Providing P2P support is advocating in my mind! Thank you for being there, Deb, we all need to be heard.
16.03.2025 13:37 β π 1 π 0 π¬ 0 π 0@janicetnbcmets.bsky.social
π Avid Traveler | Proud Nana of 3 | #MetastaticBreastCancer #PatientAdvocate / Knowledge Seeker | Retired Nurse | Dx #mTNBC 2016, βDancing w NEDβ since 11/2016 | π«politics | @METAvivor @The_Right_Dose @OncoAlert #bcsm
Providing P2P support is advocating in my mind! Thank you for being there, Deb, we all need to be heard.
16.03.2025 13:37 β π 1 π 0 π¬ 0 π 0One doesnβt have to be early stage to feel βimposter syndrome.β Iβm amongst ~1-2% of people dx w/ stage 4 metastatic breast cancer (OligoMBC, tnbc) whoβs NED & on no tx for 8.5 yrs. Iβve lost far too many friends over the yrs to stop advocating & sharing. It honors their life & legacy & offers hope.
16.03.2025 12:44 β π 4 π 1 π¬ 1 π 0#METAvivor #MetastaticBreastCancer #Transparency #ThankYou #DonorPolicy
03.02.2025 22:13 β π 7 π 1 π¬ 0 π 1THISβΌοΈ
πΊbrain mets occur in 15 - 30% of MBC pts; β¬οΈ in #TNBC & #HER2+
πΊdelayed MRI=β¬οΈ adv disease, req. β¬οΈWBR & β¬οΈ dx LMD
πΊearlier det=earlier intervention = better outcomes for pts
β.. maybe we should be routinely performing brain MRIs in those patientsβπ‘
#bcsm
#BCBM
www.medpagetoday.com/hematologyon...
Spent the past 5 days with an incredible group of #advocates @ the 2025 Bag It Cancer #EscapeToThrive2025 leadership conference in Tucson, AZ. Miraval Resort & Spa was the ideal spot to #restore, #refresh, & #rejuvenate!
20.01.2025 15:35 β π 6 π 0 π¬ 0 π 0Honored to serve on this study with an incredible group of patient advocates & @ascocancer.bsky.social leaders!
20.01.2025 15:30 β π 2 π 0 π¬ 0 π 0Thanks to the patient advocates who serve on our @ascocancer.bsky.social CDK study advisory group and data safety monitoring committee. @janicetnbcmets.bsky.social @paspears88.bsky.social connection.asco.org/do/empowerin...
18.01.2025 17:12 β π 8 π 2 π¬ 1 π 1www.nytimes.com/2025/01/08/p... Amazing story from a stage IV inflammatory breast cancer patient about finding love. #IBC #oncsky #cansky
14.01.2025 05:56 β π 7 π 3 π¬ 0 π 0Happening tonight: Tuesday 1/14/25, 5 pm PT / 8 pm ET ~ #TumorBoardTuesday (#TBT) - HR+ #MBC! Join @zoezhang.bsky.social & @dr-rshatsky.bsky.social for this great educational session!
#bcsm
#PatientAdvocate
#OncoSky #CanSky Listen up!! For those who used to enjoy Tumor Board Tuesday #TBT. We have been speaking to the wonderful Dr. P @mpishvaian.bsky.social and we will be starting some Tumor Board Tuesday βSky Chatsβ over here soon! Stay tuned! #TBT is a wonderful learning/CME resource!!! #bcsm
05.12.2024 14:14 β π 34 π 11 π¬ 4 π 1Thatβs great! I know many of us are still using Twitter regularly! (Me included)
09.01.2025 15:05 β π 1 π 0 π¬ 0 π 0Hello all, wanted to let you know about a fantastic interactive learning opportunity! This Tuesday the 14th my lovely fellow and I will be presenting Tumor board Tuesday #TBT about new developments in HR+ MBC! It will be 5pm pacific, 8pm eastern! #bcsm #OncSky #CanSky #MedSky #breastcancer #MBC
09.01.2025 13:39 β π 42 π 9 π¬ 4 π 3Thanks for the tag @dr-rshatsky.bsky.social, will share & try my best to be there!
09.01.2025 14:10 β π 1 π 0 π¬ 1 π 0Especially important for our #oncosky community due to weakened immunity to infections.
