I stopped calling what I feel around chronic illness grief, and started calling it trauma. There is grief around lost friends and expectations, but the every day misery, physical and mental, feels more like trauma to me.
27.08.2025 05:30 β π 24 π 0 π¬ 1 π 0
It would have to last for a month or more for them to really get the "chronic" part. I'm 100% for it though.
04.06.2025 08:13 β π 4 π 0 π¬ 0 π 0
The individualism in our culture is such garbage. We all depend on one another, and it shouldn't feel taboo to need something and to ask, but it is. That hurts everybody, but especially disabled people, and it makes it so much more likely to be abandoned, because dependence is seen as unacceptable.
30.04.2025 09:01 β π 6 π 0 π¬ 0 π 0
I really like the betta and the hedgehog!
14.03.2025 13:49 β π 1 π 0 π¬ 1 π 0
You need a politic grounded in disability justice if you want to effectively address ANY of the issues people left of center care about (e.g., racism, transphobia, climate change, genocide, pandemics, capitalism).
They ALL cause disability.
Listen to disabled people.
Prioritize accessibility.
11.01.2025 21:39 β π 146 π 51 π¬ 0 π 3
Potato is a love biter. And an excitement biter. And just uses me as a chew toy. I'm amazed by how gentle she is. I honestly love her nibbles.
09.02.2025 16:51 β π 0 π 0 π¬ 0 π 0
Haven't had a good scream and chomp fest in a couple days, but she's back in the mood. I accept my role as chew toy.
05.02.2025 06:25 β π 1 π 0 π¬ 0 π 0
Terrible day! Potato jumped up into a fly strip, it attached to her tail, and then she bolted through the house shrieking. By the time I caught her some of her toys had come along for the ride. Then I bathed her tail! She has already forgiven me.
02.02.2025 20:31 β π 2 π 0 π¬ 1 π 0
Ableism teaches us to abandon each other.
Racism will disable you.
Transphobia will disable you.
Long COVID will disable you.
Genocide will disable you.
Climate change will disable you.
Do not obey when told to abandon the vulnerable.
Resistance & communities must be rooted in disability justice.
06.11.2024 14:47 β π 2176 π 892 π¬ 19 π 19
I do think I need more knick knacks, but I may be contractually obligated to leave a spot for the VIP (very important Potato).
21.01.2025 12:35 β π 2 π 0 π¬ 0 π 0
David Lynch spent the last portion of his life in isolation. He said it was due to being high-risk and unable to risk getting COVID.
Heβs not the only person with disability or illness whoβs been left behind.
Everywhere you go without an n95 is a place youβve decided disabled people donβt belong.
16.01.2025 19:58 β π 2795 π 1103 π¬ 13 π 25
Whatever youβre going through would you rather have $50 right now or a stranger guess what you need that costs approximately $50.
15.01.2025 07:00 β π 270 π 37 π¬ 0 π 0
My dear,
Soon I may expire from hunger, for the callous beast that does reside upon my feet will not be assuaged in its desire for comfort. It taunts me with its contented rumblings, so like the desperate tremors of my empty stomach.
All my love,
16.01.2025 05:38 β π 1 π 0 π¬ 0 π 0
First post belongs to Potato, as it should be.
10.01.2025 01:56 β π 3 π 0 π¬ 1 π 0
π· Covid-Cautious π¨βπ» Video Game Dev π Board Games π² TTRPGs π Cats πΈ #UBI π¦ #CovidIsAirborne πΊ He/Him πΊ Twitch: twitch.tv/JoeSondow π€ My bots: https://bsky.app/profile/did:plc:rdhxknv734psdfni7t75tdes/lists/3kfmgl6dp272y
The game show where the rules change every show. Hosted by Sam Reich.
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Licensed Marriage and Family Therapist (#134337)(#4930-R). Not your therapist. Bi. Specializing in disability, EMDR, and LGBT. Live in California or Nevada and would like to see a disabled therapist? Schedule a free consultation at BrianaMills.com
Disabled anime/manga, video gaming, cosplaying, cat-loving nerd.
Probably freezing π₯Ά
Leftist Atheist. Alaska Transplant. Bi, GreyRo, Polyam. ADHD, POTS, cPTSD, hEDS. Domestic Engineer.
Theatre Nerd since childhood.
On a more personal note...
Author, editor, activist, cat lover. Founder of the Disability Visibility Project.
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N95/KN95/KF94 π·
Clean the Air π¨
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screaming about disability, being immunocompromised, working in healthcare, and being a dyke | she/they
Bringing people, science, and compassion together to solve world problems and protect health. Let's #EndThisPandemic together.
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Disease, climate, ecology, tech, empire, other stuff.
About me and where I write about these things:
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Physician | Scientist | working on Long Covid
A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time...
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Infectious disease news.
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Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people arenβt expendable. Covid is airborne π·
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A redheaded snippet who loves Sondheim. Once fainted into Hugh Jackman.
A nonprofit news site chronicling the #LongCOVID crisis. Founded by journalists @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social
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Chronicling my journey through purgatory, graphically. Former athlete/composer/writer/woodworker. Saddled with debilitating COVID-induced metabolic dysfunction since Nov 2022. #LongCOVID #LC #MECFS #PEM #SickJokes