Tilly Rose

@thattillyrose.bsky.social

I received your book in the mail last week, and am so inspired by you as a person. It’s one thing to be a patient, but another to do it at Jesus College and writing a novel. I have a chronic illness and have written a novel but scared to publish.. you give me hope ♥️♥️♥️♥️

“I spent 20 years in hospital - here are the horrifying things I saw”: A medical mystery patient on what life's really like on NHS wards Tilly Rose was a ‘medical mystery’ patient and spent two decades in and out of medical care. Here, she tells Bethan Rose Jenkins what she experienced and how she’s now advocating for others

Amazing to have my story and BE PATIENT featured in @goodhousekeeping.bsky.social

Thank you for shining a light on patient care! 💡🩺

Read the full article here: www.goodhousekeeping.com/uk/lifestyle...

Happy publication day to CBC alumna @thattillyrose.bsky.social 🌼✨

Tilly's memoir #BePatient is an extraordinary memoir on resilience, hope and finding strength in the face of adversity, and it's out now from Octopus!

Get your hands on a copy: uk.bookshop.org/a/11853/9781780726229

So delighted that @cbcreative.bsky.social have shared my author interview today! So grateful for the opportunity I had to hone my writing on their courses 📖✨

On #WorldBookDay2025 I am so excited to share these incredible endorsements for my upcoming book ‘Be Patient - life, loss and laughter from behind the hospital curtain’

Out 17th April, available to pre-order NOW: linktr.ee/bepatientboo...

Delighted to be collaborating with @addisonsdisease.bsky.social to share my upcoming book ‘Be Patient’ for World Book Day 2025!

Part 2 of ‘Be Patient’ covers my experience or living with adrenal insufficiency. This book is part of my wider mission to impact patient care 🌼📖💪

I learnt so much on my @cbcreative.bsky.social memoir course and seeing how many successful authors had gone onto receive publishing deals after these courses, made me keep believing I could do it!

Curtis Brown are now offering a scholarship for a low income writer ⬇️

Yay thank you! So grateful for everything I learnt on the memoir course @cbcreative.bsky.social 📖✨

Monoray to publish Be Patient by Tilly Rose Monoray (part of the Octopus Publishing Group) has acquired the rights to publish Be Patient by “medical mystery” Tilly Rose.

📚 Tilly Rose – @thattillyrose.bsky.social has signed a deal with Monoray to publish Be Patient, a deeply moving and funny memoir about life, loss and finding humour behind the hospital curtain. Read more here:

From Ig chapter 494: Scroll Hole

#scrollhole #chronicillness #chronicallyill #raredisease #diagnosis #pots #eds #ehlersdanlos #vascularcompressions #medicine #chronicillnessawareness

When you meet another #patient who actually knows what you are going through 💛.

From Ig Chapter 485: Patient Pals

#chronicillness #chronicallyill #raredisease #medicine #eds #pots #vascularcompressions #chronicpain #patientlife

From Ig chapter 4️⃣6️⃣9️⃣ Bicycle:

#chronicillness #raredisease #rarediseaseuk #chronicillnessrs #chronicallyill #eds #eherlsdanlos #pots #me #cfs #undiganosed #belief #chronicillnessmemes #motitvationalquotes

From Ig chapter 497: Heal

#healing #healingmantras #reiki #reikihealer #energyhealing #chronicillness #heavymetal #nutrition #motivationalquotes #chronicallyill

From Ig chapter 4️⃣8️⃣2️⃣: Belief

#chronicillness #chronicallyill #nhs #patientlife #diagnosis #medicine #healing #belief #motivationalquotes #healingmantras #book #author #eds #ehlersdanlos #vascularcompressions #avcs #chronicfatigue #pots #ME #firbomylalgia

From Ig chapter 4️⃣9️⃣6️⃣ ‘Comfort’:

#chronicillness #chronicallyill #nhs #motivationalquotes #patientlife #pots #eds #ehlersdanlos #vascularcompressions #gastrparesis #bepatient

💛💛💛

From Ig chapter 4️⃣9️⃣6️⃣:

#chronicillness #pots #eds #chronicallyill #mcas #me #mcas #gastroparesis #ehlersdanlos #vascularcompressions #mum #women #femaleempowerment #motivationalquotes

From Ig chapter 4️⃣9️⃣4️⃣ Nurse:

#chronicillness #chronicallyill #nursing #quotes #eds #vascularcompressions #patientlife

From Ig chapter 491:

#chronicillness #chronicallyill #chronicillnesswarriors #eds #ehlersdanlos #avcs #raredisease #friendship #kindnessquotes

From Ig Chapter 495 - Cry

#chronicillness #eds #ehlersdanlos #vascularcompressions #health #patientlife

💙💙💙

Tilly Rose │ Chronic Illness (@thattillyrose) • Instagram photos and videos 92K Followers, 6,410 Following, 523 Posts - See Instagram photos and videos from Tilly Rose │ Chronic Illness (@thattillyrose)

I share chapters on my 20 years of life as the #patient over on my Instagram www.instagram.com/thattillyros...

Maybe I’ll start sharing them here too 📖✨