I don't have arthritis I have early onset rigor mortis. [skeleton dancing and a crow or raven] DearFibromyalgia/Beth
18.06.2025 13:42 โ ๐ 4226 ๐ 575 ๐ฌ 101 ๐ 45@gitteilc.bsky.social
#cancer #advocate #sepsis #lobular #eyetracking #bcsm #oncosky #PCORI ๐ฉ๐ฐ๐ฌ๐ง๐บ๐ธ I โค๏ธ cats and horror ๐ฌ๐ฟ Check out my new ETSY store ๐๐ชท๐งฟโจ๐๐ฆ๐ https://huldrashollow.etsy.com
I don't have arthritis I have early onset rigor mortis. [skeleton dancing and a crow or raven] DearFibromyalgia/Beth
18.06.2025 13:42 โ ๐ 4226 ๐ 575 ๐ฌ 101 ๐ 45โจ MAGNETIC ENERGY ALERT โจ Margaret Atwood called. She wants you to spread the gospel from your bumper.
$12 gets you a mobile piece of resistance art.๐ทFree shipping because we believe in liberation, not hidden fees #CarMagnet #BumperStickers #RollingResistance #ProtestOnTheGo huldrashollow.etsy.com
Interesting catch by a user on X about today's shooting in Idaho
30.06.2025 02:56 โ ๐ 7 ๐ 2 ๐ฌ 0 ๐ 0When u can't get #cancer tx or even #antiobiotics or a #vaccine cuz u can't afford it or it's unavailable or deemed unnecessary by those in power, when yr child can't afford college, when education itself crumbles, when u lose yr job to AI & safe food & water are no longer a given, remember this. ๐
26.06.2025 04:22 โ ๐ 3 ๐ 1 ๐ฌ 0 ๐ 0๐ฃ Going to #MASCC25? Catch my Rapid E-Poster
๐ June 26 | ๐ 15:35โ15:40
๐ Grand Ballroom I & II โ Stage 2
Beyond the #Pain: Understanding #Cancer Treatment-Related Oral #Mucositis Through #Patient Experiences
๐ Weโve got t-shirts! @cancersuckless.bsky.social @cancercaremascc.bsky.social
"โSupportive careโ refers 2 managing toxicities of #cancer tx but embraces all symptom management thru tx & survivorship. Unfortunately, supportve care delivery remains low. One study found up to 81% of cancer survivors had unmet supportive care needs & were dissatisfied w/current services." #CanSky
25.06.2025 18:55 โ ๐ 7 ๐ 4 ๐ฌ 2 ๐ 0Progression-free survival is NOT an ideal endpoint (advocates could have told you this!)
Interesting to see the intentions behind it as an endpoint tho
#ASCO25
~ Chris Booth
LBCA has developed a new patient resource: Myths and Facts about Invasive Lobular Carcinoma to help clear up common and pervasive myths about invasive lobular carcinoma (ILC). Read it here: lobularbreastcancer.org/myths-vs-fac...
23.05.2025 20:54 โ ๐ 5 ๐ 3 ๐ฌ 0 ๐ 0๐ Headed to ASCO? Come find me if you want a #MakeCancerLessShitty t-shirt! Theyโre soft, expressive, and mildly therapeutic. Like a hugโฆ but with attitude. Limited supplyโlike everyoneโs emotional bandwidth ๐ฉ #ASCO2025 #SuppOnc #SurvOnc #CancerHumor #OncoSwag @cancersuckless.bsky.social
24.05.2025 17:24 โ ๐ 14 ๐ 6 ๐ฌ 0 ๐ 0Very much looking forward to the conversations around how we can improve the quality of, and access to, supportive care, based on key findings from the patient and advocacy community.
Also looking forward to hanging out with those at #MASCC25
JOIN US for a Lobular Breast Cancer Chat with Dr. Yeh, advocate Gitte Joergensen @gitteilc.bsky.social & Dr. Ulaner to discuss new metastatic ILC imaging research, the SNMMI Mars Shot program @snmmi-marsshot.bsky.social & more! Register here: forms.gle/WzWvmQn9dWhe...
