Helene M  Epstein Author's Avatar

Helene M Epstein Author

@helenemepstein.substack.com

Writer. Advocate. Speaker. Patient Empowerment. Patient Safety. In 2025, Iโ€™m sharing two chapters a month of my current book: ๐—” ๐—š๐˜‚๐—ถ๐—ฑ๐—ฒ ๐˜๐—ผ ๐—ฆ๐˜‚๐—ฟ๐˜ƒ๐—ถ๐˜ƒ๐—ถ๐—ป๐—ด ๐—”๐—บ๐—ฒ๐—ฟ๐—ถ๐—ฐ๐—ฎ๐—ป ๐—›๐—ฒ๐—ฎ๐—น๐˜๐—ต๐—ฐ๐—ฎ๐—ฟ๐—ฒ. Subscribe FREE at HeleneMEpstein.substack.com

105 Followers  |  211 Following  |  143 Posts  |  Joined: 08.12.2024  |  2.01

Latest posts by helenemepstein.substack.com on Bluesky

It's bad here. It will be worse in the red states. Thanks for sharing. Important info here.โคต๏ธ

31.07.2025 22:34 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

It's bad here. It will be worse in the red states. Thanks for sharing. Important info here.

31.07.2025 22:33 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Online medical info is both a boon to patient autonomy & a dangerous source of unreliable advice, products, & bad data. Ch 13 covers how to use the three main resources โ€“โ€“ social media crowd-sourcing, symptom checkers & AI chatbots โ€“โ€“while protecting yourself.
bit.ly/13Online
#HealthTech

31.07.2025 22:31 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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[Spoiler] The attacks against our rights have been so constant, even the games in the @nytimes now remind us of our constitutional freedoms! #strands #Constitution #Vote #Speech #Assembly #Liberty #Life

30.07.2025 16:12 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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A Push for More Organ Transplants Is Putting Donors at Risk

The ultimate #Misdiagnosis, premature organ donation. Gift link: www.nytimes.com/2025/07/20/u...

21.07.2025 17:25 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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My favorite doctors share their doubts when itโ€™s called for. Iโ€™m seeking accuracy, not speed. Of course, I expect them to 1st rule out any life-threatening conditions quickly, then commit to getting the necessary answers. ๐˜›๐˜ฆ๐˜ญ๐˜ญ ๐˜ฎ๐˜ฆ ๐˜บ๐˜ฐ๐˜ถ ๐˜ฅ๐˜ฐ๐˜ฏโ€™๐˜ต ๐˜ฌ๐˜ฏ๐˜ฐ๐˜ธ ๐˜ฃ๐˜ถ๐˜ต ๐˜ฑ๐˜ณ๐˜ฐ๐˜ฎ๐˜ช๐˜ด๐˜ฆ ๐˜ฎ๐˜ฆ ๐˜บ๐˜ฐ๐˜ถ ๐˜ธ๐˜ฐ๐˜ฏโ€™๐˜ต ๐˜ญ๐˜ฆ๐˜ข๐˜ท๐˜ฆ ๐˜ฎ๐˜ฆ bit.ly/DxUncertain

16.07.2025 00:01 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Do you know the 4 major barriers to getting a second opinion and how to get past them? The answers are in my latest chapter ๐—š๐—ฒ๐˜ ๐—” ๐—ฆ๐—ฒ๐—ฐ๐—ผ๐—ป๐—ฑ ๐—ข๐—ฝ๐—ถ๐—ป๐—ถ๐—ผ๐—ป. ๐—š๐—ฒ๐˜ ๐—” ๐—ฆ๐—ฒ๐—ฐ๐—ผ๐—ป๐—ฑ ๐—ข๐—ฝ๐—ถ๐—ป๐—ถ๐—ผ๐—ป. ๐—š๐—ฒ๐˜ ๐—” ๐—ฆ๐—ฒ๐—ฐ๐—ผ๐—ป๐—ฑ ๐—ข๐—ฝ๐—ถ๐—ป๐—ถ๐—ผ๐—ป. (And it's 100% free)
helenemepstein.substack.com/i/167293196/...
#Misdiagnosis #SecondOpinions #PatientSafety

03.07.2025 05:32 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

It's a fantastic project!

