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ERN eUROGEN

@erneurogen.bsky.social

The European Reference Network for Rare Urogenital Diseases and Complex Conditions - https://eurogen-ern.eu/

165 Followers  |  49 Following  |  180 Posts  |  Joined: 14.02.2024  |  2.0816

Latest posts by erneurogen.bsky.social on Bluesky

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🚨 TONIGHT! Join ERN eUROGEN & @espu.bsky.social for a webinar on Urological Aspects in Paediatric Kidney Transplantation πŸ§’πŸ’§

πŸ“… Wed 8 Oct @ 18:00 CEST
πŸŽ“ EACCME accredited
πŸ”— Register: bit.ly/eUROGEN08Oct25

#EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg

08.10.2025 08:14 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Join ERN eUROGEN & @espu.bsky.social for a webinar on Urological Aspects in Paediatric Kidney Transplantation πŸ§’πŸ’§

πŸ“… Wed 8 Oct @ 18:00 CEST
πŸŽ“ EACCME accredited
πŸ”— Register: bit.ly/eUROGEN08Oct25

#EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg

06.10.2025 08:14 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

@ec.europa.eu @jardinjointaction.bsky.social @eupsaofficial.bsky.socialΒ @erknet.bsky.social

02.10.2025 08:14 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Join ERN eUROGEN & @espu.bsky.social for a webinar on Urological Aspects in Paediatric Kidney Transplantation πŸ§’πŸ’§

πŸ“… Wed 8 Oct @ 18:00 CEST
πŸŽ“ EACCME accredited
πŸ”— Register: bit.ly/eUROGEN08Oct25

#EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg

02.10.2025 08:14 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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🚨 TONIGHT! Join us for a cutting-edge webinar on Stage II Testicular Germ Cell Tumours

πŸ‘¨β€βš•οΈDr Arnout Alberts shares the latest in personalised, multidisciplinary care
πŸ“… Wed 1 Oct @ 17:00 CEST
πŸŽ“ EACCME-accredited
πŸ”— bit.ly/eUROGEN01Oct25

#EUfunded #EU4Health #RareDisease #ERNs #UroOnc #UroSoMe

01.10.2025 08:14 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

@ec.europa.eu @jardinjointaction.bsky.social @uroweb.org @eurordis.bsky.social

29.09.2025 08:14 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Join us for a cutting-edge webinar on Stage II Testicular Germ Cell Tumours πŸ’₯

πŸ‘¨β€βš•οΈDr Arnout Alberts shares the latest in personalised, multidisciplinary care
πŸ“… Wed 1 Oct @ 17:00 CEST
πŸŽ“ EACCME-accredited
πŸ”— bit.ly/eUROGEN01Oct25

#EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #UroOnc #UroSoMe

29.09.2025 08:14 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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πŸ’¬ Don’t miss the chance to make your voice heard! What helps you live with a rare or undiagnosed condition?🌟 Tell us about it in the new @eurordis.bsky.social‬ #RareBarometer survey! Survey available in 25 languages.

πŸ‘‰ Take the survey here: tiny.cc/RB-MH

16.09.2025 10:24 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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It’s #UrologyWeek! 🚻 Know the signs. For patients with rare & complex urogenital conditions, UTIs can escalate fast. Collaboration across Europe helps deliver expert care. 🌍 es. πŸ”¬

πŸ”— eurogen-ern.eu/urology-week...

#EUfunded #EU4Health #HealthUnion #HealthierTogether #RareDisease #ERNs

26.09.2025 08:14 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

@ec.europa.eu @jardinjointaction.bsky.social @uroweb.org @eurordis.bsky.social

25.09.2025 09:38 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Join us for a cutting-edge webinar on Stage II Testicular Germ Cell Tumours πŸ’₯

πŸ‘¨β€βš•οΈDr Arnout Alberts shares the latest in personalised, multidisciplinary care
πŸ“… Wed 1 Oct @ 17:00 CEST
πŸŽ“ EACCME-accredited
πŸ”— bit.ly/eUROGEN01Oct25

#EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #UroOnc #UroSoMe

25.09.2025 09:38 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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It’s #UrologyWeek! 🚻 Cancer patients face higher infection risks during treatment & recovery. Preventing & managing UTIs is critical to outcomes. πŸ”¬

πŸ”— eurogen-ern.eu/urology-week...

