Journal of Intellectual Disability Research

This is fantastic - academic community coming together to celebrate learning disability week!

Learning Disability Week 2025: Journal of Intellectual Disability Research Click on the title to browse this issue

To coincide with Learning Disability Week 2025, @mencap.org.uk have prepared a Virtual Special Issue containing 7 articles from the recent back-issues of @jidr-wiley.bsky.social. 6/7 articles are #OpenAccess

You can access the Virtual Special Issue here: onlinelibrary.wiley.com/doi/toc/10.1...

Predictive Validity of the Brøset Violence Checklist in a Secured Institution for Offenders With Intellectual Disabilities

onlinelibrary.wiley.com/doi/10.1111/...

"findings underscore the need for population-specific adaptations to the BVC, particularly to address contextual & demographic factors"

Impact of Obesity on Hypoxemia During Deep Dental Sedation for Paediatric and Adult Patients With Intellectual Disabilities: CT90 as an Outcome

onlinelibrary.wiley.com/doi/10.1111/...

"Severe hypoxemia frequently occurred during intravenous sedation, particularly in obese patients..."

Understanding Music Participation for Adults With Down Syndrome

onlinelibrary.wiley.com/doi/10.1111/...

"Knowing that multiracial adults with Down syndrome had a higher frequency in playing music, a potent future research direction is better understanding [their] musical needs and preferences..."

Factors Associated With Alzheimer's Dementia Diagnosis and Survival in Down Syndrome

onlinelibrary.wiley.com/doi/10.1111/...

Researchers from @royalholloway.bsky.social

"Earlier age at first assessment and living with family predicted earlier age at diagnosis, which led to longer survival..."

"Supporting young people's independence, orchestrating multidisciplinary care and ensuring effective communication are particularly challenging in the transition to adult healthcare for this population."

‘Mind the Gap’—A Survey on Care Gaps and Priorities for the Transition to Adult Healthcare According to Caregivers of Young People With Rare Conditions Associated With Intellectual Disability

onlinelibrary.wiley.com/doi/10.1111/...

Researchers from @amsterdamumc.bsky.social

"Overall, the results are concerning in that they indicate a potentially increasing trend in frequency of SIB and its impact on daily activities as individuals approach adolescence, indicating the need for further longitudinal work across the lifespan."

Prospective Characterisation of Age-Related Changes in Self-Injurious Behaviour in a Sample of Children With Global Developmental Delay Aged 2–12 Years

onlinelibrary.wiley.com/doi/10.1111/...

Mortality in Tuberous Sclerosis Complex in the United Kingdom, 2016–2022

onlinelibrary.wiley.com/doi/10.1111/...

"Most causes of mortality in this Tuberous Sclerosis Complex cohort are potentially prevented with suitable interventions earlier."

Borderline Intellectual Functioning: A Scoping Review

onlinelibrary.wiley.com/doi/10.1111/...

"Very few addressed adaptive functioning explicitly, a crucial area for diagnosing and supporting individuals with BIF, though many covered its domains (conceptual, social and practical)."

@ucm.es

Our June issue was published recently, and 7/9 articles are #OpenAccess.

We will be posting about each of the nine articles over the next few weeks, but in the meantime, you can find them all here: onlinelibrary.wiley.com

"The Bernstein fat-free mass equation offers better accuracy in adults with Down syndrome than other resting metabolic rate prediction equations, but the equation needs to be evaluated in larger, more diverse samples of adults with Down syndrome."

A Comparison of Commonly Used Prediction Equations for Estimating Resting Metabolic Rate in Adults With Down Syndrome

onlinelibrary.wiley.com/doi/10.1111/...

@bchelsel.bsky.social

Anxiety, Depression and Stress in Parents and Siblings of People Who Have Prader-Willi Syndrome: Morbidity Prevalence and Mitigating Factors #OpenAccess

onlinelibrary.wiley.com/doi/10.1111/...

"Strategies to enhance family cohesion should be employed to help diminish adverse outcomes..."

