Alacka Spooner's Avatar

Alacka Spooner

@alacka.bsky.social

Lover of baking & dogs. Posting about ME/CFS, disability, NDIS, current affairs (not mine!) and life. Pronouns: She/her Location: Australia

191 Followers  |  172 Following  |  80 Posts  |  Joined: 30.08.2023  |  2.2909

Latest posts by alacka.bsky.social on Bluesky

I reckon they have a magic 8 ball to choose their reason. On those motorised blinds I got pretty much every one on my rejections x 2. They even made up their own non legal reasons and contradicted themselves. So ridiculous. Luckily I got a sensible planner last time and asked again and was funded.

14.08.2025 12:18 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

They tried that on me a while ago for an item. Iโ€™ve since read the McGarrigle federal court ruling where they interpreted reasonable family & carer support as referring to practical assistance i.e. labour not the provision of financial assistance.

14.08.2025 09:53 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Preview
Writers boycott Bendigo Writers Festival for demanding 'compliance' with controversial antisemitism rule Several notable speakers have already bowed out, with more set to follow, Crikey understands.

Exclusive | Speakers are boycotting the Bendigo Writers Festival after receiving a code of conduct from event organisers that required โ€œcomplianceโ€ with a controversial definition of antisemitism.

14.08.2025 06:07 โ€” ๐Ÿ‘ 146    ๐Ÿ” 67    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 21

They always word things may, generally etc because that gives them an out and they wonโ€™t always find such things for example itโ€™s not R&N or itโ€™s not for your accepted impairment. NDIS definitely isnโ€™t running well but the wording there is not the issue.

19.06.2025 04:48 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Who funds the supports you need when youโ€™re in custody? | NDIS The law sets out the responsibilities of different service systems, including the justice system.ย Some supports for participants in a justice setting may not be included. This happens if there is an a...

Prisoners can access Ndis. It responsible for a few things for prisoners. The bulk is justice system responsibility. ourguidelines.ndis.gov.au/how-ndis-sup...

19.06.2025 01:04 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

โ€œAt the time of writingโ€. They didnโ€™t remove things in price guide that are now against the law or were meant to be updated or removed so the price guide not changing is not a clear indicator, unfortunately.

19.06.2025 01:01 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Hi, this just popped up on my feed. Under 65 aged care is avail if you are at risk of entering resi aged care. My local acat had no idea u65 access was a thing so thought Iโ€™d share just in case your people donโ€™t know either. www.health.gov.au/topics/aged-...

13.06.2025 14:38 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Stand up for disability care! SARRAH urges the Australian Government to reject harmful proposed pricing changes. Read more at the link below

sarrah.au/NDIS

#ndis #advocacy #disabilitycare #homecare #ruralandremote #rural #remote #medsky

13.06.2025 05:02 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

The birthday cake gst answer was a key moment that lost Hewson an election, perhaps the egg price debate question will similarly be Duttonโ€™s downfall? Maybe Howard because heโ€™s the only PM to be voted in for consecutive terms in recent history so will albo do a Howard in this election?

03.05.2025 00:33 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Tomorrow Iโ€™ll reach the 190 week mark in my #NDIS home mods saga.

It was meant to be a one week job finished 15/3/25. Will it be finished this week as promised? I can but hope.

30.04.2025 11:40 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Iโ€™m one of the lucky ones who had great drs in my corner and I could grasp what was needed from them so I got access. The process though (incl a rejection first time) made me a lot sicker. If it had been simple Iโ€™d have gotten access a year earlier and not gotten so severe which costs ndis more.

14.04.2025 08:08 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Neither the PM or the wannabe PM can say the name of our country. What other basic things canโ€™t they manage? #auspol

27.03.2025 09:08 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Iโ€™d also like to see a civil suit against RACP or practitioners who have made people worse through GET. We are probably all too exhausted to do that though.
Iโ€™m severe now because of physio, not for GET but exercise to fix an injury causing repeated crashes & they kept pushing me.

21.03.2025 06:36 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Probably because the word โ€˜scooterโ€™ is in the vehicle list but thatโ€™s standard bikes and scooters. Not mobility scooters. Didnโ€™t they bother to check the In list? Or deploy a tiny bit of common sense?

17.02.2025 12:18 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Screenshot of ndis website of purple writing on white background. It includes the text โ€œPersonal mobility equipment
The provision of personal mobility equipment that supports or replaces a participant: capacity to move indoors and outdoors and to transfer from one place to another.
This includes:
โ€ข assistive products for walking
โ€ข wheelchairs and motorised mobility devices
โ€ข transfer devices and hoists
โ€ข services to train a participant in successful use of equipment provided
โ€ข maintenance, spare parts and consumable items specific to equipment provided.โ€

Screenshot of ndis website of purple writing on white background. It includes the text โ€œPersonal mobility equipment The provision of personal mobility equipment that supports or replaces a participant: capacity to move indoors and outdoors and to transfer from one place to another. This includes: โ€ข assistive products for walking โ€ข wheelchairs and motorised mobility devices โ€ข transfer devices and hoists โ€ข services to train a participant in successful use of equipment provided โ€ข maintenance, spare parts and consumable items specific to equipment provided.โ€

This is a mobility aid. Using one you are considered a pedestrian.
Travel and transport related to travelling at more than 10kph like cars, buses and trains.

