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Janice Cowden

@janicetnbcmets.bsky.social

🌍 Avid Traveler | Proud Nana of 3 | #MetastaticBreastCancer #PatientAdvocate / Knowledge Seeker | Retired Nurse | Dx #mTNBC 2016, β€œDancing w NED” since 11/2016 | 🚫politics | @METAvivor @The_Right_Dose @OncoAlert #bcsm

838 Followers  |  301 Following  |  68 Posts  |  Joined: 24.09.2023  |  2.1826

Latest posts by janicetnbcmets.bsky.social on Bluesky

Providing P2P support is advocating in my mind! Thank you for being there, Deb, we all need to be heard.

16.03.2025 13:37 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

One doesn’t have to be early stage to feel β€œimposter syndrome.” I’m amongst ~1-2% of people dx w/ stage 4 metastatic breast cancer (OligoMBC, tnbc) who’s NED & on no tx for 8.5 yrs. I’ve lost far too many friends over the yrs to stop advocating & sharing. It honors their life & legacy & offers hope.

16.03.2025 12:44 β€” πŸ‘ 4    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
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#METAvivor #MetastaticBreastCancer #Transparency #ThankYou #DonorPolicy

03.02.2025 22:13 β€” πŸ‘ 7    πŸ” 1    πŸ’¬ 0    πŸ“Œ 1
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Time to Reconsider MRI to Detect Asymptomatic Brain Mets in Breast Cancer? Initial MRI showed asymptomatic brain lesions in 14% of patients, increasing to 25% at 6 months

THIS‼️
πŸ”Ίbrain mets occur in 15 - 30% of MBC pts; ⬆️ in #TNBC & #HER2+
πŸ”Ίdelayed MRI=⬆️ adv disease, req. ⬆️WBR & ⬆️ dx LMD
πŸ”Ίearlier det=earlier intervention = better outcomes for pts
”.. maybe we should be routinely performing brain MRIs in those patientsβ€πŸ’‘
#bcsm
#BCBM
www.medpagetoday.com/hematologyon...

31.01.2025 03:01 β€” πŸ‘ 20    πŸ” 4    πŸ’¬ 0    πŸ“Œ 0
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Spent the past 5 days with an incredible group of #advocates @ the 2025 Bag It Cancer #EscapeToThrive2025 leadership conference in Tucson, AZ. Miraval Resort & Spa was the ideal spot to #restore, #refresh, & #rejuvenate!

20.01.2025 15:35 β€” πŸ‘ 6    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Honored to serve on this study with an incredible group of patient advocates & @ascocancer.bsky.social leaders!

20.01.2025 15:30 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Empowering Patients: ASCO’s Inclusive Approach to Clinical Trials ASCO's CDK4/6 Inhibitor Dosing Knowledge (CDK) Study prioritizes patient advocacy and engagement to improve outcomes and quality of life for individuals with cancer.

Thanks to the patient advocates who serve on our @ascocancer.bsky.social CDK study advisory group and data safety monitoring committee. @janicetnbcmets.bsky.social @paspears88.bsky.social connection.asco.org/do/empowerin...

18.01.2025 17:12 β€” πŸ‘ 8    πŸ” 2    πŸ’¬ 1    πŸ“Œ 1
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Finding the Magic, Just in Time Clare Cory was 59 years old and had been single almost her whole life. She thought her love story was over. Then everything changed.

www.nytimes.com/2025/01/08/p... Amazing story from a stage IV inflammatory breast cancer patient about finding love. #IBC #oncsky #cansky

14.01.2025 05:56 β€” πŸ‘ 7    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0

Happening tonight: Tuesday 1/14/25, 5 pm PT / 8 pm ET ~ #TumorBoardTuesday (#TBT) - HR+ #MBC! Join @zoezhang.bsky.social & @dr-rshatsky.bsky.social for this great educational session!
#bcsm
#PatientAdvocate

