Personalized gene editing helped one baby: can it be rolled out widely?
Nature - In a world first, a bespoke gene-editing therapy benefited one child. Now researchers plan to launch a clinical trial of the approach.
Last year, researchers produced the first personalized base-editing gene therapy to treat an infantβs metabolic disorder. Now, they are launching a clinical trial to test the use of base editing techniques for other childrenβs similar genetic conditions.
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An international gamete bank offered Australian IVF companies a "reward" scheme in which patient purchases of donor egg and sperm would earn the clinic βcreditsβ to cover other patientsβ gamete costs. 1/2
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Some environmental groups are proposing a moratorium on the release of genetically modified species into the wild because of the risks such ventures involve.
www.npr.org/2025/10/...
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Marketing experimental technologies to make βbetter babiesβ as good investments for parents and for the country repackages early 20th century eugenic beliefs that controlling reproduction will improve humanity. 3/3 www.geneticsandsocie...
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The technical challenges, safety risks, and significant ethical concerns posed by embryo editing techniques underscore that it should not be considered for commercial application.
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βBiotech Barbieβ says the time has come to consider CRISPR babies. Do scientists agree?
Nature - A companyβs plan to edit the genomes of human embryos worries some researchers β but it might reflect the changing attitudes towards the controversial approach.
Although He Jiankuiβs reckless experiments genetically editing embryos led to jail time, outcry from the scientific community, and a reaffirmation of the near-global consensus against heritable genome editing, two US startups just announced similar efforts to pursue HGE. 1/3
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FDA clears way for faster personalized gene editing therapy
The FDA plans to unveil a new approval process for custom gene-editing, a move designed to unleash a wave of industry investment. Read on
A top FDA regulator has announced that the agency plans to relax its strict rules for gene therapy development in an effort to fast-track gene therapies and boost investment in experimental treatments.
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βThe pro-life movement still has some real juiceβ: How Trumpβs promise of free IVF fizzled
A lobbying blitz by social and religious conservatives paid off last week when Trump announced policies that fell short of his promise to make fertility treatments, which they oppose, free.
Social and religious conservativesβ yearlong efforts to lobby the Trump administration against IVF subsidies and coverage mandates have paid off. Trumpβs recently announced policy proposals fall short of the robust IVF expansion he promised during his campaign.
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A growing coalition of organizations and individuals concerned about designer babies and a techno-eugenic future has signed on to an international declaration against the legalization of human genetic modification. You can sign it here: coalitionstopdesigne...
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The tech billionaires and rogue scientists moving to commercialize CRISPR babies | Center for Genetics and Society
Since the βCRISPR babiesβ scandal in 2018, no additional genetically modified
Another flavor of pronatalism spurs Silicon Valley's interest in gene editing human embryos. Eager to create a world of genetic haves and have-nots, they ignore near-global policy consensus against HGE and dismiss concerns abt the techno-eugenic future they could usher in.2/3
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Immigration crackdowns and attempts to persuade women to have more babies stem are both tied to far right attempts to link population and purity with pronatalism ββ a set of concerns that echoes early 20th century eugenic preoccupations with racial purity. 1/3 www.npr.org/2025/10/...
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To counter harmful pronatalist logics and their application in policy and new biotechnologies, Black feminists and allies recently gathered at a convening at Smith and Amherst Colleges to update the reproductive justice framework created by Black feminists in the 1990s. 2/2 msmagazine.com/2025/...
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Powerful pronatalistsβ support for childbearing only extends to those they deem fit to reproduce ββ rich, white, able-bodied and cisgender married couples. Their policies continue centuries of efforts to control the reproduction of people of color. 1/2
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We need an emphatic rejection of eugenic logics and strong regulation based in social justice values to prevent the use of risky and unethical techniques like heritable genome editing. 7/7
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A New Eugenics Gold Rush? From designer babies to not-quite-designer jeans
If youβve been online or caught the news in the past few weeks, youβve probab
CGSβ Katie Hasson warned of this βnew eugenics gold rushβ in August, βIf βbetter babiesβ (for those who can afford them) become a profit center, techno-eugenics β and assumptions about superiority based on genes β will take off.β 6/7
www.geneticsandsociety.org/biopolitical...
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Hereβs the latest company planning for gene-edited babies
Entrepreneurs say itβs time to safety-test designer baby technology.
Gene editing scientist Lucas Harrington announced that his company, Preventive, has $30M in funding to research heritable genome editing. Their eventual goal: making embryo editing a commonplace technology. 4/7
www.technologyreview.com/2025/10/31/1...
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A New Startup Wants to Edit Human Embryos
Seven years after the first gene-edited babies were revealed, biotech startup Manhattan Genomics is reviving the idea of editing human embryos to make disease-free children.
One startup, Manhattan Genomics, is undeterred by risks of editing human embryos and prohibitions in place. Its founder, former Thiel fellow Cathy Tie, announced a slate of advisors recruited to guide the project, which she says only aims to correct genetic diseases.3/7 www.wired.com/story/startu...
