In @eahad.bsky.social's latest podcast,
@majfbirkedal.bsky.social discusses using a subcutaneous drug delivery device to reduce treatment-related #pain in children with #haemophiliaA on #emicizumab. Read her paper in The Journal of Haemophilia Practice sciendo.com/article/10.2...
#HemeSky #MedSky
04.09.2025 10:41 — 👍 3 🔁 1 💬 0 📌 0
🩺 Calling all nurses in #haemophilia & bleeding disorders! The EAHAD Nurses Committee is looking for one new member to join for a three-year term starting September 2025! 📅 Don’t wait and apply now: www.eahad.org/call-for-app...
02.06.2025 14:47 — 👍 5 🔁 4 💬 0 📌 0
Meet the Author Ep. 6: Exercise-based telerehabilitation for the management of chronic pain in people with severe haemophilia: a mixed-methods feasibility study
EAHAD · Episode
#PhysioNews 🎙️ Get ready for an insightful conversation with @physiopaul.bsky.social on his recent paper "Exercise-based telerehabilitation for the management of chronic pain in people with severe haemophilia"! Tune in now 🎧 on Spotify: open.spotify.com/episode/2B8j...
27.03.2025 12:40 — 👍 3 🔁 3 💬 0 📌 0
Relive the best moments from #EAHAD2025 congress with our official photo album! 📸 From insightful sessions to inspiring connections, dive into the memories now: www.flickr.com/photos/13951... 💬 Tag yourself or a colleague in your favourite pic and share your key takeaways!
28.03.2025 14:30 — 👍 0 🔁 1 💬 0 📌 0
🩺 Calling all healthcare professionals and patients! The VRCFD WG is surveying to gather insights into current practices for diagnosing, treating, and managing very rare coagulation factor deficiencies. 📝 Participate in the survey here: www.eahad.org/about-eahad/...
20.02.2025 09:27 — 👍 3 🔁 1 💬 0 📌 0
A single centre experience with clinical use of Neria™...
Background
The introduction of emicizumab as prophylactic subcutaneous (SC) administered treatment for people with haemophilia A has...
If you care for a child on emicizumab treatment please consider if your practice could benefit from our experiences.
It has made a world of difference to our patients. Read it here: doi.org/10.2478/jhp-...
#HemeSky #MedSky #hematology #hemophilia #emicizumab @majfbirkedal.bsky.social
23.01.2025 12:41 — 👍 5 🔁 0 💬 0 📌 0
New in The Journal of Haemophilia Practice: a paper on the use of a subcutaneous drug delivery device to reduce pain and distress in children with haemophilia A receiving emicizumab. Read it here: doi.org/10.2478/jhp-...
#HemeSky #MedSky #hematology #hemophilia #emicizumab @majfbirkedal.bsky.social
23.01.2025 07:25 — 👍 2 🔁 1 💬 0 📌 0
We are excited to share a new resource developed by EAHAD WG+BD WG and designed for girls who are starting or will soon start their periods, providing valuable information about menstrual health in the context of bleeding disorders. 🔗 www.eahad.org/eahad-projec...
13.01.2025 09:28 — 👍 1 🔁 2 💬 0 📌 0
Meet the Author Series: Johan Blokzijl by Johan Blokzijl
EAHAD Academy; Blokzijl J. Dec 3 2024; 4150266;
🎄Before the holidays, the EAHAD Physiotherapists Committee is excited to share the latest episode of the "Meet the Author Series". This time, Johan Blokzijl presents the project "A Clinical Practice Guideline for Primary Care Physiotherapy in PwH" 🎥 Watch it now academy.eahad.org/eahad/2024/m...
16.12.2024 09:30 — 👍 3 🔁 2 💬 0 📌 0
🌟 Do you know a #haemophilia nurse who goes above and beyond for their patients? Nominate them for the Star European Haemophilia Nurse Award! 📩 Send a 1-page nomination detailing their contributions to info@eahad.org by Monday, 13th January 2025.