Please read this excellent educational public health tgread by @tmprowell.bsky.social
π benefits of P2P online support, β..most reported was being better informedβ¦a predominant aspect of group participation is the exchange of info, the sharing of knowledge related to the disease, tx methods, or rec.βhttps://link.springer.com/content/pdf/10.1007/s00520-024-09119-5.pdf
#bcsm
#cancer
Tried hard to stay off SoMe during family time/holidays, & missed seeing the X post on 1/3, found it this a.m., & admittedly reeling a bit. Didnβt expect this, so damn πβΌοΈ Hate MBC so, SO much π’
04.01.2025 15:16 β π 3 π 0 π¬ 1 π 0Lori Carey lived long on Enhertu. She was a wealth of knowledge about getting thru its rough start and the photographer of some of the most beautiful landscapes Iβve seen. I hope she got to say goodbye to those she loved and that Rebel was by her side tooπ #cansky #cancer #Stage4NeedsMore
04.01.2025 13:46 β π 26 π 3 π¬ 1 π 0Happy New Year from OncoAlert
@doublewhammied.bsky.social
@janicetnbcmets.bsky.social
@kjankovic.bsky.social
@seanmmcbride.bsky.social
@icromeattini.bsky.social
@jdmunter.bsky.social
@achoud72.bsky.social
@jesusanampa.bsky.social
@weoncologists.bsky.social
Reg for METAvivor Ground Swell is open. Share your story/exp, educate lawmakers who serve you in DC, make an impact, π change advocating for policies that benefit all dx w/ & impacted by #metastaticbreastcancer, & π£ need to β¬οΈ π²for MBC #research!
#bcsm
donate.metavivor.org/event/2025-g...
Taking a SoMe break for the holidays, spending time with family! Wishing everyone a holiday season filled with love, light, joy, & cherished moments with those you hold dear. See you in 2025!
Thankful for the #bcsm community!
#HappyHolidaysΒ
#Gratitude
#2SLGBTQIA young adult #cancer study in Canada #oncosky #cansky
19.12.2024 05:34 β π 3 π 1 π¬ 0 π 0Itβs a privilege to be part of this meaningful work!
The ASCO CDK Dosing Study has the potential to reshape clinical practice for older adults w/ #metastaticbreastcancer. Thnx to PCORI for funding this impactful project.
@therightdose.bsky.social
@oncoalert.bsky.social
#bcsm
#DoseOptimization
#QoL
Iβm in the US, havenβt heard of him or his podcast, but will check it out. Thanks for sharing!
14.12.2024 16:24 β π 1 π 0 π¬ 1 π 0Loving tumor heterogeneity session at #SABCS24! Talk by Nick Navin w/ cool implications for #lobular BrCa tumorigenesis.
In healthy breast cells, 16q/CDH1 loss common (~8% of cells from 49 patients), led to luminal clonal outgrowth... earliest precursors of ILC???
pubmed.ncbi.nlm.nih.gov/39567687/
Kicking off #SABCS24 w/ imp topics, communicating a MBC dx with pts, disease progression & prognosis, about #clinicaltrials. The Doβs & Donβts.
#metastaticbreastcancer
#AdvancedBC
#bcsm
@sabcs.bsky.social
@mbcalliance
@ABCGlobalAll
View from the Marriott Rivercenter! All is calm, all is bright ~ the action begins tomorrow! Excited for another fabulous week of education, information, & connection at #SABCS24!
Letβs do this!
#bcsm
@oncoalert.bsky.social
#metastaticbreastcancer
#PatientAdvocates
@sabcs.bsky.social
βοΈ Tampa β>Houston for BCM researcher/lab visits today, now π Houstonβ>San Antonio via Vonlane (fancy bus) w/ @amybeumer.bsky.social
See you soon @sabcs.bsky.social!!
#bcsm
@oncoalert.bsky.social
#SABCS24
If you haven't already checked out @cancercaremascc.bsky.social - it's an entire global organization of clinicians, researchers, and even advocates focused on trying to #MakeCancerLessShitty
#Cansky #SuppOnc #hpm #SurvOnc
This is the best explanation of breast cancer in men published to date.
www.mdanderson.org/cancerwise/m...
#Cansky #Oncosky #CancerBS
Unfortunately relatable in so many areas - alkaline water, sugar, special diets, alternative, unproven βtherapeuticβ protocols, & letβs not forget coffee enemas π³
All the π€¬ π‘π€ feels about charlatans who promote these (incl other #cancer patients)
#Oncosky
#Cansky
#bcsm
#metastaticbreastcancer