Thank you for your support! ๐ We are looking forward to celebrating this special day and accelerating #Action4SBH together. Our joint guidelines are a significant step forward in promoting equal and inclusive healthcare for theย SBHย community.
25.10.2025 08:08 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐Happy #WSBHD25 everyone!
Let's join forces to accelerate #Action4SBH!
On todayโs agenda:
โจ WSBHD25 webinar - 15:00 (CEST)
Register: bit.ly/3Ke1BSP ๐
โจ WSBHD25 challenge: IFโs social media will be bursting with your exciting contributions ๐ผ๏ธ๐ฆโ๏ธ Vote by reacting to the corresponding post.
25.10.2025 07:49 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
New Clinical Practice Guidelines for Spinal Dysraphism - ERN eUROGEN
ERN eUROGEN, the European Reference Network for Rare and Complex Uro-Recto-Genital Diseases and Conditions, is proud to highlight the release of new clinical practice guidelines for children andโฆ
๐ On #WSBHD25 we stand with @ifsbh.bsky.social & partners to accelerate #Action4SBH. We developed guidelines on spinal dysraphism in children/adolescents with IFSBH, @uroweb.org, @espu.bsky.social, @erknet.bsky.social & ERN ITHACA
๐ bit.ly/4npuWZ3
#SpinaBifida #Hydrocephalus #EUfunded #ERNs
25.10.2025 06:01 โ ๐ 1 ๐ 1 ๐ฌ 1 ๐ 0
๐ Have you registered for tomorrow's #WSBHD25 main conference webinar?
๐ bit.ly/3Ke1BSP
๐ข This yearโs event will explore how we - together with you - can accelerate #Action4SBH!
#WSBHD #SpinaBifida #Hydrocephalus #SBH #DisabilityRights
24.10.2025 12:14 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
โจ We are now gearing up for the #WSBHD25 main conference โAccelerate Action for Spina Bifida & Hydrocephalusโ ๐ bit.ly/3Ke1BSP
๐๏ธ Saturday 25 October
๐ 3:00 PM CEST | 6:30 PM IST | 7:00 AM CST
๐ปOnline (Zoom)
Meet our speakers ๐
#Action4SBH #WSBHD #SpinaBifida #Hydrocephalus #SBH #DisabilityRights
23.10.2025 11:08 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
๐ Register to join tomorrowโs #Africa regional side-event
๐ bit.ly/46bBmF9
๐3PM CEST / 4PM EAT
๐ปOnline (Zoom)
๐จ๏ธ Meet our speakers ๐
#Action4SBH #WSBHD25 #WSBHD #SpinaBifida #Hydrocephalus #SBH #DisabilityRights
21.10.2025 15:34 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐ Register to join tomorrowโs Asia-Pacific regional side-event ๐ bit.ly/3IuVt7Y
๐10AM CEST / 1:30PM IST
๐ปOnline (Zoom)
๐จ๏ธ Meet our speakers ๐
#Action4SBH #WSBHD25 #WSBHD #SpinaBifida #Hydrocephalus #SBH #DisabilityRights
21.10.2025 15:08 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
October Spina Bifida & Hydrocephalus Awareness Month continues with two more exciting webinars tomorrow:
๐ Asia-Pacific
๐ 10AM CEST / 1:30PM IST
๐ bit.ly/3IuVt7Y
๐ Africa
๐ 3PM CEST / 4PM EAT
๐ bit.ly/46bBmF9
#Action4SBH #WSBHD25 #WSBHD #SpinaBifida #Hydrocephalus #SBH #DisabilityRights
21.10.2025 09:25 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐ Meet the inspiring speakers of IFโs upcoming webinar: โInclusive Employment & Skills for Lifeโ - happening 20 Oct, as part of World Spina Bifida and Hydrocephalus Awareness Month! ๐
โ
Register here: bit.ly/3WIXVuZ
#WSBHD25 #WSBHD #Action4SBH #SpinaBifida #Hydrocephalus #SBH #DisabilityRights
16.10.2025 13:01 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐ ๐๐๐ญ๐จ๐๐๐ซ ๐ข๐ฌ ๐ ๐ฆ๐จ๐ง๐ญ๐ก ๐ญ๐จ ๐๐๐ฅ๐๐๐ซ๐๐ญ๐ ๐จ๐ฎ๐ซ ๐ ๐ฅ๐จ๐๐๐ฅ ๐๐๐ ๐๐จ๐ฆ๐ฆ๐ฎ๐ง๐ข๐ญ๐ฒ!
