Manders is venting

Doing a lot better, thank goodness.

I think it's a cervogenic headache, or like the worst occipital neuralgia of my damn life.

My neck hurts so bad it actually brought me to tears. Nothing is helping, even the strong pain meds. I'm going to try and have a hot bath and soak for a while to see if it helps. But I might need to go to the hospital to get a nerve block.

I'm feeling very weak and I think it's from my POTS. I've been struggling to drink water lately. I use flavourings and everything, I'm just not thirsty. And without the thirst cue, I'm not thinking about hydration. Maybe I'll set an alarm for every hour to make sure I drink enough.

Update: I felt like a god for about 15 minutes and now I'm back to feeling like sludge lol

I am in such a bad mood, and I have to socialize today for thxgiving with the person who put me in the bad mood.

I accidentally had too much coffee and I'm nervous about what it's going to do to me :| I thought Mike made me my own coffee, but he made two in one for us to share. I drank 90% of it. Keep me in your thoughts LOL

read*

the brain fog was awful yesterday lol

I'm sorry that happened :( You deserve better

I love when I share big news with someone and they leave me on red. Like okay, thanks for caring.

I'm probably just being moody from the degranulation but jeeze.

One of the worst aspects (that isn't talked about enough) of having MCAS is the degranulation phase. I'm moody, exhausted, in pain, rashy, my blood pressure is super low, my tummy hurts... I could go on and on.

People are pissing me off today oh my god

Extremely nauseated again this week. I don't think I want to continue these meds. I'm gunna ask to switch to something else and see if that helps. I can't keep throwing up week after week for 2-3 days each time.

I completely used up my migraine medication (that usually lasts me 6-10 months) in less than a month?? I dont recall having 10 migraines this month?? Did they short me and I didnt notice??

I like this halloween icon better :)

Ugh this is so hard. I need this chapter of life to be over asap.

Oh love I'm so sorry. Rest in treats sweet friend.

(It's likely from all the stirred up dust from packing)

Just had an allergic asthma attack for the first time in years. Thank god I had an unused salbutamol inhaler from when I had covid.

Feeling a bit better today. My parents are going to counselling so hopefully that will at the very least give us time for Mike to get a job before we are forced to move.

Come over and help us pack? :D /silly

red flaaaaaaaaaaaaaaaaag

Doing my best to not have a panic attack and just take things minute by minute.

It's not rock bottom but it's damn close.

Losing Mikes job, losing our housing, losing my relationship with my Dad, what else is next?

My relationship with my Dad is forever tainted, I can't even look at him or think about him without wanting to scream. This is so scary.

We are being forced to move even though Mike doesn't have a job yet. My parents separation/divorce is nasty and irreconcilable. Since we rent a house with them, we are being forced out too. I'm sick to my stomach. This is so fucking unfair. But I cant have my Mom subjected to his bullshit anymore.

It's like whack a mole: chronic illness edition over here lol

I will get zofran or something similar. And if that doesnt work then I'm gunna ask to try a different drug altogether. Or maybe lower my dose or something.

Yesss Mike talked with the pharmacy yesterday (because I threw up my meds like 20 mins after taking them) and they suggested taking ginger gravol for a couple days before my injection, and then keep it up for a few days after. So I'm going to give it another shot next week, but if this happens again