Patty Reboli Spears's Avatar

Patty Reboli Spears

@paspears88.bsky.social

Cancer Research Patient Advocate at UNC Lineberger CCC. Breast & Liver cancer, clinical trials, PROMs, #SciComm

546 Followers  |  602 Following  |  11 Posts  |  Joined: 12.11.2024  |  2.3465

Latest posts by paspears88.bsky.social on Bluesky

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Great discussion with @rickbuck.bsky.social & all @theaacr.bsky.social is doing to unite cancer centers across the country to advocate for cancer research. #naccdopamn2025

20.05.2025 13:24 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Dr. Ribisl gives one heck of a presentation, even for this non-scientist πŸ˜‰ Fascinating research around smoking cessation & advertising + cancer control efforts. @unclineberger.bsky.social

09.09.2025 15:29 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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We love Shelley Earp, MD! 🩡
@unclineberger.bsky.social

09.09.2025 12:37 β€” πŸ‘ 3    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Kicking off 50 years of @unclineberger.bsky.social with @robertferrismdphd.bsky.social & the 48th Annual Scientific Symposium… looking forward to hearing the amazing reflections on #50years of #cancerresearch!

09.09.2025 12:31 β€” πŸ‘ 4    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0
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A Patient-Philanthropist's Vision for New Cancer Research - UNC Health Foundation Philanthropy has always played a major role in research at UNC, but Barbara Dean has taken this one step further by being an active participant in supporting those research efforts. Dean’s experience ...

Patient/community engagement can make a difference. Building trust and fostering communication directly with researchers matters.

I am excited about this new fund to foster innovative cancer research! #UNCLinenerger #bcsm #lcsm #cancerresearch

unchealthfoundation.org/gifts-at-wor...

03.08.2025 15:10 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Patty Spears is set to chair the #AACR25 Patient Advocate Poster Symposium: 3 – 4:30 p.m. CT, Room S402. unclineberger.org/news/unc-lin... @paspears88.bsky.social @theaacr.bsky.social

27.04.2025 13:52 β€” πŸ‘ 4    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0

Landed in Chicago! On my way to @theaacr.bsky.social #AACR25 meeting as part of the #AACRSSP25 program! Looking forward to networking and learning about cancer research… @unclineberger.bsky.social #patientadvocacy @arosen380.bsky.social @jillfeldman4.bsky.social @bobriter.bsky.social

26.04.2025 14:32 β€” πŸ‘ 13    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
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New study from the Stanford Mind & Body Lab to better understand and support the health and well-being of people recently diagnosed with cancer.
You can take part from home.
For more info: www.embracestudy.org

@stanford-cancer.bsky.social #bcsm #lcsm #mmsm #pcsm #crcsm #cancerwellbeing

21.04.2025 22:50 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 1

So excited about this session! Hear about patient and community engagement - @bobriter @e_paskett @EugeneManley CJ Williams, A. Co-Dyre, R. Prosser, B.Salhia, A. Saghian #patientengagement #AACRSSP #AACR25 @unclineberger.bsky.social @theaacr.bsky.social www.abstractsonline.com/pp8/#!/20273...

20.04.2025 20:47 β€” πŸ‘ 4    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

NIH cutting COVID research because β€œthe pandemic is over” is like grounding all weather satellites because it’s sunny out today β˜€οΈ

We need to study pathogens before they’re emergencies

...It's not sunny in Pittsburgh today #PublicHealth

26.03.2025 14:23 β€” πŸ‘ 117    πŸ” 34    πŸ’¬ 2    πŸ“Œ 2
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At today's Congressional Forum, Dr. Larry Saltzman testified that NIH-funded research was crucial to his 15-year survival with chronic lymphocytic leukemia. "For patients waiting on the next treatment, time is everything. These cuts could rob us of the time we need most."

26.03.2025 19:24 β€” πŸ‘ 39    πŸ” 8    πŸ’¬ 1    πŸ“Œ 1
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Saying β€˜pandemic is over,’ NIH starts cutting COVID-19 research Grant terminations halt research on improving vaccinations and preventing future pandemics

"Grant termination letters went out last night to principal investigators of 29 awards made by the National Institute of Allergy and Infectious Diseases.., including 9 grants that were part of a program hoping to deliver antiviral drugs to prevent future pandemics."

www.science.org/content/arti...

