Harry van Gerven's Avatar

Harry van Gerven

@drenrettiwt.bsky.social

Born @ 335.42 ppm CO2 #LongCovid since april 2020.

421 Followers  |  845 Following  |  489 Posts  |  Joined: 17.10.2023  |  2.2056

Latest posts by drenrettiwt.bsky.social on Bluesky

Even if it's now paused or hopefully even ended, the genocide remains a genocide. An eternal shame for the Netanyahu government, the country of Israel, and the governments in the West that largely condoned it.

10.10.2025 05:50 β€” πŸ‘ 18    πŸ” 7    πŸ’¬ 2    πŸ“Œ 0

Vanavond zat ik met iemand van RTL in het theater en die concludeerde beleefd; de NPO is in de war. Het erge is; ik kon hem geen ongelijk geven.

08.10.2025 21:41 β€” πŸ‘ 74    πŸ” 18    πŸ’¬ 4    πŸ“Œ 0

πŸ«‚ yup. Zolang we het idee hebben dat zn kwaliteit van leven er nog is, groter dan de ongemakken, houden we het nog vol. Je weet dat het komt he, maar toch.

09.10.2025 17:21 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

He, nee. πŸ˜ͺ Het is ook wel heel, heel respectabel voor een hond, 18 jaar. Zo moeilijk.

Wij hebben ook een hoogbejaarde hond. Het gaat steeds sneller, steeds wat minder.

09.10.2025 17:13 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Graph showing global electricity from renewables vs coal for H1 of 2019 through 2025, in TWh. Moving from 3400 vs 4500 TWh in 2019 to 5100 vs 4900 TWh in 2025: lines crossing.

Graph showing global electricity from renewables vs coal for H1 of 2019 through 2025, in TWh. Moving from 3400 vs 4500 TWh in 2019 to 5100 vs 4900 TWh in 2025: lines crossing.

Big news for the energy transition!
And a nice little 'told you so' moment for yours truly :) 🧡

In the first half of this year, renewables produced more electricity globally than coal, for the first time.

08.10.2025 20:00 β€” πŸ‘ 73    πŸ” 24    πŸ’¬ 2    πŸ“Œ 0
Zeichnung:
Eine Mutterelefantin mit Schild β€žΓœberfΓΌrsorglich?β€œ steht neben einem kleinen sichtbar kranken Elefanten mit Schild β€žME/CFSβ€œ. Um sie herum Erwachsene mit Sprechblasen: β€žBewegungsmuffel!β€œ, β€žEr ist wohl depressiv!β€œ, β€žPandemie-verwΓΆhnt!β€œ, β€žMehr Sport!β€œ, β€žDa stimmt doch was zuhause nicht!β€œ, β€žWar er nicht schon immer psychisch labil?β€œ.

Zeichnung: Eine Mutterelefantin mit Schild β€žΓœberfΓΌrsorglich?β€œ steht neben einem kleinen sichtbar kranken Elefanten mit Schild β€žME/CFSβ€œ. Um sie herum Erwachsene mit Sprechblasen: β€žBewegungsmuffel!β€œ, β€žEr ist wohl depressiv!β€œ, β€žPandemie-verwΓΆhnt!β€œ, β€žMehr Sport!β€œ, β€žDa stimmt doch was zuhause nicht!β€œ, β€žWar er nicht schon immer psychisch labil?β€œ.

Der (kleine) Elefant wird
nun wohl hΓ€ufiger gesehen –
aber leider oft noch fehlgedeutet.
#MECFS #MEKids #MECFSKids #PEM #PEMistnichtverhandelbar

06.10.2025 13:01 β€” πŸ‘ 140    πŸ” 64    πŸ’¬ 3    πŸ“Œ 0
Post image

Niks meer aan doen!

06.10.2025 06:57 β€” πŸ‘ 91    πŸ” 4    πŸ’¬ 39    πŸ“Œ 0

Als er overweldigend bewijs is - en dat is er - dat dit meisje ernstig is mishandeld, dan ga je dus niet de dader in de kop citeren: false balance, @ad.nl.

#headlinesmatter

(www.newyorker.com/science/mari...)

03.10.2025 09:14 β€” πŸ‘ 17    πŸ” 4    πŸ’¬ 3    πŸ“Œ 0
Preview
Onze rechtsstaat is niet op het gevaar van autocratie voorbereid, zegt deze hoogleraar rechtspleging Hoogleraar rechtspleging Jonathan Soeharno maakt zich grote zorgen over de rechtspraak in Nederland. Zo heeft de minister van Justitie en Veiligheid veel te veel macht bij benoemingen en neemt het ver...

Over antifa-motie:
β€œHet mag niet in strijd zijn met de beginselen rechtsstaat. Deze motie is ruw en bot; je geeft aan dat je hele groepen uit de democratie wil cancelen.”

β€œHet is heel duidelijk: hier keren politici zich tegen de rechtsstaat. Dan leg je de bijl aan de wortel van de rechtsstaat.”

05.10.2025 05:59 β€” πŸ‘ 190    πŸ” 91    πŸ’¬ 6    πŸ“Œ 6

"In de journalistiek zien we nog een ander, maar even schadelijk probleem: de zogenaamde 'neutral voice'. Het begrip objectiviteit, zo schrijft ook hoogleraar journalistiek Tom Rosentiel, is een historisch misverstand."

Lees hier verder:
πŸ‘‡πŸΌπŸ‘‡πŸΌπŸ‘‡πŸΌ

04.10.2025 09:28 β€” πŸ‘ 10    πŸ” 8    πŸ’¬ 1    πŸ“Œ 0
Preview
Opinie | Hoe Nederland een katerkabinet kan voorkomen Verkiezingen: Goede bedoelingen van partijen alom, in aanloop naar de verkiezingen. Maar toch dreigt een kater na 29 oktober. En die kan zich bij de verkiezingen dÑÑrop wreken, schrijven Léonie de Jon...

'Dat vereist politiek leiderschap dat waarden durft te wegen, conflicten niet schuwt, maar betekenisvol maakt. Persoonlijke aanvallen tussen politici dragen daar niet aan bij, maar technocratisch beleidsmanagement evenmin.' 1/2
www.nrc.nl/nieuws/2025/...

05.10.2025 09:13 β€” πŸ‘ 14    πŸ” 6    πŸ’¬ 2    πŸ“Œ 0
Preview
Experiences of living with long COVID during childhood and adolescence: a qualitative study from the child’s perspective - BMC Pediatrics Background In February 2023, the World Health Organization (WHO) defined long COVID in children, highlighting limited knowledge about its psychosocial impact. Studies show it as a complex, long-lasting condition affecting multiple systems. WHO and researchers emphasise the need for more understanding, particularly its effect on daily life. The aim of this study was to explore how life is experienced and how it changed whilst living with long COVID during childhood. Methods We present a qualitative study with an inductive and exploratory approach. Between October 2022 and March 2024, 16 children between 9 and 18 years old diagnosed with long COVID were interviewed face-to-face using a semi-structured interview guide. The results were analysed using reflexive thematic analysis by Braun and Clarke. Results The results present the subjective reality of children suffering from long COVID and their struggle in daily life. The findings are presented through three themes: Losing my foothold, Fatigue decides my path, and My way forward, illustrating a temporal and emotional journey, reflecting how children make sense of their experiences, adapt to the persistent impact of long COVID, and gradually move toward acceptance. Conclusions This study addresses the lack of knowledge of long COVID in the society, how it affects children in their struggle to find a new path in life. It also shows that, with knowledge and support, the symptoms and the burden of the condition can decrease or even pass. It is important that people around these children, including health care, school and family, use this knowledge to promote health and avoid educational, health and social problems at a vulnerable time in life.

16 Swedish children aged 9-18 described how long COVID reshaped their lives.

Fatigue ruled their days, friendships faded, and school became a struggle.

Yet with time and support, many found acceptance and hope that life could improve.

bmcpediatr.biomedcentral.com/articles/10....

04.10.2025 17:19 β€” πŸ‘ 39    πŸ” 14    πŸ’¬ 0    πŸ“Œ 1

Thanks. I'm trying to set up some kind of 'pacing toolkit', but so far haven't found a decent app to monitor and/or measure my HRV (several times) throughout the day.

03.10.2025 16:00 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Maar dat klinkt zo heftig.

03.10.2025 09:43 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Dear Bridget Phillipson, Please Can We Talk About Health? Dear Bridget Phillipson, Please can we talk about health? It’s autumn 2025. We’re one month into the school year, in England. Two of my children are ill, again.With Covid, again.It&#821…

Brilliant article by a teacher highlighting the current dire situation for teachers and kids every winter when it comes to infection risk and spread. We continue to fight for our kids to have the right to breathe clean air.

stevebheadteacher.wordpress.com/2025/09/30/d...

03.10.2025 06:28 β€” πŸ‘ 288    πŸ” 148    πŸ’¬ 12    πŸ“Œ 12
Preview
β€˜Ik dacht: jemig, ik heb heel veel patiΓ«nten die dit hebben’ Multisysteemziekte: Voor zowel huisarts als patiΓ«nt gaat de vaak ongrijpbare ziekte ME vaak gepaard met een moeizame zoektocht. Huisarts Jojanneke Kant en haar patiΓ«nt Sophie Smeets vertellen over het...

β€œKant: β€žVoor mij begon de zoektocht pas met Sophie. Zij was patient zero, mijn eerste patiΓ«nt met ME. Althans: dat dacht ik. Achteraf besef ik dat ze de eerste ME-patiΓ«nt was in wie ik me kon verplaatsen.β€œ

www.nrc.nl/nieuws/2025/...

03.10.2025 06:34 β€” πŸ‘ 5    πŸ” 4    πŸ’¬ 2    πŸ“Œ 0
Video thumbnail

Mona Keijzer BBB baalt als een stekker dat Nederland doodzieke onschuldige kinderen gaat helpen.
Is ook verschrikkelijk deprimerend nieuws natuurlijk!πŸ€¦πŸ»β€β™€οΈ
RTLNieuws

02.10.2025 17:39 β€” πŸ‘ 738    πŸ” 202    πŸ’¬ 201    πŸ“Œ 66

Can I ask, do you use the scientific version of the Kubios app?

03.10.2025 09:14 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Preview
Stop the EU’s Ban on β€œMeaty” Words for Plant-Based Foods Sign now

Mensen snappen echt wel het verschil tussen vlees en plantaardige vervangers. Een blinde vink is ook geen vink en niet blind. Teken tegen deze machtsuiting van de destructieve bio-industrie. #planetaryhealthdiet
weplanet.yourmovement.org/p/noconfusio...

02.10.2025 09:26 β€” πŸ‘ 14    πŸ” 7    πŸ’¬ 0    πŸ“Œ 0
ABSTRACTIntroduction: A specialised care unit for severely and very severelyill ME/CFS patients opened in 2021. The results from the first 3 yearsare reported.Methods: People with ME/CFS who were diagnosed according tothe Canadian Consensus Criteria, who are aged 18 or above withsevere or very severe ME/CFS according to the UK NICEguidelines, are eligible to stay at RΓΈysumtunet. The study designis a retrospective review of medical records.Results: Between June 2021 and June 2024, 24 ME/CFS patients, 20women and 4 men with a confirmed diagnosis of ME, wereadmitted to the unit for stays of at least 3 months. Seventeenwere very severely affected and 7 were severely affected. Agesranged from 18 to 68 years, with mean (SD) 37.5 (12.8) years.Seven patients showed significant improvement (p < 0.01), andfive others showed some improvement. In total 50% improved (p< 0.01). Patients who improved were borderline significantlyyounger than those who did not, with a mean age of 30.3 (SD12.6) years compared to 39.8 (SD 11.8) years (p = 0.06). The meanduration of disease was 2.3 (1.3) years for those who improvedversus 6.7 (3.9) years for those who did not improve (p < 0.05).Conclusion: This is the first report of a specialised care unit for themost severely ill ME/CFS patients. Fifty per cent of patients showedsignificant or partial improvement. The mechanisms behind theseimprovements are discussed but require further exploration infuture studies.

