ECHDO

Introducing The ECHDO Beat! 🥁
Our new bimonthly newsletter is here to connect the CHD community across Europe. Get the first edition for:

Member updates 💙
Advocacy highlights 📢
Future plans 🌍

Read the inaugural issue! 👇
sway.cloud.microsoft/pC6ISSIgOzIe...

#ECHDO #CHD #HeartDisease #Newsletter

ECHDO is entering a new chapter, having elected a new Board at it's General Assembly in Croatia earlier this year, with Karen Tomlin (UK) as the new President.

🔗 Read the full article on the ECHDO website. (Link in BIO)
www.echdo.eu/content/echd...

🔔 𝗪𝗲𝗯𝗶𝗻𝗮𝗿 𝗥𝗲𝗺𝗶𝗻𝗱𝗲𝗿: Tonight 30 Sept 19:00 CET with Psychologist & Systemic Psychotherapist Andri Christoudia - “From Fetus to Adulthood in CHD: How My Journey Defined My Vision to Empower CHD Children and Their Families".

👉🏼 𝗪𝗲𝗯𝗶𝗻𝗮𝗿 𝘁𝗲𝗮𝗺𝘀 𝗹𝗶𝗻𝗸 - 𝘰𝘱𝘦𝘯 𝘵𝘰 𝘈𝘓𝘓 tinyurl.com/5774bfkw

We're here for you, always. 💗

Living with a heart condition isn’t just about big milestones. It’s about the small victories: a good walk, a laugh with friends, a day that feels “normal.” Those moments are everything. 💛

#CHD #WorldHeartDay #CHDAwareness

To everyone managing medication, lifestyle changes, hospital visits, and the mental load that comes with a heart condition: we see you. We’re in your corner, always.

#WorldHeartDay #CHD #CHDAwareness

Our Charity Consultant, Charlotte Kearsey on compassion. 💛

Our Vice President, Mirela Dežman on the support in the CHD Community. 💞

A quote from ECHDO President, Karen Tomlin, on World Heart Day. 💞

If you know someone with a heart condition, today’s a good day to remind them how amazing they are 💖.

Celebrate with music too! 🎶 Our World Heart Day playlist has 25 tracks for 25 years: open.spotify.com/playlist/6TE...

#WorldHeartDay is here!

This year marks the 25th anniversary of World Heart Day, & today, we want everyone who has a heart condition to know that we are thinking of you & cheering you on every day, because you are awesome & deserve everything in this world.

That’s it. That’s the whole post.💓
#CHD

Join our webinar with Psychologist & Systemic Psychotherapist Andri Christoudia - “𝗙𝗿𝗼𝗺 𝗙𝗲𝘁𝘂𝘀 𝘁𝗼 𝗔𝗱𝘂𝗹𝘁𝗵𝗼𝗼𝗱 𝗶𝗻 𝗖𝗛𝗗: 𝗛𝗼𝘄 𝗠𝘆 𝗝𝗼𝘂𝗿𝗻𝗲𝘆 𝗗𝗲𝗳𝗶𝗻𝗲𝗱 𝗠𝘆 𝗩𝗶𝘀𝗶𝗼𝗻 𝘁𝗼 𝗘𝗺𝗽𝗼𝘄𝗲𝗿 𝗖𝗛𝗗 𝗖𝗵𝗶𝗹𝗱𝗿𝗲𝗻 𝗮𝗻𝗱 𝗧𝗵𝗲𝗶𝗿 𝗙𝗮𝗺𝗶𝗹𝗶𝗲𝘀”
open to all
𝗪𝗵𝗲𝗻: Tuesday 30 Sept, 7:00 PM CET | Duration: ~45 mins

tinyurl.com/3dxx5wjx

💙 Today is International Day of Charity.

ECHDO supports people with Congenital Heart Disease (CHD) of all ages - working to ensure access to the best possible care across Europe.

👉 Donate here: www.paypal.com/donate/?host...

✨Announcing the new ECHDO Board for 2025! 💓

Karen Tomlin - President
Mirela Dežman - Vice President
Michelle Woods - Treasurer
Xenia Patsalidou
Amin Houari - Secretary
Tsvetoslav Naydenov
Katarina Stano

More on specific role assignment soon.

Prof. Edward Callus receives the ECHDO Fellow Award at Annual AGM & Conference in Croatia Split. 👏

Get the full story here: www.echdo.eu/content/prof...

#PoliclinicoSanDonato | grupposandonato

We can do anything together. 🙌 Thank you to all our incredible members, friends and guests who joined us in Croatia over the weekend. 💗

What a day we had on Saturday, finishing off our annual conference with our AGM and internal affairs. Thanks for having us Croatia, more from our new board soon! 💗