03.07.2025 05:29 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Throughout my book, I consistently recommend getting a second opinion. Here are the What, Why, When, How and How Much of getting Second Opinions. bit.ly/2nd-Opinions
#SecondOpinion #PatientSafety #Surgery #PeaceOfMind #Cancer #Scheduling #Multidisciplinary #PatientAdvocate #RemoteSecondOpinions

01.07.2025 23:53 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Blown away by this pledge. Dr. Mark Graber is a visionary. Over 15 years ago, Mark identified that the biggest patient safety issue is misdiagnosis. His leadership has made patient lives healthier & safer. I've long admired him; his support means the world to me. open.substack.com/pub/heleneme...?

28.06.2025 01:19 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

The Bear is back Wednesday night! #TheBearHulu

23.06.2025 14:58 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Jess Craven on Substack OK so this is raw and Iโ€™m sorry for that. But whatโ€™s happing in Los Angeles is horrifying.

Watch to the end. Share everywhere. This is important.
#LA #Immigration #AnneFrank #FascismInAction
substack.com/@jesscraven1...?

21.06.2025 15:45 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
#517 Patient No More: Medical Harm, Misdiagnosis, and Taking Control with Helene M. Epstein
YouTube video by The ShiftShapers Podcast #517 Patient No More: Medical Harm, Misdiagnosis, and Taking Control with Helene M. Epstein

This podcast specifically covers the difficulty of getting diagnosed properly if you have #Endometriosis, #MECFS, #LymeDisease, #AutoImmune diseases, + for #Women, #Seniors, #Children, #Immigrants & God help you if youโ€™re a #BlackFemale! youtu.be/KteebB8svDY
2/2

17.06.2025 17:44 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
#517 Patient No More: Medical Harm, Misdiagnosis, and Taking Control with Helene M. Epstein
YouTube video by The ShiftShapers Podcast #517 Patient No More: Medical Harm, Misdiagnosis, and Taking Control with Helene M. Epstein

I love doing podcasts! (Although you canโ€™t tell by my face) I especially had fun doing this one. The host is wonderful. Itโ€™s a wide-ranging discussion about the size & cost of medical error & the kinds of patient harms that occur because of it. Plus #solutions. youtu.be/KteebB8svDY 1/2

17.06.2025 17:44 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
A Black female patient is asking her doctor for help with her symptoms, her pain, with a colorful array of word sound waves. But his back is turned to her and he is not helping her.

A Black female patient is asking her doctor for help with her symptoms, her pain, with a colorful array of word sound waves. But his back is turned to her and he is not helping her.

Gaslighted, Dismissed or Ignored By Your Doctor? All three are dangerous to your health. Do you know the difference? Why they each happen and how to combat them? There are steps you can take when it happens to you or someone you love. Here are NINE of them. bit.ly/Ch10Gaslighted
#PatientEmpowerment

13.06.2025 07:55 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Sen. Alex Padilla is forcibly removed from DHS Secretary Kristi Noem's news conference in Los Angeles Noem was in L.A. to address the ongoing demonstrations against President Donald Trump's immigration policies.

"If this is how this administration responds to a senator with a question, if this is how [DHS] responds to a senator with a question, you can only imagine what theyโ€™re doing to farm workers, to cooks, to day laborers" in the LA community, throughout California & throughout the country.โ€
#ICE

12.06.2025 20:35 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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4 of 4. ...due process, the vacuuming up of our private data, the attacks on rule of law,or the police state that's just around the corner. Let's also protest to support the strength of our judicial system!
#BodilyAutonomy #ReproductiveRights #DueProcess #Privacy #RuleOfLaw #SupportJudges

09.06.2025 17:05 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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3 of 4. ...institutions like #universities, the cowardly weakness of the members of #Congress, the crippling #tariffs and inconsistent economic actions that harm so many small and medium businesses, the attack on...
#BodilyAutonomy #ReproductiveRights #DueProcess #Privacy #RuleOfLaw #SupportJudges

09.06.2025 17:05 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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2 of4. ...destruction of funding for #science and #publichealth, the dismantling of #DEI, the #misogyny and wish to control women's bodies, the lack of intellect and planning while they destroy our educational ...