Coming up next๐
20/10: Webinar ๐๐ง๐๐ฅ๐ฎ๐ฌ๐ข๐ฏ๐ ๐๐ฆ๐ฉ๐ฅ๐จ๐ฒ๐ฆ๐๐ง๐ญ โ bit.ly/3Iyxk0l
Check all our activities ๐ www.worldspinabifidahydrocephalusday.com/activities-2...
#WSBHD25 #WSBHD #Action4SBH #SpinaBifida #Hydrocephalus #SBH #DisabilityRights
14.10.2025 15:42 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐ #WSBHD25 challenge:
Be this yearโs winner and get featured on IFโs social media, website and newsletter!
How? โฌ๏ธ
#WSBHD25 #WSBHD #Action4SBH #SpinaBifida #Hydrocephalus #SBH #DisabilityRights
13.10.2025 13:09 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐ Be the winner of the #WSBHD25 challenge!
In which domain do YOU wish to accelerate #Action4SBH?
๐ฏ Education? ๐ผ Employment? ๐ Independent living?
โ Something else? Send us your entries by 15/10!
More info in IF's toolkit โก๏ธ bit.ly/4mFSXLe
#WSBHD #SpinaBifida #Hydrocephalus #SBH #DisabilityRights
09.10.2025 09:59 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Join the #WSBHD25 challenge! Use your creativity to inspire #Action4SBH by sending us by 15/10:
โ๏ธ A short text
๐จ A drawing
๐ธ A photo
๐ฅ A short video
at ๐ง info@ifglobal.org or via WhatsApp ๐ฑ+32 471 84 41 54
bit.ly/3KWdjl4
#WSBHD #SpinaBifida #Hydrocephalus #SBH #DisabilityRights
07.10.2025 07:39 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
YouTube video by IFSBH
2025 International Day of Older Persons Webinar
โจ How did you celebrate yesterdayโs International Day of Older Persons? At IF, we marked the day with a powerful webinar 'Our Lives, Our Choices'.
๐You can watch it here: youtu.be/CDDpSR6mCa4
#IDOP25 #OlderPersonsDay25 #AgeingWithSBH #ElderlySBH #WSBHD25 #Action4SBH #SpinaBifida #Hydrocephalus
02.10.2025 08:51 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐๏ธ Save the dates!
October is packed with exciting activities for World Spina Bifida and Hydrocephalus (SBH) Awareness Month! โจ
www.worldspinabifidahydrocephalusday.com/activities-2025
#WSBHD25 #WSBHD #Action4SBH #IDOP25 #SpinaBifida #Hydrocephalus #SBH #DisabilityRights
30.09.2025 15:14 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
๐ New Delhi gears up for the 2025 World #ParaAthletics Championships! Let's use this moment to celebrate para athletes with diverse abilities, and remember the interview of Paralympic gold medalist Jesper Padersen
๐ bit.ly/4nK2aSv
#ParaAthletics2025 #SpinaBifida #Hydrocephalus #SBH #NewDelhi2025
23.09.2025 13:52 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐๏ธ Did you know that October is #SBH awareness month? Weโre kicking things off with a webinar hosted by the IF Working Group on Ageing with SBH on 1 October
๐ bit.ly/4gjQX8X
#WSBHD #WSBHD25 #Action4SBH #IDOP25 #OlderPersonsDay25 #AgeingWithSBH #SpinaBifida #Hydrocephalus #DisabiltyRights
22.09.2025 14:29 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
๐นGerry Maguire โ Spina Bifida Hydrocephalus Ireland
๐นSu Xiao Vin โ Spina Bifida Association #Malaysia (SIBIAM)
๐นJurn Anthonis โ Vlaamse Vereniging voor Spina Bifida en Hydrocephalus vzw (VSH) #Belgium
๐นMaahi Rudawat โ Spina Bifida Foundation #India
๐ฃ Save the date and register for an exciting webinar on International Day of Older Persons ๐ bit.ly/4gjQX8X
๐๏ธ 1 October 2025 ๐ 3:00 PM CEST
Meet the panelists ๐
#OlderPersonsDay25 #AgeingWithSBH #ElderlySBH #IDOP25 #SpinaBifida #Hydrocephalus #SBH #DisabiltyRights
18.09.2025 14:50 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐ฃ Join us for a special webinar on 'Living with Spina Bifida and Hydrocephalus: Our lives, our choices', organised by IF Working Group on Ageing SBH.
