🌟 HD clinical fellowship programme is open 🌟
The EHDN and MDS-ES Huntington's Disease Fellowship Programme 2026 is now open for applications!
📅 Application Deadline: December 15, 2025, 17:00 CET
📧 Further information: ehdn.org/hd-clinician...
01.10.2025 09:59 — 👍 1 🔁 0 💬 0 📌 0
Statement from EHDN Chairs on uniQure’s Topline Results – European Huntington's Disease Network
*Statement from EHDN Chairs on uniQure’s Topline Results*
EHDN Chairs Patrick Weydt (University of Bonn) and Åsa Petersén (Lund University) share the excitement of the HD community in welcoming the topline results from uniQure’s phase 1/2 study of AMT-130:
ehdn.org/statement-fr...
#Huntingtons
30.09.2025 09:33 — 👍 2 🔁 0 💬 0 📌 0
Excited to tell you that the paperback edition of #SophieFromRomania with a new chapter about our second year with her is coming on September 11. And @waterstones.bsky.social has a special offer- 25% off on preorders 28-31 July
28.07.2025 08:28 — 👍 505 🔁 34 💬 13 📌 2
Research & Publications – European Huntington's Disease Network
With the #huntingtonsdisease community, we are thrilled to hear uniQure's exciting topline results for their Phase 1/2 study of AMT-130: uniqure.gcs-web.com/node/12261/pdf
For information on all ongoing and completed EHDN-endorsed studies click here: ehdn.org/previous-ong...
24.09.2025 16:09 — 👍 1 🔁 1 💬 0 📌 0
fellowship programme – European Huntington's Disease Network
Applications for the EHDN & MDS-ES Fellowship Programme '26 open on 1 Oct. Selected fellows will spend 6 weeks in a European multi-disciplinary HD clinic. Priority will be given to applicants from underserved regions with regard to HD care or with specific HD training needs: ehdn.org/hd-clinician...
24.09.2025 08:06 — 👍 0 🔁 0 💬 0 📌 0
Lesley Jones Seed Fund Program Applications – European Huntington's Disease Network
EHDN's Lesley Jones Seed Fund is now open for applications. Find out more here: ehdn.org/hd-clinician...
11.09.2025 16:23 — 👍 0 🔁 0 💬 0 📌 0
Rethinking neurodegeneration: Could DNA repair hold the key to treating Huntington's disease?
With Prof Sarah Tabrizi & Prof Prof Gabriel Balmus
Webinar: Could DNA repair hold the key to treating Huntingtons disease?🧬
Join UK DRI Group Leaders Profs Sarah Tabrizi & Gabriel Balmus as they dig into the latest discoveries and therapeutic breakthroughs from the field
🗓️ Mon 29 Sep 🕓 4-5pm (BST)
Register free 👉 www.ukdri.ac.uk/events/rethi...
10.09.2025 16:41 — 👍 7 🔁 8 💬 0 📌 2
RNA Metabolism in Neurological Disease Conference
RNA Metabolism in Neurological Disease Conference
The 6th RNA Metabolism in Neurological Disease Conference: San Diego, March 29-31, 2026. This conference will bring together basic, clinical, and industry scientists to discuss the roles of perturbed RNA metabolism in neurological diseases. Abstract deadline: October 31, 2025: bit.ly/RNAMetabolism
02.09.2025 12:06 — 👍 0 🔁 0 💬 0 📌 0
Exciting recruitment update from HDClarity! #Huntingtonsdisease #clinicalresearch #raredisease
17.07.2025 10:19 — 👍 0 🔁 0 💬 0 📌 0
Please re-share - we're building our profile on BlueSky and would appreciate help in sharing updates and news in #huntingtonsdisease #research and #care
10.07.2025 08:57 — 👍 0 🔁 1 💬 0 📌 0
Our 55th issue opens with a tribute to our much-loved and sadly missed colleague, Tim McLean. Highlights include a call to action from EHDN’s HEATED task force, clinical trial updates, and an interview with Daniel Claassen, Chief Executive Officer @ Huntington Study Group: ehdn.org/wp-content/u...
01.07.2025 08:37 — 👍 1 🔁 2 💬 0 📌 1
Neurology
The Jacques and Gloria Gossweiler Foundation invites applications for its Neurology Research Grant. The grant supports high-quality research on non-pharmacological treatments for symptoms of Parkinson’s disease & other movement disorders. For more information: www.jggf.ch/en/neurology...
03.07.2025 09:51 — 👍 0 🔁 0 💬 0 📌 0
YouTube video by European Huntington's Disease Network
The HEATED (Huntington’s Equal Access to Effective Drugs) Task Force - EHDN Newletter #1
Listen to our latest podcast! www.youtube.com/watch?v=fEg4...
01.07.2025 08:44 — 👍 1 🔁 1 💬 0 📌 0
Our 55th issue opens with a tribute to our much-loved and sadly missed colleague, Tim McLean. Highlights include a call to action from EHDN’s HEATED task force, clinical trial updates, and an interview with Daniel Claassen, Chief Executive Officer @ Huntington Study Group: ehdn.org/wp-content/u...
