π¨ TONIGHT! Join ERN eUROGEN & @espu.bsky.social for a webinar on Urological Aspects in Paediatric Kidney Transplantation π§π§
π
Wed 8 Oct @ 18:00 CEST
π EACCME accredited
π Register: bit.ly/eUROGEN08Oct25
#EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg
08.10.2025 08:14 β π 1 π 0 π¬ 0 π 0
Join ERN eUROGEN & @espu.bsky.social for a webinar on Urological Aspects in Paediatric Kidney Transplantation π§π§
π
Wed 8 Oct @ 18:00 CEST
π EACCME accredited
π Register: bit.ly/eUROGEN08Oct25
#EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg
06.10.2025 08:14 β π 0 π 1 π¬ 0 π 0
@ec.europa.eu @jardinjointaction.bsky.social @eupsaofficial.bsky.socialΒ @erknet.bsky.social
02.10.2025 08:14 β π 0 π 0 π¬ 0 π 0
Join ERN eUROGEN & @espu.bsky.social for a webinar on Urological Aspects in Paediatric Kidney Transplantation π§π§
π
Wed 8 Oct @ 18:00 CEST
π EACCME accredited
π Register: bit.ly/eUROGEN08Oct25
#EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg
02.10.2025 08:14 β π 0 π 0 π¬ 1 π 0
π¨ TONIGHT! Join us for a cutting-edge webinar on Stage II Testicular Germ Cell Tumours
π¨ββοΈDr Arnout Alberts shares the latest in personalised, multidisciplinary care
π
Wed 1 Oct @ 17:00 CEST
π EACCME-accredited
π bit.ly/eUROGEN01Oct25
#EUfunded #EU4Health #RareDisease #ERNs #UroOnc #UroSoMe
01.10.2025 08:14 β π 1 π 1 π¬ 0 π 0
@ec.europa.eu @jardinjointaction.bsky.social @uroweb.org @eurordis.bsky.social
29.09.2025 08:14 β π 0 π 0 π¬ 0 π 0
Join us for a cutting-edge webinar on Stage II Testicular Germ Cell Tumours π₯
π¨ββοΈDr Arnout Alberts shares the latest in personalised, multidisciplinary care
π
Wed 1 Oct @ 17:00 CEST
π EACCME-accredited
π bit.ly/eUROGEN01Oct25
#EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #UroOnc #UroSoMe
29.09.2025 08:14 β π 0 π 0 π¬ 1 π 0
π¬ Donβt miss the chance to make your voice heard! What helps you live with a rare or undiagnosed condition?π Tell us about it in the new @eurordis.bsky.socialβ¬ #RareBarometer survey! Survey available in 25 languages.
π Take the survey here: tiny.cc/RB-MH
16.09.2025 10:24 β π 1 π 1 π¬ 0 π 0
Itβs #UrologyWeek! π» Know the signs. For patients with rare & complex urogenital conditions, UTIs can escalate fast. Collaboration across Europe helps deliver expert care. π es. π¬
π eurogen-ern.eu/urology-week...
#EUfunded #EU4Health #HealthUnion #HealthierTogether #RareDisease #ERNs
26.09.2025 08:14 β π 2 π 0 π¬ 0 π 0
@ec.europa.eu @jardinjointaction.bsky.social @uroweb.org @eurordis.bsky.social
25.09.2025 09:38 β π 0 π 0 π¬ 0 π 0
Join us for a cutting-edge webinar on Stage II Testicular Germ Cell Tumours π₯
π¨ββοΈDr Arnout Alberts shares the latest in personalised, multidisciplinary care
π
Wed 1 Oct @ 17:00 CEST
π EACCME-accredited
π bit.ly/eUROGEN01Oct25
#EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #UroOnc #UroSoMe
25.09.2025 09:38 β π 1 π 0 π¬ 1 π 0
Itβs #UrologyWeek! π» Cancer patients face higher infection risks during treatment & recovery. Preventing & managing UTIs is critical to outcomes. π¬
π eurogen-ern.eu/urology-week...
#EUfunded #EU4Health #UroOnc #EUCancerPlan #EUCancerMission #RareDisease #ERNs
25.09.2025 08:14 β π 1 π 0 π¬ 0 π 0
Itβs #UrologyWeek! π» A pill isnβt always the answer. π For adults with IC or complex reconstructions, misdiagnosed βUTIsβ mean delayed treatment. Specialised care is vital. ves lives. π‘
π eurogen-ern.eu/urology-week...