๐ 1 October, 3PM (CEST)
๐ bit.ly/4gjQX8X
#OlderPersonsDay25 #AgeingWithSBH #IDOP25 #SpinaBifida #Hydrocephalus #SBH #DisabiltyRights
15.09.2025 14:22 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
The 3rd issue of IF's newsletter is out, featuring exciting news and updates from IF, our members, and partners around the globe, as well as upcoming events and opportunities to get together!
๐ bit.ly/4gjzMEz
#SpinaBifida #Hydrocephalus #SBH #DisabilityRights #WSBHD25 #YouthDay #Action4SBH
11.09.2025 14:14 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
On this yearโs #YouthDay, you shared how you are #DreamingBeyondBarriers โจ
THANK YOU for making this day so special! ๐งก
Letโs keep advocating for our dreams and break barriers together! ๐ช
#YouthSBH #YouthDay #DreamingBeyondBarriers #SpinaBifida #Hydrocephalus #SBH #DisabilityRights #StrongerTogether
18.08.2025 13:40 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
International Youth Day Webinar 2025
YouTube video by IFglobalorg
Our #YouthDay webinar #DreamingBeyondBarriers has now started! You can now follow it live here ๐ www.youtube.com/live/fnOL32Q...
#YouthDay #YouthSBH #DreamingBeyondBarriers #SpinaBifida #Hydrocephalus #SBH #DisabilityRights
12.08.2025 12:17 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Happy International #YouthDay everyone! โจ
Join us to celebrate together๐ bit.ly/44EcHIA
#YouthDay #YouthSBH #DreamingBeyondBarriers #SpinaBifida #Hydrocephalus #DisabilityRights #WHO_CSO
12.08.2025 07:29 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Ready to celebrate tomorrow's #YouthDay? โจ
1๏ธโฃRegister for #DreamingBeyondBarriers webinar ๐ bit.ly/45UhYg3
2๏ธโฃDownload IF's social media toolkit ๐ bit.ly/45oCd3r
3๏ธโฃSend us your text/picture/video at info@ifglobal.org
#YouthSBH #SpinaBifida #Hydrocephalus #disabilityrights
11.08.2025 14:33 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Give us one good reason why you have not yet registered for our International #YouthDay webinar on 12 August?
๐ค....
....๐คทโโ๏ธ
Our point exactly!
Register now ๐ bit.ly/45UhYg3
#YouthDay #YouthSBH #DreamingBeyondBarriers #SpinaBifida #Hydrocephalus #disabilityrights
07.08.2025 13:37 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐ Follow Jurn's example!
Tell us what #DreamingBeyondBarriers means to YOU as a young person with a disability! ๐ญ
๐ง By email: info@ifglobal.org
๐ Via WhatsApp: +32 471 84 41 54
More info ๐ bit.ly/44EcHIA
#YouthDay #YouthSBH #DreamingBeyondBarriers #SpinaBifida #Hydrocephalus #DisabilityRights
05.08.2025 09:16 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐ Follow Maahi's example!
Tell us what #DreamingBeyondBarriers means to YOU as a young person with a disability! ๐ญ
๐ง By email: info@ifglobal.org
๐ Via WhatsApp: +32 471 84 41 54
More info ๐ bit.ly/44EcHIA
#YouthDay #YouthSBH #DreamingBeyondBarriers #SpinaBifida #Hydrocephalus #DisabilityRights
04.08.2025 09:10 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Meet the exciting speakers of our 12 August webinar for International Youth Day, 'Dreaming Beyond Barriers'!
Register to join us ๐ bit.ly/45UhYg3
#YouthDay #YouthSBH #DreamingBeyondBarriers #SpinaBifida #Hydrocephalus #SBH
29.07.2025 15:50 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐ข For the upcoming #YouthDay on 12 August, the IF International Youth Group SBH is preparing a webinar under the theme: โDreaming beyond barriersโ.
Do not miss it! Register here to join us๐ bit.ly/45UhYg3
#DreamingBeyondBarriers #YouthDay #YouthSBH #SpinaBifida #Hydrocephalus #SBH #DisabilityRights
28.07.2025 13:33 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