#EUfunded #EU4Health #UroOnc #EUCancerPlan #EUCancerMission #RareDisease #ERNs

25.09.2025 08:14 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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It’s #UrologyWeek! 🚻 A pill isn’t always the answer. πŸ’Š For adults with IC or complex reconstructions, misdiagnosed β€œUTIs” mean delayed treatment. Specialised care is vital. ves lives. πŸ’‘

πŸ”— eurogen-ern.eu/urology-week...

#EUfunded #EU4Health #FPMRS #RareDisease #ERNs

24.09.2025 08:14 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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It’s #UrologyWeek! 🚻 Children with anomalies such as bladder exstrophy or posterior urethral valves face recurrent UTIs that can damage kidneys. Awareness saves lives. πŸ’‘

πŸ”— eurogen-ern.eu/urology-week...

#EUfunded #EU4Health #PedUro #SoMe4PedSurg #RareDisease #ERNs

23.09.2025 08:14 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

@jardinjointaction.bsky.social
@uroweb.org @eurordis.bsky.social
@eupsaofficial.bsky.social

22.09.2025 14:35 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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It’s #UrologyWeek! 🚻 A new European survey shows 1 in 3 people don’t know what cystitis is. UTIs are common, but in rare uro-recto-genital conditions, they can be complex & life-threatening.

πŸ”— Read More: eurogen-ern.eu/urology-week...

#EUfunded #EU4Health #HealthUnion #RareDisease #ERNs

22.09.2025 14:34 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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🚨 TONIGHT! Join us for a webinar on Multi-Disciplinary Management of Cystinuria, with Kay Thomas & Matthew Bultitude 🧬 Supported by @espu.bsky.social

πŸ“… Wed 17 Sept @ 18:00 CEST
πŸŽ“ EACCME accredited
πŸ”— Register: bit.ly/eUROGEN17Sep25

#EUfunded #EU4Health #RareDisease #ERNs #UroSoMe #PedUro

17.09.2025 06:30 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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πŸ’¬ Don’t miss the chance to make your voice heard! What helps you live with a rare or undiagnosed condition?🌟 Tell us about it in the new @eurordis.bsky.social‬ #RareBarometer survey! Survey available in 25 languages.

πŸ‘‰ Take the survey here: tiny.cc/RB-MH

16.09.2025 10:24 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Join us for a webinar on Multi-Disciplinary Management of Cystinuria, with Kay Thomas & Matthew Bultitude 🧬 Supported by @espu.bsky.social

πŸ“… Wed 17 Sept @ 18:00 CEST
πŸŽ“ EACCME accredited
πŸ”— Register: bit.ly/eUROGEN17Sep25

#EUfunded #EU4Health #RareDisease #ERNs #UroSoMe #PedUro

15.09.2025 06:30 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

@ec.europa.eu @jardinjointaction.bsky.social @espu.bsky.social @eupsaofficial.bsky.social

12.09.2025 12:33 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
ERN eUROGEN Webinar 129: Fluorescence in pediatric surgery
This webinar took place on the 10th of September. It is part of the ERN eUROGEN and ERNICA colorectal webinar series and was presented by Dr. Carlos GinΓ©, Peadiatric surgeon at the Pediatric Surgery… ERN eUROGEN Webinar 129: Fluorescence in pediatric surgery

Missed our webinar on fluorescence in paediatric surgery? Now on YouTube! πŸ’‘ With Carlos GinΓ©, Willemieke Tummers & Jetske Ruiterkamp

πŸ“Ί youtu.be/Ww0geCrtVdA

πŸ“° bit.ly/4j7MaHU

#EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #PedUro #SoMe4PedSurg

12.09.2025 12:33 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

β€ͺ@ec.europa.eu‬ @jardinjointaction.bsky.social‬

12.09.2025 11:11 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Hans Langenhuijsen Appointed Professor of Adrenal Surgery - ERN eUROGEN ERN eUROGEN warmly congratulates Prof. Hans Langenhuijsen on his appointment as Professor of Adrenal Surgery at Radboud university medical center / Radboud University, effective 1 September 2025. Hans...