🎉 𝗢𝘂𝗿 𝗔𝗻𝗻𝘂𝗮𝗹 𝗖𝗼𝗻𝗳𝗲𝗿𝗲𝗻𝗰𝗲 𝗶𝘀 𝗸𝗶𝗰𝗸𝗶𝗻𝗴 𝗼𝗳𝗳 𝘀𝗼𝗼𝗻, 𝗮𝗻𝗱 𝘄𝗲 𝗰𝗼𝘂𝗹𝗱𝗻’𝘁 𝗯𝗲 𝗺𝗼𝗿𝗲 𝗲𝘅𝗰𝗶𝘁𝗲𝗱 𝘁𝗼 𝗿𝗲𝗰𝗼𝗻𝗻𝗲𝗰𝘁 𝘄𝗶𝘁𝗵 𝗼𝘂𝗿 𝗳𝗿𝗶𝗲𝗻𝗱𝘀 𝗮𝗻𝗱 𝗮𝘀𝘀𝗼𝗰𝗶𝗮𝘁𝗲𝘀! 💗
𝘞𝘦’𝘳𝘦 𝘦𝘴𝘱𝘦𝘤𝘪𝘢𝘭𝘭𝘺 𝘵𝘩𝘳𝘪𝘭𝘭𝘦𝘥 𝘵𝘰 𝘸𝘦𝘭𝘤𝘰𝘮𝘦 𝘢𝘯 𝘪𝘯𝘤𝘳𝘦𝘥𝘪𝘣𝘭𝘦 𝘭𝘪𝘯𝘦-𝘶𝘱 𝘰𝘧 𝘴𝘱𝘦𝘢𝘬𝘦𝘳𝘴 𝘰𝘯 𝘵𝘰𝘥𝘢𝘺’𝘴 𝘢𝘨𝘦𝘯𝘥𝘢.
A heartfelt thank you to each of you for joining us. 💫

✨️ Today is the day! Counting down the hours until our Annual Conference and AGM kicks off in Split Croatia. 💕

#achotelsplit

3 days to go until our AGM in Split, Croatia! ✨

A heartfelt thank you to these organisations that helped make this year’s event possible:

🏨 AC Marriott Hotel Split
🏖️ Turistička zajednica grada Splita
✈️ Croatia Airlines
💧 Cetina
🖼️ Pur pur
🍒 Maraska
🍫 Kraš
📸 Pixsell
🎖️ Row Spirit

🚨𝟭 𝘄𝗲𝗲𝗸 𝘁𝗼 𝗴𝗼! We cant wait to meet our members and friends in Croatia for our annual AGM & Conference. 🥳

🔔 𝗠𝗲𝗺𝗯𝗲𝗿 𝗔𝗹𝗲𝗿𝘁 🔔

Our 𝗔𝗻𝗻𝘂𝗮𝗹 𝗥𝗲𝗽𝗼𝗿𝘁 is here, check your inbox. If you didn't receive it, please get in touch with us on info@echdo.eu.

We would like to extend a heartfelt thank you to everyone who contributed to this report. We could not have done it without you. 💗

📢 𝗠𝗲𝗺𝗯𝗲𝗿 𝗔𝗹𝗲𝗿𝘁 - JOIN OUR BOARD! ✨
Some of our board members will step down at the AGM in May 2025, creating open positions. Members are invited to express interest in joining the board, no need to specify a role yet, as these will be assigned post-AGM. 💞 More here: www.echdo.eu/content/join...

🔔 ADVERTISE IN OUR ANNUAL REPORT! 🔔
We're offering:
½ page: 300 Euros
1 page: 500 Euros
Email: info@echdo.eu for more! 💞
👉 www.echdo.eu/content/adve...

#CongenitalHeartDisease #CHD #Fundraising #Advertising #Cardiology #HeartHealth #PatientAdvocacy #CHDAwareness

💛🌍 𝐓𝐎𝐃𝐀𝐘 𝐢𝐬 𝐖𝐨𝐫𝐥𝐝 𝐃𝐨𝐰𝐧 𝐒𝐲𝐧𝐝𝐫𝐨𝐦𝐞 𝐃𝐚𝐲 🌍💙
🩵 40–60% of babies born with #DownSyndrome have a congenital heart defect, which occurs in about 1 in 700 live births worldwide.

𝐅𝐮𝐧 𝐅𝐚𝐜𝐭: Odd socks are worn to show support. 🧦

#WorldDownSyndromeDay #WDSD2025 #Trisomy21 #LotsOfSocks #CHD #InclusionMatters

✨ 𝐖𝐡𝐨 𝐚𝐫𝐞 𝐭𝐡𝐞 𝐩𝐞𝐨𝐩𝐥𝐞 𝐛𝐞𝐡𝐢𝐧𝐝 𝐄𝐂𝐇𝐃𝐎? ✨

Visit the website to read the BIO's of our board members: 👉 www.echdo.eu/board

#ECHDO #HeartCharity #CHDAwareness #CHDCommunity #GlobalHeartCommunity

💖 Thank You for a Heartfelt Heart Month! 💖

As we wrap up Heart Month, we want to take a moment to say a BIG thank you to each and every one of you who has helped raise awareness for #CHD. Your support means the world to us. 🙏

#HeartMonth #CHDawareness #CongenitalHeartDisease #StrongerTogether

Thank you for joining us!

𝐇𝐞𝐚𝐫𝐭 𝐭𝐨 𝐇𝐞𝐚𝐫𝐭 𝐜𝐨𝐧𝐯𝐞𝐫𝐬𝐚𝐭𝐢𝐨𝐧𝐬 are important and is a part of our overall health and well-being. It also means asking for help and learning how to help yourself.💓

🐧 Read our blog post: www.echdo.eu/content/how-...

#CHDAwareness #HeartMonth #HeartHealth #HeartToHeart #CHD | @echdoheart #ECHDOHeart

👋 Hey Everyone! A reminder for tonight's webinar with Robbie Burns at 19:00 CET.💗

Those who have registered should have received the link via email, please check your junk mail folders. If you'd like to sign up, it's not too late! 😇https://shorturl.at/lV2Ii (In BIO)

#CHD #HeartMonth #chdawareness