28.04.2025 14:27 โ ๐ 3 ๐ 1 ๐ฌ 0 ๐ 0Excited that our team will be presenting at #MASCC25
Letโs make supportive care smarter, stronger, and more human ๐งฌ ๐ช ๐
@coffeemommy.bsky.social @jj5145.bsky.social @cancersuckless.bsky.social @cancercaremascc.bsky.social #OralMucositis #MakeCancerLessShitty #PatientVoice #SuppOnc #SurvOnc
Hey @flysas.com, Iโve now been on hold for 1 hour and 20 minutes (and this is not the first time). All I want is to use my voucher to book a flightโshouldnโt be this hard, right? Please message me so we can sort this out. #DoBetter #SAS #CustomerService โ๏ธ ๐คทโโ๏ธ
07.04.2025 20:32 โ ๐ 4 ๐ 2 ๐ฌ 0 ๐ 0cheese is woke now
02.04.2025 03:06 โ ๐ 23652 ๐ 1946 ๐ฌ 1061 ๐ 232A woman could have an axe sticking out of her forehead and a dozen knives sticking out of her back and the first question the doctor will always ask is "what was the date of your last menstrual period"
02.04.2025 12:32 โ ๐ 614 ๐ 89 ๐ฌ 26 ๐ 14Yesterday, I fondly remembered my dear friend Leonard Nimoy, who would have turned 94. His legacy lives on in our hearts. Just days ago, Bill Shatner celebrated his 94th birthday โ wishing him continued health and happiness. Live long and prosper, my friends.
27.03.2025 16:14 โ ๐ 74999 ๐ 7424 ๐ฌ 1411 ๐ 309@cancersuckless.bsky.social
25.03.2025 20:02 โ ๐ 5 ๐ 1 ๐ฌ 0 ๐ 0We expected 2,000 people out in GOP-held Greeley, Colorado.
11,000 people showed up.
Something special is happening, folks. Now is the time to organize in every dimension possible and get to work.
Welcome to autocracy. The Republic we have known for the last 240 years is gone. This is going to keep getting worse. Much worse. The courts mean nothing, the law means nothing, Congress is irrelevant. He is a malignant psychopath.
17.03.2025 11:21 โ ๐ 32185 ๐ 9584 ๐ฌ 2983 ๐ 1028It gets worse. Schumer isnโt just going on a book tourโheโs charging for tickets.
Absolute insanity. While Americans are scared and in crisis mode, heโs basically saying, let them eat cake.
@schumer.senate.gov Step Down.
Many hours have passed and Iโve thought about what happened in the Senate some more.
And you know what? Iโm still mad as hell.
I may just repost their names every day until everyone knows them by heart.
I think some in the Senate have convinced themselves that the backlash to folding will be limited to โthe leftโ and therefore ignorable.
Those people are deeply and profoundly misreading the moment and the stakes.
Virtually every swing district House Dem walked the plank to vote NO for a reason.
๐จ A Trip to the Dentist: Cancer Survivor Edition ๐จ
@cancersuckless.bsky.social @thankscancer.bsky.social
#MakeCancerLessShitty #DentalPhobiaChronicles #SurvivorLife #NitrousAndNostalgia #SendHelp #SuppOnc #SurvOnc #Cancersky
an owl in a crown saying matriarchy now
i made a thing. happy international womens day.
let women lead.
SpaceX is a piece of shit, just like Elon Musk.
07.03.2025 02:50 โ ๐ 3136 ๐ 820 ๐ฌ 245 ๐ 70Trudeau: I want to speak first directly to the American peopleโฆ your government has chosen to do this to you. Your government has chosen to put American jobs at risk. They have chosen to raise costs for American consumers on everyday essential itemsโฆ
04.03.2025 16:25 โ ๐ 76232 ๐ 20610 ๐ฌ 2051 ๐ 1382youtu.be/qI50HWXJ16Y @lobularbca.bsky.social #lobular #bcsm
02.03.2025 17:55 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0