Sumaira 🤍

A Comparative Clinical Effectiveness Trial of Rituximab versus Ravulizumab, Inebilizumab, Satralizumab and Eculizumab To Prevent Relapses in Neuromyelitis Optica Spectrum Disorder

🗞️📰 We at TSF have some BIG news to share…

www.pcori.org/research-res...

We don’t let our diagnoses stop us from doing what we love - DANCING! 💃🏽🕺🏼 Happy #NMOSD & #MOGAD awareness months

Welcome! You are invited to join a webinar: Immunizations for the Immunocompromised. After registering, you will receive a confirmation email about joining the webinar. Vaccines play a crucial role in protecting immunocompromised patients, as their weakened immune systems make them more vulnerable to infections. Vaccines also help prevent the spread of contagious dis...

#MedSky Vaccines play a crucial role in protecting immunocompromised patients & help prevent the spread of diseases.

Join us on March 25th for a discussion led by Dr. @esotirchos.bsky.social

To register, visit us02web.zoom.us/webinar/regi...

Reunited with my Saudi brothers & collaborators, @drsaljarallah.bsky.social and Dr. Ahmad AlMutlaq. Excited for all of what we will achieve in KSA & beyond! 🇸🇦🌍 #INIC25

阖家平安，巳巳如意。蛇🐍年兴旺，幸福绵长！🧧 🇨🇳❣️#lunarnewyear #springfestival

#NeuroSky / #MedSky - follow @neurotutto.bsky.social from Roma 🇮🇹! Dr. Raffaele Iorio is a neurologist with great expertise in autoimmune neurological diseases including #NMOSD, #MOGAD, #myastheniagravis and more. Welcome Raffaele! 🦋

“Like many with illnesses, I mourned the life I knew, my abilities and my body. After years of struggle with #NMOSD and now in remission, I am dancing again—differently but miraculously. Never give up, believe in yourself—endless possibilities await.” - Sumaira

#TSF_moveforNMOG

🌎 How common is #MOGAD worldwide?

This study in evaluated prior medical literature to determine how commonly MOGAD occurs and how widespread it is worldwide 🦄

For more research summaries, visit www.sumairafoundation.org/research-summaries

TSF is pleased to welcome Dr. Eoin Flanagan from Mayo Clinic to join TSF’s international Medical Advisory Board.

He has expertise in #AE, myelitis, #MS, #NMOSD, #MOGAD & paraneoplastic neurologic disorders.

To learn more about Dr. Flanagan: www.sumairafoundation.org/welcome-dr-e...

#NeuroSky

#NeuroSky / #MedSky - please join me in welcoming 🇧🇪 @drbwillekens.bsky.social, neurologist and researcher passionate about #MS and CNS rare neuroimmunological disorders from the Antwerp University Hospital! Welcome to Bluesky, Barbie 🩷🦋

Beautiful artwork from the children of TSF Italia (and Elia Sechi 😝) from our Patient Day in Verona! 🇮🇹🌺🖍️ #NMOSD #MOGAD

What a great day organized today in Verona by @saramariotto.bsky.social ! All about central and peripheral nervous system autoimmunity! Learned so much! eolocongressi.it/wp-content/u...

🇮🇹 🌺 Il 2° Giornata per pazienti dedicata a #NMOSD e #MOGAD a Verona di TSF Italia è in corso 🩷🧡💛

T 💚 S 🤍 F ❤️

What a gift to work with people you love 💗 congratulations @saramariotto.bsky.social on another successful meeting! 🧪 🇮🇹 🧬 🧫

#NeuroSky #NMOSD #MOGAD

#NeuroSky / #MedSky follow @amykunchok.bsky.social; she has entered the chat!

Dr. Kunchok is a neuroimmunologist at the Cleveland Clinic Mellen Center focusing on #NMOSD and #MOGAD. I also did my first CME with Amy 🤗

Welcome to Bluesky, Amy! 🦋

We’re thrilled to be in📍 Verona, Italy 🇮🇹 for the Update on Neuroimmunological Disorders meeting organized by @saramariotto.bsky.social & Dr. Sergio Ferrrari!

As expected, a packed auditorium for a great program with a fantastic lineup of international speakers 👏🏽 👏🏽 #NeuroSky

Case #24: Sumaira Podcast Episode · Symptomatic: A Medical Mystery Podcast · S3 E6 · 44m

Sumaira's 10-year journey living with #NMOSD is featured in @iheartradio.bsky.social's "Symptomatic: A Medical Mystery Podcast" newest episode - Case #24: Sumaira.

Check it out:
podcasts.apple.com/us/podcast/c...

#NeuroSky #neuromyelitisoptica

🏃🏿‍♀️ This #Thanksgiving, we're spotlighting Marion, #NMOSD patient, TSF Ambassador of Illinois, marathoner & believer.

Read "One Diagnosis, Three Marathons, Infinite Strength" - Marion's testimonial about how she will NEVER let #NMO defeat her: sumairafoundation.org/one-diagnosi...

#NeuroSky

I’m on it ;)

Absolutely 💯! Rare neuroimmune disorders

Leaving Paris feeling proud of @thesumairafdn.bsky.social France 🇫🇷 for organizing another impactful weekend for the #NMOSD / #MOGAD community.

Grateful for TSF’s French team, MIRCEM & the doctors, ECTRIMS and our sponsors 🙏🏾

May we continue to listen & learn to improve health outcomes & QoL 🩷🧡💛

Exactly this!

🦋 great to have you here. @staceylclardy.bsky.social let’s add him to THE list! 🧠

#MedSky / #NeuroSky, follow @drsaljarallah.bsky.social ! 🇸🇦Dr. Aljarallah is a neuroimmunologist (trained at Hopkins) + an Assistant Professor at King Saud University in Riyadh in the Kingdom of Saudi Arabia focused on #NMOSD, #MOGAD, #AE, #MS & other rare neuroimmune conditions. مرحبا سلمان! 🙌🏽

Nice to meet you

#MedSky / #NeuroSky, follow @antojm.bsky.social ! 🇫🇷Antony is the Head of Association Management (Congrex) & #ECTRIMS Executive Manager.

ECTRIMS is the largest global annual meeting dedicated to #MS, #NMOSD, #MOGAD & other demyelinating conditions. See you in Barcelona 🇪🇸 September 24-26, 2025 🧠

#MedSky / #NeuroSky, follow @saramariotto.bsky.social! 🇮🇹Dr. Sara Mariotto is an internationally-recognized neuroimmunologist + researcher, leading the most prominent research lab in Italy dedicated to diagnosing #NMOSD, #MOGAD, #AE & other rare neuroimmune disorders at the University of Verona 🧪 🧫 🥼

#MedSky / #NeuroSky, follow @marignierro.bsky.social! 🇫🇷Prof. Marignier is a globally-recognized neuroimmunologist, specializing in #MOGAD & #NMOSD, and head of the French adult referral center for rare inflammatory diseases of the spinal cord & brain 🧠 Welcome to the bright (and right) side, Romain!

🌺 Merci à tous ceux qui ont soutenu et participé au 2ème week-end des patients et aidants de la #NMOSD & de la #MOGAD à Paris. Ce fut un week-end magnifique, marquantet émouvant, d'apprentissage et de connexion. A l'année prochaine à Lyon !