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Just this past week, two new startups announced their efforts to advance heritable genome editing β despite immense risks, widespread opposition, and laws that prohibit it. 2/7
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Why are startups rushing to commercialize βdesigner babyβ technologies that combine experimental biotech with genetic determinism and eugenics? 1/7
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Under a Mask of AI Doomerism, the Familiar Face of Eugenics - Truthdig
In a new book, Eliezer Yudkowsky and Nate Soares hide their radical transhumanist agenda under the cover of concern about βAI safety.β
Beneath AI doomersβ dire warnings about the threats superintelligent AI pose to humanity is a curiously anti-human combination of transhumanism, techno-futurism, and eugenics. While they are right to see AI ventures as risky, their underlying ideals are equally problematic.
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Colossal Biosciences is not just attempting to βde-extinctβ animals like the dire wolf, itβs also working on biotech for people, including artificial wombs and gene editing techniques that would deliver multiple edits at once. 1/2
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Time to end self-regulation of the Australian fertility industry | PET
After several recent mix-ups, trust and confidence in theAustralian fertility industry and how it is regulated have been eroded...
Recent embryo and sperm mix-ups in the Australian fertility industry underscore that self-regulation of fertility clinics doesnβt work. Instead, independent accreditation of clinics to ensure they comply with national standards is needed.
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McCloskey: Will it be the Wild West for designer babies?
Abby McCloskey: Reproductive technologies are accelerating and theyβre bound to become a political topic soon.
Heritable genome editing, the creation of human embryos, and βmaking superhumansβ are on the horizon, unless public pressure helps create political momentum to strengthen regulation of new biotechnologies.
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The first man to clone an animal (a frog) has died. His research made the cloning of the first mammal, Dolly the sheep, possible. It was also a catalyst for genetics research that has changed scientific understanding of numerous diseases and their treatment.
www.washingtonpost.c...
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Experimental Human Cell Division Does Not a Baby Make | Center for Genetics and Society
Paula AmatoΒ &Β Shoukhrat Mitalipov
Scientists and biotech startups remain optimistic about IVG, while consistently sidestepping safety risks and ethical concerns. 2/2
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Recent headlines claimed that researchers "created" human eggs from skin cells, promising a future solution to infertility, despite the study finding that the created eggs would not be usable. 1/2
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In China, a low-cost push to rival a life-saving, $2M medicine
Indian veterinarian Nirnay Murthy sought Lantu Biopharma's experimental gene therapy for his son's spinal muscular atrophy after being unable to afford Novartis's $2.1M Zolgensma treatment.
The one-time gene therapy Zolgensma can stop the progression of spinal muscular atrophy, but its $2.1M price tag makes it difficult to access. Four Chinese companies are working on competing low-cost gene therapies.
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Assistant Prof at UCSF | anthropologist and bioethicist | currently focused on prenatal genetic tech, previously on mental healthcare | Author of 'The Clozapine Clinic: Health Agency in High-Risk Conditions'
Assistant Professor of Christian Ethics at Villanova University | bioethics + social ethics, qualitative methods, infertility/reprotech
Anthropologist, Professor, author, filmmaker, examining reproductive technologies and body commodification. Author of Eggonomics: The Global Market in Human Eggs and the Donors Who Supply Them.
Immigrant, mom to a child with special needs, wife/daughter/sister, teacher, scientist, baker, reader, she/her
PhD candidate at the Institute for Public Health Genetics at UW | Master of Bioethics at the Johns Hopkins Berman Institute of Bioethics | interested in ELSI research, DTC genetic testing, and social media
Patient partnership in research. Team Lead, #PatientPartnership for Institute of Genetics, Canada. #RareDisease. Disabled. Opinions mine & not that of my employer.
She/her
Longmore Institute on Disability Interim Director @SFSU / Co-Director of San Francisco Disability Cultural Center / all-around access nerd
scholar and professor, cal poly, slo.
author, reproductive labor and innovation: against the tech fix in an era of hype (Duke UP 2024)
https://www.dukeupress.edu/reproductive-labor-and-innovation
Countering the propaganda of the biotech industry.
Writer on economic policy, bureaucracy, household finances, and the human relationship with animals, among other stuff, at The Atlantic. Ping me on annie@theatlantic.com and annielowrey.25 on Signal.
Reader, reporter, sometimes runner. Staff writer for the The New York Times Magazine.
eukaryote, also a staff writer at the atlantic
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Postdoc at @StanfordBioethx
Genetics PhD @StanfordMed, BS @UArkansas
elsi / rna-seq / rare disease / multi-omics / chronic illness / x-chromosome
assistant prof at University of Oregon. interested in pop gen, stat gen, human complex traits. also ELSI, metascience, ethics education, etc...
she/they. π
roshnipatel.github.io
The Journal of Philosophy of Disability. https://www.pdcnet.org/pdc/bvdb.nsf/journal?openform&journal=pdc_jpd Official journal of the Society of Philosophy & Disability. Editor-in-Chief: joelmreynolds.bsky.social.