Gitte ๐Ÿงฟโœจ's Avatar

Gitte ๐Ÿงฟโœจ

@gitteilc.bsky.social

#cancer #advocate #sepsis #lobular #eyetracking #bcsm #oncosky #PCORI ๐Ÿ‡ฉ๐Ÿ‡ฐ๐Ÿ‡ฌ๐Ÿ‡ง๐Ÿ‡บ๐Ÿ‡ธ I โค๏ธ cats and horror ๐ŸŽฌ๐Ÿฟ Check out my new ETSY store ๐Ÿ‘‡๐Ÿชท๐Ÿงฟโœจ๐ŸŒˆ๐Ÿฆ„๐Ÿ‘‡ https://huldrashollow.etsy.com

814 Followers  |  1,284 Following  |  126 Posts  |  Joined: 11.11.2024  |  1.9916

Latest posts by gitteilc.bsky.social on Bluesky

I don't have arthritis I have early onset rigor mortis. 

[skeleton dancing and a crow or raven]

DearFibromyalgia/Beth

I don't have arthritis I have early onset rigor mortis. [skeleton dancing and a crow or raven] DearFibromyalgia/Beth

18.06.2025 13:42 โ€” ๐Ÿ‘ 4226    ๐Ÿ” 575    ๐Ÿ’ฌ 101    ๐Ÿ“Œ 45
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โœจ MAGNETIC ENERGY ALERT โœจ Margaret Atwood called. She wants you to spread the gospel from your bumper.
$12 gets you a mobile piece of resistance art.๐ŸŒทFree shipping because we believe in liberation, not hidden fees #CarMagnet #BumperStickers #RollingResistance #ProtestOnTheGo huldrashollow.etsy.com

05.07.2025 18:40 โ€” ๐Ÿ‘ 5    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Interesting catch by a user on X about today's shooting in Idaho

30.06.2025 02:56 โ€” ๐Ÿ‘ 7    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

When u can't get #cancer tx or even #antiobiotics or a #vaccine cuz u can't afford it or it's unavailable or deemed unnecessary by those in power, when yr child can't afford college, when education itself crumbles, when u lose yr job to AI & safe food & water are no longer a given, remember this. ๐Ÿ‘‡

26.06.2025 04:22 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿ“ฃ Going to #MASCC25? Catch my Rapid E-Poster
๐Ÿ—“ June 26 | ๐Ÿ•’ 15:35โ€“15:40
๐Ÿ“ Grand Ballroom I & II โ€“ Stage 2
Beyond the #Pain: Understanding #Cancer Treatment-Related Oral #Mucositis Through #Patient Experiences

๐Ÿ‘• Weโ€™ve got t-shirts! @cancersuckless.bsky.social @cancercaremascc.bsky.social

26.06.2025 00:06 โ€” ๐Ÿ‘ 5    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

"โ€˜Supportive careโ€™ refers 2 managing toxicities of #cancer tx but embraces all symptom management thru tx & survivorship. Unfortunately, supportve care delivery remains low. One study found up to 81% of cancer survivors had unmet supportive care needs & were dissatisfied w/current services." #CanSky

25.06.2025 18:55 โ€” ๐Ÿ‘ 7    ๐Ÿ” 4    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 0
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Progression-free survival is NOT an ideal endpoint (advocates could have told you this!)
Interesting to see the intentions behind it as an endpoint tho
#ASCO25
~ Chris Booth

30.05.2025 18:34 โ€” ๐Ÿ‘ 11    ๐Ÿ” 5    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Common Myths vs Facts about Invasive Lobular Carcinoma (ILC) - The Lobular Breast Cancer Alliance LBCA has developed a new patient resource to help clear up common and pervasive myths about invasive lobular carcinoma (ILC) and its treatment. Many misconceptions [โ€ฆ]

LBCA has developed a new patient resource: Myths and Facts about Invasive Lobular Carcinoma to help clear up common and pervasive myths about invasive lobular carcinoma (ILC). Read it here: lobularbreastcancer.org/myths-vs-fac...

