturday! Great to connect with the #Epilepsy community and share updates on our current research and Centre activities ๐
@researchireland.ie @chrisgreene.bsky.social
22.09.2025 08:27 โ ๐ 2 ๐ 1 ๐ฌ 0 ๐ 0
Check out our new review โฌ๏ธ microRNAs in inflammation & repair in Multiple Sclerosis. Really enjoyed writing this with Dr Maria Muรฑoz San Martin and team ๐ฉ๐ปโ๐ป
19.09.2025 08:29 โ ๐ 1 ๐ 2 ๐ฌ 0 ๐ 0
Our new review from @dowlingjk.bsky.social's team @rcsi.bsky.social examines how microRNAs regulate inflammation and repair in MS. Using advanced stem-cell models, the review highlights their potential as biomarkers & therapeutic targets to support brain repair: futureneurocentre.ie/publications...
19.09.2025 08:12 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 1
Researchers, including several from FutureNeuro, found people with temporal lobe epilepsy experience more widespread brain changes across adulthood, highlighting the importance of early diagnosis and treatment: futureneurocentre.ie/publications...
@researchireland.ie @epilepsyireland.bsky.social
17.09.2025 08:32 โ ๐ 4 ๐ 2 ๐ฌ 0 ๐ 0
FutureNeuro supports The Mirror Stage by Brokentalkers, developed with our PIs Prof David Cotter & Prof Mary Cannon and the PSI-STAR programme, created with people with lived experience of psychosis to challenge stigma & deepen understanding: futureneurocentre.ie/futureneuro-...
@rcsi.bsky.social
16.09.2025 08:25 โ ๐ 2 ๐ 1 ๐ฌ 0 ๐ 0
Last week, researchers from across the Centre joined our Townhall at the Explorium to reflect on 2025 achievements. A highlight was a training session on #EngagedResearch delivered by Dr Emma Dorris, exploring its benefits and helping our researchers develop their own ideas.
@researchireland.ie
15.09.2025 08:39 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Using biobanks to boost research: a how-to guide
From large national databases to bespoke sample collections, biobanks offer a wealth of avenues for scientific enquiry.
Great @nature.com Technology feature on how biobanks can drive research. Our Deputy Director, Prof Cavalleri, shares how epilepsy researchers use biobanks at @rcsi.bsky.social to access detailed clinical data, streamline consent and collaborations with clinicians: www.nature.com/articles/d41...
12.09.2025 10:19 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐งฌ Our new research with CHI Crumlin, reviewed 5 years of genetic testing in paediatric neurology. The study found clear clinical benefits but also highlighted significant time and resource demands, pointing to the value of embedding genetic counsellors: futureneurocentre.ie/publications...
10.09.2025 08:14 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐ FutureNeuro is hiring a Reporting and Finance Officer (maternity cover) to oversee budgets, manage reporting, support audits, and assist with day-to-day operations. Find out more and apply by September 25: my.corehr.com/pls/coreport...
#NewJob #HiringNow #Finance #Reporting
08.09.2025 12:19 โ ๐ 1 ๐ 0 ๐ฌ 2 ๐ 0
๐ Weโre hiring! ๐
FutureNeuro is seeking a Digital Health Innovation Lead to champion our data & digital health assets, strengthen collaborations, and drive impact. Find out more and apply by Sept 25: my.corehr.com/pls/coreport...
@rcsi.bsky.social @rcsi-research.bsky.social @researchireland.ie
05.09.2025 12:59 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
A young baby in a long-sleeved vest sits on a fluffy rug in a living room, playing with some colourful blocks.
Researchers from RCSI and CHI write in JAMA Network Open on how the COVID-19 pandemic shaped infant development.
They reflect on new evidence showing complex effects of social restrictions, parenting and protective factors during early childhood.
โก๏ธ jamanetwork.com/journals/jam...
