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PamC

@pammckc.bsky.social

Mom, wife, engineer, ice cream addict. Trying to focus on what I still can do versus what I can’t while sidelined with dysautonomia from Covid.

195 Followers  |  683 Following  |  17 Posts  |  Joined: 02.10.2023  |  1.7347

Latest posts by pammckc.bsky.social on Bluesky

#LongCovidAwarenessDay2025 has arrived & though I’m way better than when I first got sick, I am still not whole. This year, I feel more abandoned as ever as I watch people celebrating the dismantling of our health institutions. Collateral damage, likely forever. 😞

15.03.2025 17:50 — 👍 0    🔁 0    💬 0    📌 0

Thanks! My echo was normal so that’s reassuring. I appreciate that my dr. didn’t just want to dismiss it as dysautonomia but would appreciate something more treatable 😂

12.12.2024 23:45 — 👍 1    🔁 0    💬 1    📌 0

Totally!

12.12.2024 22:19 — 👍 1    🔁 0    💬 0    📌 0

It’s terrifying to have to trust others and then have them fail.

12.12.2024 16:47 — 👍 1    🔁 0    💬 1    📌 0

I feel fortunate that I do respond well to treatment so even when flaring it’s manageable most of the time

11.12.2024 15:23 — 👍 2    🔁 0    💬 0    📌 0

This is timely info for me. I’ve been having increased palpitations, increased RHR and lower HRV.

03.12.2024 11:59 — 👍 1    🔁 0    💬 0    📌 0

That is excellent news!

27.11.2024 01:45 — 👍 0    🔁 0    💬 0    📌 0

I will keep repeating it: Don't exercise if you have been recovering from #COVID for at least 6 weeks (probably more). Don't prescribe exercises for patients recovering from viral infections. And listen to Todd below (and the nurse in the video). Both are leading experts in chronic illness.

17.11.2024 00:13 — 👍 316    🔁 115    💬 14    📌 7

I just wish more practitioners followed it!

17.11.2024 00:54 — 👍 3    🔁 0    💬 0    📌 0

Today’s exchanges on that other place with one of the so called allies was so disheartening. Thank you for centering patients and listening to their lived experience.

17.11.2024 00:53 — 👍 6    🔁 0    💬 1    📌 0

👋 welcome!

14.11.2024 13:32 — 👍 1    🔁 0    💬 0    📌 0

I absolutely am!

12.11.2024 23:40 — 👍 0    🔁 0    💬 0    📌 0

For folks w/these chronic illnesses looking for community—

19.10.2024 21:33 — 👍 14    🔁 13    💬 2    📌 0

Yay!

20.10.2023 14:48 — 👍 0    🔁 0    💬 0    📌 0

No

19.10.2023 11:32 — 👍 1    🔁 0    💬 0    📌 0

Hope no germs are shared and that it’s just a 24-hr stomach bug and not Covid.

19.10.2023 01:06 — 👍 0    🔁 0    💬 2    📌 0

polybio.org/projects/5272/

18.10.2023 21:37 — 👍 0    🔁 0    💬 0    📌 0

Haha, what doctor? Lol. Glad it works for you as well.

16.10.2023 20:04 — 👍 1    🔁 0    💬 1    📌 0

I’m so sorry that it’s too painful for them to admit reality 😞

05.10.2023 11:02 — 👍 0    🔁 0    💬 1    📌 0
Cartoon saying I’m not strong I’m surviving in a situation I have no choice about

Cartoon saying I’m not strong I’m surviving in a situation I have no choice about

Hello fellow Chronic illness friends we are doing the best we can . I see you we’ve got this ❤️

05.10.2023 08:58 — 👍 73    🔁 15    💬 3    📌 1

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