#EUfunded #EU4Health #FPMRS #RareDisease #ERNs
24.09.2025 08:14 β π 1 π 0 π¬ 0 π 0
Itβs #UrologyWeek! π» Children with anomalies such as bladder exstrophy or posterior urethral valves face recurrent UTIs that can damage kidneys. Awareness saves lives. π‘
π eurogen-ern.eu/urology-week...
#EUfunded #EU4Health #PedUro #SoMe4PedSurg #RareDisease #ERNs
23.09.2025 08:14 β π 0 π 0 π¬ 0 π 0
@jardinjointaction.bsky.social
@uroweb.org @eurordis.bsky.social
@eupsaofficial.bsky.social
22.09.2025 14:35 β π 0 π 0 π¬ 0 π 0
Itβs #UrologyWeek! π» A new European survey shows 1 in 3 people donβt know what cystitis is. UTIs are common, but in rare uro-recto-genital conditions, they can be complex & life-threatening.
π Read More: eurogen-ern.eu/urology-week...
#EUfunded #EU4Health #HealthUnion #RareDisease #ERNs
22.09.2025 14:34 β π 0 π 0 π¬ 1 π 0
π¨ TONIGHT! Join us for a webinar on Multi-Disciplinary Management of Cystinuria, with Kay Thomas & Matthew Bultitude 𧬠Supported by @espu.bsky.social
π
Wed 17 Sept @ 18:00 CEST
π EACCME accredited
π Register: bit.ly/eUROGEN17Sep25
#EUfunded #EU4Health #RareDisease #ERNs #UroSoMe #PedUro
17.09.2025 06:30 β π 0 π 0 π¬ 0 π 0
π¬ Donβt miss the chance to make your voice heard! What helps you live with a rare or undiagnosed condition?π Tell us about it in the new @eurordis.bsky.socialβ¬ #RareBarometer survey! Survey available in 25 languages.
π Take the survey here: tiny.cc/RB-MH
16.09.2025 10:24 β π 1 π 1 π¬ 0 π 0
Join us for a webinar on Multi-Disciplinary Management of Cystinuria, with Kay Thomas & Matthew Bultitude 𧬠Supported by @espu.bsky.social
π
Wed 17 Sept @ 18:00 CEST
π EACCME accredited
π Register: bit.ly/eUROGEN17Sep25
#EUfunded #EU4Health #RareDisease #ERNs #UroSoMe #PedUro
15.09.2025 06:30 β π 1 π 0 π¬ 0 π 0
@ec.europa.eu @jardinjointaction.bsky.social @espu.bsky.social @eupsaofficial.bsky.social
12.09.2025 12:33 β π 0 π 0 π¬ 0 π 0
This webinar took place on the 10th of September. It is part of the ERN eUROGEN and ERNICA colorectal webinar series and was presented by Dr. Carlos GinΓ©, Peadiatric surgeon at the Pediatric Surgeryβ¦
ERN eUROGEN Webinar 129: Fluorescence in pediatric surgery
Missed our webinar on fluorescence in paediatric surgery? Now on YouTube! π‘ With Carlos GinΓ©, Willemieke Tummers & Jetske Ruiterkamp
πΊ youtu.be/Ww0geCrtVdA
π° bit.ly/4j7MaHU
#EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #PedUro #SoMe4PedSurg
12.09.2025 12:33 β π 0 π 0 π¬ 1 π 0
βͺ@ec.europa.euβ¬ @jardinjointaction.bsky.socialβ¬
12.09.2025 11:11 β π 0 π 0 π¬ 0 π 0
Join us for a webinar on Multi-Disciplinary Management of Cystinuria, with Kay Thomas & Matthew Bultitude 𧬠Supported by @espu.bsky.social
π
Wed 17 Sept @ 18:00 CEST
π EACCME accredited
π Register: bit.ly/eUROGEN17Sep25
#EUfunded #EU4Health #RareDisease #ERNs #UroSoMe #PedUro
12.09.2025 06:30 β π 1 π 1 π¬ 0 π 0
This webinar took place on 9 September and was presented by Lotte Boormans and Loes van der Zanden, who joined for the discussion at the end. Lotte is the ERN eUROGEN Registry Manager, and Loes isβ¦
ERN eUROGEN Webinar 128: ERN eUROGEN Registry Update
ποΈ Missed the latest ERN eUROGEN Registry update?
Lotte Boormans walks us through current progress and plans.
