PenCRU @ University of Exeter Medical School

Interventions supporting the empowerment of parent carers of children with neurodisability and other long‐term health conditions: A scoping review This scoping review identified 145 different interventions designed to support parent carer empowerment. These interventions have been catalogued and are presented in an interactive, online database.

*New publication* led by @JimReederphysio - first paper from his research exploring innovative ways to empower parent carers of children with neurodisability @hls.exeter.ac.uk
onlinelibrary.wiley.com/doi/10.1111/...

New and recent publications | PenCRU | University of Exeter

We have had a flurry of new papers published over the summer 🙂 www.pencru.org/news/latestn...

Parent carers continue to fall to the bottom of the heap. www.healthyparentcarers.org gives them the lift they need. Hear from the carers themselves... @carersweek.bsky.social

Had a fantastic time hearing about this programme - I think there’s lots we can do with it. Watch this space.

Great to meet @steveracemp.bsky.social today and share about the Healthy Parent Carers. Thanks for listening, Steve and being willing to promote the programme. www.healthyparentcarers.org @hls.exeter.ac.uk

Gosia is parent carer to a child with visual impairment. She recently took part in the HPC programme run by VI charity, LOOK. “Taking part in this course was the best decision I have ever made! It changed the way I think and reminded me how to be me again. I feel healthier and happier then ever!”

Healthy Parent Carers just launched in Harrow and already having a positive effect for carers. "It’s good to be reminded that we actually have permission to look after ourselves as well as our children. It’s so necessary and important so that we do not burn out."

Helen from @OurVoiceEnfield on the Healthy Parent Carers Programme:
"An excellent course run by parent carers. Non-judgmental safe space to share our voices together. Highly recommend to all parent carers."

Our research to promote inclusivity and equity of programmes for parent carers of disabled children ⬇️ 🙂
Led by @phillharniess.bsky.social

YouTube video by WatchCDC Workshop 1: The Healthy Parent Carers Programme: Improving parent carers’ health and wellbeing.

Hear how lives of parent carers are being transformed by the Healthy Parent Carers programme at the CDC workshop www.youtube.com/watch?v=Fxfx...
@england.nhs.uk

YouTube video by Science Animated Eating and Drinking Ability Classification System for people with cerebral palsy

Super new video about Eating and Drinking Ability Classification System for people with cerebral palsy
@dianejsellers.bsky.social @mackeithpress.bsky.social @bacdisability.bsky.social
youtu.be/woa7TGbwb0Y?...

Implementation of training to improve communication with disabled children on the ward: A feasibility study Background Parents of disabled children report poorer inpatient experiences when they stay in hospital, and some staff report finding communicating with disabled children challenging. This study tes...

The research evaluated training co-created with parent carers and health professionals to improve communication with disabled children on the ward, supported by @penarc.bsky.social @hls.exeter.ac.uk onlinelibrary.wiley.com/doi/10.1111/...
arc-swp.nihr.ac.uk/research/pro...

Mother had carer’s allowance stopped while with disabled daughter in hospital Rachel Adam-Smith says stopping benefits when loved ones are in hospital fails to recognise carers’ ongoing role

Our Hospital Communications research highlighted crucial role parent carers have supporting ward staff to improve children's experience of care when they have to stay in hospital www.pencru.org/projectsmeet...
The caring doesn't stop when children are inpatients.
www.theguardian.com/society/2025...

Tackling parental burnout in carers of children with SEND. Healthy Parent Carers is a 12 week course co-produced by academics at the University of Exeter and parent carers. www.healthyparentcarers.org

Annual Scientific Meeting 2025 | British Academy of Childhood Disability Safeguarding children and young people with special needs and disabilities: a multi-faceted approach

Last chance to submit an abstract(s) to this year's annual conference. Successful abstracts invited to present and chance to win @mackeithpress.bsky.social prizes
- £350 cash prize for best oral presentation
- £200 MKP vouchers for best poster
*Deadline Weds 26 Feb*
www.bacdis.org.uk/pages/asm-2025

The Healthy Parent Carers Programme "should be part of every Local Offer" @amandaallard.bsky.social We're training facilitators to run it locally. www.healthyparentcarers.org @exeter.ac.uk @lizkendallmp.bsky.social