14.01.2025 13:43 β€” πŸ‘ 4    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

#OncoSky #CanSky Listen up!! For those who used to enjoy Tumor Board Tuesday #TBT. We have been speaking to the wonderful Dr. P @mpishvaian.bsky.social and we will be starting some Tumor Board Tuesday β€œSky Chats” over here soon! Stay tuned! #TBT is a wonderful learning/CME resource!!! #bcsm

05.12.2024 14:14 β€” πŸ‘ 34    πŸ” 11    πŸ’¬ 4    πŸ“Œ 1

That’s great! I know many of us are still using Twitter regularly! (Me included)

09.01.2025 15:05 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Hello all, wanted to let you know about a fantastic interactive learning opportunity! This Tuesday the 14th my lovely fellow and I will be presenting Tumor board Tuesday #TBT about new developments in HR+ MBC! It will be 5pm pacific, 8pm eastern! #bcsm #OncSky #CanSky #MedSky #breastcancer #MBC

09.01.2025 13:39 β€” πŸ‘ 42    πŸ” 9    πŸ’¬ 4    πŸ“Œ 3

Thanks for the tag @dr-rshatsky.bsky.social, will share & try my best to be there!

09.01.2025 14:10 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Especially important for our #oncosky community due to weakened immunity to infections.

Please read this excellent educational public health tgread by @tmprowell.bsky.social

05.01.2025 09:17 β€” πŸ‘ 11    πŸ” 3    πŸ’¬ 1    πŸ“Œ 0

πŸ“‘ benefits of P2P online support, β€œ..most reported was being better informed…a predominant aspect of group participation is the exchange of info, the sharing of knowledge related to the disease, tx methods, or rec.”https://link.springer.com/content/pdf/10.1007/s00520-024-09119-5.pdf
#bcsm
#cancer

05.01.2025 13:37 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Tried hard to stay off SoMe during family time/holidays, & missed seeing the X post on 1/3, found it this a.m., & admittedly reeling a bit. Didn’t expect this, so damn πŸ’”β€ΌοΈ Hate MBC so, SO much 😒

04.01.2025 15:16 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Lori Carey lived long on Enhertu. She was a wealth of knowledge about getting thru its rough start and the photographer of some of the most beautiful landscapes I’ve seen. I hope she got to say goodbye to those she loved and that Rebel was by her side tooπŸ’” #cansky #cancer #Stage4NeedsMore

04.01.2025 13:46 β€” πŸ‘ 26    πŸ” 3    πŸ’¬ 1    πŸ“Œ 0
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Happy New Year from OncoAlert

@doublewhammied.bsky.social
@janicetnbcmets.bsky.social
@kjankovic.bsky.social
@seanmmcbride.bsky.social
@icromeattini.bsky.social
@jdmunter.bsky.social
@achoud72.bsky.social
@jesusanampa.bsky.social
@weoncologists.bsky.social

01.01.2025 05:17 β€” πŸ‘ 11    πŸ” 3    πŸ’¬ 0    πŸ“Œ 1
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Reg for METAvivor Ground Swell is open. Share your story/exp, educate lawmakers who serve you in DC, make an impact, πŸ‘Š change advocating for policies that benefit all dx w/ & impacted by #metastaticbreastcancer, & πŸ“£ need to ⬆️ πŸ’²for MBC #research!
#bcsm
donate.metavivor.org/event/2025-g...

