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RP Hope

@rphope.bsky.social

Nonprofit raising awareness and funds to support retinitis pigmentosa www.rphope.org

14 Followers  |  29 Following  |  11 Posts  |  Joined: 16.11.2024  |  1.523

Latest posts by rphope.bsky.social on Bluesky

rphope.org

06.01.2026 04:16 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

No donation. Just getting race bib, taking a picture and posting in late April. Please let me know.

06.01.2026 04:16 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

@blondehistorian.bsky.social Hello. I’m Carin Elam, founder of RP Hope. We organize a global awareness campaign in April. I started this when I lived in The Netherlands. We have participants from Australia, Nepal, Singapore, many countries in Europe, and the UK. Would you consider joining us?

06.01.2026 04:16 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

KEY POINT IN BELOW ARTICLE (for non-Medical community)
(1) β€œRetinitis pigmentosa is a blinding inherited retinal disease influencing millions of people in the world.” . . .

25.11.2024 12:31 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

(2) β€œHowever, the concrete pathological mechanisms of [RP] still remain poorly understood. It is essential to explain the retinal degeneration by elucidating the molecular differences between rd10 and healthy retinas, which may meanwhile contribute to the development of novel therapies.”

25.11.2024 12:30 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

(2) It is essential to explain the retinal degeneration by elucidating the molecular differences between rd10 and healthy retinas, which may meanwhile contribute to the development of novel therapies.

25.11.2024 12:26 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

(1) KEY POINT FROM ABOVE ARTICLE (for patient or caregiver)
RP β€œis a blinding inherited retinal disease influencing millions of people in the world.
However, the concrete pathological mechanisms of [RP] still remain poorly understood.

25.11.2024 12:25 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Proteomics identifies multiple retinitis pigmentosa associated proteins involved in retinal degeneration in a mouse model bearing a Pde6b mutation - Scientific Reports Scientific Reports - Proteomics identifies multiple retinitis pigmentosa associated proteins involved in retinal degeneration in a mouse model bearing a Pde6b mutation

www.nature.com/articles/s41...

25.11.2024 12:17 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 2    πŸ“Œ 0
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New Gene Therapy for Retinitis Pigmentosa Shows Promise New research suggests that a new kind of gene therapy can improve vision in people who have lost nearly all sight to retinitis pigmentosa.

www.aao.org/newsroom/new...

22.11.2024 21:10 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Chris McCausland: blind comedian & actor | Interview Disability Horizons Chris McCausland interview about his eye condition Retinitis Pigmentosa, his career in comedy and acting and marriage to his wife Patricia.

disabilityhorizons.com/2024/07/chri...

18.11.2024 04:53 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

Join support group call.

17.11.2024 06:14 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

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