Angela S. Davis

ONCE UPON A GENE - EPISODE 252- Eight Years of Searching: A Determined Family’s Quest to Cure an Ultra-Rare CLCN6 Mutation with Kristin & Paul Purdy — Once Upon A Gene Hear how this family’s eight-year search led them to discover their son’s ultra-rare CLCN6 gene mutation.

We recently had the honor of being guests on the "Once Upon a Gene Podcast" with Effie Parks where we discussed our rare disease journey and creating Cure CLCN6 Inc. in our efforts to develop a gene therapy for CLCN6 gene mutations.

effieparks.com/podcast/clcn...

Shabbat Shalom!♥️