Access to Oral Healthcare in Individuals With Rett Syndrome: A Qualitative Study of Parent Perspectives

onlinelibrary.wiley.com/doi/10.1111/...

"frequently cited barriers to professional dental care were dentist-related, while caregiver related financial barriers were cited by a minority..."

‘Smiling and Talking Slowly’: A Qualitative Study on the Ideal Ophthalmologist From the Perspective of Adults With Intellectual Disabilities #OpenAccess

onlinelibrary.wiley.com/doi/10.1111/...

"For people with intellectual disabilities, an ideal ophthalmologist is patient-centred..."

Investigation of Gait Characteristics and Kinematic Deviations in Rare Genetic Disorders with Instrumented Gait Analysis #OpenAccess

onlinelibrary.wiley.com/doi/10.1111/...

"variability of clinical and genetic features might explain heterogeneity in gait deviations and should be further explored."

Eye Tracking as a Tool for Detecting Alzheimer's Disease in People With Down Syndrome #OpenAccess

onlinelibrary.wiley.com/doi/10.1111/...

"The VPC task is a potentially useful method for assessing AD-related cognitive impairments in adults with DS across varying ID levels."

presumed sexual vulnerability and sexual incompetence, and expectations of heteronormativity and asexuality. Combined these factors reduce opportunities for acquisition of sexual knowledge and enactment of sexual autonomy and ultimately appear to limit sexual literacy..." (2/2)

Sexual Health Literacy Among Adults With Intellectual Disabilities: A Scoping Review #OpenAccess

onlinelibrary.wiley.com/doi/10.1111/...

@ot-ireland.bsky.social

"The availability of sexual knowledge and sexual autonomy is threatened by several factors in the social environment: (1/2)

"Approaches for interacting with gatekeepers that may foster gate opening actions included: addressing gatekeeper concerns, educating gatekeepers about the benefits of research participation and developing relationships with gatekeepers."

A Scoping Review of the Ways Gatekeepers May Hinder or Promote Opportunities for People With Intellectual and/or Developmental Disabilities to Learn About Research Participation Background Adults with intellectual and/or developmental disabilities are disproportionately excluded from participation in research, consequently increasing disparities experienced by this group. G...

A Scoping Review of the Ways Gatekeepers May Hinder or Promote Opportunities for People With Intellectual and/or Developmental Disabilities to Learn About Research Participation #OpenAccess

onlinelibrary.wiley.com/doi/10.1111/...

Journal of Intellectual Disability Research: Vol 69, No 5 Click on the title to browse this issue

There are 8 articles in our May issue: onlinelibrary.wiley.com/toc/13652788...

6/8 are Open Access

We will be posting about all eight articles over the coming weeks, so keep checking back 👀

It is important that we understand how healthcare continued to evolve for folks with intellectual disabilities during the pandemic. Our @jidr-wiley.bsky.social study looked at health services pre-pandemic and then over the first two years of COVID across Ontario. Open Access

"Compared with the year prior to COVID-19, the proportion of adults with and without IDD who used health services was lower during the first COVID-19 year, but the likelihood of all types of visits increased during the second year."

@yonalunsky.bsky.social

Brief Report: Community and Hospital Healthcare Use by Adults With and Without Intellectual and Developmental Disabilities in Ontario, Canada, During the First 2 Years of the COVID-19 Pandemic

onlinelibrary.wiley.com/doi/10.1111/...

Examining the Relation Between Sleep Problems and Behavioural Challenges in Youth With Down Syndrome

onlinelibrary.wiley.com/doi/10.1111/...

"...while chronic sleep issues impact long-term behaviours, nightly variations do not predict immediate behavioural changes."

Proprioceptive Training Induced Adaptations of Static Balance Control: An RCT Study in Adults With Intellectual Disability

onlinelibrary.wiley.com/doi/10.1111/...

"...this could have a positive, significant impact in their daily life, as it may reduce the incidence of falls and relative injuries."