ERN eUROGEN

@jardinjointaction.bsky.social @espu.bsky.social @eupsaofficial.bsky.social

👶 Join the Online Paediatric Colorectal Course, 5–6 Feb 2026! Hands-on training on ARM & Hirschsprung’s disease with interactive sessions, expert debates & model exercises 💻

🔗 pediatriccolorectalcourse.com

#EUfunded #EU4Health #RareDisease #PedUro #SoMe4PedSurg #ERNs

ERKsperience is coming soon 🎉

Our new ERKNet case-based webinar series kicks off with:
“The Hyperoxalurias – genetic, rare & acquired forms”
Find out more ⬇️

🗓 22 January 2026 | 🕔 17:00–18:00 CET

🔗 Register here & send us your hyperoxaluria cases to be featured!
https://tinyurl.com/3knkkyn3

🚨 TONIGHT! Join a webinar on laparoscopic ureteral reimplantation for VUR in children 🎥👶

🗣 Gander & Pérez-Bertólez
📅 Wed 19 Nov @ 18:00 CET
🎓 EACCME accredited & supported by @espu.bsky.social
🔗 bit.ly/eUROGEN19Nov25

@ec.europa.eu @jardinjointaction.bsky.social @eupsaofficial.bsky.social

Join a webinar on laparoscopic ureteral reimplantation for VUR in children 🎥👶

🗣 Gander & Pérez-Bertólez
📅 Wed 19 Nov @ 18:00 CET
🎓 EACCME accredited & supported by @espu.bsky.social
🔗 bit.ly/eUROGEN19Nov25

@ec.europa.eu @jardinjointaction.bsky.social @eupsaofficial.bsky.social

New, updated & existing resources for Anorectal Malformations!

🩺 Combined Guideline: eurogen-ern.eu/our-work/gui...
📘 Patient Journey (+ new audio version): eurogen-ern.eu/patient-info...
💙 Sexual Support Website: sexualsupport.eu

#EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg

@jardinjointaction.bsky.social @espu.bsky.social @eupsaofficial.bsky.social

👶 Join the Online Paediatric Colorectal Course, 5–6 Feb 2026! Hands-on training on ARM & Hirschsprung’s disease with interactive sessions, expert debates & model exercises 💻

🔗 pediatriccolorectalcourse.com

#EUfunded #EU4Health #RareDisease #PedUro #SoMe4PedSurg #ERNs

World-leading pediatric surgery meets at Karolinska Karolinska University Hospital and Karolinska Institutet proudly hosted the internationally acclaimed European Pediatric Colorectal and Pelvic Reconstruction Meeting, where the world’s foremost…

👶 The 16th European Paediatric Colorectal & Pelvic Reconstruction Meeting brought 250+ delegates from 40 countries to Stockholm 🇸🇪.

🔗 www.karolinskahospital.com/news/world-l...

#EUfunded #EU4Health #HealthUnion #RareDisease #PedUro #ERNs

Addressing Psychosocial Vulnerability in Rare Diseases: A European Call to Action - ERN eUROGEN A new publication in the Orphanet Journal of Rare Diseases highlights the urgent need for improved psychosocial support for people living with rare diseases. The paper, “Addressing psychosocial…

🧠 A new Orphanet Journal of Rare Diseases paper, led by Dr Rosanne Smits and supported by @erneurogen.bsky.social & funded by EJP RD, calls for stronger psychosocial care for people with rare conditions.

🔗 eurogen-ern.eu/addressing-p...

#EUfunded #EU4Health #HealthUnion #RareDisease #ERNs

ERN eUROGEN at the ESSIC – CONVPP Congress, 2025 - ERN eUROGEN The International Society for the Study of Bladder Pain Syndrome (ESSIC) and the Convergences in Pelvi-Perineal Pain Society (CONVPP) proudly joined forces this year to host a combined Annual Meeting…

A look back at the ESSIC–CONVPP Congress 2025 🇮🇹 including presentations on ERN eUROGEN’s collaboration with ESSIC and our Rare Bladder Inflammatory Disease guidelines.

🔗 eurogen-ern.eu/ern-eurogen-...

