Maj F Birkedal's Avatar

Maj F Birkedal

@majfbirkedal.bsky.social

Paediatric nurse•thrombosis and haemostasis•Chair EAHAD nurses committee•Clinical trial coordinator🇩🇰

146 Followers  |  124 Following  |  6 Posts  |  Joined: 18.11.2024  |  1.7032

Latest posts by majfbirkedal.bsky.social on Bluesky

In @eahad.bsky.social's latest podcast,
@majfbirkedal.bsky.social discusses using a subcutaneous drug delivery device to reduce treatment-related #pain in children with #haemophiliaA on #emicizumab. Read her paper in The Journal of Haemophilia Practice sciendo.com/article/10.2...

#HemeSky #MedSky

04.09.2025 10:41 — 👍 3    🔁 1    💬 0    📌 0

🩺 Calling all nurses in #haemophilia & bleeding disorders! The EAHAD Nurses Committee is looking for one new member to join for a three-year term starting September 2025! 📅 Don’t wait and apply now: www.eahad.org/call-for-app...

02.06.2025 14:47 — 👍 5    🔁 4    💬 0    📌 0
Preview
Meet the Author Ep. 6: Exercise-based telerehabilitation for the management of chronic pain in people with severe haemophilia: a mixed-methods feasibility study EAHAD · Episode

#PhysioNews 🎙️ Get ready for an insightful conversation with @physiopaul.bsky.social on his recent paper "Exercise-based telerehabilitation for the management of chronic pain in people with severe haemophilia"! Tune in now 🎧 on Spotify: open.spotify.com/episode/2B8j...

27.03.2025 12:40 — 👍 3    🔁 3    💬 0    📌 0
Post image

Relive the best moments from #EAHAD2025 congress with our official photo album! 📸 From insightful sessions to inspiring connections, dive into the memories now: www.flickr.com/photos/13951... 💬 Tag yourself or a colleague in your favourite pic and share your key takeaways!

28.03.2025 14:30 — 👍 0    🔁 1    💬 0    📌 0
Post image

🩺 Calling all healthcare professionals and patients! The VRCFD WG is surveying to gather insights into current practices for diagnosing, treating, and managing very rare coagulation factor deficiencies. 📝 Participate in the survey here: www.eahad.org/about-eahad/...

20.02.2025 09:27 — 👍 3    🔁 1    💬 0    📌 0
Preview
Maj Friberg Birkedal on LinkedIn: Congratulations to all the well deserved winners. Outstanding indeed! Congratulations to all the well deserved winners. Outstanding indeed!

www.linkedin.com/posts/maj-fr...

09.02.2025 10:54 — 👍 4    🔁 0    💬 0    📌 0
Preview
A single centre experience with clinical use of Neria™... Background The introduction of emicizumab as prophylactic subcutaneous (SC) administered treatment for people with haemophilia A has...


If you care for a child on emicizumab treatment please consider if your practice could benefit from our experiences.
It has made a world of difference to our patients. Read it here: doi.org/10.2478/jhp-...

#HemeSky #MedSky #hematology #hemophilia #emicizumab @majfbirkedal.bsky.social

23.01.2025 12:41 — 👍 5    🔁 0    💬 0    📌 0
Post image

New in The Journal of Haemophilia Practice: a paper on the use of a subcutaneous drug delivery device to reduce pain and distress in children with haemophilia A receiving emicizumab. Read it here: doi.org/10.2478/jhp-...

#HemeSky #MedSky #hematology #hemophilia #emicizumab @majfbirkedal.bsky.social

23.01.2025 07:25 — 👍 2    🔁 1    💬 0    📌 0
Post image

We are excited to share a new resource developed by EAHAD WG+BD WG and designed for girls who are starting or will soon start their periods, providing valuable information about menstrual health in the context of bleeding disorders. 🔗 www.eahad.org/eahad-projec...

13.01.2025 09:28 — 👍 1    🔁 2    💬 0    📌 0
Meet the Author Series: Johan Blokzijl by Johan Blokzijl EAHAD Academy; Blokzijl J. Dec 3 2024; 4150266;

🎄Before the holidays, the EAHAD Physiotherapists Committee is excited to share the latest episode of the "Meet the Author Series". This time, Johan Blokzijl presents the project "A Clinical Practice Guideline for Primary Care Physiotherapy in PwH" 🎥 Watch it now academy.eahad.org/eahad/2024/m...

16.12.2024 09:30 — 👍 3    🔁 2    💬 0    📌 0
Post image

🌟 Do you know a #haemophilia nurse who goes above and beyond for their patients? Nominate them for the Star European Haemophilia Nurse Award! 📩 Send a 1-page nomination detailing their contributions to info@eahad.org by Monday, 13th January 2025.

04.12.2024 10:11 — 👍 4    🔁 3    💬 0    📌 0
Post image

📢 We need your insights! The EAHAD WG+BD Working Group invites healthcare professionals worldwide to take part in a short survey on Educational Needs regarding Principles of Care for HCPs🔗 www.surveymonkey.com/r/C3NVZQK ⏱ 8 minutes

02.12.2024 10:54 — 👍 2    🔁 2    💬 0    📌 0
Video thumbnail

We're researching what it's like to live with #vonWillebrandDisease. People with Type 1 & Type 2 #vWD have told us they bleed at least once a week - and we want to help change that. Can you help us? For more info on our survey, visit bit.ly/40MlHtv
#HemeSky

18.11.2024 13:25 — 👍 1    🔁 2    💬 0    📌 0
Post image

Altuvoct has become commercially available in Denmark, just administered the first dose to a Danish patient. This development marks a significant advancement for families affected by #hemophilia offering new hope for improved management of the condition.

18.11.2024 20:56 — 👍 4    🔁 0    💬 0    📌 0

Hi Dianne please add me too

18.11.2024 20:24 — 👍 1    🔁 0    💬 1    📌 0

Congratulations a huge box to tick off❤️

18.11.2024 16:17 — 👍 0    🔁 0    💬 0    📌 0
Post image

Very pleased that my first post concerns good procedural practice in children- brilliantly delivered at the PREPARE congress by @lucybray9.bsky.social

18.11.2024 14:09 — 👍 3    🔁 0    💬 0    📌 0

@majfbirkedal is following 19 prominent accounts