Join us for #OnlyConnect25 celebrating the power of #intergenerational and inclusive practice/research - hosted at Newlyn Art Gallery, with an expedition to Potager Garden for a magical evening meal.
Get ready to connect, make, talk, wonder and look beyond the horizon to what is possible.
08.08.2025 09:28 β π 1 π 1 π¬ 1 π 0
Graphic showing a headshot of YHEC's Mick Arber. The wording reads: Senior Information Specialist, Mick Arber. There is a quote from Mick: "The challenges you meet for each review are different each time and, usually, there's no single correct way to meet that challenge. What we're always trying to achieve is the sweet spot, the balance of robustness and efficiency that is appropriate to the particular project." The YHEC logo is in the bottom right corner.
π Meet Mick Arber, Senior Information Specialist at YHEC.
With 25+ years in health information and evidence synthesis, Mick brings expertise in robust, high-quality literature searching.
Read more: sites.google.com/york.ac.uk/y...
#EvidenceBasedMedicine #MedLibs
18.07.2025 10:45 β π 4 π 2 π¬ 0 π 1
This involves thinking about systematic reviews through a hermeneutic lens involving background understanding, lived experience, practical understanding (phronesis), and interpretive activity towards a fusion of horizon between researchers and the policymaker, and other stakeholders (2/2)
07.07.2025 13:06 β π 0 π 0 π¬ 0 π 0
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
In this paper we aim to show how undertaking a #systematicreview in collaboration with a policymaker can be framed as a hermeneutic process, improving relevance for policy and challenging the conventional rule following account of #systematicreviews (1/2): journals.sagepub.com/doi/10.1177/...
07.07.2025 13:00 β π 0 π 0 π¬ 1 π 0
If you were at the #NHSConfedExpo yesterday you might have heard Kath Bainbridge talking about this in the panel session "Individually rare, collectively common: closing the health inequality gap in rare diseases"
Also, framework which maps inequities onto patient pathway to follow soon...
12.06.2025 16:11 β π 0 π 0 π¬ 0 π 0
When world's collide - spotted in the @hayfestival.bsky.social bookshop
Naga Munchetty's important book on the women's health crisis cites our recent #systematicreview of #primarycare cliniciansβ perspectives on interacting with patients with #gynaecological conditions
bjgpopen.org/content/8/1/...
27.05.2025 11:20 β π 3 π 1 π¬ 0 π 0
Xβs dominance βoverβ as Bluesky becomes new hub for research
Data indicates more scholars turning to alternative social media site to post about their work after Elon Muskβs Twitter takeover
'Bluesky has overtaken its flailing rival X in hosting posts related to new academic research, indicating the platform is fast becoming the go-to place for scholars to share their work.'
09.04.2025 07:14 β π 17753 π 4492 π¬ 135 π 322
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
Excited to see our paper "Framing #systematicreviews commissioned by policymakers as a hermeneutic process" published in Methodological Innovations -- a methodological commentary which uses hermeneutics to understand how reviewers and policy teams work together journals.sagepub.com/doi/full/10....
31.03.2025 10:56 β π 3 π 2 π¬ 0 π 0
It's Rare Disease Day. Over 350 million people live with a rare condition globally. But rare disease is poorly taught about in medical education leaving doctors unable to support their patients. So we are raising awareness amongst healthcare professionals #ShowYourStripes
28.02.2025 13:37 β π 6 π 2 π¬ 0 π 0
England Rare Diseases Action Plan 2025: annexes
The England Rare Diseases Action Plan 2025 is published today and includes an annex with a summary of our scoping review of inequities relating to diagnosis and access to services for people with a rare disease (1/2) #RareDiseaseDay2025 www.gov.uk/government/p...
28.02.2025 14:20 β π 4 π 1 π¬ 1 π 0
π Today is #RareDiseaseDay 2025!
We stand with the 300 million people worldwide living with rare diseases.
By coming together, we can raise awareness, drive change, and work toward a more inclusive and equitable future!
π Read more: metab.ern-net.eu/rare-disease...
#RareDiseaseDay2025
28.02.2025 07:51 β π 15 π 3 π¬ 0 π 0
A digital illustration compares equality vs. equity using three individuals of different heights and abilities reaching for apples on a tree. On the left, labeled "Equality," all three individuals stand on identical platforms, but the shortest person and the person with a mobility aid still cannot reach the apples. On the right, labeled "Equity," each person is given a different number of platforms based on their individual needs, allowing all of them to reach the apples. The image is branded with The Ehlers-Danlos Societyβs logo, reinforcing the message of fairness in healthcare access for people with rare diseases.
TODAY is #RareDiseaseDay! πππ
Across the world, our #raredisease community is sharing our colors and demanding equity for the 300 million people living with a rare disease.
But whatβs the difference between equality and equity?
28.02.2025 12:57 β π 30 π 11 π¬ 2 π 1
Projection of the 'Rare Disease Day' logo on the facade of Magdalen College Chapel.