#EUfunded #EU4Health #RareDisease #ERNs #FPMRS @ec.europa.eu @jardinjointaction.bsky.social

Rare Diseases and ERNs Must Remain Visible in the EU’s Future Budget - ERN eUROGEN The European Commission has opened a consultation on the draft Multiannual Financial Framework (MFF) — the EU’s long-term budget plan. In the current proposal, rare diseases are not explicitly mention...

🗣️ Rare diseases & ERNs are missing from the EU’s draft 2028–2034 budget! Help keep them visible & funded.

Give feedback by 12 Nov 🕛
👉 eurogen-ern.eu/rare-disease...

#EUfunded #EU4Health #HealthUnion #RareDisease #ERNs
@ec.europa.eu @jardinjointaction.bsky.social

This webinar was presented on 5 November by Dr. Jan-Hendrik Gosemann, Dr. Ramon Gorter and Willemijn Irvine, MSc. Dr Gosemann works as a paediatric surgeon at the University of Leipzig in Germany. He… ERN eUROGEN Webinar 136: eUROGEN guidelines for ARM: Overview and clinical impact

Now on YouTube! ERN eUROGEN Guidelines for Anorectal Malformations
With Jan Gosemann, Ramon Gorter & Willemijn Irvine:

🎥 Watch: youtu.be/KBHFZsYsJ3g
📝 ARM resources: eurogen-ern.eu/updated-ern-...
📰 Subscribe: bit.ly/4j7MaHU

#EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg

🚨 TONIGHT! Join @erneurogen.bsky.social & ERNICA for a deep dive into the ERN eUROGEN Guidelines for ARM 📘

📅 Wed 5 Nov @ 18:00 CET
🗣 Jan Gosemann, Ramon Gorter & Willemijn Irvine
🎓 EACCME accredited
🔗 bit.ly/eUROGEN05Nov25

#EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg

Join @erneurogen.bsky.social & ERNICA for a deep dive into the ERN eUROGEN Guidelines for ARM 📘

📅 Wed 5 Nov @ 18:00 CET
🗣 Jan Gosemann, Ramon Gorter & Willemijn Irvine
🎓 EACCME accredited
🔗 bit.ly/eUROGEN05Nov25

#EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg

@ec.europa.eu @jardinjointaction.bsky.social @espu.bsky.social @eupsaofficial.bsky.social

Join @erneurogen.bsky.social & ERNICA for a deep dive into the ERN eUROGEN Guidelines for ARM 📘

📅 Wed 5 Nov @ 18:00 CET
🗣 Jan Gosemann, Ramon Gorter & Willemijn Irvine
🎓 EACCME accredited
🔗 bit.ly/eUROGEN05Nov25

#EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg

"Submit a poster abstract!" A woman in a beige blazer and backpack attentively reads scientific posters displayed at a conference venue with large windows.

Every #ECRD poster tells a story of research, collaboration & action for people living with a rare disease.

Share yours at #ECRD2026 and help shape the future of rare disease care in Europe.

📅 Deadline: 6 March 2026
👉 Submit: https://go.eurordis.org/ECRD2026Posters

All-in-one virtual event platform | Zoom Events

Join a @erneurogen.bsky.social & ERNICA webinar supported by @eupsaofficial.bsky.social & ARM-Net

🖥️ Motility of the Rectum in ARMs
🗣️ Sebastian King 🇦🇺 & Marc Benninga 🇳🇱
📅 Wed 29 Oct @ 18:00 CET
🎓 EACCME accredited
🔗 bit.ly/eUROGEN29Oct25

#EUfunded #EU4Health #ERNs #RareDisease #PedUro #SoMe4PedSurg

This webinar was presented on 22 October by Dr. Lisa Moris, who is a urologist at the University Hospital in Leuven, Belgium. Her research interests are: ketamine induced uropathy, bladder pain… ERN eUROGEN Webinar 134: Interstitial Cystitis: Multidisciplinary management of complex BPS

🧠 Missed our webinar on Interstitial Cystitis & Complex Bladder Pain Syndrome? Dr. Lisa Moris shares a multidisciplinary approach.