17.02.2025 12:15 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Assistive technology repairs, maintenance and replacement | NDIS Like other equipment, your assistive technology may need repairs. If your item isnโ€™t of acceptable quality, fit for purpose, or doesnโ€™t work properly when it is first delivered to you, you should cont...

www.ndis.gov.au/participants...

17.02.2025 09:02 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Assistive technology repairs, maintenance and replacement | NDIS Like other equipment, your assistive technology may need repairs. If your item isnโ€™t of acceptable quality, fit for purpose, or doesnโ€™t work properly when it is first delivered to you, you should cont...

I have a separate Capital category for maintenance. You can use consumables for minor things. So is your PM saying no because you donโ€™t have the category, because he thinks no maintenance is allowed now or because its over $1500?

17.02.2025 09:02 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 0

PM is wrong.
Do you have AT maintenance funding in capital? Because thatโ€™s exactly what itโ€™s for. They should fund an amount for all your equipment in each plan.

17.02.2025 08:32 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Welcome to NDIS where you jump when they say jump.
You do need referral for service so they can claim so thatโ€™s important. Same with support coordinator. OT you donโ€™t but get on wait lists asap. I picked SC randomly so my first plan wasnโ€™t delayed. Then sacked them a few weeks later.

16.02.2025 01:37 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

I was looking at the OG earlier this week and noticed NDIA hadnโ€™t updated to the 90days yet.

12.02.2025 01:15 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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NDIA expenditure on individual law firms for 2023-2024 - a Freedom of Information request to National Disability Insurance Agency Please provide the following information about all law firms engaged by the NDIA in 2023-2024 for matters to which the NDIA was a Respondent at the Administrative Appeals Tribunal (AAT): 1) A list o...

The NDIA spent thirty-seven MILLION fighting disabled people & their families in court to stop us getting supports in 2023-2024.

In 2019-2021 they apparently lost 76% of cases at the then AAT.

So much for that 'waste clock' and demonising the disabled.

www.righttoknow.org.au/request/ndia...

11.02.2025 01:59 โ€” ๐Ÿ‘ 26    ๐Ÿ” 10    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 1

Scary, scary times in the USA.

01.02.2025 11:07 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Breaking: Vital Long COVID data taken down following Trump order - The Sick Times A key source of U.S. Long COVID data is now offline following a purge of information related to sexual orientation and gender identity ordered by President Donald Trumpโ€™s administration. The Household...

BREAKING: The Household Pulse Survey, a key source of Long COVID prevalence data, was among the CDC pages taken down today following Trump's order to remove โ€œgender ideologyโ€ references.

More @thesicktimes.bsky.social: thesicktimes.org/2025/01/31/b...

31.01.2025 23:38 โ€” ๐Ÿ‘ 106    ๐Ÿ” 66    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 4

Iโ€™d have the name was a pretty clear warning!

03.01.2025 21:46 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Iโ€™d much rather fly Virgin than Jetstar but looks like neither are an option for me to get to Sunshine coast again. My chair exceeds size&weight for Jetstar. Virgin has same plane & dimensions as qantas BUT it has a weight limit which my chair exceeds. I donโ€™t think Iโ€™m up for that battle.

19.12.2024 07:08 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Was this with a wheelchair assist booking or without? I assume 2 max policy? I flew Virgin once narrow body plane where theyโ€™d booked 6 wc assist passengers. Mild panic from staff but we all got to where we were going. I donโ€™t see why they canโ€™t handle more than 2 regularly.

19.12.2024 02:34 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

I hope you can access something soon.

19.12.2024 01:58 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Iโ€™m similar level of function. I got rejected first go for ndis. Aged care werenโ€™t keen to help, locally theyโ€™d never heard of early access to aged care gone care packages even though a lot of us access it. They were going to apply for some other funding Iโ€™d never heard of for me instead.

17.12.2024 11:03 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Having support once medicos is the big challenge. With telehealth thereโ€™s some more options for specialists now if you were wanting to try again. DG and AF may have knowledge of programs you donโ€™t know about and wonโ€™t find on the web yourself. Worth a try.

17.12.2024 11:03 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 0

PS: I have me/cfs and people definitely do qualify with that as a disability. Applying is a mammoth task for us though.

17.12.2024 10:51 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 0

@alacka is following 20 prominent accounts