FAMILY ENGAGEMENT
IN RESEARCH
- TRAINING PROGRAM -
"The course was really structured to give you a lot of tools and
confidence
to be able to do family engagement."
- Researcher
CanChild
McMaster
University
CIHR IRSC
Canadian Institutes of
Instituts de recherche
kids
brain health network
rΓ©seau pour la santΓ© du cerveau des enfants
FAMILY ENGAGEMENT
IN RESEARCH
- TRAINING PROGRAM -
"This course has been fulfilling in so many ways.
I have learned a lot, but it was the conversations and connections that ring true"
- Family Member
CanChild
McMaster
University
CIHR IRSC
Canadian Institutes of
Instituts de recherche
kids brain health network
rΓ©seau pour
la santΓ© du cerveau des enfants
Real impact starts with real voices. Hear from a FER graduate about the power of meaningful collaboration.
πLearn more: tr.ee/lKU4zw
@canchild.bsky.social @kidsbrainhealth.bsky.social
#FERCourse #FamilyEngagement
18.07.2025 14:52 β π 2 π 1 π¬ 0 π 0
FER Community Update
July 2025
8 tools that bring people with lived experience and researchers bring to research.
Plus: A recap of FER in Germany 2025
Congratulations to multiple FER grads in our community
Upcoming events
Our favourite readings and resources we saw this month
What helped you show up prepared, or made you fee more ready to engage in meaningful ways? Comment below!
π° Our July 2025 FER Community Update is live! Catch up on whatβs new & whatβs next in family engagement in research.
π Read: tinyurl.com/FERJuly2025
π¬ What helped you feel more ready to engage in meaningful ways? Comment belowβweβd love to hear!
#FERProgram #FamilyEngagement
15.07.2025 19:45 β π 0 π 0 π¬ 0 π 0
Collage of attendees from the EACD conference who were also graduates of the course.
π©πͺ FER in Germany! So proud to see FER grads at #EACD2025 sharing how family voices shape care + research. From parenting to systems change, theyβre leading the way. Want to join them? β‘οΈ ferprogram.ca #FERProgram #MedicalParent #DisabilityResearch #HealthEquity
14.07.2025 13:39 β π 0 π 0 π¬ 0 π 0
Last change to apply for the Fall 2025 FER Course!
π£ Last day to apply!
Are you a parent or caregiver of a child with a disability or health condition? Join the 10-week FER Course to build research skills & connect with families & researchers.
π Open to all
π tr.ee/Z1Kj79
#momlife #Parenting
11.07.2025 15:17 β π 0 π 0 π¬ 0 π 0
Amazingly Simple Graphic Design Software β Canva
Amazingly Simple Graphic Design Software β Canva
πLearn more: tr.ee/lKU4zw
πApply now: tr.ee/Z1Kj79
@canchild.bsky.social @kidsbrainhealth.bsky.social /2
#specialneeds #medicalmom #disability #parenting #momlife
09.07.2025 20:38 β π 1 π 0 π¬ 0 π 0
3 Things Parents Might Not Know About Partnering in Research
You can shape research, not just join it.
Your lived experience is expertise.
Research with parents hits closer to home for real families.
Applications are still open for the Family Engagement in Research Course! /1
09.07.2025 20:38 β π 2 π 2 π¬ 1 π 0
If you are in the field of neurodevelopmental disability research, consider giving Kids Brain Health Network a follow!
09.07.2025 20:32 β π 0 π 0 π¬ 0 π 0
Amazingly Simple Graphic Design Software β Canva
Amazingly Simple Graphic Design Software β Canva
Co-learning in the Family Engagement in Research course strengthens partnerships and builds real-world skills in family engagement.
π Learn more: tr.ee/lKU4zw
π Apply now: tr.ee/Z1Kj79
/3
#specialneeds #medicalmom #disability #parenting #momlife
@canchild.bsky.social
03.07.2025 17:23 β π 0 π 0 π¬ 0 π 0
Amazingly Simple Graphic Design Software β Canva
Amazingly Simple Graphic Design Software β Canva
When we take the time to listen, learn, and truly see their stories, we build a world that respects and includes every voice.
Whether you're a parent, a researcher, a clinician, or a community member, your role in that story matters too.
Letβs partner in research that reflects real lives.
/2
03.07.2025 17:23 β π 0 π 0 π¬ 1 π 0
Good news! The deadline to apply for the next Family Engagement in Research (FER) Course has been extended!
Behind every child is a story that mattersβ¦
Every childβs journey is unique, shaped by their dreams, challenges, and the people who walk beside them. /1
#patientengagement
03.07.2025 17:23 β π 1 π 0 π¬ 1 π 0
Amazingly Simple Graphic Design Software β Canva
Amazingly Simple Graphic Design Software β Canva
Co-learning in this course strengthens partnerships and builds real-world skills in family engagement.
π Learn more: tr.ee/lKU4zw
π Apply now: tr.ee/Z1Kj79
@canchild.bsky.social
#research #researcher #healthcare #pediatrics /2
03.07.2025 00:33 β π 0 π 0 π¬ 0 π 0
Good news! The deadline to apply for the next Family Engagement in Research (FER) Course has been extended!
