Neuromuscular Disease Network for Canada

📬 The NMD4C July 2025 Newsletter is here!

Catch up on new training resources, #research awards, #grants, upcoming #events, team updates, funding opportunities & more from #Canada’s #neuromuscular community.

👉 Read now: zc.vg/C2a3Y?m=0
#NMD4C #RareDisease #ResearchFunding #ClinicalResearch

🚨 Early bird for the 8th TREAT-NMD Conference ends tomorrow July 31!
Join the global neuromuscular community on Feb 10–12, 2026 in Lisbon to explore clinical trials, care standards and more.
📍 Altis Grand Hotel

🔗 Register Here: www.treat-nmd.org/event/8th-tr...

#TREATNMD2026 #NeuromuscularResearch

🚨 Now Hiring: Neurology Residency Program Director – @ottawahospital.on.ca & @uottawa.ca
A full-time leadership role, ideal for a neurologist passionate about medical education and residency training.
🗓️ Deadline: August 8, 2025
🔗 Apply here: www.thinkottawamedicine.ca/job/neurolog...

The NMD4C and MDC are pleased to invite you to our next CPD-accredited webinar Bulbar impact of SMA: approach to assessment and treatment!

📅 Tuesday July 8, 2025
🕝 6pm ET
🔗Register at: bit.ly/SMABulbarImp...

#LetsTalkNMD #webinar #education #NMD #raredisorder #SMA

📢 Announcing the inaugural NMD4C Collaborative Research Training Awards!

These awards will provide funding of $2000 for research trainees to visit another neuromuscular lab within Canada to work on a collaborative research project

🔗 Learn more: neuromuscularnetwork.ca/TrainingAwards

Event poster for NMD4C and MDC webinar: Cardiac Neuromuscular Disease: Essentials for Neuromuscular Clinicians. Tuesday June 3, 2025 at 6pm ET.

The NMD4C and MDC are pleased to invite you to our upcoming CPD-accredited webinar!

✨ Talk Title: Cardiac Neuromuscular Disease: Essentials for Neuromuscular Clinicians.
🗓️ Date: Tuesday June 3, 2025
⏰Time: 6pm ET

Register at: bit.ly/CardiacNMDs

#cardiac #NMD #cardiachealth #raredisorder

text reading 2026 clinical neuromuscular fellowship competition. graphic of clinicians learning from each other. NMD4C and MDC logos in the corner.

Together, NMD4C and MDC are excited to open our 2026 clinical fellowship funding competition in neuromuscular medicine and EMG!

📬 competition opens: May 1, 2025
⏰ Deadline: June 12th, 2025

Check out the 2026 competition guidelines and start your application today at: neuromuscularnetwork.ca/xov2

Matthew Rok | PhD Candidate, Cohn & Ivakine Labs Molecular Genetics, University of Toronto, Canada Matthew is a PhD candidate supervised by Dr. Ronald Cohn and Dr. Zhenya Ivakine at the University of Toronto. He investigates the application of CRISPR to correct mutations in the DMD gene which cause Duchenne muscular dystrophy. The direct translation of CRISPR therapeutics is difficult due to sequence differences between mice and humans. His research has thus focused on the development of a mouse with a fully humanized DMD gene to improve the translatability of preclinical in vivo studies. This mouse was successfully generated and subsequently used to produce several dystrophic models with large deletions and duplications as well as small mutations. Talk Title: Development of fully humanized mouse models of Duchenne muscular dystrophy

Join the Myogenesis Discussion Group today for a seminar from Matthew Rok on Humanized Mouse Models for Duchenne muscular dystrophy research! 🧬

🗓️April 28, 2025
⏰2-3pm ET
👉Register at: neuromuscularnetwork.ca/AprilMdG

#MuscleResearch #DMD #CRISPR #RareDisease #BiomedicalResearch #MuscularDystrophy

May 2025 event poster for Neuromuscular Mystery Case Rounds. A Numbing Affair: Untangling a Neuropathic Conundrum. Taking place Tuesday, May 6, 2025 at 7pm ET. Photo of presenter Dr Mark Krongold and moderators of the event Dr Christen Shoesmith, Dr Hernan Gonorazky, and Dr Aaron Izenberg.

The NMD4C and MDC are pleased to invite you to our upcoming CPD-accredited Neuromuscular Mystery Case Rounds webinar! #LetsTalkNMD

✨ Talk Title: A Numbing Affair: Untangling a Neuropathic Conundrum
🗓️ Date: Tuesday May 6, 2025
⏰Time: 7pm ET

Register at: bit.ly/NMRoundsMay2...

The April NMD4C newsletter is here, featuring updates and news from around the network as well as events and opportunities!

📩 The NMD4C's April 2025 newsletter is now available! In this edition:

🌟 New NMD4C collaborative research training awards
👩‍💻New home online for NMD4C community of practice
🏅 King's medals awarded to NM clinicans and researchers

Read more: zc.vg/RBp94?m=0

#newsletter #raredisease #neuromuscular

Patients and family members affected by FSHD are invited to join FSHD Canada Foundation and @fshdsociety.bsky.social to meet the leaders of FSHD research and hear the latest in FSHD updates at the FSHD 360 Conference Ontario.