04.12.2024 10:11 — 👍 4 🔁 3 💬 0 📌 0
📢 We need your insights! The EAHAD WG+BD Working Group invites healthcare professionals worldwide to take part in a short survey on Educational Needs regarding Principles of Care for HCPs🔗 www.surveymonkey.com/r/C3NVZQK ⏱ 8 minutes
02.12.2024 10:54 — 👍 2 🔁 2 💬 0 📌 0
We're researching what it's like to live with #vonWillebrandDisease. People with Type 1 & Type 2 #vWD have told us they bleed at least once a week - and we want to help change that. Can you help us? For more info on our survey, visit bit.ly/40MlHtv
#HemeSky
18.11.2024 13:25 — 👍 1 🔁 2 💬 0 📌 0
Altuvoct has become commercially available in Denmark, just administered the first dose to a Danish patient. This development marks a significant advancement for families affected by #hemophilia offering new hope for improved management of the condition.
18.11.2024 20:56 — 👍 4 🔁 0 💬 0 📌 0
Hi Dianne please add me too
18.11.2024 20:24 — 👍 1 🔁 0 💬 1 📌 0
Congratulations a huge box to tick off❤️
18.11.2024 16:17 — 👍 0 🔁 0 💬 0 📌 0
Very pleased that my first post concerns good procedural practice in children- brilliantly delivered at the PREPARE congress by @lucybray9.bsky.social
18.11.2024 14:09 — 👍 3 🔁 0 💬 0 📌 0
Senior physiotherapist, PhD, Oslo University Hospital 🇳🇴
EAHAD physiotherapists committee chair
Hematologist with particular interest in chronic myeloproliferative neoplasms, hemoglobinopathies, immune related cytopenias, and bleeding disorders/haemophilia
Associate Professor of Internal Medicine, Rheumatologist, MD, PhD
The official journal of the World Federation of Hemophilia, EAHAD & HTRST | EiC: Cédric Hermans
Haematologist & Centre director at The Royal London Haemophilia CCC, Yogi & Swimmer. #HemeSky #MedSky
Executive Director at the International Society on Thrombosis and Haemostasis (ISTH), global association executive and world traveler. Opinions are my own. Retweets do not imply endorsement.
Welcome to the official Bluesky account for the New England Journal of Medicine. Follow for high-quality, peer-reviewed research and clinical content from the world’s leading medical journal, online at NEJM.org.
Follow @ai.nejm.org for medical AI content.
The Canadian Venous Thromboembolism Research Network (CanVECTOR), pan-Canadian, patient-oriented, Community Development Program centred on venous thromboembolism (VTE) related research, training, and knowledge translation.
BMT, Gene Therapy, & Hematology Physician at Dana-Farber Cancer Institute, Brigham & Women's Hospital, and Harvard Medical School | AI, Health Policy, Health Economics, & Ethics research | T.H. Chan Harvard MPH ‘23 | SGU '15 | Cornell ‘10
Immunology, hematology and transfusion medicine. 🅰️🅱️🅾️🆎🩸Flow cytometry🌈
And Books, all the Books📚📕📗📘📙
There is no planet B🌍
Benign hematologist/CV epidemiologist in training at UNC Chapel Hill
Dog/cat dad
Gene Therapy, Gene Editing, Lipids, and Heart Disease. *views are my own*
Vascular surgery resident + PhD in basic science thrombosis. Interested in all thrombus things. And dogs.
Researcher in #platelets #cytoskeleton regulation #PTM modifications #teaching #Trailrunning #pastries #food #Paris #trips #lgbtqia+ #he #him #puglover & 🏳️🌈
PHL ➡️ PIT, academic RN, always votes Blue, gardening & cooking, soccer and dog mom, ISFJ, blonde moments & RTs. #ITP #CKD #abortionishealthcare ♊️ 🌈-ally