Whether you've already applied or still thinking about it, researchers, nowβs a great time to reach out to your current patient or community partner and apply together. /1 #patientengagement
03.07.2025 00:27 β π 2 π 2 π¬ 1 π 0
participants rated their overall course satisfaction on a scale of 1 to 10, with an average score of 8.6.
Ready to join a growing community of researchers and families working together?
π Applications are OPEN for the Family Engagement in Research Course!β¨
ποΈ Fall 2025: Sept 15 β Nov 23β¨
ποΈ Winter 2026: Jan 19 β Mar 29β¨
π» All online.
πLearn more: tr.ee/lKU4zw
πApply now: tr.ee/Z1Kj79
#PatientEngagement
20.06.2025 20:24 β π 1 π 3 π¬ 0 π 0
Reflecting on our experience of partnering in research: Youth and trainee perspectives.
By Brian Xiao, Danielle DuPlessis, Josh Shore
to navigating realβworld challenges and hardβwon insights. Along the way, they highlight what worked (and what didnβt), the value of mutual respect, and key lessons about how to make familyβresearcher collaborations truly meaningful. /2
26.06.2025 20:25 β π 0 π 0 π¬ 1 π 0
Reflecting on our experience of partnering in research: Youth and trainee perspectives.
By Brian Xiao, Danielle DuPlessis, Josh Shore
Reflecting on partnership in research
In this thoughtful blog post from members and partners from Bloorview Research Institute at Holland Bloorview, they share their journey of collaborating with a research team, from gaining the opportunity to partner, /1
#PatientEngagement
26.06.2025 20:25 β π 0 π 0 π¬ 1 π 0
participants rated their overall course satisfaction on a scale of 1 to 10, with an average score of 8.6.
Ready to join a growing community of researchers and families working together?
π Applications are OPEN for the Family Engagement in Research Course!β¨
ποΈ Fall 2025: Sept 15 β Nov 23β¨
ποΈ Winter 2026: Jan 19 β Mar 29β¨
π» All online.
πLearn more: tr.ee/lKU4zw
πApply now: tr.ee/Z1Kj79
#PatientEngagement
20.06.2025 20:24 β π 1 π 3 π¬ 0 π 0
π Applications are OPEN for the Family Engagement in Research Course!β¨
ποΈ Fall 2025: Sept 15 β Nov 23β¨
ποΈ Winter 2026: Jan 19 β Mar 29β¨
π» All online.
πLink in bio for more information /2
@canchild.bsky.social
#parenting
16.06.2025 16:39 β π 0 π 0 π¬ 0 π 0
Our values
Authenticity: We build and foster trusting relationships
Inclusivity: We foster co-learning in supportive environments
Collaboration: We effectively work together
for change
Mutual Respect: We celebrate all knowing and experience
At the Family Engagement in Research (FER) Course, our work is grounded in four core values:Β
At the Family Engagement in Research (FER) Course, our work is grounded in four core values:
πAuthenticity
πInclusivity
π₯Collaboration
ππ½Mutual Respect
Do these resonate with you? Come join us! /1
#PatientEngagement #ConsumerInvolvement
16.06.2025 16:37 β π 0 π 0 π¬ 1 π 0
ποΈ Fall 2025: Sept 15 β Nov 23β¨
ποΈ Winter 2026: Jan 19 β Mar 29β¨
π» All online.
πLink in bio for more information
#education #thesis #science #dissertation #university
/2
13.06.2025 17:28 β π 0 π 0 π¬ 0 π 0
"I now feel better equipped to work alongside parents as research partners." -Researcher Graduate
Are you a researcher looking to strengthen your ability to collaborate meaningfully with families in research? This course is for you!
π Applications are OPEN for the Family Engagement in Research Course!β¨ /1
#PatientEngagement
13.06.2025 17:28 β π 1 π 1 π¬ 1 π 0
βStories from researchers and families
Donβt miss this opportunity to connect with like-minded individuals and discover how you can make an impact through training with the FER program.
Brought to you by CanChild, McMaster University, and Kids Brain Health Network.
π© RSVP now: Link in bio! /3
12.06.2025 17:53 β π 2 π 0 π¬ 0 π 0
Whether youβre a researcher, family member, or community partner, this event is for you!
π
When: Wed June 18 at 7:30-8:30pm ET and again Tues June 24 at 12-1pm ET
π Where: Virtual via Zoom
β¨ What to Expect:
Insights into the FER course
βInteractive Q&A session
12.06.2025 17:53 β π 1 π 0 π¬ 1 π 0
The Family Engagement in Research (FER) Course
Spring OPEN HOUSE
Thinking about taking the
FER Course? Not sure what it's really about? Have questions for us?
Wed June 18, 7:30-8:30pm ET
Tues June 24, 12-1pm ET
Online via Zoom
Registration link in bio
Can't make it?