πŸ‘ Prof. Hans Langenhuijsen has been appointed Professor of Adrenal Surgery at Radboudumc! Hans leads our work on adrenal tumours, and this is a well-deserved recognition of his leadership.

πŸ”— eurogen-ern.eu/hans-langenh...

#EUfunded #EU4Health #RareDisease #ERNs #Urology

12.09.2025 11:11 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Join us for a webinar on Multi-Disciplinary Management of Cystinuria, with Kay Thomas & Matthew Bultitude 🧬 Supported by @espu.bsky.social

πŸ“… Wed 17 Sept @ 18:00 CEST
πŸŽ“ EACCME accredited
πŸ”— Register: bit.ly/eUROGEN17Sep25

#EUfunded #EU4Health #RareDisease #ERNs #UroSoMe #PedUro

12.09.2025 06:30 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
ERN eUROGEN Webinar 128: ERN eUROGEN Registry Update
This webinar took place on 9 September and was presented by Lotte Boormans and Loes van der Zanden, who joined for the discussion at the end. Lotte is the ERN eUROGEN Registry Manager, and Loes is… ERN eUROGEN Webinar 128: ERN eUROGEN Registry Update

πŸ—‚οΈ Missed the latest ERN eUROGEN Registry update?
Lotte Boormans walks us through current progress and plans.
πŸ“Ί Watch on YouTube: youtu.be/umCo2wLbEt8
πŸ“° Subscribe: bit.ly/4j7MaHU

#EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #Urology #UroSoMe @ec.europa.eu @jardinjointaction.bsky.social

10.09.2025 14:10 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

@ec.europa.eu @jardinjointaction.bsky.social @uroweb.org @eurordis.bsky.social @eupsaofficial.bsky.socialΒ @erknet.bsky.social

10.09.2025 12:33 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Join us for a webinar on Multi-Disciplinary Management of Cystinuria, with Kay Thomas & Matthew Bultitude 🧬 Supported by @espu.bsky.social

πŸ“… Wed 17 Sept @ 18:00 CEST
πŸŽ“ EACCME accredited
πŸ”— Register: bit.ly/eUROGEN17Sep25

#EUfunded #EU4Health #RareDisease #ERNs #UroSoMe #PedUro

10.09.2025 12:33 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Join ERN eUROGEN & ERNICA for a webinar on Fluorescence in Paediatric Colorectal Surgery, supported by @eupsaofficial.bsky.social & ARM-Net:
πŸ“… Wed 10 Sep @ 18:00 CEST
πŸŽ“ EACCME accredited
πŸ”— bit.ly/eUROGEN10Sep25

#EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #PedUro #SoMe4PedSurg

10.09.2025 08:14 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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🚨 TONIGHT! πŸ“Š Join us for a live update on the ERN eUROGEN Registry with Lotte Boormans & Loes van der Zanden.
πŸ—“ Tuesday 9 Sept @ 18:00 CEST
πŸ’¬ Includes Q&A
πŸ”— bit.ly/eUROGEN09Sep25

#EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #UroSoMe #Urology

09.09.2025 08:14 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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ERN eUROGEN Featured in the Journal of Pediatric Urology - ERN eUROGEN We are delighted to share that ERN eUROGEN has been featured in a new review article published by the Journal of Pediatric Urology: β€œThe European Reference Network eUROGEN, an interview by the…

ERN eUROGEN is featured in the Journal of Pediatric Urology! πŸ“° The article reflects on our origins, achievements, and future.

πŸ”— Read more: eurogen-ern.eu/ern-eurogen-...

#EUfunded #EU4Health #RareDisease #ERNs @ec.europa.eu @jardinjointaction.bsky.social

08.09.2025 13:28 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

@erneurogen is following 20 prominent accounts