31.12.2024 15:37 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Taking a SoMe break for the holidays, spending time with family! Wishing everyone a holiday season filled with love, light, joy, & cherished moments with those you hold dear. See you in 2025!
Thankful for the #bcsm community!
#HappyHolidaysΒ 
#Gratitude

23.12.2024 03:46 β€” πŸ‘ 13    πŸ” 0    πŸ’¬ 2    πŸ“Œ 0
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#2SLGBTQIA young adult #cancer study in Canada #oncosky #cansky

19.12.2024 05:34 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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It’s a privilege to be part of this meaningful work!
The ASCO CDK Dosing Study has the potential to reshape clinical practice for older adults w/ #metastaticbreastcancer. Thnx to PCORI for funding this impactful project.
@therightdose.bsky.social
@oncoalert.bsky.social
#bcsm
#DoseOptimization
#QoL

18.12.2024 17:34 β€” πŸ‘ 33    πŸ” 9    πŸ’¬ 2    πŸ“Œ 0

I’m in the US, haven’t heard of him or his podcast, but will check it out. Thanks for sharing!

14.12.2024 16:24 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Normal breast tissues harbour rare populations of aneuploid epithelial cells - PubMed Aneuploid epithelial cells are common in breast cancer<sup>1,2</sup>; however, their presence in normal breast tissues is not well understood. To address this question, we applied single-cell DNA sequ...

Loving tumor heterogeneity session at #SABCS24! Talk by Nick Navin w/ cool implications for #lobular BrCa tumorigenesis.

In healthy breast cells, 16q/CDH1 loss common (~8% of cells from 49 patients), led to luminal clonal outgrowth... earliest precursors of ILC???

pubmed.ncbi.nlm.nih.gov/39567687/

10.12.2024 23:10 β€” πŸ‘ 7    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Kicking off #SABCS24 w/ imp topics, communicating a MBC dx with pts, disease progression & prognosis, about #clinicaltrials. The Do’s & Don’ts.
#metastaticbreastcancer
#AdvancedBC
#bcsm
@sabcs.bsky.social
@mbcalliance
@ABCGlobalAll

10.12.2024 16:25 β€” πŸ‘ 7    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0
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View from the Marriott Rivercenter! All is calm, all is bright ~ the action begins tomorrow! Excited for another fabulous week of education, information, & connection at #SABCS24!
Let’s do this!
#bcsm
@oncoalert.bsky.social
#metastaticbreastcancer
#PatientAdvocates
@sabcs.bsky.social

10.12.2024 03:57 β€” πŸ‘ 34    πŸ” 3    πŸ’¬ 1    πŸ“Œ 1
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✈️ Tampa β€”>Houston for BCM researcher/lab visits today, now 🚌 Houstonβ€”>San Antonio via Vonlane (fancy bus) w/ @amybeumer.bsky.social
See you soon @sabcs.bsky.social!!
#bcsm
@oncoalert.bsky.social
#SABCS24

09.12.2024 20:56 β€” πŸ‘ 14    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0

If you haven't already checked out @cancercaremascc.bsky.social - it's an entire global organization of clinicians, researchers, and even advocates focused on trying to #MakeCancerLessShitty
#Cansky #SuppOnc #hpm #SurvOnc

07.12.2024 23:13 β€” πŸ‘ 13    πŸ” 3    πŸ’¬ 1    πŸ“Œ 1
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Can men get breast cancer? 10 things to know Breast cancer is often thought of as a woman’s disease. But men can get breast cancer, too. Breast medical oncologist Sharon Giordano, M.D., shares insights about male breast cancer.

This is the best explanation of breast cancer in men published to date.

www.mdanderson.org/cancerwise/m...

#Cansky #Oncosky #CancerBS

07.12.2024 01:07 β€” πŸ‘ 41    πŸ” 19    πŸ’¬ 1    πŸ“Œ 2

Unfortunately relatable in so many areas - alkaline water, sugar, special diets, alternative, unproven β€œtherapeutic” protocols, & let’s not forget coffee enemas 😳
All the 🀬 😑😀 feels about charlatans who promote these (incl other #cancer patients)
#Oncosky
#Cansky
#bcsm
#metastaticbreastcancer

06.12.2024 14:52 β€” πŸ‘ 18    πŸ” 3    πŸ’¬ 1    πŸ“Œ 0

@janicetnbcmets is following 20 prominent accounts