Connect offline
fer@mcmaster.ca
ferprogram.ca
π Spring Open House Alert! π
The Open House is your opportunity to learn about the Family Engagement in Research (FER) Course, meet members of our team, and explore how our program can help you feel confident to partner in research. /1
#PatientEngagement
12.06.2025 17:53 β π 1 π 1 π¬ 1 π 0
You are up next!
π Applications are OPEN for the Family Engagement in Research Course!
ποΈ Fall 2025: Sept 15 β Nov 23
ποΈ Winter 2026: Jan 19 β Mar 29
π» All online.
πLink in bio for more information
#familyengagenent
#FERCourse
#consumerinvolvement
#PPI
@canchild.bsky.social
/2
11.06.2025 15:06 β π 0 π 0 π¬ 0 π 0
23 countries Map with pins. 713 grads. Join us! Application now open!
Learn more about the FER Course! Ferprogram.ca fer@mcmaster.ca @ferprogram (Instagram)
π Did you know the Family Engagement in Research (FER) Course has welcomed learners from 23 countries around the world?
Families, individuals with lived experience and researchers from all backgrounds have come together to learn, connect, and make research more meaningful. #patientengagenent
/1
11.06.2025 15:05 β π 1 π 1 π¬ 1 π 0
Family Engagement in Research | Instagram | Linktree
Building capacity and community in meaningful family engagement
ποΈ Fall 2025: Sept 15 β Nov 23β¨
ποΈ Winter 2026: Jan 19 β Mar 29β¨
π» All online!
πLinktree for more information:
linktr.ee/familyengage... /2
09.06.2025 16:25 β π 0 π 0 π¬ 0 π 0
Our vision is to transform the culture and practice of family engagement
in
health research and health care.
π At FER, our vision is to transform the culture and practice of family engagement in health research and health care.
Sounds like something you believe in too?
π Applications are OPEN for the Family Engagement in Research Course!β¨ /1
#consumerinvolvement #patientengagement
09.06.2025 16:25 β π 2 π 1 π¬ 1 π 0
Kids Brain Health Network is focused on early diagnosis, interventions, and support for children with neurodevelopmental disabilities and their families. Follow us on IG: @kidsbrainhealth
Supporting the development and commercialisation of medical technology for children and young people.
Research assistant at QMUL in childhood-onset hyperkinetic movement disorders and Multiple Sclerosis | PhD candidate at KCL (NIHR ARC South London) in Paediatric Palliative Care
Sharing the joys of being a first-time dog mom β€οΈ
SC π
Grizzle is a Rhodesian Ridgeback πΎ 06.02.2023
Help Grizzle get dysplasia surgery:
https://ko-fi.com/grizzlekofi/goal?g=37
Patient partner in research, quality improvement, standards development and governance initiatives with particular interest in AI, virtual care, digital health, and complex chronic illness. (all/any)
Saskatchewan Centre for Patient-Oriented Research
Endlessly curious. I am wont to find humour (note Canadian spelling) everywhere. Author, Death Kills and other things I've learned on the internet. TED talk: Exit Laughing. Oh so glad to be here where the sky is blue and the tone is true.
PhD Candidate @UAlberta researching pain experiences of equity-deserving kids. patient partnership & co-creation | knowledge mobilization | justice. she/theyπyeg π³οΈβπ Mom to πββοΈππππ
π³οΈβπ he/him β’ Global Patient Engagement Leader & Med Comms Specialist β’ Scientific Director, Amica Scientific β’ EULAR PARE Committee Chair β’ βοΈ β’ π β’ πΈ
Lecturer & mental health researcher on a mission to tackle inequalities. Working with young people, families, schools, VCSEs, local authorities, NHS.
Also, loves playing boardgames and reading feminist science/fantastic fiction.
PhD Candidate | Opioid Addictions | Co-Production | University of Sussex | REALab
Autistic. ADHD.. Democratic socialist.π Lives on the west coast of Sweden. 1 young adult son. Not a fan of the current politicians and leadership in the US. π
βΎοΈ health care is a human right!
An applied and partnered health services research program that develops innovations and practical solutions that contribute to sustainable improvements in quality of care and quality of life in long-term care (LTC) homes.
Public health researcher π | Patient & community engagement π€ | Chronic disease prevention π| Nutrition & health science π | Always learning!.
Researcher @ Flinders University
#PublicHealth #PatientEngagement #HealthResearch #CKD
The Canadian Arthritis Patient Alliance (CAPA) is a grass-roots, patient-driven, independent, national advocacy organization with members across Canada.
Communications firm working with experts including Nobel Laureates, academics and politicians to publish evidence-based commentaries on critical policy issues. www.quoimedia.com
Une voix forte pour lβinnovation
A leading voice for innovation
π¨π¦ Support Canadian innovation - subscribe!
Appuyez lβinnovation canadienne - suivez-nous!
youtube.com/@SavoirInnover
savoirinnover.ca
The Strategy for Patient-Oriented Research (SPOR) Evidence Alliance is a pan-Canadian research initiative designed to promote evidence-informed health policy and practice changes, with patient and public partner engagement embedded throughout.
Clinical health psychologist and supportive oncology researcher striving to improve cancer care across the continuum.