01.07.2025 08:37 — 👍 1 🔁 2 💬 0 📌 1
11th Congress of the European Academy of Neurology - Helsinki 2025
The 11th European Academy of Neurology congress will be on 21-24 June 2025, in Helsinki, Finland
EAN's 11th Annual Congress takes place in Helsinki 21-24 June! Submit membership applications by 31 May for reduced delegate rates and take up this opportunity to connect, learn, and save! www.ean.org/congress2025
27.05.2025 10:59 — 👍 0 🔁 0 💬 0 📌 0
Nominate now! The £25K Guarantors of Brain Prize recognises excellence in UK translational neuroscience. Deadline: 31 July 2025.
www.dementiaresearcher.nihr.ac.uk/guarantors-o...
13.05.2025 11:54 — 👍 2 🔁 1 💬 0 📌 0
2025 webinar – James Gusella – A Life Exploring Genes | Hereditary Disease Foundation
Exciting webinar by Jim Gusella coming up from the Hereditary Disease Foundation! Date for your diaries: Tuesday, May 20, 2025, 12-1pm ET.
hdfoundation.org/2025-webinar...
13.05.2025 12:31 — 👍 0 🔁 0 💬 0 📌 0
It is with very heavy hearts that we share the sad news that Tim McLean, our wonderful colleague and dear friend, passed away on 31 March 2025: ehdn.org/in-memoriam-...
09.04.2025 08:21 — 👍 2 🔁 0 💬 0 📌 0
03.04.2025 19:25 — 👍 0 🔁 0 💬 0 📌 0
EHDN's Imaging Working Group have just published their second newsletter! Click here to read it: ehdn.org/wp-content/u...
01.04.2025 15:12 — 👍 0 🔁 0 💬 0 📌 0
TODAY! We hope to see you there!
31.03.2025 10:28 — 👍 0 🔁 0 💬 0 📌 0
HD Gratitude Day 2025 takes place 23 March, 17:00 CET/16:00 GMT/ 12:00 PM EST.
This 3rd annual meeting of thanks and celebration will be hosted by Jimmy Pollard with live presentations from Venezuela, USA & Europe. All are welcome to join the Zoom meeting here: us06web.zoom.us/j/8421059089...
12.03.2025 13:09 — 👍 1 🔁 2 💬 0 📌 0
#Immunologist studying #inflammation in the #mammary gland. Big fan of #chemokines, #macrophages, #dogs and Taylor Swift. Living with young onset #Parkinson's #YOPD She/her.
Cannibis advocate, Parkinson’s advocate, dog lover, self-described artist from Colorado living in Alabama with my loving Mister .
🚫MAGA madness
🚫religious fanatics
Retired journalist from Liverpool, married for 57 years to Janet, now living in Surrey. Left-wing jazz fan who despises fascists and ignores god botherers. Blocks anti-LGBTQ. No DMs. I won’t reply and may block. No requests for cash. Supports 🇵🇸🏳️⚧️🏳️🌈⚧️
Chief Exec at National Voices, England’s leading network of over 200 health and social care charities. Long time champion of involving people and communities in designing health and care services. Also loves DIY, libraries and Sheffield Wednesday.
A charity offering physiotherapy, group exercise, support and advice to those affected by neurological conditions across North Wales, Cheshire, Wirral and Merseyside
Charity no 700904 Company no 2269526.
#Infection doc, #HAI, #IPC, #AMS; #choir, #runner, #nature, #doodles, #PlantArt, #DownWomanInDublin; #Irish, #EU 🇮🇪🇬🇧🇪🇺
Our NUSHU smart shoes use AI to track your gait and provide instant vibrotactile feedback, boosting confidence, stability, and ease with every step.
www.magnes.ch
Father, husband, psychotherapist, writer, painter, Londoner, dancing with Parkinson's since 2013
www.worldoftherapy.com
SFA qualified coach specialising in Walking Football for Players with Parkinson’s. Walking Football Scotlands’ Parkinson’s Educator.
The Care and Support Alliance: 60+ leading UK charities campaigning alongside the millions of older people, disabled people and their carers who deserve decent care.
#hellomynameis Helen - Retired Lead Nurse Palliative & End of Life Care in the south west and now honoured to be a compassionate companion volunteer 🦋
Freelance comms empowering charities to amplify their voices and share their inspiring work with the world I Charity Meetup host I Charity Collab Club host I CharityComms member
A research neurophysiologist studying sensory and motor function. Innovating ways to improve the ability to capture biosignals using wearables for diagnosis and therapies.
Program leader for MRes neuroscience at the University of Leeds
Professor of Physiology. Researcher. Like to see where cells are and how they are. Prefer cancer cells dead, and neurones alive and happy. Not afraid of AI.
https://athenahmusic.com Singer songwriter, a bit like Joni Mitchell, Stevie Nicks?
Senior Strategic Planning Advisor | Healthcare Improvement Scotland | Public Health Masters with interest in social deprivation and health service improvement
Body Eyes And Movement - University of Manchester lab led by Ellen Poliakoff & Emma Gowen researching perception, action, autism & Parkinson's. Account managed by Ellen.
