Our chapter has been hard at work advocating for the HD community! We’ve met with the offices of Sen. Markey (MA), Sen. Warren (MA), Sen. Reed (RI), and members of Congress including Congressman Amo (RI) --special shoutout to Chapter Vice President, Ashley Lace -- and Congressman Moulton (MA).

Huge welcome to our new Social Worker for the HDSA MA & RI Chapter!

#CureHD #LetsTalkAboutHD #HDSA

ℹ️ Contact: Michele Austin
📧 micheleaaustin@gmail.com | 📞 508-241-4576
🔗 Register and learn more: massri.hdsa.org/newenglandedday

💙 Empowering families. Advancing knowledge. Strengthening our community.

🏌️‍♂️ Join us for an exciting day at TopGolf Canton on Sunday, October 19th! Enjoy a brunch buffet, 3 hours of golf, and great company, all while supporting the Huntington’s Disease Society of America! ⛳

Watch the newest installment of the Disability Tips vlog here! Learn that Social Security Disability Attorneys do not cost money upfront! #cureHD #hope

Briden Roth, 13 years old, is the son of a member of the Prilenia team. He wanted to raise awareness of HD and created this short film of the team’s participation at the Boston Walk.

Let's work for more awareness of HD, a devastating disease with no cure or treatment to slow progression. #CureHD

Brittany Brown, Game Events & Services Coordinator, joins Tom Caron to highlight the importance of tonight’s Disability Pride Celebration at Fenway Park 👏

Many families affected by HD suffer in silence. HDSA isn't just about fundraising; it’s about showing up for those who are often unseen

#CureHD

Register here:
app.dvcomms.net/api/Communic...

Email Joey.Fredericks@gmail.com if you are interested in volunteering!

Register here:
app.dvcomms.net/api/Communic...

Email Joey.Fredericks@gmail.com if you are interested in volunteering!

Saturday, June 7, 2025

Registration Opens - 9:00 AM
walk Begins - 10:00 AM

Castle Island
2010 William J. Day Boulevard
South Boston, MA, 02127

Questions? Please contact:
JoEllen Fredericks
Joey.Fredericks@gmail.com

Join us at the scenic Castle Island on June 7 as we walk together—taking strides toward hope for Huntington’s Disease. Every step makes a difference. See you there!

Saturday, June 7, 2025

Registration - 9:00 AM
Walk Begins - 10:00 AM

2010 William J. Day Boulevard
South Boston, MA, 02127

🎉 Save the Date! 🧬
Join us for the 2025 Rhode Island Team Hope Walk in support of families affected by Huntington’s disease 💙

🗓️ Saturday, September 27, 2025
📍 Colt State Park, Bristol, RI
👕 Music, lunch, shirts, raffles & community!

Together, we walk for hope. Together, we fight for a cure. 💪

🚨 BREAKING NEWS 🚨
The FDA has just granted Breakthrough Therapy Designation to uniQure’s gene therapy candidate AMT-130 for Huntington’s Disease — a major milestone for the HD community and a leap forward in the fight for a cure. 💙🧬

👉 www.globenewswire.com/news-release...

🏌️‍♂️ Join us for the 4th Annual Golf for a Cure ⛳
📅 Monday, May 12, 2025
📍 Springfield Country Club, MA
Exciting MassApeal broadcast!
www.wwlp.com/.../golf-for...

📣 HDSA is hiring a part-time social worker in MA/RI! 💼
💲$50/hr | 15 hrs/month | Mostly remote
Support families w/ HD, run support groups, connect to care.
MSW req., LCSW pref.
📩 Send resume to jmarsolek@hdsa.org
#NowHiring #SocialWork #HDSA #HDcare

🧠✨ Attention HD Providers & Staff! ✨🧠
Join us for the Huntington's Disease Webinar Series, co-hosted by UMass & BIDMC HDSA Centers of Excellence.

🔗 Register here: forms.gle/qGZcnUCSmoZ8...

HDSA Regional Education Day Input Form We are trying to improve our annual Education Day Event. This form is anonymous. If you would like to share your name for specific feedback you can do so in the last question. Your privacy is importan...

🧠💙 We’re planning our Education Day on Nov 15th, and we want to hear from YOU!

What HD-related topics would you like to learn more about?
Let us know through this quick anonymous survey ⬇️

docs.google.com/forms/d/e/1F...

On March 6, four HDSA MA & RI Board members toured the Brain Bank at McLean Hospital with Dr. Sabina Beretta, a key supporter of HD research. Meet Dr. Beretta at our Team Hope Walk on June 7 at Castle Island to learn about HD & brain donation! 💙 #HDSA #BrainDonation #TeamHopeWalk