Turns out "unspecified" connective tissue Autoimmune disorder doesn't qualify for a free health program to help me navigate rare conditions. Because it is under the umbrella of said rare diseases but is so rare it is not named yet. ๐คฃ love it. Any name suggestions? ๐
18.03.2025 18:13 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
When you start taking Presdnisone and it's time for the bitch to come out
{Arielle all green and magic coming out of her mouth ]
17.03.2025 16:34 โ ๐ 139 ๐ 7 ๐ฌ 10 ๐ 3
Took the dog to a show last night at a friend's house. He had the freaking time of his life and I got to sit and stare at a fire as long as I wanted. Feel like a brand new person today.
17.03.2025 16:15 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
I just met someone with burning hands syndrome. She measured the temp of her skin once and it was 103. And those are her hands 24/7. We tossed back and forth symptoms it was good times ๐๐
11.03.2025 22:34 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
My kid has been keeping his phone on him and ON. I found out because he was like I get your texts mom. I send him I love you texts pretty often. Haha whoops.
11.03.2025 17:14 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
I love vagal nerve resets! Singing helps too ๐ฅฐ I didn't know the crawling mimicking helps. That makes total sense, thx for sharing
26.02.2025 22:15 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Commission your friends for art. Give them dollars (this makes them happy) in exchange for drawing you like (this makes you happy). This is symbiosis. This is a healthy ecosystem.
Support your friends. Support art. Support your friends' art.
26.02.2025 00:44 โ ๐ 8837 ๐ 2564 ๐ฌ 89 ๐ 85
not.be
I haven't really checked on dumpy pants in a bit but now I'm curious if he's having a bad day because a dumpy pants supporter I just had the displeasure of speaking with was in a real bad mood. What a lovely day to not be them! ๐ฅฐ๐
22.02.2025 00:11 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
That is so cute! Crochet is amazing ๐ฅฐ
21.02.2025 21:37 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
I have relationship whiplash and I have new skills and I won't give up. Don't you either. For anyone else in this boat because as my mentor told me over and over. Every experience and emotion we have is a human one and shared with all humans simply because you are human.
18.02.2025 20:57 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
She said omg yes!!! I need that I want so badly to be a good friend too! So today I've made ppl super pissed off, repaired, and made a new friend, possibly two. Her wife is super cool too. She's trans and the second I saw her I grinned ear to ear because I love us. And we both had a euphoria moment
18.02.2025 20:55 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
I told her I knew what she meant it is so hard learning to navigate relationships for us and as adults learning skills we "should" have learned by now. I told her my therapist gave me a needs chart I could ask ppl to fill out so I know how they need care.
18.02.2025 20:53 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0
It started this whole dialog between me and the people who came to pick the plants up. A lovely lesbian couple and we talked about misunderstandings and how they'd had a horrible misunderstanding with a good friend this summer and lost them over it.
18.02.2025 20:52 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0
The people who came felt so bad as did I, but I'm friends with my neighbors. He got on the phone and she talked me down. Like I know you'd never take my plants. She was always trying to give some to me so I thought she'd left what she couldn't take.
18.02.2025 20:51 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0
I just tried to give my neighbors plants away because I thought they were going to die since they had moved and the plants were in the hallway.
Ppl came to get them and were actively moving the plants. When my neighbors husband showed up. These plants are her babies!!!!
18.02.2025 20:50 โ ๐ 1 ๐ 0 ๐ฌ 2 ๐ 0
Living Life Upside Down - An Intro to POTS/Dysautonomia
I live my life horizontally thanks to a condition called POTS (Postural Orthostatic Tachycardia Syndrome). It's poorly understood, often misdiagnosed and can be devastating to quality of life.
Have you had unexplained tachycardia, crushing fatigue, sweating, digestive issues, sleep disturbances, dizziness or fainting since your Covid infection?
It could be POTS/Dysautonomia, a disorder of the autonomic nervous system that is frequently seen in Long Covid patients:
17.02.2025 04:56 โ ๐ 184 ๐ 66 ๐ฌ 8 ๐ 2
I want to write something anything and not correct a single grammatical or spelling error. Then publish it and disperse it widely. As is. Just because it makes me feel good. That is all. Thank u for coming to my tedtalk. ๐
16.02.2025 00:33 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Seems every little hateful thing humans ever did to one another is making a resurgence and wishes to tame those of us who are not in line. Whelp good luck. Can't put that cat back in the bag. We've been here we are here and we aren't going anywhere. Exist in every aspect of your humanity. Loudly.
16.02.2025 00:32 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
So the music from my high school years is going hard again and close behind it the eating disorders that accompanied it. Never going back. I used to be terrified to take any physical space up. Now, I'll revel in my fat rolls into eternity. Soft, gorgeous, large and present.
