Done just in time for the hockey game. Go Leafs go!
31.03.2025 00:02 β π 3 π 0 π¬ 1 π 0
A4. AI poses opportunities and challenges.
I think by amplifying leaders in the field, @btsmchat can try to improve algorithms and get knowledge to where it's needed.
#BTSM
30.03.2025 23:54 β π 2 π 0 π¬ 0 π 0
Resource for Newly Diagnosed Brain Tumour Patients
Asking questions is tremendously difficult until you actually know the diagnosis and have a bit of a background. That is why I made this resource for newly diagnosed individuals. Please share it wiβ¦
A3. After going through my own diagnosis and advocating for others, I made this resource to try to guide early decision-making. (Not saying it's the "best" but I created the resource that I wished I'd had at the beginning and I'm hoping it helps others). #BTSM
mcinsite.wordpress.com/2022/05/04/r...
30.03.2025 23:46 β π 3 π 0 π¬ 0 π 1
Please try to remember to include #BTSM in all of your responses so that everyone can see your responses!
30.03.2025 23:34 β π 1 π 0 π¬ 0 π 0
*A2
30.03.2025 23:28 β π 0 π 0 π¬ 0 π 0
#BTSM
a) Publications, researchers, or folks with lived experience (and obviously my docs!)
B) if it provides a solid rationale for making a treatment decision
C) if it is published or being discussed (on social media) by leaders in the field
30.03.2025 23:27 β π 3 π 0 π¬ 2 π 0
Hi Steve! Great to have you here! #btsm
30.03.2025 23:17 β π 1 π 0 π¬ 0 π 0
Exactly! @stuartselby.bsky.social brilliantly coined the expression :)
#btsm
30.03.2025 23:15 β π 2 π 0 π¬ 0 π 0
A1. Echoing what everyone else is saying! Research, clinical trials, translational work. #BTSM
30.03.2025 23:14 β π 1 π 0 π¬ 0 π 0
Emily from Ontario π¨π¦. Gr 4 astro patient, patient advocate, and #BTSM organizing committee member.
Here to see how it goes on Bluesky!
I'm in the... watch and wait (scan and plan π) of recurence
30.03.2025 23:12 β π 2 π 0 π¬ 1 π 0
Ben Stetler Foundation is another that came to mind
30.03.2025 14:31 β π 1 π 0 π¬ 1 π 0
Oops. Sorry, missed @dtsang.ca comments!
30.03.2025 14:28 β π 1 π 0 π¬ 0 π 0
Ac2orn - advocacy for Canadian Childhood Oncology Research Network
30.03.2025 14:27 β π 2 π 0 π¬ 1 π 0
β οΈ The first ever #BTSM #skychat will take place on March 30, 2025, 4 pm PT / 7 pm ET.
We sincerely hope the #bsky #braintumor community will continue to contribute to the more than a decade-long history of #btsm chats.
#oncsky #ayacsm #academicsky #medsky #cansky #neurooncology #neurosurgery
06.03.2025 02:45 β π 23 π 8 π¬ 1 π 2
A national Neuro-Oncology network focused on improving outcomes for #AYA patients with #braintumours
Human Doctor β’ Toxicology β’ Addiction β’ Emergency β’ #WTFentanyl & more often just WTF β’ drugs are misunderstood but people are misunderstood more β’ he/him β’ YouTube.com/@RyanMD β’ #MedSky
Your Emotional Support Canadian
Like Mr Rogers. But for adults.
.
β¬οΈ π‘ππͺπ¦πππ§π§ππ₯ β¬οΈ
https://join.FarAndWide.news
MY LINKTREE:
https://beacons.ai/todmaffin
ALL MY VIDEOS:
https://youtube.com/@todmaffinvideo?sub_confirmation=1
AndrΓ© Picard is the health columnist at The Globe and Mail and the author of six bestselling books. I share stories and opinion pieces from a broad range of publications. Shares are not endorsements.
He/him. San Josean. Surviving #BrainCancer (g2 diffuse astro). Too many interests, but β€οΈ #FFXIV, APs, #TTRPGs, and π our savior Camina Drummer.
Too wide for your narrow mind
she/her
Unfiltered Voice of Reason | Cancer Survivor β’ Keynote Speaker β’ Cultural Critic β’ Podcast Pioneer β’ Troublemaker β’ Stupid Cancer Founder β’ Book Coming 2026 β’ Patients First, Always
Strategic Advocacy Partnerships & Patient Engagement.
Co-Creation & Community Building. π
Coffee drinker. Gardener. Wife. Mom. Breast Cancer. π
Advocates for Collaborative Education (@advocatecollab.bsky.social) #MakeCancerLessShitty #PublicHealth
Growth is overrated and occasionally fatal
The ABTA provides resources to support the needs of brain tumor patients & caregivers and funds critical research in the pursuit of discovering breakthroughs.
Harbouring brain tumour #2.
Raising awareness and funding for brain tumour research.
PhD Candidate
6E/GA
#BTSM #BrainTumorSocialMedia #MentalHealthMatters
Left handed vegan. Curious about our world, languages, cultures, bhakti yoga, health and well-being. Brain cancer survivor.
forensic analyst, dog lover, wine drinker, brain cancer patient (stable).
βquirky, defiant, messy, odd, & absolutely charmingβ- me, according to my 6th grade teacher
Also: passionate patient advocate; social media wackadoo; current brain cancer survivor; most excellent source of words
Wife of GBM patient, mother of 3, first time puppy person.πΆ
Currently in Playa Vista, CA for UCLA clinical trial for #DCVAX for my husband's #GBM brain tumor for 3 months.
WilleverStrong.com
#GBM #GBMWIFE
#NWBO #DCVAX
#RESIST
Surgical Pathologist Royal Prince Alfred Hospital. Prof Sydney University. 2024 Joint Australian of Year. Editor WHO Skin Tumour Classification (4th ed). American Joint Committee on Cancer, Vice Chair Melanoma Expert Panel. All posts/comments are personal.
Chair & Prof, Dept of Neurological Surgery
Mayo Clinic Rochester William J and Charles H Mayo Professor
Editor-in-Chief, Neuro-Oncology Advances.
zadehlab.com
Professor of Neurology. π¨π¦. #YYZ.