📺 youtu.be/C9yFFx06I24
📰 bit.ly/4j7MaHU

#EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #FPMRS #UroSoMe

All-in-one virtual event platform | Zoom Events

Join a @erneurogen.bsky.social & ERNICA webinar supported by @eupsaofficial.bsky.social & ARM-Net

🖥️ Motility of the Rectum in ARMs
🗣️ Sebastian King 🇦🇺 & Marc Benninga 🇳🇱
📅 Wed 29 Oct @ 18:00 CET
🎓 EACCME accredited
🔗 bit.ly/eUROGEN29Oct25

#EUfunded #EU4Health #ERNs #RareDisease #PedUro #SoMe4PedSurg

New Clinical Practice Guidelines for Spinal Dysraphism - ERN eUROGEN ERN eUROGEN, the European Reference Network for Rare and Complex Uro-Recto-Genital Diseases and Conditions, is proud to highlight the release of new clinical practice guidelines for children and…

💙 On #WSBHD25 we stand with @ifsbh.bsky.social & partners to accelerate #Action4SBH. We developed guidelines on spinal dysraphism in children/adolescents with IFSBH, @uroweb.org, @espu.bsky.social, @erknet.bsky.social & ERN ITHACA

👉 bit.ly/4npuWZ3

#SpinaBifida #Hydrocephalus #EUfunded #ERNs

All-in-one virtual event platform | Zoom Events

Join a @erneurogen.bsky.social & ERNICA webinar supported by @eupsaofficial.bsky.social & ARM-Net

🖥️ Motility of the Rectum in ARMs
🗣️ Sebastian King 🇦🇺 & Marc Benninga 🇳🇱
📅 Wed 29 Oct @ 18:00 CET
🎓 EACCME accredited
🔗 bit.ly/eUROGEN29Oct25

#EUfunded #EU4Health #ERNs #RareDisease #PedUro #SoMe4PedSurg

This webinar was presented on 15 October and is part of the colorectal webinar series in collaboration of ERN eUROGEN and ERNICA. Speakers: Dr. Pim Sloots, pedatric surgeon at Erasmus MC in… ERN eUROGEN Webinar 133: Anatomical and prenatal studies in anorectal malformations

👶 Missed our webinar on anatomical & prenatal studies in anorectal malformations? Dr Sloots, Dr Peters, Dr Schepens-Franke & Dr Miyake present new insights.

📺 youtu.be/rlutK0fzUtE
📰 bit.ly/4j7MaHU

#EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #PedUro #SoMe4PedSurg

Join us for a webinar on Interstitial Cystitis and the multidisciplinary management of complex BPS 💡
📅 Wed 22 Oct @ 18:00 CEST
👶 Speaker: Lisa Moris from Leuven University Hospitals
🎓 EACCME-accredited
🔗 bit.ly/ERNeUROGEN22...

#EUfunded #EU4Health #RareDisease #ERNs #FPMRS #InterstitialCystitis

🚨 TONIGHT! Join us for a joint webinar on prenatal & anatomical studies in ARM 💡
📅 Wed 15 Oct @ 18:00 CEST
👶 Featuring speakers from NL & Japan
🎓 EACCME-accredited
🔗 bit.ly/eUROGEN15Oct25

#EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg

Join us for a joint webinar on prenatal & anatomical studies in ARM 💡
📅 Wed 15 Oct @ 18:00 CEST
👶 Featuring speakers from NL & Japan
🎓 EACCME-accredited
🔗 bit.ly/eUROGEN15Oct25

#EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg

This webinar was presented on the 8th of October by Prof. Alessandro Morlacco (pediatric urologist), Dr. Elisa Benetti (pediatric nephrologist), Dr. Maria Sangermano (pediatric nephrologist), Dr.… ERN eUROGEN Webinar 131: Urological aspects in pediatric kidney transplantation

💧 Missed Wednesday's webinar on urological aspects in paediatric kidney transplantation?

📺 Watch: youtu.be/z1R_jOSVGgk
📰 Subscribe: bit.ly/4j7MaHU

#EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #PedUro #SoMe4PedSurg
@espu.bsky.social

@ec.europa.eu @jardinjointaction.bsky.social @espu.bsky.social @eupsaofficial.bsky.social

Join us for a joint webinar on prenatal & anatomical studies in ARM 💡
📅 Wed 15 Oct @ 18:00 CEST
👶 Featuring speakers from NL & Japan
🎓 EACCME-accredited
🔗 bit.ly/eUROGEN15Oct25

#EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg