Liposarcoma Support Network

Executive Director Sara Rothschild is representing the Liposarcoma Support Network at the #CTOS2025 Annual Meeting, connecting with leading sarcoma experts and highlighting our growing advocacy and research initiatives.

LSN is at #CTOS2025! Visit the Patient Advocacy Lounge to see our poster highlighting the global patient campaign urging @boehringerglobal.bsky.social to continue development of brigimadlin for sarcoma patients. #liposarcoma #SaveBrigimadlin #SignThePetition brigimadlinpetition.org

Sarah’s story shows what’s possible: Brigimadlin helped her more than any other treatment. Let’s make sure every patient can access this life-changing option. Sign the petition: brigimadlinpetition.org #SaveBrigimadlin #SignThePetition #liposarcoma

We've reached almost 2000 signatures! The LSN team met with BI and they still won't reconsider their position on brigimadlin. We will not back down until there is a conclusion that serves our patients. Sign the petition, tag Boehringer Ingelheim and share the petition. www.brigimadlinpetition.org

Catch the recording of Professor Jean-Yves Blay’s presentation on the largest #liposarcoma study to date! The session revealed key insights into subtypes, outcomes, and specialized care. Watch here: bit.ly/LipoInsights... #LIPOeducation #NETSARC

Liposarcoma Uncovered Webinar starts in one hour! Join Professor Jean-Yves Blay to hear the latest research and connect with the lipo community. Join here: bit.ly/LipoInsights... #NETSARC #LIPOeducation

Sarcoma oncologists have seen lives extended on brigimadlin. Keep the hope alive for DDLPS patients. Sign the petition: brigimadlinpetition.org #SaveBrigimadlin #PatientVoices #Liposarcoma

Discover the latest liposarcoma findings from the NETSARC+ registry and connect with the community. Join Professor Jean-Yves Blay for Liposarcoma Uncovered. Reserve your spot: bit.ly/LipoInsights
#Liposarcoma #NETSARC #LIPOeducation

Don’t let Ray’s death be in vain - Urge Boehringer Ingelheim to continue developing brigimadlin and keep hope alive for the DDLPS community. Sign the petition: brigimadlinpetition.org #SaveBrigimadlin #SignThePetition #DDLPS #liposarcoma #PatientVoices #Cancer #brigimadlin

Save Brigimadlin. Save Lives. Add your voice—sign and share the brigimadlin petition. Every signature brings hope. Patients need brigimadlin. Sign and share to show your support. Unite for rare cancer patients—sign the brigimadlin...

Give DDLPS patients a fighting chance. Brigimadlin is hope. Sign the petition: brigimadlinpetition.org
#SaveBrigimadlin #SignThePetition #DDLPS #liposarcoma #PatientVoices @boehringerglobal.bsky.social

Join Professor Jean-Yves Blay for ‘Liposarcoma Uncovered’ and learn the latest from over 11K+ patients in the NETSARC+ registry. Discover insights on subtypes, prognosis, and specialized care. bit.ly/LipoInsights
#Liposarcoma #NETSARC #LIPOeducation

Now, development has been stopped. Unless we act now, patients will lose access to what could save or extend their lives.

Add your voice. Demand that Boehringer Ingelheim keep brigimadlin in development.

#SaveBrigimadlin #SignThePetition #DDLPS #liposarcoma #PatientVoices #Cancer #brigimadlin

Sign the petition today: www.brigimadlinpetition.org

When you live with a rare cancer, every promising treatment represents hope. For patients with dedifferentiated liposarcoma, that hope was brigimadlin - treatment that showed real results.

@boehringerglobal.bsky.social

Now, development has been stopped. Unless we act now, patients will lose access to what could save or extend their lives.

Add your voice. Demand that Boehringer Ingelheim keep brigimadlin in development.