Last night, the chapel facade of Magdalen College was lit up ahead of #RareDiseaseDay.
A disease is classed as rare when it affects fewer than 1 in 2000 people and there are over 3.5 million people living with a rare condition in the UK alone.
π· | @oxfordpaediatrics.bsky.social
28.02.2025 10:18 β π 71 π 19 π¬ 4 π 2
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
Twitter (X) and the Commercial Determinants of Health: Characterizing the Most Amplified, Influential, and Connected Voices Driving Twitter Discourse About Tobacco Regulatory Policy From September 2019 to July 2021
journals.sagepub.com/doi/10.1177/...
30.01.2025 09:41 β π 7 π 7 π¬ 0 π 1
Commercial influences on patient and public involvement: a renewed call for research and action
Abstract. Patient and public involvement is increasingly advocated in health policy, research and practice. Patients and people with lived experience, care
Our commentary on commercial influences on patient & public involvement is out today @healthpromint.bsky.social as part of special issue on the #CDoH. We hope to stimulate discussion & debate (& hopefully meaningful action) in this area
academic.oup.com/heapro/artic...
@jameslarkin13.bsky.social
09.12.2024 18:16 β π 65 π 30 π¬ 5 π 9
For those not working in academia, how do you access peer reviewed research, if at all? How would you like to? How can academics get better at sharing findings?
08.06.2024 11:11 β π 48 π 24 π¬ 24 π 6
π’ Web users! We found an issue in today's update that would cause some community moderation not to apply.
Please refresh the website to get the fixed version.
01.05.2024 23:43 β π 930 π 193 π¬ 18 π 8
What thing I've learned from working in academia for the last 23 years is that we're given a special gift of trying to make the world a better place, on a micro and macro level.
That we're able to do that by improving ourselves but it should never come at the expense of others.
26.04.2024 14:54 β π 1 π 1 π¬ 0 π 0
Founder & PI @aial.ie, @tcddublin.bsky.social
AI accountability, AI audits & evaluation, critical data studies. Cognitive scientist by training. Ethiopian in Ireland. She/her
The voice of UK health and care services research.
π https://hsruk.org/
βοΈ info@hsruk.org
The ISSG Search Filters Resource is a collaborative venture to identify, assess and test #searchfilters designed to retrieve research by study design or focus.
Website: https://t.co/g0gFnjkI24
Internet person. Community tech, careful innovation, socially progressive tech policy.
https://www.careful.industries
https://buttondown.email/justenoughinternet
DMs don't work but hello [at] careful.industries will find me eventually
Prof of Primary Care Health Sciences, Oxford. Researching digital health/ inequities, covid prevention (masks/ air quality). Wild swimmer. Mum to Rob (marine bio) & Al (doc). She/her. https://scholar.google.com.au/citations?user=QDCqsJwAAAAJ&hl=en&oi=ao
Community hub, heritage destination, event venue, home to a living faith and musical tradition. One thousand years of wonder in the heart of Devon.
Broadcaster & environmental campaigner
chrispackh.am/links
SWIP Ireland is an organisation of women in philosophy on/of the island of Ireland, including students and professionals, working within or outside academic departments.
https://www.swip-ireland.com/
Physician Scientist MDPhD
Infectious Diseases
Academic Medicine
Global Health
Science Communicator
Posts are my opinions, not my employer's and not medical advice
I bet on myself and double down
https://substack.com/@bktitanji
Photojournalist and documentary photographer | Food imperialism researcher | Evidence synthesis methods trainer
www.nealhaddaway.com
Writer for The New Climate
https://medium.com/@nealhaddaway
Development economist, demographer & social scientist.
Currently - Senior Evaluator @3ieImpact.org
[x-Mathematica, UW-Madison, IFPRI, FAO, AU, AmeriCorps NCCC & Tufts].
Anti-fascist + anti-racist in Chicagoland, πΊπΈπͺπ¨ & he/el.
http://www.ejquinones.com/
The Russell Group represents 24 universities located across the UK.
We work to advance and champion the positive economic, societal & cultural impacts of UK research-intensive universities.
russellgroup.ac.uk
The Bennett Institute for Public Policy has expanded to become the Bennett School of Public Policy. Please follow us on our new handle: @BennettSchool.cam.ac.uk
she/her | baltimore | maryland #medlibs #fedlibs #firedfed #toxlibs #libraries #coffee #bikes #swimming #hiphop #lifting
https://carrieprice78.github.io/
Researcher, systematic reviewer and information scientist in information retrieval, automation, and research use at UCL SRI and EPPI Centre. Social science and health.
News and expert comment from the London School of Hygiene & Tropical Medicine (LSHTM). Celebrating 125 years as one of the world's leading #PublicHealth universities. https://linktr.ee/lshtm
Dad, husband, President, citizen. barackobama.com
Health Economist | Evidence Synthesis & Metanalysis | Clinical Guideline Methodologist
We are the membership organisation that brings together, supports and speaks for the whole healthcare system in England, Wales and Northern Ireland.
www.nhsconfed.org