Briden Roth, 13 years old, is the son of a member of the Prilenia team. He wanted to raise awareness of HD and created this short film of the team’s participation at the Boston Walk.

Let's work for more awareness of HD, a devastating disease with no cure or treatment to slow progression. #CureHD

28.06.2025 17:33 — 👍 1    🔁 0    💬 0    📌 0

Brittany Brown, Game Events & Services Coordinator, joins Tom Caron to highlight the importance of tonight’s Disability Pride Celebration at Fenway Park 👏

Many families affected by HD suffer in silence. HDSA isn't just about fundraising; it’s about showing up for those who are often unseen

#CureHD

05.06.2025 22:45 — 👍 1    🔁 0    💬 0    📌 0

Register here:
app.dvcomms.net/api/Communic...

Email Joey.Fredericks@gmail.com if you are interested in volunteering!

01.06.2025 03:41 — 👍 0    🔁 0    💬 0    📌 0

Register here:
app.dvcomms.net/api/Communic...

Email Joey.Fredericks@gmail.com if you are interested in volunteering!

24.05.2025 18:09 — 👍 1    🔁 1    💬 0    📌 0

Saturday, June 7, 2025

Registration Opens - 9:00 AM
walk Begins - 10:00 AM

Castle Island
2010 William J. Day Boulevard
South Boston, MA, 02127

Questions? Please contact:
JoEllen Fredericks
Joey.Fredericks@gmail.com

16.05.2025 19:15 — 👍 1    🔁 1    💬 0    📌 0

Join us at the scenic Castle Island on June 7 as we walk together—taking strides toward hope for Huntington’s Disease. Every step makes a difference. See you there!

Saturday, June 7, 2025

Registration - 9:00 AM
Walk Begins - 10:00 AM

2010 William J. Day Boulevard
South Boston, MA, 02127

09.05.2025 00:06 — 👍 0    🔁 0    💬 0    📌 0

🎉 Save the Date! 🧬
Join us for the 2025 Rhode Island Team Hope Walk in support of families affected by Huntington’s disease 💙

🗓️ Saturday, September 27, 2025
📍 Colt State Park, Bristol, RI
👕 Music, lunch, shirts, raffles & community!

Together, we walk for hope. Together, we fight for a cure. 💪

20.04.2025 21:28 — 👍 1    🔁 0    💬 0    📌 0

🚨 BREAKING NEWS 🚨
The FDA has just granted Breakthrough Therapy Designation to uniQure’s gene therapy candidate AMT-130 for Huntington’s Disease — a major milestone for the HD community and a leap forward in the fight for a cure. 💙🧬

👉 www.globenewswire.com/news-release...

20.04.2025 21:07 — 👍 0    🔁 0    💬 0    📌 0

🏌️‍♂️ Join us for the 4th Annual Golf for a Cure ⛳
📅 Monday, May 12, 2025
📍 Springfield Country Club, MA
Exciting MassApeal broadcast!
www.wwlp.com/.../golf-for...

20.04.2025 20:53 — 👍 0    🔁 0    💬 0    📌 0

📣 HDSA is hiring a part-time social worker in MA/RI! 💼
💲$50/hr | 15 hrs/month | Mostly remote
Support families w/ HD, run support groups, connect to care.
MSW req., LCSW pref.
📩 Send resume to jmarsolek@hdsa.org
#NowHiring #SocialWork #HDSA #HDcare

07.04.2025 15:15 — 👍 3    🔁 2    💬 0    📌 0

🧠✨ Attention HD Providers & Staff! ✨🧠
Join us for the Huntington's Disease Webinar Series, co-hosted by UMass & BIDMC HDSA Centers of Excellence.

🔗 Register here: forms.gle/qGZcnUCSmoZ8...

07.04.2025 14:57 — 👍 1    🔁 0    💬 0    📌 0

HDSA Regional Education Day Input Form We are trying to improve our annual Education Day Event. This form is anonymous. If you would like to share your name for specific feedback you can do so in the last question. Your privacy is importan...

🧠💙 We’re planning our Education Day on Nov 15th, and we want to hear from YOU!

What HD-related topics would you like to learn more about?
Let us know through this quick anonymous survey ⬇️

docs.google.com/forms/d/e/1F...

28.03.2025 18:21 — 👍 1    🔁 0    💬 0    📌 0

On March 6, four HDSA MA & RI Board members toured the Brain Bank at McLean Hospital with Dr. Sabina Beretta, a key supporter of HD research. Meet Dr. Beretta at our Team Hope Walk on June 7 at Castle Island to learn about HD & brain donation! 💙 #HDSA #BrainDonation #TeamHopeWalk

13.03.2025 04:37 — 👍 2    🔁 0    💬 0    📌 0