EHDN News

The EHDN Platform Meeting 𝐮𝐧𝐢𝐐𝐮𝐫𝐞 𝐭𝐨𝐩𝐥𝐢𝐧𝐞 𝐫𝐞𝐬𝐮𝐥𝐭𝐬: 𝐮𝐧𝐩𝐚𝐜𝐤𝐢𝐧𝐠 𝐭𝐡𝐞 𝐨𝐮𝐭𝐜𝐨𝐦𝐞𝐬 𝐬𝐨 𝐟𝐚𝐫 took place on 18 November. We are very grateful to our amazing speakers and panellists.

Catch up by watching the recording: www.youtube.com/watch?v=wKj1...
& reading the full report:
ehdn.org/wp-content/u...

The 56th issue of EHDN News is now online: ehdn.org/wp-content/u...

Highlights include an interview with EHDN's Chief Operating Officer, Jamie Levey, and coverage of the European Huntington Association conference in Bucharest!

🌟 HD clinical fellowship programme is open 🌟
The EHDN and MDS-ES Huntington's Disease Fellowship Programme 2026 is now open for applications!

📅 Application Deadline: December 15, 2025, 17:00 CET
📧 Further information: ehdn.org/hd-clinician...

Welcome! You are invited to join a webinar: EHDN Platform meeting in collaboration with HDYO and EHA - uniQure topline results: Unpacking the outcomes so far. After registering, you will receive a con... We would like to invite you to our upcoming EHDN Platform Meeting in collaboration with HDYO and EHA. UniQure topline results: unpacking the outcome so far. The Platform Meeting will take place on Tu...

EHDN is hosting a Platform Meeting in collaboration with HDYO and EHA titled 𝑢𝑛𝑖𝑄𝑢𝑟𝑒 𝑡𝑜𝑝𝑙𝑖𝑛𝑒 𝑟𝑒𝑠𝑢𝑙𝑡𝑠: 𝑢𝑛𝑝𝑎𝑐𝑘𝑖𝑛𝑔 𝑡𝘩𝑒 𝑜𝑢𝑡𝑐𝑜𝑚𝑒 𝑠𝑜 𝑓𝑎𝑟 on 𝟏𝟖 𝐍𝐨𝐯𝐞𝐦𝐛𝐞𝐫 at 𝟏𝟕:𝟎𝟎-𝟏𝟖:𝟑𝟎 𝐂𝐄𝐓.

Åsa Petersén will chair the event and include presentations by Anne Rosser and Sarah Tabrizi.

Register here: lnkd.in/dNdPNwxJ

Exciting opportunity at EHDN for a Clinical Research Associate/Language Area Coordinator –
Netherlands and Flanders
part-time: 60-80%

Find out more here: ehdn.org/about-ehdn/c...

#hiring | Catherine Deeprose We are #hiring at EHDN! Know anyone who might be interested?

www.linkedin.com/posts/cather...

🌟 HD clinical fellowship programme is open 🌟
The EHDN and MDS-ES Huntington's Disease Fellowship Programme 2026 is now open for applications!

📅 Application Deadline: December 15, 2025, 17:00 CET
📧 Further information: ehdn.org/hd-clinician...

BBSRC New Investigator Award - DEMENTIA RESEARCHER Apply for BBSRC New Investigator funding. Up to £2m FEC over 5 years to support newly appointed lecturers and fellows leading their first major research project

Apply for BBSRC New Investigator funding. Up to £2m FEC over 5 years to support newly appointed lecturers and fellows leading their first major research project.

www.dementiaresearcher.nihr.ac.uk/funding/bbsr...

*Statement from EHDN Chairs on uniQure’s Topline Results*

EHDN Chairs Patrick Weydt (University of Bonn) and Åsa Petersén (Lund University) share the excitement of the HD community in welcoming the topline results from uniQure’s phase 1/2 study of AMT-130:

ehdn.org/statement-fr...

#Huntingtons

Excited to tell you that the paperback edition of #SophieFromRomania with a new chapter about our second year with her is coming on September 11. And @waterstones.bsky.social has a special offer- 25% off on preorders 28-31 July

With the #huntingtonsdisease community, we are thrilled to hear uniQure's exciting topline results for their Phase 1/2 study of AMT-130: uniqure.gcs-web.com/node/12261/pdf

For information on all ongoing and completed EHDN-endorsed studies click here: ehdn.org/previous-ong...

Applications for the EHDN & MDS-ES Fellowship Programme '26 open on 1 Oct. Selected fellows will spend 6 weeks in a European multi-disciplinary HD clinic. Priority will be given to applicants from underserved regions with regard to HD care or with specific HD training needs: ehdn.org/hd-clinician...

