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Epilepsy Education and Support

@epilepsyedsupport.bsky.social

This page was created to give educational support by providing information about epilepsy. We are not a substitute for seeing a qualified medical professional

9 Followers  |  26 Following  |  61 Posts  |  Joined: 24.01.2025  |  1.5684

Latest posts by epilepsyedsupport.bsky.social on Bluesky

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Terminal Tower Cleveland, Ohio Purple for Epilepsy Awareness Month

10.11.2025 22:33 — 👍 1    🔁 1    💬 0    📌 0
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Terminal Tower Cleveland,Ohio Purple for Epilepsy Awareness Month

10.11.2025 00:50 — 👍 0    🔁 1    💬 0    📌 0
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Genetic testing in epilepsy: Variants of uncertain significance (VUS) - Dr. Gemma Carvill // International League Against Epilepsy

When a genetic test in epilepsy returns a VUS, what’s next? 🧬 Dr. Gemma Carvill and the #ILAE team explain how clinical context + data sharing + the right tools can narrow the uncertainty. #Epilepsy #Genetics #VUS

Learn more: https://bit.ly/47uFyiI

29.10.2025 17:00 — 👍 2    🔁 1    💬 0    📌 0
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Nov. Is Epilepsy Awareness Month. First Aid For Tonic-Clonic Seizures: www.epilepsy.com/recognition/...

04.11.2025 15:58 — 👍 1    🔁 1    💬 0    📌 0
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World Brain Day aims to increase understanding of neurological disorders, and advocate for better prevention and care worldwide.
Neurological disorders like stroke, epilepsy and dementia affect millions globally, early prevention, awareness and quality care can make a meaningful difference

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Number of rural hospitals at risk of closing due to Medicaid cuts. Click onto the link to find the hospitals near you.
www.markey.senate.gov/imo/media/do...

05.07.2025 00:08 — 👍 0    🔁 1    💬 0    📌 0
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11.8 million people will lose health insurance & 40% living with active epilepsy between 18-64 years receiving coverage through Medicaid, as well as many children with epilepsy, this bill will impede the accessibility and affordability of healthcare and critical long-term services and supports.

04.07.2025 21:14 — 👍 0    🔁 0    💬 0    📌 0
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To take action click on the link:
www.epilepsy.com/advocacy/adv...

26.06.2025 18:00 — 👍 0    🔁 0    💬 0    📌 0
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To use as a profile frame go to: www.twibbonize.com/dravetsyndrome

21.06.2025 01:39 — 👍 1    🔁 1    💬 0    📌 0
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FY26 Funding: Congressionally Directed Medical Research Program Letters - Call and Email Scripts - Restore Epilepsy Research Program Funding Call Your Representative to Urge them to Sign onto a Letter to Restore FY26 CDMRP FundingCongress slashed the Congressionally-Directed Medical Research Progra...

www.cureepilepsy.org/get-involved...

13.05.2025 14:33 — 👍 0    🔁 0    💬 0    📌 0
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Epilepsy Community Unites to Oppose Cuts to Crucial Federal Epilepsy Programs (April 15, 2025): Epilepsy Alliance America is proud to have joined the 117 undersigned organizations – representing people living with epilepsy; caregivers and loved ones; physicians, care providers…

epilepsyallianceamerica.org/federalepile...

22.04.2025 06:59 — 👍 0    🔁 1    💬 0    📌 0
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