#BodilyAutonomy #ReproductiveRights #DueProcess #Privacy #RuleOfLaw #SupportJudges

09.06.2025 17:05 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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1 of 4. On June 14, and every day you protest, help maintain civil control. ๐——๐—ผ๐—ป'๐˜ ๐—ด๐—ถ๐˜ƒ๐—ฒ ๐˜๐—ต๐—ฒ๐—บ ๐—ฎ๐—ป ๐—ฒ๐˜…๐—ฐ๐˜‚๐˜€๐—ฒ ๐˜๐—ผ ๐—ฑ๐—ฒ๐—ฐ๐—น๐—ฎ๐—ฟ๐—ฒ ๐—บ๐—ฎ๐—ฟ๐˜๐—ถ๐—ฎ๐—น ๐—น๐—ฎ๐˜„!

Whether you are protesting against the demonization of #immigrants, the...

#BodilyAutonomy #ReproductiveRights #DueProcess #Privacy #RuleOfLaw #SupportJudges

09.06.2025 17:05 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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Justices Grant DOGE Access to Social Security Data and Let the Team Shield Records

Are you flipping kidding me?! SCOTUS Justices Grant DOGE Access to Social Security Data and Let the Team Shield Records www.nytimes.com/2025/06/06/u...

07.06.2025 01:30 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
The author is leaning on a fiberglass pig sculpture on a street in Stamford. The pig is seated and the outside of its body is covered in Chinese symbols to replicate antique porcelain.

The author is leaning on a fiberglass pig sculpture on a street in Stamford. The pig is seated and the outside of its body is covered in Chinese symbols to replicate antique porcelain.

I made a new friend! A new temporary outdoor art exhibit featuring 26 fiberglass piggies called OINK! in Stamford Downtown. This lovely gal is modeled after classic Chinese porcelain and is outside our fantastic library.

05.06.2025 02:56 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Our credibility is already shot. No other country's leaders trust us anymore and they're right not to. The majority of the American citizens no longer trust this administration either.

04.06.2025 14:01 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

There's a woman in a social media group I'm in who attacks everybody and writes only in ALL CAPS ALL THE TIME. They tolerate her behavior because she has dementia. Perhaps constantly attacking others and writing inALL CAPS is a sign that Trump has dementia.

04.06.2025 13:48 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

๐Ÿ˜Ÿ๐Ÿฅบ๐Ÿ˜”๐Ÿ’” Iโ€™m horrified with the ICE version of American justice & its corrupt leadership. Now, the most law-abiding immigrants, the ones who go to court to become legal residents, are being scooped up. Why? To meet a quota quickly because real criminals hide from the law & finding them is too much work

03.06.2025 04:43 โ€” ๐Ÿ‘ 8    ๐Ÿ” 3    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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Obscure provision in House bill threatens enforcement of court rulings on Trump At stake is whether judges can enforce their orders blocking Trump policies that are ruled unlawful, as they already have 180 times.

โ€œWithout the threat of contempt, legal experts say the Trump administration could ignore court orders with impunity.โ€

Project 2025 was once a secret. Now itโ€™s being written into our country.
www.usatoday.com/story/news/p...

02.06.2025 20:09 โ€” ๐Ÿ‘ 1338    ๐Ÿ” 442    ๐Ÿ’ฌ 87    ๐Ÿ“Œ 28
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A Documentary About Life, Death and โ€˜The Cathedralโ€™

JIMMY & THE DEMONS opens at the Tribecca Film Festival June 8th. The first 3 screenings sold out so they added a 4th A few tickets are left for 6/15. We love you, Uncle Jimmy!
www.nytimes.com/2025/06/01/m...

02.06.2025 13:04 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Of course it did. Because they just don't care if they get the Science right. Plus, that's what happens when you try to bend the facts to your fantasies. You have to make sh*t up.

30.05.2025 07:04 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

I left Twitter before it was X because Elon Musk posted a Pepe the frog message. This is worse. The QAnon language, the symbologyโ€ฆ I'm also hearing rumors that he's going to use a false flag operation during the June 14 ego parade to declare an emergency & take on war powers. Hope that's inaccurate

29.05.2025 14:09 โ€” ๐Ÿ‘ 9    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Glad to meet you, too.

26.05.2025 23:34 โ€” ๐Ÿ‘ 3    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

@helenemepstein.substack.com is following 20 prominent accounts