26.03.2025 14:00 β€” πŸ‘ 41    πŸ” 21    πŸ’¬ 2    πŸ“Œ 4
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NEW: Baldwin, Welch Announce Forum on Devastating Trump Cuts at NIH Jeopardizing Cures for Alzheimer’s Disease, Cancers | U.S. Senator Tammy Baldwin of Wisconsin WASHINGTON, D.C. – Today, U.S. Senators Tammy Baldwin (D-WI) and Peter Welch (D-VT) announced that...

Heads up: [Wed, March 26th at 2:30 pm (ET)] Congressional Forum on Capitol Hill to discuss the devastating cuts at NIH that are jeopardizing cures for Alzheimer’s Disease and many cancers.

press release www.baldwin.senate.gov/news/press-r...

Livestream at youtube.com/live/JofqSdWmhbM

25.03.2025 18:52 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Opinion | Sorry, R.F.K.: There Is No Autism Mystery (Gift Article) Greater awareness, not vaccines, has driven an increase in diagnoses.

#MedSky #NeuroSky

Wonderful @nytimes.com op ed by @holdenthorp.bsky.social about his diagnosis of #autism spectrum disorder in midlife & his take on why the incidence of the condition appears to be increasing.

www.nytimes.com/2025/03/20/o...

21.03.2025 01:53 β€” πŸ‘ 34    πŸ” 9    πŸ’¬ 1    πŸ“Œ 1
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Rob Winn: Fighting for Better Access to Genetic Testing - OncoDaily Rob Winn: Fighting for Better Access to Genetic Testing / AACI, Association of American Cancer Institutes, cancer, fight against cancer, genetic testing,

Fighting for Better Access to Genetic Testing - Rob Winn

oncodaily.com/blog/252443r...

#Cancer #Medicine #Health #FightAgainstCancer #Oncology #OncoDaily

08.03.2025 20:28 β€” πŸ‘ 11    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0

Why basic research matters and defunding and firing scientists will cost us.
Many life-saving breakthroughs started as curiosity-driven science with no clear application. Yet, these discoveries once seen as obscure ended up transforming medicine.
Here’s why funding basic science is essential.
A πŸ§΅πŸ‘‡

02.03.2025 15:11 β€” πŸ‘ 131    πŸ” 53    πŸ’¬ 3    πŸ“Œ 1
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Renowned geneticist Francis Collins retires from NIH, urging 'respect' for embattled workers Dr. Francis Collins, a renowned geneticist, and former longtime director of the National Institutes of Health, is retiring from the government agency and urging β€œrespect” for its embattled workers.

"When you hear about patients surviving stage 4 cancer because of immunotherapy, that was based on NIH research over many decades. When you hear about sickle cell disease being cured because of CRISPR gene editing, that was built on years of research supported by NIH"

apnews.com/article/nih-...

01.03.2025 21:44 β€” πŸ‘ 335    πŸ” 126    πŸ’¬ 2    πŸ“Œ 9
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Inside the Collapse at NIH Administration officials pressured NIH to avoid clear advice from the agency’s own lawyers to restart grant funding now.

By @katherinejwu.com

"The NIH... supported 99 percent of the drugs approved in the U.S. from 2010 to 2019. The agency has had a hand in β€œnearly all of our major medical breakthroughs over the past several decades,”

The NIH is in a struggle for its (and our) lives. This is existential to America:

27.02.2025 17:29 β€” πŸ‘ 817    πŸ” 493    πŸ’¬ 11    πŸ“Œ 28

Don’t give up
Don’t give up
Don’t give up
Don’t give up
Don’t give up
Don’t give up
Don’t give up
Don’t give up
Don’t give up

You can do it. Don’t give up.

27.02.2025 01:56 β€” πŸ‘ 963    πŸ” 226    πŸ’¬ 26    πŸ“Œ 5
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NIH funding freeze stalls applications on $1.5 billion in medical research funds The National Institutes of Health had to stop considering new grant applications, delaying funding for research into diseases ranging from heart disease and cancer to Alzheimer's and allergies.

