A new resource from @unitedspinal.bsky.social about supporting kids with disabilities to get OUTDOORS! unitedspinal.org/supporting-c...
24.07.2025 00:20 β π 1 π 1 π¬ 0 π 0@drkaraayers.bsky.social
Professor, Researcher, Writer, Speaker, & Proud Mom & Wife with Osteogenesis Imperfecta. Director @ThinkEquitable Striving for change|Views are mine.
A new resource from @unitedspinal.bsky.social about supporting kids with disabilities to get OUTDOORS! unitedspinal.org/supporting-c...
24.07.2025 00:20 β π 1 π 1 π¬ 0 π 02 small watercolor paintings of viruses
Ahem! I am trying an experiment. I listed several sets of my itty-bitty #sciart paintings on Ko-Fi ko-fi.com/1626SLXL3044... Choose from viruses, neurons, algorithms, blood cells, and more
22.07.2025 16:09 β π 71 π 28 π¬ 4 π 2Several of these proposed regulation changes would impact people with disabilities.
22.07.2025 17:36 β π 0 π 0 π¬ 0 π 0Itβs usually used to include (but not differentiate) nondisabled parents of disabled people thoughβ¦.which is proximity.
27.06.2025 02:37 β π 0 π 0 π¬ 0 π 0Scientists in North Carolina: Thom Tillis is vulnerable. Go public and pressure him to vote down the Republican health care cuts.
βIf you proceed on this provider tax...you wonβt have a member from NC sitting at this table after next year.β Make it so
www.politico.com/liv...
We in the world of disability love to wordsmith and language has power. One of the new(ish?) terms "lived disability experience" always makes me wonder if the opposite is dead disability experience. Besides being unclear who we mean, this is not my favorite term we use.
26.06.2025 17:44 β π 1 π 0 π¬ 1 π 0Different country and different decade but I also had to wait for more tha a year to drive because of broken systems that stall independence for disabled people: www.bbc.com/news/article...
26.06.2025 16:55 β π 0 π 0 π¬ 0 π 0Tomorrow I'll be presenting from 2:00-3:00pm EST with Drs. Emily Hotez and Robin Lanzi about Leveraging Lived Disability Experience in Research Teams. You can register here: zoom.us/webinar/regi...
26.06.2025 16:29 β π 0 π 0 π¬ 0 π 0Justice Jackson nails where we are right now:
βYour argument turns our justice system into a catch me if you can kind of regime from the standpoint of the Executive where everybody has to have a lawyer and file a lawsuit in order for the government to stop violating peopleβs rights.β
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It's always interesting to me that inaccurate language choices like this also indicate just a lack of knowledge and competence in the subject. It's sort of a red flag that the whole source might not be trustworthy as accurate...
15.05.2025 18:17 β π 1 π 0 π¬ 1 π 0If you had "monkey business" on your Bingo card for the RFK hearing, BINGO!
14.05.2025 19:04 β π 0 π 0 π¬ 0 π 0Pretty wild that RFK is a-ok with Geyer's (not a doctor) history of giving hormone blockers to children with autism.
14.05.2025 19:02 β π 4 π 1 π¬ 0 π 0Shame on my Senator-the only member who gave other his time for the Secretary to "make a few points" of his choosing when constituents like me SENT HIM IMPORTANT QUESTIONS TO ASK. We never elected Husted. He was appointed and refuses to represent us.
14.05.2025 18:56 β π 2 π 0 π¬ 0 π 0Amid DEI funding cuts, trainees are losing pillars of support. Grassroots mentorship organizations are stepping in to continue championing young researchers.
@blackinneuro.bsky.social @colorsofthebrain.bsky.social @neurolatine.bsky.social
By Paige Miranda
www.thetransmitter.org/qa/we-still-...
A common theme of this morning's RFK hearing was that he seems to have a very difficult time identifying HIS relevant history or experience. Instead he references "my brother did this", "my dad did this", etc. It feels very un-merit-like.
14.05.2025 16:20 β π 0 π 0 π¬ 0 π 0"We need to stand up-not be afraid. This is the time to meet the moment....I will never stop fighting against this dangerous dismantling of health and human services and its agencies." @delauro.house.gov
14.05.2025 13:53 β π 1 π 0 π¬ 0 π 0"Mr. Secretary you have no lawful authority to undertake this (dismantling HHS) by yourself." @delauro.house.gov
14.05.2025 13:52 β π 2 π 0 π¬ 0 π 0You can watch the RFK hearing live here: www.pbs.org/newshour/pol...
14.05.2025 13:48 β π 0 π 0 π¬ 0 π 0Grateful to Rep DeLauro for recognizing the importance of our work through the Administration for Community Living it-NAMING it. Thank you for fighting for us! @delauro.house.gov
14.05.2025 13:46 β π 2 π 2 π¬ 0 π 0Not sure what to make of this-the use of AI to remove ableist content from social media. While I can see the value of harm reduction, I also like to know what I'm up against: news.cornell.edu/stories/2025...
12.05.2025 13:46 β π 0 π 0 π¬ 1 π 0It's almost like we saw it coming....
23.04.2025 16:04 β π 3 π 0 π¬ 0 π 0Disability experts I spoke to expressed that the decision reflected a lack of awareness of the Administration for Community Livingβs crucial role for disabled and aging Americans.
28.03.2025 17:54 β π 536 π 251 π¬ 66 π 34If you suffered in life and want other people to suffer as you did because
"you turned out fine," you did not in fact turn out fine.
Donβt change your subject headings. There is no library jail. Keep using the real names not these fake ones.
Obeying in advance is worse than those doing the change because when you obey with soenthing that is clearly wrong you are putting false information into official βfactβ places.
Stop using DOGE's messaging. They're destroying the federal government. The "pause" is a lie.
There is no pause.
It makes sense but is also scary how it could be misused. I'm grappling with whether to add E to one for communication disabilities in Ohio. In theory, if he was pulled over, police would get a heads up that he has trouble speaking clearly when nervous but I'm not sure....
28.02.2025 17:12 β π 1 π 0 π¬ 0 π 0LoL he seems to be a mess...I wish we would have been pleasantly surprised.
28.02.2025 16:26 β π 1 π 0 π¬ 1 π 0County unveils disability registry next to an illustration of 911 call
I wish that I could look at these registries and be confident that people have also thought about the safeguards that would be critical for this not to become a weapon.
28.02.2025 16:21 β π 8 π 2 π¬ 1 π 1Looking forward to speaking on a panel about this film as part of @reelabilities.bsky.social Cincinnati. I loved the original Rising Phoenix and this looks even better! youtu.be/gIW-dyyBIxk?...
26.02.2025 18:38 β π 7 π 3 π¬ 0 π 0NEW
Republican Congressman Troy Balderson, who reps an R+18 district in Ohio, says President Trumpβs executive orders are βgetting out of control.β
βCongress has to decide whether or not the Departmnet of Education goes away. Not the president. Not Elon Musk. Congress decides,β Balderson said.