23.05.2025 20:54 โ€” ๐Ÿ‘ 5    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿ‘• Headed to ASCO? Come find me if you want a #MakeCancerLessShitty t-shirt! Theyโ€™re soft, expressive, and mildly therapeutic. Like a hugโ€ฆ but with attitude. Limited supplyโ€”like everyoneโ€™s emotional bandwidth ๐Ÿ’ฉ #ASCO2025 #SuppOnc #SurvOnc #CancerHumor #OncoSwag @cancersuckless.bsky.social

24.05.2025 17:24 โ€” ๐Ÿ‘ 14    ๐Ÿ” 6    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Very much looking forward to the conversations around how we can improve the quality of, and access to, supportive care, based on key findings from the patient and advocacy community.
Also looking forward to hanging out with those at #MASCC25

05.05.2025 15:45 โ€” ๐Ÿ‘ 5    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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JOIN US for a Lobular Breast Cancer Chat with Dr. Yeh, advocate Gitte Joergensen @gitteilc.bsky.social & Dr. Ulaner to discuss new metastatic ILC imaging research, the SNMMI Mars Shot program @snmmi-marsshot.bsky.social & more! Register here: forms.gle/WzWvmQn9dWhe...

28.04.2025 14:27 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Excited that our team will be presenting at #MASCC25

Letโ€™s make supportive care smarter, stronger, and more human ๐Ÿงฌ ๐Ÿ’ช ๐Ÿ’š

@coffeemommy.bsky.social @jj5145.bsky.social @cancersuckless.bsky.social @cancercaremascc.bsky.social #OralMucositis #MakeCancerLessShitty #PatientVoice #SuppOnc #SurvOnc

24.04.2025 15:09 โ€” ๐Ÿ‘ 8    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 2

Hey @flysas.com, Iโ€™ve now been on hold for 1 hour and 20 minutes (and this is not the first time). All I want is to use my voucher to book a flightโ€”shouldnโ€™t be this hard, right? Please message me so we can sort this out. #DoBetter #SAS #CustomerService โœˆ๏ธ ๐Ÿคทโ€โ™€๏ธ

07.04.2025 20:32 โ€” ๐Ÿ‘ 4    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

cheese is woke now

02.04.2025 03:06 โ€” ๐Ÿ‘ 23652    ๐Ÿ” 1946    ๐Ÿ’ฌ 1061    ๐Ÿ“Œ 232
A woman could have an axe sticking out of her forehead and a dozen knives sticking out of her back and the first question the doctor will always ask is "what was the date of your last menstrual  period"

A woman could have an axe sticking out of her forehead and a dozen knives sticking out of her back and the first question the doctor will always ask is "what was the date of your last menstrual period"

02.04.2025 12:32 โ€” ๐Ÿ‘ 614    ๐Ÿ” 89    ๐Ÿ’ฌ 26    ๐Ÿ“Œ 14
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Yesterday, I fondly remembered my dear friend Leonard Nimoy, who would have turned 94. His legacy lives on in our hearts. Just days ago, Bill Shatner celebrated his 94th birthday โ€” wishing him continued health and happiness. Live long and prosper, my friends.

27.03.2025 16:14 โ€” ๐Ÿ‘ 74999    ๐Ÿ” 7424    ๐Ÿ’ฌ 1411    ๐Ÿ“Œ 309

@cancersuckless.bsky.social

25.03.2025 20:02 โ€” ๐Ÿ‘ 5    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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LIVE: Trump-folk er igen pรฅ vej til Grรธnland Midt i de grรธnlandske regeringsforhandlinger har en ny amerikansk delegation med prominente folk meldt deres ankomst.

www.dr.dk/nyheder/poli...

25.03.2025 18:07 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

We expected 2,000 people out in GOP-held Greeley, Colorado.

11,000 people showed up.