The National Institutes of Health had to stop considering new grant applications, delaying funding for research into diseases ranging from heart disease and cancer to Alzheimer's and allergies.

22.02.2025 18:39 β€” πŸ‘ 3590    πŸ” 1490    πŸ’¬ 161    πŸ“Œ 132
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My Open Letter to Elon Musk From Marc | Elon Musk recently posted on his site that another lawyer and I are β€œundermining civilization.” This is my response.

My open letter to Elon Musk.πŸ‘‡

Mr. Musk,

You recently criticized me and another prominent lawyer fighting for the rule of law and democracy in the United States. I am used to being attacked for my work, particularly on the platform you own and dominate. www.democracydocket.com/opinion/my-o...

22.02.2025 20:25 β€” πŸ‘ 5176    πŸ” 1290    πŸ’¬ 154    πŸ“Œ 82

NIH indirects case update:

Hearing ongoing now, and I'll try to live tweet some notable exchanges.

Prior to more detailed arguments, Judge Kelley starts off with a few point questions to both sides:

(I'm paraphrasing here)

21.02.2025 15:19 β€” πŸ‘ 349    πŸ” 198    πŸ’¬ 14    πŸ“Œ 38
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Reaffirming the JAMA Network Commitment to the Health of Patients and the Public In the first month of the new administration responsible for leading the US, the executive branch has issued a flurry of orders, including ones associated with the dismissal or resignation of tens of ...

"the silencing of science and health-related communications through suppression or erasure of information, and the corresponding silence by many in the fields of biomedicine and public health, deserve special consideration."

"The free exchange of ideas is essential to scientific progress"
@jama.com

21.02.2025 02:09 β€” πŸ‘ 47    πŸ” 19    πŸ’¬ 0    πŸ“Œ 0

Let's do one in #Seattle !! 😎 Paging @uwmedicine.bsky.social @fredhutch.bsky.social #scienceforall

20.02.2025 01:47 β€” πŸ‘ 29    πŸ” 8    πŸ’¬ 1    πŸ“Œ 0

AACR urges Congress to reaffirm its long history of steadfast and bipartisan support for medical research by ensuring that NIH has all of the resources needed to advance its lifesaving mission to prevent, diagnose, and treat cancer and other diseases: AACR.org/NIH

18.02.2025 18:10 β€” πŸ‘ 58    πŸ” 34    πŸ’¬ 0    πŸ“Œ 2
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A Direct Hit, by @holdenthorp.bsky.social @science.org
www.science.org/doi/full/10....
"This is a moment to unite."

11.02.2025 15:18 β€” πŸ‘ 903    πŸ” 378    πŸ’¬ 24    πŸ“Œ 18
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It's not "Breaking News" now, since it was announced by NIH yesterday. But it is breaking.......
washingtonpost.com/health/2025/...

08.02.2025 17:16 β€” πŸ‘ 871    πŸ” 278    πŸ’¬ 38    πŸ“Œ 22
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This is what amounts to an ILLEGAL & indiscriminate funding cut for research centers everywhere. It will mean shuttering labs across the country, layoffs in red & blue states, and derailing lifesaving research on everything from cancer to opioid addiction.

We all need to speak out to save lives.

08.02.2025 02:02 β€” πŸ‘ 1260    πŸ” 531    πŸ’¬ 82    πŸ“Œ 36
NOT-OD-25-068: Supplemental Guidance to the 2024 NIH Grants Policy Statement: Indirect Cost Rates NIH Funding Opportunities and Notices in the NIH Guide for Grants and Contracts: Supplemental Guidance to the 2024 NIH Grants Policy Statement: Indirect Cost Rates NOT-OD-25-068. OD

1. Today the NIH director issued a new directive slashing overhead rates to 15%.

I want to provide some context on what that means and why it matters.

grants.nih.gov/grants/guide...

08.02.2025 00:18 β€” πŸ‘ 7076    πŸ” 4128    πŸ’¬ 260    πŸ“Œ 907

Happy #BlackHistoryMonth! Follow these #MedSky leaders among us:

go.bsky.app/3wc2Q3G

01.02.2025 23:30 β€” πŸ‘ 77    πŸ” 36    πŸ’¬ 0    πŸ“Œ 1

@paspears88 is following 20 prominent accounts