Epilepsy Talk!

Congratulations! You are doing exactly what the epilepsy community needs 💜

People who don't know anything about #epilepsy may appear ignorant at first. Let's make it a point to teach before judging 💜

#chronicillness #disability #invisibledisability

MYTH: People with epilepsy cannot drive.
FACT: Those with controlled epilepsy are perfectly okay to drive! Driving restrictions are usually temporary, only requiring the operator has gone a certain amount of time without seizure activity.

Hidden Brain Lesions Uncovered by AI, Transforming Epilepsy Treatment An AI-powered tool called MELD Graph is revolutionizing epilepsy care by detecting subtle brain abnormalities that radiologists often miss. By analyzing global MRI data, the tool improves diagnosis sp...

AI can be a revolutionary tool in medicine. Here's an example related to #epilepsy treatment!
scitechdaily.com/hidden-brain...
#disability #medsky #neuroskyence #chronicillness #AI

Happy Tuesday! A bit of a social media break was needed, but we're back! Do any of you take social media breaks when things get a little too stressful?
#epilepsy #chronicillness #disability

Great question! Let's hear it 😁

Happy Valentine's Day to all! Today isn't the only day to express love and gratitude. It's our hope that each day is filled with love and gratitude toward our family, friends, care team, and anyone else who understands WHY we fight to hold it constantly when it's so easy to give up 💜

That is a great thought! Though most are able to put emergency info on their phone's lock screen, the watch would be a quick one-stop shop for responders and allow them to go back to their duties sooner 😀

Love it! I have a "sport" and "everyday" style. Though I made sure the "everyday" was also waterproof and durable, because I get highly infuriated at taking bracelets on and off! So the only difference really is the sport band doesn't slip 😀

Custom Medical Alert ID Bracelets | Lauren's Hope Lauren's Hope has custom medical alert bracelets in trendy & traditional styles you'll love to wear. We have something for everyone!

Medical alert jewelry used to be very standard with few choices. Now, there are a huge variety of styles and colors! Who here wears medical alert jewelry? 🙋‍♀️
Some favorite shops:
laurenshope.com
www.stickyj.com
www.medicalert.org

Happy International Epilepsy Day! It's great to celebrate with all of you 💜
#epilepsyawareness #epilepsy #disability #chronicillness

Emotional Blunting: Causes, Symptoms, Treatment Emotional blunting describes a person's difficulty feeling emotions. People may experience emotional blunting for many reasons. Learn more about what causes it and how it's treated.

Have you ever heard of "emotional blunting"? Us either! It's not a direct relationship with #epilepsy, we just found it to be interesting in our journey to understand each other better! 😁💜
www.healthline.com/health/menta...

A purple analog watch face.

For many people with epilepsy, a "clock reset" is slang term for a seizure, because the seizure resets the duration of time one has accumulated since the last seizure. -- When was your clock last reset? #EpilepsyAwareness

I made sure I checked out how to do it before the next post 😊 I really appreciate you bringing that up!

Thank you for pointing that out! This is the first time having such a public profile, feedback is encouraged. Alt text will always be provided now 💜

A statement posted on Twitter yesterday by the Epilepsy Foundation of America. Sharing, as they do not have a Bluesky account!
#epilepsy #epilepsyawareness

Blue Sky is a good place to be right now 😀 Hopefully the steam runs out soon with everything else.

I actually posted this in my Insta story yesterday!

Absolutely stay informed. I was told I'm overreacting at Trump throwing the word "epilepsy"out there. His power has always come from fear & hatred. He's silenced trans people, everyone brown is an ICE target, reversed EEO which was heavily influenced by race discrimination. now who is there to hate?

Black History Month | Raising Epilepsy Awareness & Education We recognize both the adversity & achievements faced by Black Americans. We raise epilepsy awareness to minimize challenges faced by Black Americans.

February is Black History Month! DYK: African people are more likely to be diagnosed with epilepsy than those who originate from elsewhere.
www.epilepsy.com/stories/blac...
#Epilepsy #BlackHistoryMonth #disability #medsky #neuroskyence

in a sense, do you even WANT to know? 😂

It's hard to admit, but disability benefits/rights have potential to be interfered with in the near future. Let's try our best to keep vigilant on the nuances & plan as best as we can to maintain quality of life 💜 plan for the worst, be delighted when it's not!
#epilepsy #disability #chronicillness

While we want to be positive, we have to consider this misinformation is going to hurt the way people perceive epilepsy, especially in the workplace, and it's okay to have strong emotions about the unknown.

Turning tragedy into disability blaming is NOT how we want to promote #epilepsyawareness, but it's more important now than ever to speak up and tackle misinformation while it's a hot topic!
#epilepsy #disability #DEI

Goodness no! I'm going to make a broad claim that most epileptics, while we may not like it, understand that we can work for any company, but not every position.

There are very special exceptions that have been made for an ATC with epilepsy! Not common by any means. so ATC, no. but FAA in general? there's many different positions such as engineers and safety inspectiors, or even clerical, all of which a person with controlled epilepsy are capable of doing 😊

A red lantern hangs next to the text Happy Lunar New Year!

New Year's is all about change. Happy Lunar New Year! May this year's changes bring good health and fortune to all, especially those in the #epilepsy community. #EpilepsyAwareness

For us Americans, the ADA regulates accessibility features such as curb ramps or automatic doors. If you are somewhere and notice they are not compliant with ADA, you are able to report a violation right on ada.gov. Don't comply to a business who can't comply with our rights.

DYK: There's nothing wrong with needing to take an allergy pill (antihistamine), but taking a version with decongestant (Claritin D, Zyrtec D) has potential to impact one's seizure threshold. Always consult your doctors!
#epilepsy #seizure #neuroskyence #medsky #disability #chronicillness