EHDN's Lesley Jones Seed Fund is now open for applications. Find out more here: ehdn.org/hd-clinician...

Rethinking neurodegeneration: Could DNA repair hold the key to treating Huntington's disease? With Prof Sarah Tabrizi & Prof Prof Gabriel Balmus

Webinar: Could DNA repair hold the key to treating Huntingtons disease?🧬

Join UK DRI Group Leaders Profs Sarah Tabrizi & Gabriel Balmus as they dig into the latest discoveries and therapeutic breakthroughs from the field

🗓️ Mon 29 Sep 🕓 4-5pm (BST)

Register free 👉 www.ukdri.ac.uk/events/rethi...

❓Where does Alzheimer’s begin?

Find out how Dr Marc Busche’s team (UK DRI at UCL) have been using specialised techniques to examine cells deep in the brain, to unlock valuable information as to the earliest stages of Alzheimer’s disease.

Churchill Fellowship - DEMENTIA RESEARCHER Apply now for a Churchill Fellowship: a once in a lifetime chance to explore global ideas, grow personally and professionally, and create real change in the UK.

Apply now for a Churchill Fellowship @churchillfship.bsky.social : a once in a lifetime chance to explore global ideas, grow personally and professionally, and create real change in the UK.

www.dementiaresearcher.nihr.ac.uk/funding/chur...

RNA Metabolism in Neurological Disease Conference RNA Metabolism in Neurological Disease Conference

The 6th RNA Metabolism in Neurological Disease Conference: San Diego, March 29-31, 2026. This conference will bring together basic, clinical, and industry scientists to discuss the roles of perturbed RNA metabolism in neurological diseases. Abstract deadline: October 31, 2025: bit.ly/RNAMetabolism

RNA Metabolism in Neurological Disease Conference RNA Metabolism in Neurological Disease Conference

Date for your Diary!
www.elsevier.com/en-gb/events...

The MDS-PAS & EHDN Online Course takes place 15 & 22 August. This free course is in Spanish and aims to enhance understanding of HD through a multidisciplinary lens, focusing on current challenges and emerging perspectives.

Click here for more info: education.movementdisorders.org/Detail/973/S...

Exciting recruitment update from HDClarity! #Huntingtonsdisease #clinicalresearch #raredisease

Please re-share - we're building our profile on BlueSky and would appreciate help in sharing updates and news in #huntingtonsdisease #research and #care

Our 55th issue opens with a tribute to our much-loved and sadly missed colleague, Tim McLean. Highlights include a call to action from EHDN’s HEATED task force, clinical trial updates, and an interview with Daniel Claassen, Chief Executive Officer @ Huntington Study Group: ehdn.org/wp-content/u...

The Jacques and Gloria Gossweiler Foundation invites applications for its Neurology Research Grant. The grant supports high-quality research on non-pharmacological treatments for symptoms of Parkinson’s disease & other movement disorders. For more information: www.jggf.ch/en/neurology...

YouTube video by European Huntington's Disease Network The HEATED (Huntington’s Equal Access to Effective Drugs) Task Force - EHDN Newletter #1

Listen to our latest podcast! www.youtube.com/watch?v=fEg4...

Our 55th issue opens with a tribute to our much-loved and sadly missed colleague, Tim McLean. Highlights include a call to action from EHDN’s HEATED task force, clinical trial updates, and an interview with Daniel Claassen, Chief Executive Officer @ Huntington Study Group: ehdn.org/wp-content/u...

MDS-PAS & EHDN Joint Online Course Series: Multidisciplinary Management of Huntington's Disease: 15 & 22 August, 2025.

This free four-part online series covers comprehensive and multidisciplinary management of HD: education.movementdisorders.org/Detail/973/S...

EAN's 11th Annual Congress takes place in Helsinki 21-24 June! Submit membership applications by 31 May for reduced delegate rates and take up this opportunity to connect, learn, and save! www.ean.org/congress2025

Nominate now! The £25K Guarantors of Brain Prize recognises excellence in UK translational neuroscience. Deadline: 31 July 2025.

www.dementiaresearcher.nihr.ac.uk/guarantors-o...

Exciting webinar by Jim Gusella coming up from the Hereditary Disease Foundation! Date for your diaries: Tuesday, May 20, 2025, 12-1pm ET.

hdfoundation.org/2025-webinar...

It is with very heavy hearts that we share the sad news that Tim McLean, our wonderful colleague and dear friend, passed away on 31 March 2025: ehdn.org/in-memoriam-...