#SaveBrigimadlin #SignThePetition #DDLPS #liposarcoma #PatientVoices #Cancer #brigimadlin

Recording Available! Experts from the Duke Sarcoma Center discuss #MyxoidLiposarcoma , covering pathology, surgery, radiation, and treatment. Watch now: bit.ly/MyxoidLSN #Liposarcoma #SarcomaAwareness #LIPOeducation @dukecancer.bsky.social

Learn about the different parts of Medicare, Medigap, and Medicare Advantage from Triage Cancer, tomorrow at 1pm ET. #healthcare #medicare #openenrollment bit.ly/M-Part1

Support rare cancer patients through awareness and funding #RareCancerDay bit.ly/DONATE-LSN

Learn from top Duke Cancer Institute experts about treatment and management of this rare sarcoma + live Q&A. bit.ly/MyxoidLiposa... #MyxoidLiposarcoma #LIPOeducation #Liposarcoma
@dukecancer.bsky.social

Ready to dive deep into #MyxoidLiposarcoma? Join Duke Sarcoma Center for an expert-led discussion on this rare and unique subtype of sarcoma. bit.ly/MyxoidLiposa... #Liposarcoma #LIPOeducation
@dukecancer.bsky.social

Join @dukecancer.bsky.social (Duke Sarcoma Center) experts on Sept 29, 12:30 PM ET for “Myxoid Liposarcoma: Insights Into A Unique Sarcoma.” Learn about pathology, surgery, radiation & treatments for this rare sarcoma subtype. bit.ly/MyxoidLiposarcoma #MyxoidLiposarcoma #LIPOeducation #liposarcoma

We’re making an end-of-summer splash for liposarcoma research! For August your donation will be matched to raise critical funds for research. Don’t miss this chance for your $$ to make twice the impact! bit.ly/LSN-SummerSp... #LIPOresearch #donate #SummerSplash

Recording available! Watch now ‘Making Cents of Caregiving’—our latest session helps you manage the financial side of #caregiving. bit.ly/LSNcaregivin... #caregiversupport #caregiver #LIPOeducation

Join Duke Sarcoma Center experts on Sept 29, 12:30 PM ET for “Myxoid Liposarcoma: Insights Into A Unique Sarcoma.” Learn about pathology, surgery, radiation, and treatments for this rare sarcoma subtype. bit.ly/MyxoidLiposa... #MyxoidLiposarcoma #LIPOeducation #Liposarcoma

Caregiving & finances made simple! Join Making Cents of Caregiving with Al Berg on Aug 12, 12 PM ET for tips to plan and manage your loved one’s care. bit.ly/Caregiving-W... #Liposarcoma #LIPOsupport #Caregiving

Insurance said “No”? Join Triage Cancer’s webinar to learn how to access palliative care, home health, long-term care & more—plus tips to navigate denials. bit.ly/WhenInsurers... #TriageTalks #CancerRights #InsuranceAppeals

Join Al Berg from the AARP NJ Speakers Bureau for Making Cents of Caregiving. This session will share tips & resources to help you manage the financial side of #caregiving & plan for your loved one’s well-being. Register: bit.ly/Caregiving-W... #Liposarcoma #LIPOsupport

RSVP for Triage Cancer’s FREE webinar for What to do when An Insurance Company Says "No" on 8/12!
triagecancer.org/Webinars. + FREE CE for professionals. Learn about the appeals process, Medicare, and Medicaid.
#TriageTalks #CancerRights #InsuranceAppeals

Join ‘Making Cents of Caregiving’ with Al Berg (AARP NJ) to learn essential caregiving strategies and financial tools. bit.ly/Caregiving-W... #LIPOEducation #Caregiving #LIPOsupport

Don’t miss this timely webinar on the “Big Beautiful Bill” on 7/24. Big changes are coming to health care, food assistance, student loans & more. Find out what to expect & when it starts. bit.ly/TriageBigBill #BigBeautifulBill #medicare #medicaid #advocacy #ACA @triagecancer.org

Triage’s special webinar on 7/24 breaks down the “Big Beautiful Bill”. Learn when changes take effect and how they’ll impact health care, food aid, student loans, taxes, and more. bit.ly/TriageBigBill #BigBeautifulBill #medicare #medicaid #advocacy #ACA @triagecancer.org