Something special is happening, folks. Now is the time to organize in every dimension possible and get to work.

21.03.2025 21:23 โ€” ๐Ÿ‘ 129314    ๐Ÿ” 26115    ๐Ÿ’ฌ 3745    ๐Ÿ“Œ 1762
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Welcome to autocracy. The Republic we have known for the last 240 years is gone. This is going to keep getting worse. Much worse. The courts mean nothing, the law means nothing, Congress is irrelevant. He is a malignant psychopath.

17.03.2025 11:21 โ€” ๐Ÿ‘ 32185    ๐Ÿ” 9584    ๐Ÿ’ฌ 2983    ๐Ÿ“Œ 1028
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It gets worse. Schumer isnโ€™t just going on a book tourโ€”heโ€™s charging for tickets.

Absolute insanity. While Americans are scared and in crisis mode, heโ€™s basically saying, let them eat cake.

@schumer.senate.gov Step Down.

16.03.2025 12:49 โ€” ๐Ÿ‘ 14907    ๐Ÿ” 4632    ๐Ÿ’ฌ 2430    ๐Ÿ“Œ 1043

Many hours have passed and Iโ€™ve thought about what happened in the Senate some more.

And you know what? Iโ€™m still mad as hell.

I may just repost their names every day until everyone knows them by heart.

15.03.2025 01:58 โ€” ๐Ÿ‘ 47421    ๐Ÿ” 6466    ๐Ÿ’ฌ 1993    ๐Ÿ“Œ 355
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a cat is standing on top of a woman 's head in bed . Alt: a cat is standing on top of a woman 's head in bed .
15.03.2025 13:50 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

I think some in the Senate have convinced themselves that the backlash to folding will be limited to โ€œthe leftโ€ and therefore ignorable.

Those people are deeply and profoundly misreading the moment and the stakes.

Virtually every swing district House Dem walked the plank to vote NO for a reason.

14.03.2025 02:46 โ€” ๐Ÿ‘ 132653    ๐Ÿ” 24580    ๐Ÿ’ฌ 5021    ๐Ÿ“Œ 1473
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๐Ÿšจ A Trip to the Dentist: Cancer Survivor Edition ๐Ÿšจ
@cancersuckless.bsky.social @thankscancer.bsky.social
#MakeCancerLessShitty #DentalPhobiaChronicles #SurvivorLife #NitrousAndNostalgia #SendHelp #SuppOnc #SurvOnc #Cancersky

08.03.2025 17:53 โ€” ๐Ÿ‘ 6    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
an owl in a crown saying matriarchy now

an owl in a crown saying matriarchy now

i made a thing. happy international womens day.
let women lead.

08.03.2025 09:35 โ€” ๐Ÿ‘ 69    ๐Ÿ” 15    ๐Ÿ’ฌ 3    ๐Ÿ“Œ 2
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SpaceX is a piece of shit, just like Elon Musk.

07.03.2025 02:50 โ€” ๐Ÿ‘ 3136    ๐Ÿ” 820    ๐Ÿ’ฌ 245    ๐Ÿ“Œ 70
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Trudeau: I want to speak first directly to the American peopleโ€ฆ your government has chosen to do this to you. Your government has chosen to put American jobs at risk. They have chosen to raise costs for American consumers on everyday essential itemsโ€ฆ

04.03.2025 16:25 โ€” ๐Ÿ‘ 76232    ๐Ÿ” 20610    ๐Ÿ’ฌ 2051    ๐Ÿ“Œ 1382
Advocate Chat: First Recipient of Deborah Mueller Foundation Lobular Breast Cancer Research Grant
YouTube video by Lobular Breast Cancer Alliance 2023 Advocate Chat: First Recipient of Deborah Mueller Foundation Lobular Breast Cancer Research Grant

youtu.be/qI50HWXJ16Y @lobularbca.bsky.social #lobular #bcsm

02.03.2025 17:55 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

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