ABSTRACTIntroduction: A specialised care unit for severely and very severelyill ME/CFS patients opened in 2021. The results from the first 3 yearsare reported.Methods: People with ME/CFS who were diagnosed according tothe Canadian Consensus Criteria, who are aged 18 or above withsevere or very severe ME/CFS according to the UK NICEguidelines, are eligible to stay at RΓΈysumtunet. The study designis a retrospective review of medical records.Results: Between June 2021 and June 2024, 24 ME/CFS patients, 20women and 4 men with a confirmed diagnosis of ME, wereadmitted to the unit for stays of at least 3 months. Seventeenwere very severely affected and 7 were severely affected. Agesranged from 18 to 68 years, with mean (SD) 37.5 (12.8) years.Seven patients showed significant improvement (p < 0.01), andfive others showed some improvement. In total 50% improved (p< 0.01). Patients who improved were borderline significantlyyounger than those who did not, with a mean age of 30.3 (SD12.6) years compared to 39.8 (SD 11.8) years (p = 0.06). The meanduration of disease was 2.3 (1.3) years for those who improvedversus 6.7 (3.9) years for those who did not improve (p < 0.05).Conclusion: This is the first report of a specialised care unit for themost severely ill ME/CFS patients. Fifty per cent of patients showedsignificant or partial improvement. The mechanisms behind theseimprovements are discussed but require further exploration infuture studies.

Exciting to see this πŸ”₯

Specialised care for severely affected ME/CFS patients

Free:
www.tandfonline.com/doi/full/10....

Would be great to have such facilities in countries around the world. Approach is very different from the (inappropriate/dangerous) rehab/BPS approach

#MEcfs #SevereME #PwME

01.10.2025 18:54 β€” πŸ‘ 69    πŸ” 31    πŸ’¬ 3    πŸ“Œ 7

Long COVID has me building a decentralized clinical trial platform with ex-Microsoft friends who write code better than I breathe.

What we need now is experience.

Any clinical trialists (or those who know them) willing to spare 30 minutes to help us get it right?

DM/email me!

01.10.2025 00:16 β€” πŸ‘ 35    πŸ” 22    πŸ’¬ 6    πŸ“Œ 0

β€œThe primary purpose of the stay was care, not therapy. However, to our surprise and delight, several patients showed improvement during their stay.”

Seven of 24 improved one or two levels in disease severity, and five of 24 experienced improvement w/o a change in severity level. So 50% improved.

01.10.2025 20:09 β€” πŸ‘ 9    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

You either adapt to change, or you disappear...you can perhaps elongate the process a little, if you don't adapt, but in the end you will go.

02.10.2025 06:56 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
A screenshot of a post by the Jane Goodall Institute on LinkedIn stating that they learned that Dr. Goodall passed away due to natural causes in California while on her speaking to her current speaking tour there.

A screenshot of a post by the Jane Goodall Institute on LinkedIn stating that they learned that Dr. Goodall passed away due to natural causes in California while on her speaking to her current speaking tour there.

The world has lost its most powerful advocate for nature and hope. Yet many remain who will continue her legacy and I know she will continue to inspire generations more.

01.10.2025 18:01 β€” πŸ‘ 1607    πŸ” 476    πŸ’¬ 37    πŸ“Œ 63

Mss ook eens een stofzuigerzak interviewen....of een lantaarnpaal...

01.10.2025 14:51 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Godd punt, die spiegel is altijd nodig. Niemand is zonder vooroordelen (positief en negatief), maar je daarvan bewustzijn en staven of je vooroordelen wel kloppen of eerlijk zijn zou al een hele grote winst zijn voor velen.

30.09.2025 13:43 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Incredible indeed. Check it out on Google Maps: maps.app.goo.gl/A4jDtgHhfP84...

This snapshot covers at least 20 km, from North to South.

25.09.2025 05:11 β€” πŸ‘ 77    πŸ” 33    πŸ’¬ 1    πŸ“Œ 2
Preview
Long Covid: Current Realities, Future Directions | Upcoming events | Events | Think Tank | European Parliament

The European Parliament is hosting a workshop called β€œLong Covid: Current Realities, Future Directions” on Sept 30th

'This workshop builds on...clinical profile, its impact on patients and society, and the urgent actions needed to address gaps in knowledge'

www.europarl.europa.eu/thinktank/en...

24.09.2025 15:00 β€” πŸ‘ 28    πŸ” 6    πŸ’¬ 2    πŸ“Œ 0

Maar zo een beetje schoolziek zijn he....dat waren nog s tijden. 😊

23.09.2025 17:16 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Zekersteweten! 😁 Ach en ons gezeur zal ook vaak hetzelfde zijn geweest...."ik verveel me" maal 100x per dag πŸ˜›

23.09.2025 15:48 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

@drenrettiwt is following 20 prominent accounts