#RSCIdiscover
05.09.2025 09:39 โ ๐ 4 ๐ 1 ๐ฌ 0 ๐ 0
๐ Great to see so many FutureNeuro researchers at the recent International Epilepsy Congress! Thanks to the clinicians who support our work & to @epilepsyireland.bsky.social & Irish Epilepsy League for nominating our Director, @dchenshall.bsky.social, for the 2025 Ambassador for Epilepsy Award.
05.09.2025 08:10 โ ๐ 1 ๐ 1 ๐ฌ 0 ๐ 0
๐ง New FutureNeuro research shows two FDA-approved drugs reduced seizure risk in pre-clinical TBI models, with stronger effects when combined. Since both drugs are already approved, this could accelerate testing for preventing post-traumatic epilepsy: futureneurocentre.ie/publications...
04.09.2025 08:18 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
IReL is an e-resource licensing consortium for Irish HEIs and leads Ireland's ORCID and DataCite consortia, and the National OA Monitor. https://irel.ie/
Free, confidential service supporting you to make a complaint about your care in a public acute hospital or nursing home or after a Patient Safety Incident
0818 293003
info@patientadvocacyservice.ie
www.patientadvocacyservice.ie
RCN: 2153
We translate new epilepsy research into plain language for parents, caregivers, and people with epilepsy. #Epilepsy ๐
The official journal of the European Society of Human Genetics, providing insights into human genetics, genomics, molecular, clinical, and cytogenetics research
DRNI facilitates collaborative interdisciplinary research & policy development in dementia on the island of Ireland. School of Medicine, TCD.
A career network featuring science jobs in academia and industry.
Visit our platform at www.science.hr
Director of Strategy, UCD School of Medicine. Opinions my own.
Black sheep of a high performing family. More privileged than most.
Educating re the #epilepsies ๐ง โก๐ฌ๐งฌ! Check out our podcast & website! We bridge the comms gaps between clinicians, academics, & people with an epilepsy!
High-quality, topflight, and clinically impactful basic and translational research representative of all biomedical specialties and physician-scientists: https://insight.jci.org/
Supporting postgraduate research students and their supervisors at Maynooth University.
Website: https://www.maynoothuniversity.ie/graduate-research-academy
Lecturer and PI @RCSI Dublin working to understand the NeuroImmune axis and inflammation in the brain
#CDKL5 ๐งฌ | Former school social worker turned stay-at-home medical mama | ๐๏ธProducer, content creator, & co-host of the CDKL5 in Color Podcast @cdkl5incolor.bsky.social
www.CDKL5inColor.com
Innovating Methods | Advancing Deprescribing
Based at RCSI (https://bsky.app/profile/rcsi.bsky.social), led by Prof Frank Moriarty (@frankmoriarty.bsky.social) and funded by Wellcome.
Find out more about our work here: https://diamond-deprescribing.eu/
We are a research-intensive university and, as such, research and scholarship are fundamental to our mission.
visit: maynoothuniversity.ie/research
#MaynoothResearch #ResearchImpact #ResearchBeacons
On the CDKL5 in Color podcast you'll hear lessons learned direct from parent caregivers of children living with #CDKL5 Deficiency Disorder, a rare developmental and epileptic encephalopathy. www.CDKL5inColor.com
Neuroscientist, psychologist, writer; Prof Exp Brain Res, Trinity College Dublin; newsletter @ www.brainpizza.com; New book: Talking Heads @ www.shaneomarawriter.com
Rare Genomics Institute (RG) is a 501(c)3 non-profit organization committed to filling the unmet needs of patients and families affected by rare diseases.
https://www.raregenomics.org/
The European Federation of Neurological Associations [EFNA] is a non-governmental organisation (NGO) that brings together 21 pan-European neurology patient groups.
Our slogan โEmpowering Patient Neurology Groupsโ encapsulates our goals as an association.
FND Ireland is the first Irish registered charity dedicated to advocating for and supporting those living with Functional Neurological Disorder (FND) in Ireland. ๐๐งก www.fnd.ie