It's that time of the month again!
Do you love mail...fun mail?! Sign ups are open TODAY for our September Sunshine & Rainbows. π
RSVP through the link in our bio π
#mbc #stage4needsmore #bcsm #busylivingwithmets #bccww
@amybeumer.bsky.social
MBC advocate and patient, microbiologist, educator, nature lover, gardener, reader, and feminist. She/her/hers.
It's that time of the month again!
Do you love mail...fun mail?! Sign ups are open TODAY for our September Sunshine & Rainbows. π
RSVP through the link in our bio π
#mbc #stage4needsmore #bcsm #busylivingwithmets #bccww
non-Governmental research funding is becoming more important every day. @metavivor.bsky.social received almost double the usual number of letters of intent last week. We need our supporters to be generous this year so we can fund promising research!
25.03.2025 05:49 β π 17 π 7 π¬ 0 π 0Echoing what Stacey said.
14.03.2025 19:50 β π 0 π 0 π¬ 0 π 0Very concerned. And with the removal of information on health disparities and anything on health of the LGBTQ community.
03.02.2025 19:18 β π 7 π 3 π¬ 1 π 0REMINDER: ACE Meeting on cancer vaccines today 1pmPT / 4pmET. Join us to hear from advocate & ACE member Judy Fitzgerald as she shares her experience as an advocate on current vaccine trials. As always presentation will be short so bulk of the time can be spent on Q&A / discussion #OncoSky #Advocacy
14.01.2025 16:31 β π 4 π 2 π¬ 0 π 0Same!!
10.01.2025 12:29 β π 1 π 0 π¬ 0 π 0Tumor board Tuesday!! HR+ MBC! Looking forward to it @dr-rshatsky.bsky.social! #bcsm
09.01.2025 17:31 β π 4 π 0 π¬ 1 π 0βMen with breast cancer are often left to fight the disease in silence. This silence has led to psychological and emotional distress in conjunction with illness-related stigmas.β
www.oncnursingnews.com/view/looking...
Itβs maddening
24.12.2024 16:45 β π 1 π 0 π¬ 0 π 0Happy solstice βοΈ
21.12.2024 21:56 β π 1 π 0 π¬ 0 π 0Itβs a privilege to be part of this meaningful work!
The ASCO CDK Dosing Study has the potential to reshape clinical practice for older adults w/ #metastaticbreastcancer. Thnx to PCORI for funding this impactful project.
@therightdose.bsky.social
@oncoalert.bsky.social
#bcsm
#DoseOptimization
#QoL
Thank you- just an other worldly view, hard to take a bad picture heh.
15.12.2024 13:35 β π 1 π 0 π¬ 0 π 0Noooo :-(
14.12.2024 23:47 β π 0 π 0 π¬ 0 π 0Pink clouds. Sunset in the sky
Home sweet home and an awesome sunset in flight.
14.12.2024 23:28 β π 29 π 0 π¬ 2 π 0To build on the progress shared at #SABCS24 for triple-positive MBC ( #PATINA), when treatments stop working, is it the HER2 or HR component driving resistance? Need a biomarker! Patients want the most mileage from every treatment!
PS: Finally, +++ is being treated differently from HER2+/HRβ.
Was great to talk to @janicetnbcmets.bsky.social about this a couple days ago β> higher doses are not always better
β¨ figuring out the best fit for our pts benefits those who experience a cancer diagnosis, oncologists, as well as pharma companies. Everyone wins with this knowledge!
#bcsm #SABCS24
I did not hear anyone say βgrade 5 adverse eventβ and for that I am grateful.
14.12.2024 21:32 β π 1 π 0 π¬ 0 π 0Hot of the press from @proteuspros - an infographic explaining the value of PROs!
Note - they need to start as parr of the clinical encounter to benefit patients and society.
tinyurl.com/3m594fhk
Spent 90 mins on the #SABCS24 stage, interjecting the advocacy perspective in "From the Trenches" yesterday. It was these voices, and so many others not pictured, that I channeled. Grateful to have them by my side literally & figuratively π
14.12.2024 12:49 β π 33 π 10 π¬ 2 π 0Love when MBC, the kind of breast cancer that kills, gets 12 minutes in a 90 minute presentation on what to bring back to the clinic. Weβre flying and skipping audience questions. #bcsm #SABCS24
14.12.2024 00:53 β π 4 π 1 π¬ 0 π 0There is no βgood riskβ only lower risk. There is no good DCIS. Need to talk about absolute risk as well. @coffeemommy.bsky.social #bcsm
14.12.2024 00:44 β π 11 π 4 π¬ 0 π 1This! Also coffeeβ¦..
14.12.2024 00:09 β π 4 π 0 π¬ 0 π 0Hereβs another impactful session about health disparities #systemic #structuralracism #global #healthequityforall #bcsm #oncoalert #SABCS24 @sabcs.bsky.social @oncoalert.bsky.social @swog.org @yabdoumd.bsky.social
13.12.2024 17:38 β π 19 π 9 π¬ 2 π 1@coffeemommy.bsky.social giving nuance to a conversation about patient treatment on Monday morning. Patients do not live in a utopia and we are not a monolith! #bcsm #sabcs24
14.12.2024 00:05 β π 4 π 0 π¬ 0 π 0Thatβs true but itβs definitely a better term then deescalation which sounds like βyou donβt deserve more treatmentβ for whatever reason
14.12.2024 00:00 β π 1 π 0 π¬ 0 π 0View from the trenches at #SABCS24 with the amazing @coffeemommy.bsky.social We need to βright sizeβ treatment (NOT βdeescalateβ) with discussions on risk, benefit and impact of treatment. YES! #oncsky #bcsm
13.12.2024 23:51 β π 10 π 7 π¬ 0 π 0Excellent work! Would love for him to join and share his thoughts here.
13.12.2024 23:23 β π 1 π 0 π¬ 0 π 0This is great! Maybe add in ET alone in first line for select patients (SONIA). Great presentation by Dr. Danso. #bcsn #SABCS24
13.12.2024 23:22 β π 2 π 0 π¬ 0 π 0One year ago, on a sunny afternoon before the last session of #SABCS23, I stood on this balcony chatting with patient and advocate Gwen Manchion, who was stolen by MBC in the interim. This is why we do what we do.
13.12.2024 23:12 β π 3 π 2 π¬ 0 π 0