πΊ Watch on YouTube: youtu.be/umCo2wLbEt8
π° Subscribe: bit.ly/4j7MaHU
#EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #Urology #UroSoMe @ec.europa.eu @jardinjointaction.bsky.social
10.09.2025 14:10 β π 2 π 0 π¬ 0 π 0
@ec.europa.eu @jardinjointaction.bsky.social @uroweb.org @eurordis.bsky.social @eupsaofficial.bsky.socialΒ @erknet.bsky.social
10.09.2025 12:33 β π 0 π 0 π¬ 0 π 0
Join us for a webinar on Multi-Disciplinary Management of Cystinuria, with Kay Thomas & Matthew Bultitude 𧬠Supported by @espu.bsky.social
π
Wed 17 Sept @ 18:00 CEST
π EACCME accredited
π Register: bit.ly/eUROGEN17Sep25
#EUfunded #EU4Health #RareDisease #ERNs #UroSoMe #PedUro
10.09.2025 12:33 β π 0 π 0 π¬ 1 π 0
Join ERN eUROGEN & ERNICA for a webinar on Fluorescence in Paediatric Colorectal Surgery, supported by @eupsaofficial.bsky.social & ARM-Net:
π
Wed 10 Sep @ 18:00 CEST
π EACCME accredited
π bit.ly/eUROGEN10Sep25
#EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #PedUro #SoMe4PedSurg
10.09.2025 08:14 β π 0 π 0 π¬ 0 π 0
π¨ TONIGHT! π Join us for a live update on the ERN eUROGEN Registry with Lotte Boormans & Loes van der Zanden.
π Tuesday 9 Sept @ 18:00 CEST
π¬ Includes Q&A
π bit.ly/eUROGEN09Sep25
#EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #UroSoMe #Urology
09.09.2025 08:14 β π 1 π 0 π¬ 0 π 0
European Reference Network for Rare Neuromuscular Diseases
L'Hospital Sant Joan de DΓ©u Barcelona Γ©s un centre d'alta especialitzaciΓ³ en el tractament d'infants i dones embarassades.
El Hospital Sant Joan de DΓ©u Barcelona es un centro de alta especializaciΓ³n en el tratamiento de niΓ±os y mujeres embarazadas.
Revolutionising tissue reconstruction with bioprinting. Creating viable tissue constructs, particularly for the fabrication of tubular organs.
#urology #HorizonEurope #EUfunded #bioprinting #regenerativemedicine
Un projet du Plan national maladies rares, financΓ© par la Direction GΓ©nΓ©rale de l'Offre de Soins, visant Γ doter la France dβune collection homogΓ¨ne de donnΓ©es pour documenter la prise en charge et lβΓ©tat de santΓ© des patients atteints de maladies rares.
One of the largest Paediatric Surgical Association of individuals worldwide. Twitter account: @EupsaSurgeons
www.eupsa.info
The International Federation for Spina Bifida and Hydrocephalus (IF) is the umbrella organisation for #SpinaBifida and #Hydrocephalus associations around the globe ππ ifglobal.org
We bring civil society together in Europe, employers, workers, NGOs. Every voice counts!
#EUCivilSociety
MD, PhD, Urology, pediatric & reconstructive urology, Ghent University Hospital
Dean Faculty of Medicine & Health Sciences Ghent University
Born optimist & defender of LGBTQIA+ rights
ERN-EuroBloodNet aims to improve healthcare and quality of life of patients with Rare Hematological Diseases.
Funded by the European Union.
To improve the accessibility of the ERNs for patients across Europe, the EU has funded a pioneering 3-year project involving all member states (MS) plus Norway and Ukraine, the Joint Action on Integration of ERNs into National Healthcare Systems (βJARDINβ)
Account for the BLACKSWAN Foundation and RE(ACT) Community #RAREvolution, stand up for research on #rarediseases
blackswanfoundation.ch
http://www.react-congress.org π¦
Regenerative Medicine in Urology | Group leader | Assistant Professor | UMC Utrecht | ππ©βπ¬ | #phallusthursday
The European Reference Network for Rare Hereditary Metabolic Disorders (MetabERN). A better future for Rare Inherited Metabolic Disease patients.
Visit us π https://metab.ern-net.eu/
The TEHDAS2 joint action prepares the ground for the harmonised implementation of the secondary use of health data in the EHDS. Co-funded by the EU. tehdas.eu
Interested marcom, PR, social media, healthcare, travel, food. Global Manager Communications & Business Relations at the EAU (@uroweb).
Urologist, Rigshospitalet Denmark. Assoc professor University of Copenhagen. Bladder cancer, robotics, open surgery, reconstruction, andrology, kidney transplantation.
https://orcid.org/0000-0001-5400-4531
Passionate about all things endourology.
Beam25.be
The podcast for all things Urology to help you advance your practice. It's the meeting after the meeting. #UroSoMe #MedSky #UroSky
New episodes every Tuesday!
https://linktr.ee/BackTableUro