16.02.2025 00:30 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Kiddo is back for a bit. The house has been full of his vinyls since 2pm. No end in sight. ๐๐ฅฐ love this for him.
15.02.2025 02:12 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Everytime I see someone talking about going braless and then in the same breath tell you to get those cake thingies....babe . I guess I dont go bra LESS I go bra FREE. ๐๐๐
14.02.2025 20:27 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
The dog immediately after digging through the trash and getting caught...sits down and farts loudly. K buddy hope that was worth it. ๐ซ
12.02.2025 16:28 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Something about the anglerfishโs final swim to the light speaks to me in this here political climate.
11.02.2025 15:38 โ ๐ 186 ๐ 16 ๐ฌ 2 ๐ 0
Hi. 2009 was the H1N1 pandemic. Wear a damn mask.
10.02.2025 05:37 โ ๐ 15 ๐ 8 ๐ฌ 1 ๐ 1
Tuberculosis outbreaks in Kansas and North Carolina and yet Iโve not seen a single media outlet mention wearing masks.
In fact masks are banned in North Carolina.
A good respirator protects from more than just Covid. The people deserve to know how to keep themselves safe.
08.02.2025 20:45 โ ๐ 1497 ๐ 500 ๐ฌ 40 ๐ 26
BREAKING: Bird Flu Outbreak Hits Nevada 50,000 Cows Infected.
09.02.2025 11:49 โ ๐ 384 ๐ 116 ๐ฌ 11 ๐ 8
me trying to sleep on my side
{picture of bilbo running and saying 'im going on an adventure - but he is labeled as "my shoulder" and then behind him, far away in the hills there is a label "my shoulder socket"]
#shoulder #shoulderpain #jointpain
09.02.2025 17:18 โ ๐ 240 ๐ 33 ๐ฌ 10 ๐ 6
08.02.2025 03:25 โ ๐ 1 ๐ 1 ๐ฌ 0 ๐ 0
Will everyone please share Kyeโs post?!
08.02.2025 01:00 โ ๐ 26 ๐ 22 ๐ฌ 0 ๐ 0
Tacoma, Wa. branch of the Industrial Workers of the World.
Email us to join our branch:
tacoma@iww.org
"In injury to one is an injury to all"
#tacomaiww #iww #industrialworkersoftheworld #onebigunion
#solidarityforever #aninjurytooneisaninjurytoall
Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people arenโt expendable. Covid is airborne ๐ท
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A redheaded snippet who loves Sondheim. Once fainted into Hugh Jackman.
PDX>MRY>SJT>CKV>FAY>RDU>NYC
Iโm a walking existential crisis and part-time shitty housewife. Please show me your cat.
John 3:16 | Founder of The Thurman Perry Foundation | Womenโs Incarceration Expert | Political Commentator | Author: BAD GIRLS (coming soon)(Hachette) | Epidemiologist | Words: @WashingtonPost @ESSENCE #writingcommunity
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nikkei organizer+ zinester + artist, chronic illness bitch, union girly | woso | no pronouns
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International, award-winning, bestselling author of over 33 books. Global award-winning book promoter. Owner of Readers Depot. Youtuber. Book Hoarder. #Autoimmune warrior. Married to Author Dell Sweet. #Disabled #childabusesurvivor #wolfpackauthor
Ghetto Carrie Bradshaw ๐
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ห shitpost memes & sharing my thoughts ห
Chronic Illnesses + Autoimmune Disorders R no laughing matter but my humorous posts will make U feel better for while. https://chronicillnesstees.etsy.com
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#chronicillness
โฐ 1990 transEnby they fox โท
abolitionistโง survivorโต seerโฟ
โตโฌโk.ero.hx8.pos.liber.gnusys
perched in hills of cincinnati ๐ผ
G โด โณโฅโโฅโฆตโฅโงฎโฅโงซ
T โด โฌคโโโโข
K โด โจโคณโ
inspirivita apostata ๐
ยฉ Rem Ross CC BY-SA-NC 4.o
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DC. political philosopher at Georgetown. rhythm guitarist + vox for @femiandfoundation.bsky.social. Spurs fan #COYS
Affirmation Coyote is a metaphysical construct of thought and energy, and their posts should not be considered as a substitute for actual support and approval.
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Just a Woodcarving Geek working everyday to improve my craft, and help others do the same! Check me out on YouTube and learn to carve with me!
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anti-hierarchy, horror fan, fibromyalgia experiencer, walking meditation enthusiast, profile pic just a temp placeholder
I prefer to interact with art and photography including text/alt text
boorloo australia
detroit native. deputy editor at huffpost. WABJ president. check out my free newsletter! --> https://www.whatimreading.net/
Science communicator & writer โ๐ผ ๐งฌ
MSc epidemiology grad student @ LSHTM
Activist
Croissant maker ๐ฅ
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