Brilliant news. So what changed? I was one of those who contacted their MP and were told nothing could be done.
20.03.2025 16:02 β π 0 π 0 π¬ 1 π 0
Close up photo of a female with a laptop on her lap. Her hand is near the keyboard and the screen shows the aplastic anaemia content on the screen. Caption is "New aplastic anaemia content. Visit nhsinform.scot." with NHS 24 logo.
π° Great news! NHS 24 and The Aplastic Anaemia Trust have teamed up to provide trusted advice on aplastic anaemia.
This rare and life-threatening blood disorder, often confused with iron deficiency anaemia, now has dedicated pages on the NHS inform website.
π www.nhsinform.scot/illnesses-an...
12.03.2025 13:48 β π 4 π 1 π¬ 1 π 0
Iβm not but wish I was! π I miss doing this type of work.
20.03.2025 15:43 β π 1 π 0 π¬ 0 π 0
Love that I came across this. We've just added a conservatory to the house (I'm calling it my observatory π) and am about to buy my first telescope. This is so useful! Thank you.
07.03.2025 10:17 β π 3 π 0 π¬ 1 π 0
I wrote a symposium review a few years back on sickle cell disease. We had a patient advocate on the panel, which added another dimension to the discussion, and their input was crucial to my writing process. As you say - brilliant! I wish there were more of these projects around. #publichealth
05.03.2025 11:43 β π 2 π 0 π¬ 1 π 0
I did not know that she was diagnosed with aplastic anaemia.
05.03.2025 11:38 β π 0 π 0 π¬ 0 π 0
The official account of Nature Reviews Cardiology, a monthly journal publishing high-quality Reviews, news and opinion articles covering all aspects of basic and translational cardiovascular research and clinical cardiology: https://www.nature.com/nrcardio
Official journal account for AGU's Reviews of Geophysics.
We publish overviews and syntheses of recent research in all areas of the Earth and space sciences.
agupubs.onlinelibrary.wiley.com/hub/journal/19449208/aims-and-scope/read-full-aims-and-scope
Astronomer and Astrophotographer. Pictures of space appearing in posts, magazines and on the telly.
Championing more use of accessible video to inform and educate Pharma | Ex (!) Community Facilitator for #MedComms | Digital Disruption | Open Access
Geologist | Mineralogy Curator @ the Natural History Museum, London | Creator of #365Minerals | Views are my own | She/Her
Posts about: #minerals #museums #geology #fossils #science #nature
Geology memes: #GeologistProblems
π mas.to/@NadWGab
German patient advocacy group for Aplastic Anaemia (AA) and Paroxysmal Nocturnal Haemoglobinuria (PNH)
Stem cell transplant recipient, Support and Outreach Community Manager at The Aplastic Anaemia Trust.
Medical writer, publication manager, manager of running injuries, gardener, a bit of a lefty, lover of NZ (dual UK-NZ citizenship) and The Lake District. PhD oncology.
Scientific Services Development Director, OPEN Health, co-chair for the ACCORD reporting guideline, and general medcomms person.
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ISMPP is a not-for-profit society for medical publication and communication professionals, with over 2,500 members worldwide. https://www.ismpp.org/
Freelance medical writer, editor and proofreader. You can also find me on LinkedIn (https://www.linkedin.com/in/jytricker/) or on WordPress (http://trickerishallsorts.wordpress.com).
Freelance medical writer with 20+ years of experience. Specialising in cardiology, diabetes and oncology but with lots of other interests
Amica Scientific, founded in 2023, is a strategic medical and patient engagement agency grounded in the power of friendship, purpose and collaboration, encapsulated by our strapline 'Inspired Engagement'.
www.amicascientific.com
π³οΈβπ he/him β’ Global Patient Engagement Leader & Medical Communications Specialist β’ EULAR PARE Committee Chair β’ βοΈ β’ π β’ πΈ
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