More information: www.fshdsociety.org/event/ontari...

Join us and MDC tomorrow for our CPD-accredited webinar Neuropathy Borderlands: Approach to Management of Muscle Cramps, Small Fiber and Autonomic Neuropathy

📅Tue Apr 1, 2025
🕝5:00pm ET
🔗Register at: bit.ly/Neuropathy2025

This image is a graphic recording of a talk on plain language by Anna Samson and Hetty Mulhall. To the left of the image, some key take-aways are described and accompanied by a range of icons. For example, there is a drawing of a sports field along with the point that plain language is about levelling the playing field. There is also an image of weighing scales, along with the comment that plain language helps to reduce bower imbalances. To the right of the graphic recording is a list of specific tips for writing in clear language. These include: - Aim for grade 8 reading level - Read aloud what you have written - Use simple sentence structure - Get to the point and stick to essential information - Use alt text for images - Consider having more than one format for content such as written, video and audio - Check that font choice is easy to read and use colour contrast tools

Making the case for clear language. Anna Samson @disabilitywithanna.bsky.social and I co-presented at a virtual symposium on the importance of clear/plain language. Our key points are beautifully summarised in this graphic recording by visual alchemist Candace Ramjohn.

Join us! RareKids-Can Roundup: Overview, updates, and Collaboration. March 24 from 8am-11am MST. This virtual information session is an opportunity to: gain an overview of RareKids-Can, including the current services we offer to support study teams; learn about our deliverables and activities across each sub-platform and the Clinical Trial Operations and Coordinating Hub (CTOCH); Share your feedback on the network; Build connections within the community.

Save the date! @rarekidscan.bsky.social is inviting you to join our virtual roundup session on March 24, 2025 from 8-11am MST. During this information session, you will gain an overview of RareKids-CAN, build connections within the community, and more! Register today: tinyurl.com/yhy455b2

Text reading Neuropathy Borderlands: Approach to Management of Muscle Cramps, Small Fiber and Autonomic Neuropathy with photos of presenters Dr Hans Katzberg and Dr Juan Francisco Idiaquez Rios. Event details taking place April 1, 2025 at 5pm.

Join us and MDC at our next CPD-accredited webinar Neuropathy Borderlands: Approach to Management of Muscle Cramps, Small Fiber and Autonomic Neuropathy

📅Tue Apr 1, 2025
🕝5:00pm ET
🔗Register at: bit.ly/Neuropathy2025

#Neuropathy #musclecramp #LetsTalkNMD #webinar

🚨Young Investigators - Join us for a Webinar on the #myotonicDystrophy Funding Landscape on March 13th!🚨 This Pre-Conference Webinar is designed to help identify funding pathways and avoid common pitfalls. 🧬🔗 Register to attend at: us06web.zoom.us/webinar/regi...

We are excited to announce the recipients of the 2025 NMD4C Early Career Awards!🏆🎉 This year, we presented four awards as a part of this program - congratulations to the 2025 award winners!

Learn more about the achievements of each of these standout researchers: neuromuscularnetwork.ca/ECawards

📩 The NMD4C's March 2025 newsletter is now available!

🏆4 outstanding researchers receive Early Career Awards
🔍CIHR Funds Project to Study SBMA in Indigenous Peoples of the Prairie Provinces
🔵We join Bluesky!

View the newsletter here: zc.vg/RGZV6?m=0

#NMD4C#newsletter #raredisease #neuromuscular

🚀 Exciting news! Our team has been awarded a $1.3M CIHR grant to study Spinal-Bulbar Muscular Atrophy (SBMA) in Indigenous communities of the Prairie Provinces. Honored to collaborate with an incredible team of researchers & community leaders! @nmd4c.ca neuromuscularnetwork.ca/news/cihr-fu...

There is still time to register for our CPD-accredited webinar Myasthenia Gravis: Today and Tomorrow, taking place this Tuesday!

🗓️ (Tomorrow) March 4, 2025
⏰ 5pm ET
🔗 Register Here: bit.ly/MyastheniaGr...

#LetsTalkNMD #webinar #Myastheniagravis

Today is #RareDiseaseDay! 🦓🧬

We work to improve care, research and treatment of NMDs for Canadians, and are proud to support & raise awareness for ALL rare diseases.

This year’s theme highlights the power of resilience and connection - find an event near you: www.rarediseaseday.org/category/eve...

NMD4C and MDC webianr - Myasthenia Gravis: Today and Tomorrow, taking place Tuesday March 4 2025 at 5pm ET

Join NMD4C and MDC at our next CPD-accredited webinar "Myasthenia Gravis: today and tomorrow" chaired by Dr Vera Bril

📅 Tue Mar 4, 2025
🕝 5:00pm ET
🔗 Register at: bit.ly/MyastheniaGr...

#LetsTalkNMD #MyastheniaGravis #webinar